I got 99 problems... palsy is just one | Maysoon Zayid

6,549,601 views ・ 2014-01-03

TED


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翻译人员: 晨星 徐 校对人员: Alex Ho
各位女同胞们,大家好! 你们还好吗?
00:13
Hello, TEDWomen, what's up.
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00:14
(Cheering)
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(欢呼声)
00:16
Not good enough.
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再大声点
00:17
Hello, TEDWomen, what is up?
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各位女同胞们,大家好!你们还好吗?
00:19
(Loud cheering)
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(欢呼声)
00:21
My name is Maysoon Zayid,
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我叫Maysoon Zayid
虽然接生我的医生当时喝醉了
00:24
and I am not drunk,
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00:26
but the doctor who delivered me was.
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但我可清醒着呢!
00:28
He cut my mom six different times
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他从六个不同的方向
00:32
in six different directions,
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切了我妈的肚皮六次
00:35
suffocating poor little me in the process.
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差点闷死我
00:37
As a result, I have cerebral palsy,
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就这样,我得了脑瘫
00:40
which means I shake all the time.
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每天无时不刻地都在颤抖
00:43
Look.
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你们看
00:46
It's exhausting.
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这太累了。我觉得自己特像夏奇拉
00:47
I'm like Shakira, Shakira meets Muhammad Ali.
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夏奇拉遇到了穆罕默德•阿里
00:51
(Laughter)
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(笑声)
00:54
CP is not genetic.
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脑瘫不会遗传
00:56
It's not a birth defect. You can't catch it.
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这不是生来就有的病。你根本无法预料
00:59
No one put a curse on my mother's uterus,
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没人诅咒我妈的子宫
01:02
and I didn't get it because my parents are first cousins,
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我有这个毛病
01:05
which they are.
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也不是因为我的父母是表兄妹
01:07
(Laughter)
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(笑声)
01:11
It only happens from accidents,
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在我出生那天
01:13
like what happened to me on my birth day.
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发生了一场意外
01:16
Now, I must warn you,
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我得提醒你们,我可不是什么励志人物
01:18
I'm not inspirational.
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01:20
(Laughter)
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01:21
And I don't want anyone in this room to feel bad for me,
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也不希望各位
会觉得我可怜
01:25
because at some point in your life,
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在某些时刻
01:27
you have dreamt of being disabled.
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你们会希望自己有点残疾
01:30
Come on a journey with me.
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我们来一起看看吧
01:32
It's Christmas Eve, you're at the mall,
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圣诞前夜
你开车在超市转来转去,想找个停车位
01:36
you're driving around in circles looking for parking,
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01:39
and what do you see?
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猜猜你会看到什么?
01:41
Sixteen empty handicapped spaces.
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十六个空的残疾人停车位
01:44
(Laughter)
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你会想,“ 天哪!
01:46
And you're like, "God, can't I just be a little disabled?"
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我怎么就不能有点残疾呢?”
01:49
(Laughter)
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(笑声)
01:55
Also, I've got to tell you,
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我得告诉你们
我有99个麻烦,脑瘫只是其中之一
01:57
I've got 99 problems, and palsy is just one.
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02:00
(Laughter)
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02:01
If there was an Oppression Olympics,
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如果有什么类似受压迫奥运会
02:04
I would win the gold medal.
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我肯定能拿金牌
02:06
I'm Palestinian, Muslim,
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我是巴勒斯坦人,穆斯林,女性,残疾人
02:09
I'm female, I'm disabled,
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02:11
and I live in New Jersey.
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还有,我住在新泽西
02:13
(Laughter)
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(笑声)(鼓掌)
02:16
(Applause)
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02:19
If you don't feel better about yourself, maybe you should.
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如果你自我感觉不太好的话,或许可以考虑参加
02:22
(Laughter)
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02:23
Cliffside Park, New Jersey is my hometown.
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新泽西的Cliffiside Park是我的家乡
02:25
I have always loved the fact
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我感到高兴的是
02:28
that my hood and my affliction share the same initials.
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我的家乡和我的残疾
有着相同的首字母
02:32
I also love the fact
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我还感到高兴的是
02:34
that if I wanted to walk from my house to New York City, I could.
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我可以从家步行到纽约市
02:37
A lot of people with CP don't walk,
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很多有脑瘫的人根本走不了
02:40
but my parents didn't believe in "can't."
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但是我的父母相信一切皆有可能
02:43
My father's mantra was,
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我父亲的口头禅是
02:45
"You can do it, yes you can can."
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“ 你可以做到。是的,你一定行!”
02:48
(Laughter)
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(笑声)
如果我的三个姐姐在拖地
02:52
So, if my three older sisters were mopping,
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02:55
I was mopping.
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我也得和她们一块儿拖
02:56
If my three older sisters went to public school,
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如果她们去上公立学校
而我去不了
02:59
my parents would sue the school system
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03:01
and guarantee that I went too,
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我的父母就会起诉学校
03:03
and if we didn't all get A's,
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如果我们的成绩不是全A
03:05
we all got my mother's slipper.
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我妈就会用拖鞋砸我们
03:07
(Laughter)
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(笑声)
我五岁时,父亲开始教我如何走路
03:10
My father taught me how to walk when I was five years old
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我的脚后跟踩着他的脚
03:13
by placing my heels on his feet
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03:15
and just walking.
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就这样走着
03:17
Another tactic that he used
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他曾在我面前晃着一美元钞票
03:19
is he would dangle a dollar bill in front of me
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让我追着跑
03:21
and have me chase it.
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03:23
(Laughter)
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(笑声)
那时我跳脱衣舞的欲望非常强烈
03:26
My inner stripper was very strong.
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03:28
(Laughter)
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(笑声)
03:30
Yeah.
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的确如此。第一天去幼儿园时,
03:31
No, by the first day of kindergarten,
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03:33
I was walking like a champ
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我走路的样子
像是被打了好几下的拳击冠军
03:35
who had been punched one too many times.
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03:37
(Laughter)
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03:38
Growing up, there were only six Arabs in my town,
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在我成长的小镇上,原来只有六个阿拉伯人
03:42
and they were all my family.
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而且他们都是我的家人
03:43
(Laughter)
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03:44
Now there are 20 Arabs in town,
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现在有二十个阿拉伯人了
03:46
and they are still all my family.
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他们仍然都还是我的家人( 笑声)
03:48
(Laughter)
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03:49
I don't think anyone even noticed we weren't Italian.
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我想没人注意到我们不是意大利人
03:52
(Laughter)
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(笑声)(鼓掌)
03:56
(Applause)
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04:00
This was before 9/11
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那是在911事件发生前
04:02
and before politicians thought it was appropriate
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那时候政客们还没拿“我憎恶穆斯林”
04:05
to use "I hate Muslims" as a campaign slogan.
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作为竞选口号
和我一起长大的小伙伴们对我的信仰没什么意见
04:09
The people that I grew up with had no problem with my faith.
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04:12
They did, however, seem very concerned
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但是他们担心
04:14
that I would starve to death during Ramadan.
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我会在斋月期间饿死
04:17
I would explain to them that I have enough fat
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我会和他们说
04:19
to live off of for three whole months,
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我的脂肪足够多,可以熬过整整三个月
04:21
so fasting from sunrise to sunset is a piece of cake.
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所以整个白天不吃饭对我来说不是什么难事
04:24
(Laughter)
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04:26
I have tap-danced on Broadway.
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我在百老汇跳过踢踏舞
04:29
Yeah, on Broadway. It's crazy.
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百老汇! 这感觉太棒了!(鼓掌)
04:31
(Applause)
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04:32
My parents couldn't afford physical therapy,
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我的父母付不起理疗费用
04:34
so they sent me to dancing school.
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所以送我到舞蹈学校
04:37
I learned how to dance in heels,
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我学会如何踩着高跟鞋跳舞
04:39
which means I can walk in heels.
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这样我也能踩着高跟鞋走路了
我来自泽西岛
04:41
And I'm from Jersey,
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04:42
and we are really concerned with being chic,
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这儿的人都希望自己看上去很时髦
如果我有朋友穿高跟鞋,我也会和她们一样
04:45
so if my friends wore heels, so did I.
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04:48
And when my friends went and spent their summer vacations
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当朋友们都去泽西海岸度假时
04:51
on the Jersey Shore, I did not.
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我却没跟着去
04:54
I spent my summers in a war zone,
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我在一个战区度过了自己的暑假
04:56
because my parents were afraid
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我的父母担心
04:58
that if we didn't go back to Palestine every single summer,
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如果我们每个夏天
都不回巴勒斯坦
05:02
we'd grow up to be Madonna.
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我们以后就会变成麦当娜
05:04
(Laughter)
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(笑声)
05:09
Summer vacations often consisted of my father trying to heal me,
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每个暑假
我的父亲都在尝试帮助我
让我喝鹿奶
05:15
so I drank deer's milk,
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05:16
I had hot cups on my back,
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在我的后背绑着滚烫的杯子
05:18
I was dunked in the Dead Sea,
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让我浸泡在死海中
05:20
and I remember the water burning my eyes
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我还记得,海水灼烧着我的眼睛
05:23
and thinking, "It's working! It's working!"
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我在想,“啊!起作用了!起作用了!”
05:25
(Laughter)
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(笑声)
05:29
But one miracle cure we did find was yoga.
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最后我们发现,唯一有效的治疗方法是瑜伽
05:32
I have to tell you, it's very boring,
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我不得不说,瑜伽实在是太无聊了
05:35
but before I did yoga,
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在我做瑜伽前,
05:37
I was a stand-up comedian who can't stand up.
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我是一个站不起来的单口相声演员
05:40
And now I can stand on my head.
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但是现在我可以倒立了
05:43
My parents reinforced this notion
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我的父母不断向我灌输这样的思想
05:48
that I could do anything,
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没有我做不到的事情
05:51
that no dream was impossible,
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没有实现不了的梦想
05:53
and my dream was to be
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我的梦想
05:54
on the daytime soap opera "General Hospital."
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是能够上日间肥皂剧《综合医院》
05:57
(Laughter)
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在反歧视运动中,我上了大学
05:59
I went to college during affirmative action
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06:01
and got a sweet scholarship to ASU,
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并在ASU获得了一份数目可观的奖学金
06:03
Arizona State University,
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亚利桑那州立大学
06:05
because I fit every single quota.
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这是因为我百分之百符合学校的要求
06:08
(Laughter)
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我就像剧院里的狐猴
06:09
I was like the pet lemur of the theater department.
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06:13
Everybody loved me.
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每个人都喜欢我
06:14
I did all the less-than-intelligent kids' homework,
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我做了其他一些不太聪明的孩子的功课
06:18
I got A's in all of my classes,
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我不但自己获得了全A
06:19
A's in all of their classes.
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还帮他们获得了全A
06:21
(Laughter)
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每次当我排演话剧
06:23
Every time I did a scene from "The Glass Menagerie,"
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《玻璃动物园》
06:26
my professors would weep.
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教授们都会感动得泪流满面
06:28
But I never got cast.
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但我从来没得到过一个角色
06:31
Finally, my senior year,
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大四那年
06:32
ASU decided to do a show called "They Dance Real Slow in Jackson."
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ASU准备排练一个节目
叫做《在杰克逊翩翩起舞》
06:36
It's a play about a girl with CP.
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这个戏剧是关于一个患有脑瘫的女孩
06:39
I was a girl with CP.
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那不就是我!
06:41
So I start shouting from the rooftops,
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我在屋顶大叫大嚷
06:44
"I'm finally going to get a part!
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我终于有机会表演啦!
06:46
I have cerebral palsy!
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真高兴我患有脑瘫!
06:48
Free at last! Free at last!
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自由万岁! 自由万岁!
06:50
Thank God almighty, I'm free at last!"
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感谢万能的上帝!自由万岁!
06:53
I didn't get the part.
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可是我没得到那个角色。(笑声)
06:54
(Laughter)
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06:57
Sherry Brown got the part.
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Sherry Brown 成为了那个女孩
我一口气跑到戏剧系的主任那儿
07:00
I went racing to the head of the theater department
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07:02
crying hysterically, like someone shot my cat,
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哭的死去活来,好像有人打死了我的猫似的
问她为什么
07:05
to ask her why,
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07:06
and she said it was because they didn't think I could do the stunts.
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她说
戏剧部认为我演不了那些动作
07:10
I said, "Excuse me, if I can't do the stunts,
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”拜托!
07:13
neither can the character."
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要是我演不了,她也一样“
07:15
(Laughter)
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(笑声)(鼓掌)
07:19
(Applause)
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07:22
This was a part that I was literally born to play
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这是我一生下来就开始扮演的角色
07:28
they gave it to a non-palsy actress.
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但他们却给了一个健全的人
大学只不过是在模仿生活而已
07:33
College was imitating life.
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07:35
Hollywood has a sordid history
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让健全的演员饰演残疾人
07:37
of casting able-bodied actors to play disabled onscreen.
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在这一点上
好莱坞有着不堪回首的历史
07:42
Upon graduating, I moved back home,
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毕业后,我搬回家
07:44
and my first acting gig was as an extra on a daytime soap opera.
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我的第一个表演机会
是作为一名日间肥皂剧的临时演员
07:49
My dream was coming true.
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我的梦想快要实现了
07:51
And I knew that I would be promoted
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我知道自己不久
07:53
from "Diner Diner" to "Wacky Best Friend" in no time.
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将会从《路边小饭馆》走到《奇葩好友》
07:57
(Laughter)
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07:58
But instead, I remained a glorified piece of furniture
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然而,我仍是那个徒有虚名的小演员
08:00
that you could only recognize from the back of my head,
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你只能从我的后脑勺认出我
08:03
and it became clear to me
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显而易见
08:05
that casting directors
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导演们
08:07
didn't hire fluffy, ethnic, disabled actors.
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不会用那些肤浅的患有残疾的少数民族
08:11
They only hired perfect people.
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他们只会任用那些完美无瑕的人
08:13
But there were exceptions to the rule.
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但是凡事都有例外
08:15
I grew up watching Whoopi Goldberg,
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我从小是看着乌比•戈德宝
08:17
Roseanne Barr, Ellen,
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罗西妮•巴尔和艾伦长大的
08:19
and all of these women had one thing in common:
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这些女人都有一个共性:
08:22
they were comedians.
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她们都是喜剧演员
08:23
So I became a comic.
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所以后来我成为了其中一员
08:25
(Laughter)
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(笑声)(鼓掌)
08:28
(Applause)
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08:31
My first gig was driving famous comics
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我的初次亮相是带着那些著名的喜剧演员
08:35
from New York City to shows in New Jersey,
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开车从纽约市到新泽西的表演场地
08:38
and I'll never forget the face of the first comic I ever drove
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我永远忘不了
当驶过新泽西高速公路时
08:41
when he realized that he was speeding down the New Jersey Turnpike
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我第一位乘客意识到他的司机是一位患有脑瘫的女孩
08:45
with a chick with CP driving him.
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所流露出的表情
08:47
(Laughter)
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08:48
I've performed in clubs all over America,
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我在全美的各种俱乐部中表演
08:51
and I've also performed in Arabic in the Middle East,
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我还在中东用阿拉伯语表演过
08:54
uncensored and uncovered.
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没有审查,也没有报道
08:57
(Laughter)
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08:58
Some people say I'm the first stand-up comic in the Arab world.
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有人说我是第一个
在阿拉伯国家表演的单口相声演员
09:02
I never like to claim first,
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但我从不这么说
09:04
but I do know that they never heard
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我知道他们肯定没听过那些荒唐的言论
09:06
that nasty little rumor that women aren't funny,
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女人一点儿也不幽默
09:10
and they find us hysterical.
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他们发现我们神经过敏
09:12
(Laughter)
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09:15
In 2003, my brother from another mother and father
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在2003年,我的异父异母的哥哥
09:19
Dean Obeidallah and I started
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Dean Obeidallah和我举办了一个活动
09:21
the New York Arab-American Comedy Festival,
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叫做”纽约市阿裔美国人喜剧节“
09:24
now in its 10th year.
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现在已经是第十个年头了
我们希望可以改变媒体上
09:26
Our goal was to change the negative image of Arab-Americans in media,
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阿拉伯裔美国人的负面形象
09:31
while also reminding casting directors
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同时也告诉那些导演们
09:34
that South Asian and Arab are not synonymous.
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南亚人和阿拉伯人并不一样
09:37
(Laughter)
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(笑声)
09:40
Mainstreaming Arabs was much, much easier
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相比于战胜对残疾人的诽谤
阿拉伯的主流人群
09:46
than conquering the challenge against the stigma against disability.
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好相处的多
09:50
My big break came in 2010.
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我职业生涯的突破起源于2010年
09:53
I was invited to be a guest on the cable news show
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我去一家有线新闻台
做嘉宾
09:56
"Countdown with Keith Olbermann."
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《Keith Olberman 倒计时》
09:58
I walked in looking like I was going to the prom,
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我走了进去,感觉像是去参加舞会
10:01
and they shuffle me into a studio
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他们拖着我进了演播室
10:03
and seat me on a spinning, rolling chair.
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让我坐在一个不停旋转晃动的椅子上
10:07
(Laughter)
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我看着舞台监督
10:09
So I looked at the stage manager
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10:11
and I'm like, "Excuse me, can I have another chair?"
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“请问一下,能给我换个椅子吗?"
10:14
And she looked at me and she went,
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她看着我,说道
”五,四,三,二...."
10:16
"Five, four, three, two ..."
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10:18
And we were live, right?
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我们正在直播,不是吗?
10:20
So I had to grip onto the anchor's desk
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所以我只能紧紧地抓住主持人的桌子
10:22
so that I wouldn't roll off the screen during the segment,
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确保不会从镜头中突然消失
10:26
and when the interview was over, I was livid.
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访谈结束后,我气炸了
10:29
I had finally gotten my chance and I blew it,
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我得到自己梦寐以求的机会,却又搞砸了
10:31
and I knew I would never get invited back.
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我知道自己再没有机会了
10:34
But not only did Mr. Olbermann invite me back,
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但是Olbermann不仅把我邀请回去
10:37
he made me a full-time contributor,
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而且全程都非常尊重我 给我机会去讲话
10:40
and he taped down my chair.
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并把我的椅子用胶带固定住
10:43
(Laughter)
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(笑声)(鼓掌)
10:45
(Applause)
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10:49
One fun fact I learned while on the air with Keith Olbermann
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在和Keith Olbermann做节目的过程中
我学到了一个有趣的事
10:52
was that humans on the Internet are scumbags.
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网络上的人类总是丑陋的
10:56
(Laughter)
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人们总是说,孩子有时候会很残忍
10:57
People say children are cruel,
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但在成长的过程中,我从来没受过别人的嘲笑
10:59
but I was never made fun of as a child or an adult.
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11:02
Suddenly, my disability on the world wide web is fair game.
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突然,我的残疾却在网络上遭到攻击
11:05
I would look at clips online and see comments like,
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我会看看网上的一些片段
再看些评论
11:09
"Yo, why's she tweakin'?"
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“ 哇,为什么她在不停地扭动身体?”
11:12
"Yo, is she retarded?"
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“哇,她是不是智力有问题啊?”
11:14
And my favorite, "Poor Gumby-mouth terrorist.
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我喜欢的是,“这个可笑的恐怖分子
11:17
What does she suffer from?
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她到底怎么回事?
11:19
We should really pray for her."
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我们该为她祈福祷告。”
11:23
One commenter even suggested that I add my disability to my credits:
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一个评论家甚至建议
我把自己的残疾视为一种荣誉
11:27
screenwriter, comedian, palsy.
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剧作家,喜剧演员,瘫痪
残疾如同一个人的肤色一样明显
11:33
Disability is as visual as race.
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如果腿脚不便的人演不了碧昂斯
11:36
If a wheelchair user can't play Beyoncé,
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11:38
then Beyoncé can't play a wheelchair user.
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那么碧昂斯也演不了坐轮椅的人
11:41
The disabled are the largest —
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残疾人是最大的
11:43
Yeah, clap for that, man. Come on.
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喝彩加油吧!
11:46
(Applause)
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(掌声)
11:51
People with disabilities are the largest minority in the world,
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残疾人是世界上最大的少数群体
在娱乐节目中
11:54
and we are the most underrepresented in entertainment.
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几乎看不到残疾人的身影
医生曾说我走不了
11:59
The doctors said that I wouldn't walk,
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12:01
but I am here in front of you.
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但我现在就站在这儿
但是,如果我从小与社交媒体相伴
12:04
However, if I grew up with social media,
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12:06
I don't think I would be.
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我可能就真的走不了
12:08
I hope that together,
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我希望
12:09
we can create more positive images
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能在媒体以及人们的日常生活中
12:12
of disability in the media and in everyday life.
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为残疾人营造更多的积极形象
12:15
Perhaps if there were more positive images,
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或许通过这种方式
12:18
it would foster less hate on the Internet.
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互联网会少些诋毁
或许什么改变都没有
12:22
Or maybe not.
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12:23
Maybe it still takes a village to teach our children well.
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教育好我们的孩子
这也许需要全村人的努力
12:28
My crooked journey has taken me to some very spectacular places.
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我坎坷的经历却把我带到了
一些美妙的地方
12:32
I got to walk the red carpet
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我曾和肥皂剧的女主角Susan Lucci
12:35
flanked by soap diva Susan Lucci
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以及偶像Lorraine Arbus
12:38
and the iconic Loreen Arbus.
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一起走过红地毯
12:40
I got to act in a movie with Adam Sandler
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我将和Adam Sandler出演一部电影
12:42
and work with my idol, the amazing Dave Matthews.
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并和我的偶像
Dave Matthews 一起工作
12:46
I toured the world as a headliner on Arabs Gone Wild.
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作为《狂野的阿拉伯人》的主演
我环游世界
12:50
I was a delegate representing the great state of New Jersey
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我代表
新泽西州
12:56
at the 2008 DNC.
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出席了2008年的民主党全国委员会
12:58
And I founded Maysoon's Kids,
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我成立了Maysoon儿童基金会
13:00
a charity that hopes to give Palestinian refugee children
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希望
能给巴勒斯坦难民营的儿童
一点点我当初父母曾给我的希望
13:05
a sliver of the chance my parents gave me.
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13:07
But the one moment that stands out the most
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但是最重要的时刻是
13:10
was when I got -- before this moment --
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当我将要----在此之前
13:12
(Laughter)
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(笑声)(鼓掌)
13:16
(Applause)
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13:20
But the one moment that stands out the most
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但是最重要的时刻是
13:23
was when I got to perform
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当我将要为
一个身手敏捷
13:26
for the man who floats like a butterfly
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13:28
and stings like a bee,
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出手直击要害的人表演
13:29
has Parkinson's and shakes just like me,
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他有帕金森病, 也像我一样会不停地颤抖
13:33
Muhammad Ali.
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穆罕默德•阿里
13:35
(Applause)
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(鼓掌)
13:41
(Applause ends)
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13:43
It was the only time that my father ever saw me perform live,
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这是唯一一次
我父亲看我的直播表演
我把这个演讲献给他
13:48
and I dedicate this talk to his memory.
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13:51
(Arabic) Allah yerhamak yaba.
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(阿拉伯语)
13:53
(English) My name is Maysoon Zayid,
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我的名字叫Maysoon Zayid
13:56
and if I can can, you can can.
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如果我可以, 你一定也行
13:59
(Cheering)
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(鼓掌)
14:01
(Applause)
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