Faith Jegede: What I've learned from my autistic brothers | TED

126,771 views ・ 2012-11-02

TED


μ•„λž˜ μ˜λ¬Έμžλ§‰μ„ λ”λΈ”ν΄λ¦­ν•˜μ‹œλ©΄ μ˜μƒμ΄ μž¬μƒλ©λ‹ˆλ‹€.

00:00
Translator: Joseph Geni Reviewer: Morton Bast
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λ²ˆμ—­: JY Kang κ²€ν† : castor J
00:16
Today I have just one request.
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였늘 λΆ€νƒλ“œλ¦΄ 게 ν•˜λ‚˜ μžˆμŠ΅λ‹ˆλ‹€.
00:19
Please don't tell me I'm normal.
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μ œκ°€ ν‰λ²”ν•˜λ‹€κ³  λ§ν•˜μ§€ λ§μ•„λ‹¬λΌλŠ” κ²ƒμž…λ‹ˆλ‹€.
00:22
Now I'd like to introduce you to my brothers.
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이제 제 ν˜•μ œλ“€μ„ μ†Œκ°œν•˜κ² μŠ΅λ‹ˆλ‹€.
00:27
Remi is 22,
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λ ˆλ―ΈλŠ” 22살이고,
00:29
tall and very handsome.
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ν‚€κ°€ 크고 μ•„μ£Ό 잘 μƒκ²ΌμŠ΅λ‹ˆλ‹€.
00:32
He's speechless, but he communicates joy
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κ·ΈλŠ” 말이 μ—†μ§€λ§Œ, 말 잘 ν•˜λŠ” μ‚¬λžŒλ“€μ΄ ν•  수 μžˆλŠ” κ²ƒκ³ΌλŠ”
00:36
in a way that some of the best orators cannot.
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쑰금 λ‹€λ₯Έ λ°©μ‹μœΌλ‘œ 즐거움과 μ†Œν†΅ν•©λ‹ˆλ‹€.
00:40
Remi knows what love is.
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λ ˆλ―ΈλŠ” μ‚¬λž‘μ΄ 무엇인지 μ•Œκ³  μžˆμ§€μš”.
00:43
He shares it unconditionally and he shares it regardless.
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κ·ΈλŠ” 쑰건없이 μ‚¬λž‘μ„ λ² ν’€κ³ , μ°¨λ³„ν•˜μ§€λ„ μ•ŠμŠ΅λ‹ˆλ‹€.
00:47
He's not greedy. He doesn't see skin color.
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κ·ΈλŠ” μš•μ‹¬μ΄ μ—†μŠ΅λ‹ˆλ‹€. κ·ΈλŠ” 피뢀색을 보지 μ•Šμ•„μš”.
00:50
He doesn't care about religious differences, and get this:
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κ·ΈλŠ” 쒅ꡐ적 차이도 신경쓰지 μ•ŠμŠ΅λ‹ˆλ‹€. κ²Œλ‹€κ°€,
00:54
He has never told a lie.
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κ·ΈλŠ” μ ˆλŒ€λ‘œ 거짓말을 ν•˜μ§€ μ•ŠμŠ΅λ‹ˆλ‹€.
00:57
When he sings songs from our childhood,
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κ·Έκ°€ 우리의 μ–΄λ¦° μ‹œμ ˆ λ…Έλž˜λ₯Ό λΆ€λ₯Ό λ•Œ,
01:00
attempting words that not even I could remember,
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μ œκ°€ κΈ°μ–΅ν•˜μ§€λ„ λͺ»ν•˜λŠ” 단어듀을 λ§ν•˜λ©΄μ„œ,
01:02
he reminds me of one thing:
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κ·ΈλŠ” μ €μ—κ²Œ ν•œ 가지λ₯Ό μƒκΈ°μ‹œν‚΅λ‹ˆλ‹€ :
01:05
how little we know about the mind, and how wonderful
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μš°λ¦¬κ°€ λ§ˆμŒμ— λŒ€ν•΄μ„œ μ–Όλ§ˆλ‚˜ μ•„λŠ” 것이 μ—†λŠ”μ§€, 그리고
01:07
the unknown must be.
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μ•Œλ €μ§€μ§€ μ•Šμ€ 것듀이 μ–Όλ§ˆλ‚˜ 경이둜울 것인지에 λŒ€ν•΄ λ§μ΄μ§€μš”,
01:11
Samuel is 16. He's tall. He's very handsome.
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μ‚¬λ¬΄μ—˜μ€ 16μ‚΄μž…λ‹ˆλ‹€. κ·ΈλŠ” ν‚€κ°€ 크고 맀우 잘 μƒκ²Όμ–΄μš”.
01:17
He has the most impeccable memory.
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κ·ΈλŠ” ν μž‘μ„ 데 μ—†λŠ” κΈ°μ–΅λ ₯을 가지고 μžˆμŠ΅λ‹ˆλ‹€.
01:20
He has a selective one, though.
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κ·ΈλŸ¬λ‚˜ 그의 κΈ°μ–΅λ ₯은 μ„ νƒμ μž…λ‹ˆλ‹€.
01:23
He doesn't remember if he stole my chocolate bar,
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κ·ΈλŠ” μžμ‹ μ΄ 제 μ΄ˆμ½œλ › λ°”λ₯Ό ν›”μ³€λŠ”μ§€λŠ” κΈ°μ–΅ν•˜μ§€ λͺ»ν•˜μ§€λ§Œ
01:27
but he remembers the year of release for every song on my iPod,
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제 μ•„μ΄νŒŸμ— μžˆλŠ” λͺ¨λ“  λ…Έλž˜μ˜ 발맀 연도와
01:30
conversations we had when he was four,
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κ·Έκ°€ 4살일 λ•Œ μš°λ¦¬κ°€ λ‚˜λˆ΄λ˜ λŒ€ν™”λ“€,
01:32
weeing on my arm on the first ever episode of Teletubbies,
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ν…”λ ˆν† λΉ„ 첫 번째 방솑 λ•Œ 제 νŒ”μ— μ˜€μ€Œμ„ μ‹Ό 것과,
01:36
and Lady Gaga's birthday.
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λ ˆμ΄λ”” κ°€κ°€μ˜ 생일을 κΈ°μ–΅ν•©λ‹ˆλ‹€.
01:39
Don't they sound incredible?
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정말 λŒ€λ‹¨ν•˜μ§€ μ•Šλ‚˜μš”?
01:42
But most people don't agree.
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ν•˜μ§€λ§Œ λŒ€λΆ€λΆ„μ˜ μ‚¬λžŒλ“€μ€ κ·Έλ ‡κ²Œ μƒκ°ν•˜μ§€ μ•ŠμŠ΅λ‹ˆλ‹€.
01:45
And in fact, because their minds don't fit
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그리고 사싀, κ·Έλ“€μ˜ 정신이
01:48
into society's version of normal,
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μ‚¬νšŒμ  κΈ°μ€€μ˜ "정상"에 λ“€μ–΄λ§žμ§€ μ•Šμ•„μ„œ,
01:50
they're often bypassed and misunderstood.
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그듀은 μ’…μ’… λ¬΄μ‹œλ‹Ήν•˜κ³  μ˜€ν•΄λ°›μŠ΅λ‹ˆλ‹€.
01:53
But what lifted my heart and strengthened my soul
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ν•˜μ§€λ§Œ μ €μ˜ λ§ˆμŒμ— 희망을 μ£Όκ³  μ •μ‹ μ μœΌλ‘œ 힘이 λ˜μ–΄ μ€€ 것은
01:57
was that even though this was the case,
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비둝 그런 일듀이 μžˆμ—ˆλ”λΌλ„,
01:59
although they were not seen as ordinary,
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비둝 그듀이 μ •μƒμ μœΌλ‘œ 여겨지지 μ•Šλ”λΌλ„,
02:02
this could only mean one thing:
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그것이 ν•œ 가지 사싀을 μ˜λ―Έν•˜κΈ° λ•Œλ¬Έμž…λ‹ˆλ‹€.
02:05
that they were extraordinary --
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그듀은 νŠΉλ³„ν•˜λ‹€λŠ” 점이죠 --
02:08
autistic and extraordinary.
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μžνμ„±μž„κ³Ό λ™μ‹œμ— νŠΉλ³„ν•˜λ‹€λŠ” κ²ƒμž…λ‹ˆλ‹€.
02:12
Now, for you who may be less familiar with the term "autism,"
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자, 이제 "자폐증"μ΄λž€ 말이 μΉœμˆ™ν•˜μ§€ μ•Šμ€ 뢄듀을 μœ„ν•΄ μ„€λͺ…λ“œλ¦¬μžλ©΄
02:17
it's a complex brain disorder that affects social communication,
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μžνμ¦μ€ μ‚¬νšŒμ  μ†Œν†΅, ν•™μŠ΅, 가끔은 신체적 λŠ₯λ ₯μ—κΉŒμ§€ 영ν–₯을 λ―ΈμΉ˜λŠ”
02:21
learning and sometimes physical skills.
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λ³΅μž‘ν•œ λ‡Œ μ§ˆν™˜μž…λ‹ˆλ‹€.
02:24
It manifests in each individual differently,
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κ°œμΈμ— 따라 λ‹€λ₯Έ μ„±ν–₯을 λ³΄μ΄λŠ”λ°,
02:27
hence why Remi is so different from Sam.
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λ ˆλ―Έμ™€ μƒ˜μ΄ κ·Έλ ‡κ²Œ λ‹€λ₯Έ 것도 κ·Έ λ•Œλ¬Έμ΄μ£ .
02:30
And across the world, every 20 minutes, one new person
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μ „ μ„Έκ³„μ μœΌλ‘œ 20뢄에 ν•œ λͺ…μ”©
02:33
is diagnosed with autism, and although it's one of
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자폐증으둜 μ§„λ‹¨λ°›λŠ”λ°, 자폐증이
02:35
the fastest-growing developmental disorders in the world,
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μ„Έκ³„μ μœΌλ‘œ κΈ‰κ²©νžˆ λŠ˜μ–΄λ‚˜λŠ” λ°œλ‹¬ μž₯μ•  μ€‘μ˜ ν•˜λ‚˜μž„μ—λ„ λΆˆκ΅¬ν•˜κ³ 
02:39
there is no known cause or cure.
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κ·Έ μ›μΈμ΄λ‚˜ μΉ˜λ£Œλ²•μ€ μ•Œλ €μ Έ μžˆμ§€ μ•ŠμŠ΅λ‹ˆλ‹€.
02:42
And I cannot remember the first moment I encountered autism,
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μ œκ°€ 처음 μžνμ¦μ„ λ§ˆμ£Όν•œ μˆœκ°„μ΄ μ–Έμ œμ˜€λŠ”μ§€λŠ” κΈ°μ–΅ λͺ» ν•˜μ§€λ§Œ
02:45
but I cannot recall a day without it.
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μžνμ¦μ„ λ§ˆμ£Όν•˜μ§€ μ•Šμ•˜λ˜ 날듀이 μžˆμ—ˆλŠ”μ§€λ„ κΈ°μ–΅ν•˜μ§€ λͺ» ν•©λ‹ˆλ‹€.
02:48
I was just three years old when my brother came along,
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제 남동생이 νƒœμ–΄λ‚¬μ„ λ•Œ μ €λŠ” 겨우 3μ‚΄μ΄μ—ˆμŠ΅λ‹ˆλ‹€.
02:51
and I was so excited that
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제 삢에 μƒˆλ‘œμš΄ μ‘΄μž¬κ°€ μƒκ²Όλ‹€λŠ” 것에
02:53
I had a new being in my life.
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맀우 μ‹ λ‚˜ μžˆμ—ˆμ£ .
02:56
And after a few months went by,
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그리고 λͺ‡ 달이 μ§€λ‚˜μž,
02:59
I realized that he was different.
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μ €λŠ” κ·Έκ°€ 남듀과 λ‹€λ₯΄λ‹€λŠ” 것을 κΉ¨λ‹¬μ•˜μŠ΅λ‹ˆλ‹€.
03:01
He screamed a lot.
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κ·ΈλŠ” μ†Œλ¦¬λ₯Ό μ—„μ²­ μ§ˆλ €μŠ΅λ‹ˆλ‹€.
03:03
He didn't want to play like the other babies did,
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λ‹€λ₯Έ 아기듀이 λ…ΈλŠ” κ²ƒμ²˜λŸΌ 놀고 μ‹Άμ–΄ν•˜μ§€ μ•Šμ•˜κ³ 
03:06
and in fact, he didn't seem
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사싀, κ·ΈλŠ” μ €λΏλ§Œ μ•„λ‹ˆλΌ λ‹€λ₯Έ μ–΄λ–€ 것듀에도
03:08
very interested in me whatsoever.
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크게 관심을 보이지 μ•Šμ•˜μŠ΅λ‹ˆλ‹€.
03:11
Remi lived and reigned in his own world, with his own rules,
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λ ˆλ―ΈλŠ” 슀슀둜 κ·œμΉ™μ„ μ •ν•œ μžμ‹ λ§Œμ˜ 세상을 μ§€λ°°ν•˜λ©° μ‚΄μ•˜κ³ 
03:15
and he found pleasure in the smallest things,
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κ°€μž₯ μ‚¬μ†Œν•œ κ²ƒλ“€μ—μ„œ 즐거움을 μ°Ύμ•˜μŠ΅λ‹ˆλ‹€.
03:17
like lining up cars around the room
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λ°© μ£Όμœ„μ— μžλ™μ°¨λ“€μ„ 쀄지어 λ†“κ±°λ‚˜
03:20
and staring at the washing machine
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μƒˆνƒκΈ°λ₯Ό λš«μ–΄μ§€κ²Œ μ³λ‹€λ³΄κ±°λ‚˜
03:22
and eating anything that came in between.
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손에 μž‘νžˆλŠ” λŒ€λ‘œ λ¨Ήμ–΄λ³΄λŠ” 일듀 말이죠.
03:25
And as he grew older, he grew more different,
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κ·Έκ°€ μžλΌλ©΄μ„œ κ·ΈλŠ” 점점 더 λ‹¬λΌμ‘Œκ³ 
03:29
and the differences became more obvious.
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κ·Έ 차이점듀은 λ”μš± 더 λ‘λ“œλŸ¬μ§€κΈ° μ‹œμž‘ν–ˆμŠ΅λ‹ˆλ‹€.
03:31
Yet beyond the tantrums and the frustration
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κ·ΈλŸ¬λ‚˜ 그의 뢄노와 쒌절과
03:35
and the never-ending hyperactivity
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λŠμž„μ—†λŠ” κ³Όμž‰ ν–‰λ™λ“€μ˜ λ„ˆλ¨Έμ—λŠ”
03:38
was something really unique:
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무엇인가 맀우 λ…νŠΉν•œ 것이 μžˆμ—ˆμŠ΅λ‹ˆλ‹€ :
03:40
a pure and innocent nature, a boy who saw the world
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그것은 κΉ¨λ—ν•˜κ³  μˆœμˆ˜ν•œ μ„±ν’ˆ, νŽΈκ²¬μ—†μ΄ 세상을 λ°”λΌλ³΄λŠ” μ†Œλ…„,
03:44
without prejudice, a human who had never lied.
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ν•œ λ²ˆλ„ 거짓말을 ν•΄λ³Έ 적이 μ—†λŠ” μ‚¬λžŒμ΄μ—ˆμŠ΅λ‹ˆλ‹€.
03:50
Extraordinary.
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νŠΉλ³„ν•˜μ£ .
03:53
Now, I cannot deny that there have been
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이제, 제 κ°€μ‘±μ—κ²Œ νž˜λ“  μˆœκ°„λ“€μ΄ μžˆμ—ˆλ‹€λŠ” 것을
03:55
some challenging moments in my family,
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λΆ€μ •ν•  μˆ˜λŠ” μ—†μŠ΅λ‹ˆλ‹€.
03:57
moments where I've wished that they were just like me.
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그듀이 저와 λ˜‘κ°™μ•˜μœΌλ©΄ μ’‹κ² λ‹€κ³  λ°”λž€ 적도 μžˆμ—ˆμŠ΅λ‹ˆλ‹€.
04:00
But I cast my mind back to the things that they've taught me
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ν•˜μ§€λ§Œ μ œκ°€ 생각을 λ°”κΎΈκ²Œ 된 것은, 그듀이 제게 κ°€λ₯΄μ³ μ€€
04:03
about individuality and communication and love,
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κ·Έλ“€μ˜ κ°œμ„±κ³Ό μ†Œν†΅κ³Ό μ‚¬λž‘ λ•Œλ¬Έμ΄μ—ˆμŠ΅λ‹ˆλ‹€.
04:07
and I realize that these are things that
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그리고 μ €λŠ”κ·ΈλŸ° 것듀과 μ •μƒμ˜ μƒνƒœλΌλŠ” 것을
04:10
I wouldn't want to change with normality.
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λ§žλ°”κΎΈκ³  μ‹Άμ–΄ν•˜μ§€ μ•ŠλŠ”λ‹€λŠ” 사싀도 κΉ¨λ‹¬μ•˜μŠ΅λ‹ˆλ‹€.
04:15
Normality overlooks the beauty that differences give us,
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"정상"이 κ°„κ³Όν•˜κ³  μžˆλŠ” 것은, μ„œλ‘œ κ°„μ˜ 차이가 κ°–λŠ” 아름닀움과
04:20
and the fact that we are different doesn't mean that one of us is wrong.
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μ„œλ‘œ λ‹€λ₯΄λ‹€λŠ” 것이 κΌ­ ν•œ λͺ…이 ν‹€λ Έλ‹€λŠ” 것은 μ•„λ‹ˆλΌλŠ” μ‚¬μ‹€μž…λ‹ˆλ‹€.
04:23
It just means that there's a different kind of right.
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그것은 κ·Έλƒ₯ λ‹€λ₯Έ μ’…λ₯˜μ˜ 옳음이 μžˆλ‹€λŠ” 것을 μ˜λ―Έν•©λ‹ˆλ‹€.
04:27
And if I could communicate just one thing to Remi
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그리고 만일 μ œκ°€ λ ˆλ―Έμ—κ²Œ 단 ν•œλ§ˆλ””λ§Œ 말할 수 μžˆλ‹€λ©΄,
04:31
and to Sam
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또 μƒ˜μ—κ²Œ,
04:33
and to you,
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또 μ—¬λŸ¬λΆ„λ“€κ»˜, 그럴 수 μžˆλ‹€λ©΄,
04:35
it would be that you don't have to be normal.
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그것은 λ°”λ‘œ 정상일 ν•„μš”κ°€ μ—†λ‹€λŠ” κ²ƒμž…λ‹ˆλ‹€.
04:39
You can be extraordinary.
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μ—¬λŸ¬λΆ„λ„ νŠΉλ³„ν•΄μ§ˆ 수 μžˆμŠ΅λ‹ˆλ‹€.
04:43
Because autistic or not,
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μ™œλƒν•˜λ©΄ 자폐증이 μžˆλ“  μ—†λ“ 
04:45
the differences that we have --
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μš°λ¦¬κ°€ κ°–κ³  μžˆλŠ” 차이점듀 --
04:47
We've got a gift! Everyone's got a gift inside of us,
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μš°λ¦¬λŠ” 재λŠ₯을 κ°–κ³  μžˆμŠ΅λ‹ˆλ‹€! λˆ„κ΅¬λ‚˜ λ‚΄μž¬λœ 재λŠ₯이 μžˆμ–΄μš”.
04:51
and in all honesty, the pursuit of normality
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그리고 μ†”μ§νžˆ λ§μ”€λ“œλ¦¬μžλ©΄, 정상을 μΆ”κ΅¬ν•˜λŠ” 것은
04:55
is the ultimate sacrifice of potential.
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κ²°κ΅­μ—λŠ” 잠재λ ₯을 ν¬μƒμ‹œν‚€κ²Œ λ©λ‹ˆλ‹€.
04:58
The chance for greatness, for progress and for change
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μœ„λŒ€ν•¨, 진보와 λ³€ν™”μ˜ κΈ°νšŒλŠ”
05:02
dies the moment we try to be like someone else.
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남듀과 λ˜‘κ°™μ•„μ§€κΈ° μœ„ν•΄ λ…Έλ ₯ν•˜λŠ” μˆœκ°„ μ‚¬λΌμ§€κ²Œ λ©λ‹ˆλ‹€.
05:06
Please -- don't tell me I'm normal.
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제발 -- μ œκ°€ 정상이라고 λ§ν•˜μ§€ λ§μ•„μ£Όμ„Έμš”.
05:09
Thank you. (Applause)
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κ°μ‚¬ν•©λ‹ˆλ‹€.(λ°•μˆ˜)
05:12
(Applause)
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(λ°•μˆ˜)
이 μ›Ήμ‚¬μ΄νŠΈ 정보

이 μ‚¬μ΄νŠΈλŠ” μ˜μ–΄ ν•™μŠ΅μ— μœ μš©ν•œ YouTube λ™μ˜μƒμ„ μ†Œκ°œν•©λ‹ˆλ‹€. μ „ 세계 졜고의 μ„ μƒλ‹˜λ“€μ΄ κ°€λ₯΄μΉ˜λŠ” μ˜μ–΄ μˆ˜μ—…μ„ 보게 될 κ²ƒμž…λ‹ˆλ‹€. 각 λ™μ˜μƒ νŽ˜μ΄μ§€μ— ν‘œμ‹œλ˜λŠ” μ˜μ–΄ μžλ§‰μ„ 더블 ν΄λ¦­ν•˜λ©΄ κ·Έκ³³μ—μ„œ λ™μ˜μƒμ΄ μž¬μƒλ©λ‹ˆλ‹€. λΉ„λ””μ˜€ μž¬μƒμ— 맞좰 μžλ§‰μ΄ μŠ€ν¬λ‘€λ©λ‹ˆλ‹€. μ˜κ²¬μ΄λ‚˜ μš”μ²­μ΄ μžˆλŠ” 경우 이 문의 양식을 μ‚¬μš©ν•˜μ—¬ λ¬Έμ˜ν•˜μ‹­μ‹œμ˜€.

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