Roberto D'Angelo + Francesca Fedeli: In our baby's illness, a life lesson

Prevodilac: Mile Živković Lektor: Dejan Vicai

Francesca Fedeli: Ciao.

Frančeska Fedeli : Ćao.

So he's Mario. He's our son.

Ovo je Mario. On nam je sin.

He was born two and a half years ago,

Rođen je pre dve ipo godine,

and I had a pretty tough pregnancy

a meni je trudnoća bila prilično teška,

because I had to stay still in a bed for, like, eight months.

jer sam morala da ležim u krevetu osam meseci.

But in the end everything seemed to be under control.

Ali izgledalo je kao da je sve pod kontrolom.

So he got the right weight at birth.

Imao je dobru kilažu na rođenju.

He got the right Apgar index.

Imao je dobar Apgar indeks.

So we were pretty reassured by this.

Ovo nas je razuverilo.

But at the end, 10 days later after he was born,

Ali na kraju, deset dana po njegovom rođenju,

we discovered that he had a stroke.

otkrili smo da je imao šlog.

As you might know,

Kao što možda znate,

a stroke is a brain injury.

šlog je povreda mozga.

A perinatal stroke could be something

Antenatalni šlog bi moglo da bude nešto

that can happen during the nine months of pregnancy

što može da se dogodi u toku devetomesečne trudnoće

or just suddenly after the birth,

ili odjednom nakon rođenja,

and in his case, as you can see,

i u tom slučaju, kao što možete da vidite,

the right part of his brain has gone.

oštetila se desna strana njegovog mozga.

So the effect that this stroke could have on Mario's body

Kao posledica ovog šloga na Mariovo telo

could be the fact that he couldn't be able to control

moglo je da bude to da ne može da kontroliše

the left side of his body.

levu stranu svog tela.

Just imagine, if you have a computer and a printer

Zamislite da imate kompjuter i štampač

and you want to transmit, to input to print out a document,

i želite da prebacite, da odštampate dokument,

but the printer doesn't have the right drives,

ali štampač nema odgovarajuče drajvere,

so the same is for Mario.

tako je i sa Mariom.

It's just like, he would like to move his left side

Sa njim je isto tako, voleo bi da pomeri

of his body, but he's not able to transmit the right input

levu stranu svog tela, ali nije sposoban da transmituje odgovarajući unos

to move his left arm and left leg.

kako bi pomerio levu ruku i levu nogu.

So life had to change.

Život je morao da se promeni.

We needed to change our schedule.

Morali smo da promenimo raspored.

We needed to change the impact that this birth had

Morali smo sa promenimo uticaj koji je njegovo rođenje

on our life.

imalo na naš život.

Roberto D'Angelo: As you may imagine,

Robert Danđelo: Kao što možete da zamislite,

unfortunately, we were not ready.

nažalost, nismo bili spremni.

Nobody taught us how to deal with such kinds of disabilities,

Niko nas nije naučio kako da se nosimo sa ovakvom bolešću,

and as many questions as possible started

i mnogo pitanja je počelo

to come to our minds.

da nam pada na pamet.

And that has been really a tough time.

I bilo je vrlo teško.

Questions, some basics, like, you know,

Vrlo jednostavna pitanja poput:

why did this happen to us?

zašto se ovo baš nama desilo?

And what went wrong?

Šta je pošlo naopako?

Some more tough, like, really,

Neka teža pitanja poput:

what will be the impact on Mario's life?

kakav će uticaj ovo imati na Mariov život?

I mean, at the end, will he be able to work?

Da li će biti u stanju da radi?

Da li će moći da bude normalan?

Will he be able to be normal?

And, you know, as a parent, especially for the first time,

I kao roditelj, posebno po prvi put,

why is he not going to be better than us?

zašto neće biti bolji od nas?

And this, indeed, really is tough to say,

I zaista je teško ovo reći

but a few months later, we realized that

ali nekoliko meseci kasnije, shvatili smo

we were really feeling like a failure.

da smo se zaista osećali kao gubitnici.

I mean, the only real product of our life,

Jedini stvaran proizvod našeg života,

at the end, was a failure.

na kraju, bio je neuspeh.

And you know, it was not a failure for ourselves in itself,

Nije to bio sam po sebi neuspeh za nas,

but it was a failure that will impact his full life.

već je bio neuspeh koji će uticati na ceo njegov život.

Honestly, we went down.

Iskreno, razočarali smo se.

I mean we went really down, but at the end,

Zaista smo se rastužili, ali smo onda

we started to look at him,

počeli da ga gledamo

and we said, we have to react.

i rekli smo sebi da moramo da reagujemo.

So immediately, as Francesca said, we changed our life.

Kao što je Frančeska već rekla, odmah smo promenili naš život.

We started physiotherapy, we started the rehabilitation,

Započeli smo fizioterapiju, započeli smo rehabilitaciju,

and one of the paths that we were following

i jedan od puteva rehabilitacije koji smo pratili

in terms of rehabilitation is the mirror neurons pilot.

je pilot neuron ogledala.

Basically, we spent months doing this with Mario.

Proveli smo mesece radeći ovo sa Mariom.

You have an object, and we showed him

Imate predmet i pokažete mu

how to grab the object.

kako da uhvati taj predmet.

Now, the theory of mirror neurons simply says

Teorija neurona ogledala jednostavno kaže

that in your brains, exactly now, as you watch me doing this,

da upravo u ovom trenutku u vašim mozgovima, dok me gledate kako ovo radim,

you are activating exactly the same neurons

aktivirate iste neurone

as if you do the actions.

kao da vi sami izvodite akciju.

It looks like this is the leading edge in terms of rehabilitation.

Izgleda da je ovo vodeća stvar za rehabilitaciju.

But one day we found that Mario

Jednog dana smo otkrili da Mario

was not looking at our hand.

ne gleda u našu ruku.

He was looking at us.

Gledao je u nas.

We were his mirror.

Mi smo bili njegovo ogledalo.

And the problem, as you might feel,

I kao što možete da osetite, problem je bio u tome

is that we were down, we were depressed,

što smo bili u bedaku, bili smo depresivni,

we were looking at him as a problem,

gledali smo na njega kao na problem,

not as a son, not from a positive perspective.

ne kao sina, ne iz pozitivne perspektive.

And that day really changed our perspective.

Taj dan je zaista promenio naše gledište.

We realized that we had to become

Shvatili smo da moramo da postanemo

a better mirror for Mario.

bolje ogledalo za Marija.

We restarted from our strengths,

Počeli smo od naših snaga

and at the same time we restarted from his strengths.

i u isto vreme smo započeli od njegovih snaga.

We stopped looking at him as a problem,

Prestali smo da ga gledamo kao problem,

and we started to look at him as an opportunity to improve.

i počeli smo da ga vidimo kao šansu da se poboljšamo.

And really, this was the change,

I zaista se sve promenilo

and from our side, we said,

i zapitali smo se:

"What are our strengths that we really can bring to Mario?"

"Koje su naše snage koje zaista mogu da pomognu Mariju?"

And we started from our passions.

Počeli smo od naših strasti.

I mean, at the end, my wife and myself

Moja žena i ja smo

are quite different,

poprilično različiti,

ali imamo i mnogo toga zajedničkog.

but we have many things in common.

We love to travel, we love music,

Volimo da putujemo, volimo muziku,

we love to be in places like this,

volimo da budemo na mestima kao što je ovo

and we started to bring Mario with us

i počeli smo da vodimo Marija sa nama,

just to show to him the best things that we can show to him.

da bismo mu pokazali najbolje što možemo da mu pokažemo.

This short video is from last week.

Ovaj kratak video je od prošle nedelje.

I am not saying --

Ne kažem da -

(Applause) —

(Aplauz) -

I am not saying it's a miracle. That's not the message,

Ne govorim da se radi o čudu. Nije to poruka,

because we are just at the beginning of the path.

jer smo tek na početku ovog puta.

But we want to share what was the key learning,

Ali želimo da vam pokažemo šta je bila ključna stvar,

the key learning that Mario drove to us,

ključna stvar do koje nas je doveo Mario,

and it is to consider what you have as a gift

a to je da ono što imate shvatite kao dar,

and not only what you miss,

a ne samo ono što vam nedostaje,

and to consider what you miss just as an opportunity.

a da ono što vam nedostaje shvatite samo kao priliku.

And this is the message that we want to share with you.

Ovo je poruka koju želimo da podelimo sa vama.

This is why we are here.

Zbog toga smo ovde.

Mario!

Mario!

And this is why --

I zbog ovoga -

(Applause) —

(Aplauz) -

And this is why

I zbog ovoga

we decided to share the best mirror in the world with him.

smo odlučili da sa njim podelimo najbolje ogledalo na svetu.

And we thank you so much, all of you.

Hvala vam mnogo, hvala svima vama.

FF: Thank you. RD: Thank you. Bye.

FF: Hvala vam. RD: Hvala vam. Zbogom.

(Applause)

(Aplauz)

FF: Thank you. (Applause)

FF: Hvala vam. (Aplauz)