Faith Jegede: What I've learned from my autistic brothers | TED

126,957 views ・ 2012-11-02

TED


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00:00
Translator: Joseph Geni Reviewer: Morton Bast
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Translator: Rosa M Salas Reviewer: Núria Núñez
00:16
Today I have just one request.
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Avui només us vull demanar una cosa.
00:19
Please don't tell me I'm normal.
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Si us plau, no em digueu que sóc normal.
00:22
Now I'd like to introduce you to my brothers.
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M'agradaria presentar-vos als meus germans.
00:27
Remi is 22,
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En Remi té 22 anys,
00:29
tall and very handsome.
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és alt i molt guapo.
00:32
He's speechless, but he communicates joy
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No parla, però transmet alegria
00:36
in a way that some of the best orators cannot.
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d'una manera que ni alguns dels millors oradors poden.
00:40
Remi knows what love is.
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En Remi sap què és l'amor.
00:43
He shares it unconditionally and he shares it regardless.
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El comparteix sigui com sigui, de manera incondicional.
00:47
He's not greedy. He doesn't see skin color.
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No és cobdiciós. No es fixa en el color de la pell.
00:50
He doesn't care about religious differences, and get this:
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No li preocupen les diferències religioses, i fixeu-vos en això:
00:54
He has never told a lie.
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no ha dit mai una mentida.
00:57
When he sings songs from our childhood,
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Quan canta cançons de quan érem petits,
01:00
attempting words that not even I could remember,
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empra paraules que ni tan sols jo puc recordar,
01:02
he reminds me of one thing:
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i em recorda una cosa:
01:05
how little we know about the mind, and how wonderful
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que poc sabem sobre la ment i com de meravellós
01:07
the unknown must be.
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és allò que és desconegut.
01:11
Samuel is 16. He's tall. He's very handsome.
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En Samuel té 16 anys. És alt. És molt guapo.
01:17
He has the most impeccable memory.
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Té una memòria impecable.
01:20
He has a selective one, though.
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Selectiva, però.
01:23
He doesn't remember if he stole my chocolate bar,
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No recorda si em va prendre una xocolatina,
01:27
but he remembers the year of release for every song on my iPod,
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però recorda l'any en què va sortir cadascuna de les cançons que tinc en el meu iPod,
01:30
conversations we had when he was four,
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recorda converses que vàrem tenir quan ell tenia quatre anys,
01:32
weeing on my arm on the first ever episode of Teletubbies,
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com es va fer pipi al meu braç quan es va emetre el primer episodi dels Teletubbies,
01:36
and Lady Gaga's birthday.
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i l'aniversari de Lady Gaga.
01:39
Don't they sound incredible?
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No és increïble?
01:42
But most people don't agree.
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Però la majoria de la gent no hi està d'acord .
01:45
And in fact, because their minds don't fit
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I, de fet, com que les seves ments no s'ajusten
01:48
into society's version of normal,
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a allò que la societat entén per normalitat,
01:50
they're often bypassed and misunderstood.
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sovint es prescindeix d'ells i se'ls malinterpreta.
01:53
But what lifted my heart and strengthened my soul
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Però el que m'animava i m'enfortia
01:57
was that even though this was the case,
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era que tot i que això fos cert,
01:59
although they were not seen as ordinary,
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tot i que no se'ls considerés gent normal,
02:02
this could only mean one thing:
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això només podia significar una cosa:
02:05
that they were extraordinary --
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que eren extraordinaris,
02:08
autistic and extraordinary.
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autistes i extraordinaris.
02:12
Now, for you who may be less familiar with the term "autism,"
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Bé, per a aquells qui esteu poc familiaritzats amb el terme "autisme",
02:17
it's a complex brain disorder that affects social communication,
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diré que és un trastorn complex del cervell, que afecta la comunicació social,
02:21
learning and sometimes physical skills.
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l'aprenentatge i de vegades algunes habilitats físiques.
02:24
It manifests in each individual differently,
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Es manifesta de forma diferent en cada individu,
02:27
hence why Remi is so different from Sam.
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per això en Remi és tan diferent d'en Sam.
02:30
And across the world, every 20 minutes, one new person
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I a tot el món, cada 20 minuts, una persona
02:33
is diagnosed with autism, and although it's one of
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és diagnosticada amb autisme, i tot i que és un dels
02:35
the fastest-growing developmental disorders in the world,
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trastorns del desenvolupament que creix més ràpidament al món,
02:39
there is no known cause or cure.
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no es coneixen les causes, ni tampoc la cura.
02:42
And I cannot remember the first moment I encountered autism,
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I no m'enrecordo del primer moment què vaig saber de l'autisme,
02:45
but I cannot recall a day without it.
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però tampoc puc recordar un dia sense que hi estigués present.
02:48
I was just three years old when my brother came along,
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Tenia només tres anys quan va nèixer el meu germà,
02:51
and I was so excited that
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i estava molt emocionada perquè
02:53
I had a new being in my life.
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hi havia un nou ésser en la meva vida.
02:56
And after a few months went by,
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Després de passar uns quants mesos,
02:59
I realized that he was different.
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em vaig adonar que era diferent.
03:01
He screamed a lot.
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Cridava molt.
03:03
He didn't want to play like the other babies did,
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A diferència dels altres nadons, no volia jugar
03:06
and in fact, he didn't seem
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i, de fet, tampoc no semblava
03:08
very interested in me whatsoever.
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gaire interessat en mi.
03:11
Remi lived and reigned in his own world, with his own rules,
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En Remi vivia i regnava en el seu propi món, tenia les seves pròpies normes,
03:15
and he found pleasure in the smallest things,
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i trobava plaer en les coses més petites,
03:17
like lining up cars around the room
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coses com alinear cotxes al voltant de l'habitació
03:20
and staring at the washing machine
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o mirar fixament la rentadora
03:22
and eating anything that came in between.
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i menjar qualsevol cosa que li caigués a les mans.
03:25
And as he grew older, he grew more different,
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I a mesura que es feia gran, també es feia més diferent,
03:29
and the differences became more obvious.
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i les diferències eren més evidents.
03:31
Yet beyond the tantrums and the frustration
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Però més enllà de les rebequeries i la frustració,
03:35
and the never-ending hyperactivity
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i de la hiperactivitat interminable
03:38
was something really unique:
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hi havia quelcom realment únic:
03:40
a pure and innocent nature, a boy who saw the world
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una naturalesa pura i innocent, un noi que veia el món
03:44
without prejudice, a human who had never lied.
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sense prejudicis, un ésser humà que mai no havia mentit.
03:50
Extraordinary.
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Extraordinari.
03:53
Now, I cannot deny that there have been
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Ara bé, no negaré que hi ha hagut
03:55
some challenging moments in my family,
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alguns moments difícils a la meva família,
03:57
moments where I've wished that they were just like me.
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moments en què he desitjat que els meus germans fossin com jo.
04:00
But I cast my mind back to the things that they've taught me
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Però faig memòria de les coses que ells m'han ensenyat
04:03
about individuality and communication and love,
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sobre la individualitat i la comunicació i l'amor,
04:07
and I realize that these are things that
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i m'adono que aquestes són coses que
04:10
I wouldn't want to change with normality.
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no voldria canviar per la normalitat.
04:15
Normality overlooks the beauty that differences give us,
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La normalitat no ens permet veure la bellesa que les diferències ens donen
04:20
and the fact that we are different doesn't mean that one of us is wrong.
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i el fet que siguem diferents no significa que un de nosaltres estigui malament.
04:23
It just means that there's a different kind of right.
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Simplement vol dir que hi ha un altre tipus de "normalitat".
04:27
And if I could communicate just one thing to Remi
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I si pogués comunicar una sola cosa a en Remi
04:31
and to Sam
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i a en Sam
04:33
and to you,
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i a vosaltres,
04:35
it would be that you don't have to be normal.
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seria que no s'ha de ser normal.
04:39
You can be extraordinary.
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Podeu ser extraordinaris.
04:43
Because autistic or not,
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Perquè autistes o no,
04:45
the differences that we have --
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les diferències que tenim...
04:47
We've got a gift! Everyone's got a gift inside of us,
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Tenim un do! Tothom té un do dins seu,
04:51
and in all honesty, the pursuit of normality
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i essent totalment honesta, la recerca de la normalitat
04:55
is the ultimate sacrifice of potential.
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és el sacrifici final del nostre potencial.
04:58
The chance for greatness, for progress and for change
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L'oportunitat de ser grans, de progressar i canviar
05:02
dies the moment we try to be like someone else.
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mor en el moment que intentem ser com algú altre.
05:06
Please -- don't tell me I'm normal.
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Si us plau - no em digueu que sóc normal.
05:09
Thank you. (Applause)
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Gràcies. (Aplaudiments)
05:12
(Applause)
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(Aplaudiments)
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