Faith Jegede: What I've learned from my autistic brothers | TED

127,526 views ・ 2012-11-02

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00:00
Translator: Joseph Geni Reviewer: Morton Bast
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譯者: Geoff Chen 審譯者: Mei Lien Lin
00:16
Today I have just one request.
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今天,我只有一個請求:
00:19
Please don't tell me I'm normal.
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請不要告訴我,我很正常。
00:22
Now I'd like to introduce you to my brothers.
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現在,我想介紹我的弟弟們。
00:27
Remi is 22,
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Remi 今年 22 歲,
00:29
tall and very handsome.
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他個子很高,也非常帥,
00:32
He's speechless, but he communicates joy
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他不能說話,但他能傳達喜樂,
00:36
in a way that some of the best orators cannot.
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就算是最佳的辯才也無法做到。
00:40
Remi knows what love is.
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Remi 知道什麼是愛,
00:43
He shares it unconditionally and he shares it regardless.
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他無條件地分享它,不顧一切地分享它。
00:47
He's not greedy. He doesn't see skin color.
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他不貪婪,他無視膚色,
00:50
He doesn't care about religious differences, and get this:
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他不關心宗教差異,還有,聽聽這:
00:54
He has never told a lie.
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他從未說過謊。
00:57
When he sings songs from our childhood,
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當他唱我們童年的歌,
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attempting words that not even I could remember,
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唱著我甚至無法憶起的語句,
01:02
he reminds me of one thing:
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他使我想起一件事:
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how little we know about the mind, and how wonderful
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我們對心靈所知甚少,
01:07
the unknown must be.
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而這未知的領域是多麼美好。
01:11
Samuel is 16. He's tall. He's very handsome.
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Samuel 今年 16 歲,他個子很高,也非常帥,
01:17
He has the most impeccable memory.
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他有絕佳的記憶力,
01:20
He has a selective one, though.
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儘管他選擇性地記憶。
01:23
He doesn't remember if he stole my chocolate bar,
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他不記得他是否偷過我的巧克力棒,
01:27
but he remembers the year of release for every song on my iPod,
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但他記得我 iPod 裡每一首歌發行的年份,
01:30
conversations we had when he was four,
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他記得我們在他 4 歲時的談話內容,
01:32
weeing on my arm on the first ever episode of Teletubbies,
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記得蜷在我臂彎裡看第一集的天線寶寶,
01:36
and Lady Gaga's birthday.
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也記得 Lady Gaga 的生日。
01:39
Don't they sound incredible?
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這些聽起來難以置信吧?
01:42
But most people don't agree.
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但大多數人不同意。
01:45
And in fact, because their minds don't fit
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事實上,因為他們的心靈
01:48
into society's version of normal,
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與社會所定義的正常格格不入,
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they're often bypassed and misunderstood.
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所以他們往往被忽略與誤解。
01:53
But what lifted my heart and strengthened my soul
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但,那使我心志強大的是,
01:57
was that even though this was the case,
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就算如此,
01:59
although they were not seen as ordinary,
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就算他們不被看成正常人,
02:02
this could only mean one thing:
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這只能代表說:
02:05
that they were extraordinary --
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他們是出眾的 - -
02:08
autistic and extraordinary.
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自閉症與出眾的。
02:12
Now, for you who may be less familiar with the term "autism,"
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有些人可能不太熟悉「自閉症」這詞,
02:17
it's a complex brain disorder that affects social communication,
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自閉症是複雜的大腦失調,影響患者社會溝通、
02:21
learning and sometimes physical skills.
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學習、以及偶爾影響技能的一種疾病。
02:24
It manifests in each individual differently,
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它在每個人身上以不同的方式呈現,
02:27
hence why Remi is so different from Sam.
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因此,這就是為什麼 Remi 和 Sam 是如此不同。
02:30
And across the world, every 20 minutes, one new person
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全世界,每隔 20 分鐘,會有一個新的人
02:33
is diagnosed with autism, and although it's one of
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被診斷為自閉症患者。而且,儘管它是
02:35
the fastest-growing developmental disorders in the world,
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世上增加速度最快的發育障礙,
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there is no known cause or cure.
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目前醫學界尚未發現這個疾病的原因或治癒療程。
02:42
And I cannot remember the first moment I encountered autism,
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我記不起自己第一次面對自閉症的時刻,
02:45
but I cannot recall a day without it.
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然而,我卻無法記得自己哪一天沒經歷它。
02:48
I was just three years old when my brother came along,
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在我只有三歲時,我弟弟來到這世上,
02:51
and I was so excited that
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當時我很興奮地
02:53
I had a new being in my life.
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得知有一個新的生命在我面前。
02:56
And after a few months went by,
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而後,幾個月過去了,
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I realized that he was different.
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我意識到他是不同的。
03:01
He screamed a lot.
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他經常尖叫,
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He didn't want to play like the other babies did,
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他不想像其他嬰兒一樣玩耍,
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and in fact, he didn't seem
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事實上,他似乎也
03:08
very interested in me whatsoever.
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不怎麼對我感興趣。
03:11
Remi lived and reigned in his own world, with his own rules,
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Remi 居住、統領他自己的世界,用他自己的規則;
03:15
and he found pleasure in the smallest things,
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他在最小的事物中發掘樂趣,
03:17
like lining up cars around the room
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比如在房裡排列車子、
03:20
and staring at the washing machine
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盯著洗衣機、
03:22
and eating anything that came in between.
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和吃下任何出現在他面前的東西。
03:25
And as he grew older, he grew more different,
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隨著他長大,他變得更不同了,
03:29
and the differences became more obvious.
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差異變得更加明顯。
03:31
Yet beyond the tantrums and the frustration
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在壞脾氣、沮喪、
03:35
and the never-ending hyperactivity
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和無止境的好動之外,
03:38
was something really unique:
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他有獨特的特質:
03:40
a pure and innocent nature, a boy who saw the world
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一個純脆、天真的個性。他是一個對世界
03:44
without prejudice, a human who had never lied.
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毫無偏見的男孩,一個永遠不會說謊的人。
03:50
Extraordinary.
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這很出眾。
03:53
Now, I cannot deny that there have been
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我不能否認的是,在我家
03:55
some challenging moments in my family,
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曾經有過艱難的時刻,
03:57
moments where I've wished that they were just like me.
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在那些時刻,我曾希望他們就只是和我一樣。
04:00
But I cast my mind back to the things that they've taught me
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但我改變了想法,他們教會了我
04:03
about individuality and communication and love,
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成為一個個體、溝通、與愛。
04:07
and I realize that these are things that
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我意識到了這些東西是
04:10
I wouldn't want to change with normality.
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我不想從俗改變的。
04:15
Normality overlooks the beauty that differences give us,
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所謂的正常忽視了差異帶給我們的美麗,
04:20
and the fact that we are different doesn't mean that one of us is wrong.
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我們之間之所以不同,並不代表我們其中某人是錯的,
04:23
It just means that there's a different kind of right.
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而是意味著,有一種不同的正確存在著。
04:27
And if I could communicate just one thing to Remi
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如果我只有一個想法可以告訴 Remi、
04:31
and to Sam
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Sam、
04:33
and to you,
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和你們,
04:35
it would be that you don't have to be normal.
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那就是,你不須要是正常的。
04:39
You can be extraordinary.
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你可以做非比尋常的人。
04:43
Because autistic or not,
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因為無論自閉症與否,
04:45
the differences that we have --
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我們擁有的差異是:
04:47
We've got a gift! Everyone's got a gift inside of us,
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我們有天賦!我們每個人都有天賦、
04:51
and in all honesty, the pursuit of normality
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和完全的誠實;
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is the ultimate sacrifice of potential.
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追求正常最終犧牲了自身的潛質。
04:58
The chance for greatness, for progress and for change
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追求偉大、 進步、和改變的時機
05:02
dies the moment we try to be like someone else.
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在我們嘗試扮演其他人時便已消失殆盡。
05:06
Please -- don't tell me I'm normal.
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請別告訴我,我很正常。
05:09
Thank you. (Applause)
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謝謝。(掌聲)
05:12
(Applause)
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(掌聲)
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