Roberto D'Angelo + Francesca Fedeli: In our baby's illness, a life lesson

Translator: Jelena Ivanova Reviewer: Maarja Heina

Francesca Fedeli: Ciao.

Francesca Fedeli: Tšau.

So he's Mario. He's our son.

Nõnda, see on Mario. Ta on meie poeg.

He was born two and a half years ago,

Ta sündis kaks ja pool aastat tagasi.

and I had a pretty tough pregnancy

Mul oli päris raske rasedus,

because I had to stay still in a bed for, like, eight months.

sest ma pidin lamama voodis umbes kaheksa kuud.

But in the end everything seemed to be under control.

Kuid lõpuks tundus, et kõik on kontrolli all.

So he got the right weight at birth.

Tal oli normaalne sünnikaal.

He got the right Apgar index.

Tal oli hea Apgari hinne.

So we were pretty reassured by this.

Niisiis me olime üsna rahulikud.

But at the end, 10 days later after he was born,

Kuid siis, 10 päeva pärast tema sündi,

we discovered that he had a stroke.

saime teada, et tal oli insult.

As you might know,

Nagu te arvatavasti teate,

a stroke is a brain injury.

on insult ajukahjustus.

A perinatal stroke could be something

Perinataalne insult võib tekkida

that can happen during the nine months of pregnancy

raseduse ajal

or just suddenly after the birth,

või vahetult pärast sündi.

and in his case, as you can see,

Ja tema puhul, nagu te näete,

the right part of his brain has gone.

on parem ajupool kahjustatud.

So the effect that this stroke could have on Mario's body

Insult oleks võinud mõjutada Mario keha sel viisil,

could be the fact that he couldn't be able to control

et ta ei oleks olnud võimeline kontrollima

the left side of his body.

oma vasakut kehapoolt.

Just imagine, if you have a computer and a printer

Proovige ette kujutada, et teil on arvuti ja printer

and you want to transmit, to input to print out a document,

ning te tahate saata dokumenti printimiseks,

but the printer doesn't have the right drives,

kuid printeril ei ole õigeid draivereid.

so the same is for Mario.

Sama lugu on ka Mario'ga.

It's just like, he would like to move his left side

See näeb välja niimoodi, et ta tahaks liigutada oma vasakut kehapoolt,

of his body, but he's not able to transmit the right input

aga tema aju ei ole võimeline saatma õiget käsku

to move his left arm and left leg.

vasaku käe ja jala liigutamiseks.

So life had to change.

Nüüd pidi meie elu muutuma.

We needed to change our schedule.

Me pidime muutma oma elukorraldust.

We needed to change the impact that this birth had

Me pidime kohanema muutustega,

on our life.

mida sellise lapse sünd endaga kaasa tõi.

Roberto D'Angelo: As you may imagine,

Roberto D'Angelo: Nagu te võite ette kujutada,

unfortunately, we were not ready.

ei olnud me selleks paraku valmis.

Nobody taught us how to deal with such kinds of disabilities,

Mitte keegi ei õpetanud meile, kuidas selliste puuetega toime tulla.

and as many questions as possible started

Ja meil tekkis

to come to our minds.

tohutult palju küsimusi.

And that has been really a tough time.

Ja see on olnud tõeliselt raske aeg.

Questions, some basics, like, you know,

Tekkisid sellises olukorras ilmselt tavapärased küsimused nagu,

why did this happen to us?

miks meiega nii juhtus?

And what went wrong?

Mis läks valesti?

Some more tough, like, really,

Mõned tõsisemad küsimused, nagu

what will be the impact on Mario's life?

kuidas see hakkab mõjutama Mario elu?

I mean, at the end, will he be able to work?

Selles mõttes, et kas ta suudab tulevikus töötada?

Kas ta saab elada normaalset elu?

Will he be able to be normal?

And, you know, as a parent, especially for the first time,

Ja teate, värskete lapsevanematena küsisime endalt,

why is he not going to be better than us?

miks ta ei saa olla meist parem?

And this, indeed, really is tough to say,

Sellest on tõepoolest väga raske rääkida,

but a few months later, we realized that

aga mõne kuu pärast me taipasime,

we were really feeling like a failure.

et tunneme ennast läbikukkunutena.

I mean, the only real product of our life,

Selles mõttes, et meie elu ainuke tõeline tulemus

at the end, was a failure.

on ebaõnnestunud.

And you know, it was not a failure for ourselves in itself,

Ja teate, see ei olnud ainult meie ebaõnnestumine,

but it was a failure that will impact his full life.

see oli ebaõnnestumine, mis hakkab mõjutama kogu tema elu.

Honestly, we went down.

Ausalt öeldes olime me masenduses.

I mean we went really down, but at the end,

Ma pean silmas seda, et me tõesti ei näinud väljapääsu,

we started to look at him,

kuid lõpuks hakkasime me teda jälgima.

and we said, we have to react.

Ja me ütlesime endale, et peame tegutsema.

So immediately, as Francesca said, we changed our life.

Niisiis, nagu Francesca ütles, muutsime me viivitamatult oma elu.

We started physiotherapy, we started the rehabilitation,

Me alustasime füsioteraapiaga, me alustasime rehabilitatsiooniga.

and one of the paths that we were following

Ja üks rehabilitatsiooni suundadest, mida me järgisime,

in terms of rehabilitation is the mirror neurons pilot.

oli peegelneuronite aktiveerimine.

Basically, we spent months doing this with Mario.

Me tegelesime sellega kuid.

You have an object, and we showed him

Meil oli ese ja me näitasime talle,

how to grab the object.

kuidas seda haarata.

Now, the theory of mirror neurons simply says

Peegelneuronite teooria põhimõte on, et

that in your brains, exactly now, as you watch me doing this,

kui te näete, kuidas ma tegutsen,

you are activating exactly the same neurons

siis aktiveeruvad teie ajus täpselt samad neuronid,

as if you do the actions.

mis aktiveeruksid, kui te tegutseksite ise.

It looks like this is the leading edge in terms of rehabilitation.

Tundub, et see on juhtiv rehabilitatsiooni suund.

But one day we found that Mario

Ükskord me aga avastasime, et Mario

was not looking at our hand.

ei jälginudki meie kätt.

He was looking at us.

Ta jälgis meid.

We were his mirror.

Meie olime tema peegel.

And the problem, as you might feel,

Ja probleem oli selles, nagu te võite arvata,

is that we were down, we were depressed,

et me olime masenduses, depressioonis.

we were looking at him as a problem,

Me nägime temas probleemi,

not as a son, not from a positive perspective.

mitte poega, mitte positiivsest vaatenurgast.

And that day really changed our perspective.

Ja see päev tõesti muutis meie suhtumist.

We realized that we had to become

Me taipasime, et meist peab saama

a better mirror for Mario.

parim peegel Mario jaoks.

We restarted from our strengths,

Me alustasime algusest peale ja avastasime oma tugevad küljed.

and at the same time we restarted from his strengths.

Ja samal ajal avastasime ka tema tugevad küljed.

We stopped looking at him as a problem,

Enam ei näinud me temas probleemi.

and we started to look at him as an opportunity to improve.

Me nägime võimalust arenguks.

And really, this was the change,

Ja see oli tõeline muutus.

and from our side, we said,

Ja me küsisime endalt:

"What are our strengths that we really can bring to Mario?"

"Mis on meie tugevad küljed, mida me võiks Mario'le näidata?"

And we started from our passions.

Ja me alustasime oma harrastustest.

I mean, at the end, my wife and myself

Ma pean silmas, et minu naine ja mina ise

are quite different,

oleme üsna erinevad,

kuid meil on ka palju ühist.

but we have many things in common.

We love to travel, we love music,

Me armastame reisida, armastame muusikat,

we love to be in places like this,

armastame olla sellistes kohtades, nagu see, kus me praegu oleme.

and we started to bring Mario with us

Ja me hakkasime Mariot endaga kaasa võtma,

just to show to him the best things that we can show to him.

lihtsalt selleks, et näidata talle parimaid asju, mida me saame talle näidata.

This short video is from last week.

See lühike video on tehtud eelmisel nädalal.

I am not saying --

Ma ei ütle, et ...

(Applause) —

(Aplaus)

I am not saying it's a miracle. That's not the message,

Ma ei ütle, et see on ime. See ei ole mu sõnum,

because we are just at the beginning of the path.

sest me oleme alles teekonna alguses.

But we want to share what was the key learning,

Aga me tahame teiega jagada kõige olulisemat avastust,

the key learning that Mario drove to us,

milleni Mario meid juhtis.

and it is to consider what you have as a gift

Tähtis on keskenduda ka sellele, mis sul on,

and not only what you miss,

mitte ainult sellele, mida sul ei ole.

and to consider what you miss just as an opportunity.

Ja näha selles, mida sul ei ole, võimalust.

And this is the message that we want to share with you.

Ja see ongi see sõnum, mida me tahame teiega jagada.

This is why we are here.

Just sellepärast me siin olemegi.

Mario!

Mario!

And this is why --

Ja sellepärast

(Applause) —

(Aplaus)

And this is why

Ja sellepärast

we decided to share the best mirror in the world with him.

me otsustasime näidata talle parimat peeglit maailmas.

And we thank you so much, all of you.

Ja suur aitäh teile kõigile.

FF: Thank you. RD: Thank you. Bye.

FF: Aitäh. RD: Aitäh. Nägemist.

(Applause)

(Aplaus)

FF: Thank you. (Applause)

FF: Aitäh teile. (Aplaus)