Roberto D'Angelo + Francesca Fedeli: In our baby's illness, a life lesson

Translator: txell vivo Reviewer: Sonia Redondo

Francesca Fedeli: Ciao.

Francesca Fedeli: Hola.

So he's Mario. He's our son.

Aquest és el Mario. Ell és el nostre fill.

He was born two and a half years ago,

Va néixer fa dos anys i mig,

and I had a pretty tough pregnancy

i jo vaig tenir un embaràs força difícil

because I had to stay still in a bed for, like, eight months.

perquè vaig haver de fer llit durant uns vuit mesos.

But in the end everything seemed to be under control.

Però al final tot semblava estar sota control.

So he got the right weight at birth.

Així que ell va tenir el pes adequat al néixer.

He got the right Apgar index.

Va obtenir un resultat correcte al test d'Apgar

So we were pretty reassured by this.

i, per tant, estàvem bastant tranquils.

But at the end, 10 days later after he was born,

Però al final, 10 dies després del naixement,

we discovered that he had a stroke.

vam descobrir que ell tenia un vessament cerebral.

As you might know,

Com ja deveu saber,

a stroke is a brain injury.

es tracta d'una lesió cerebral.

A perinatal stroke could be something

Un vessament cerebral perinatal

that can happen during the nine months of pregnancy

pot ocórrer durant els nou mesos de l'embaràs

or just suddenly after the birth,

o just després del naixement,

and in his case, as you can see,

i en el seu cas cas, com podeu veure,

the right part of his brain has gone.

la part dreta del cervell ha desaparegut.

So the effect that this stroke could have on Mario's body

L'efecte que aquesta lesió podia tenir en el cos del Mario

could be the fact that he couldn't be able to control

podria ser el fet de que no seria capaç de controlar

the left side of his body.

el costat esquerre del seu cos.

Just imagine, if you have a computer and a printer

Tan sols imagineu, si teniu un ordinador i una impressora

and you want to transmit, to input to print out a document,

i vosaltres voleu transmetre, enviar un document a imprimir,

but the printer doesn't have the right drives,

però la impressora no té els discs adequats,

so the same is for Mario.

doncs el mateix li passa a en Mario.

It's just like, he would like to move his left side

És com si ell volgués moure la part esquerra

of his body, but he's not able to transmit the right input

del seu cos, però no és capaç de transmetre la senyal correcta

to move his left arm and left leg.

per moure el seu braç i la seva cama esquerres.

So life had to change.

Així que la vida havia de canviar.

We needed to change our schedule.

Vam haver de canviar el nostre horari.

We needed to change the impact that this birth had

Vam haver de canviar l'impacte que aquest naixement tenia

on our life.

en la nostra vida.

Roberto D'Angelo: As you may imagine,

Robert d'Angelo: Com us podeu imaginar,

unfortunately, we were not ready.

malauradament, no estàvem preparats.

Nobody taught us how to deal with such kinds of disabilities,

Ningú ens va ensenyar com tractar amb aquests tipus de discapacitats,

and as many questions as possible started

i tantes preguntes com són possibles van començar

to come to our minds.

a venir a la nostra ment.

And that has been really a tough time.

I aquell va ser un temps realment dur.

Questions, some basics, like, you know,

Preguntes, algunes bàsiques, com, ja sabeu,

why did this happen to us?

per què ens passa això a nosaltres?

And what went wrong?

I què va anar malament?

Some more tough, like, really,

Algunes més de dures, com,

what will be the impact on Mario's life?

quin serà l'impacte sobre la vida del Mario?

I mean, at the end, will he be able to work?

Vull dir, al final, podrà treballar?

Podrà ser normal?

Will he be able to be normal?

And, you know, as a parent, especially for the first time,

I, sabeu, com a pare, especialment per primera vegada,

why is he not going to be better than us?

per què ell no serà millor que nosaltres?

And this, indeed, really is tough to say,

I així, de fet, costa de dir,

but a few months later, we realized that

però uns mesos després, ens vam adonar que

we were really feeling like a failure.

nosaltres ens sentíem totalment com un fracàs.

I mean, the only real product of our life,

Vull dir, l'únic producte real de la nostra vida,

at the end, was a failure.

al final, era un fracàs.

And you know, it was not a failure for ourselves in itself,

I sabeu, no era un fracàs per a nosaltres mateixos,

but it was a failure that will impact his full life.

sinó que era un fracàs que afectaria tota la seva vida.

Honestly, we went down.

Sincerament, ens vam enfonsar.

I mean we went really down, but at the end,

Vull dir que ens vam enfonsar realment, però al final,

we started to look at him,

vam començar a mirar-lo,

and we said, we have to react.

i vam dir, hem de reaccionar.

So immediately, as Francesca said, we changed our life.

Així que immediatament, com la Francesca ha dit, vam canviar la nostra vida.

We started physiotherapy, we started the rehabilitation,

Vam iniciar fisioteràpia, vam començar la rehabilitació,

and one of the paths that we were following

i un dels camins que estàvem seguint

in terms of rehabilitation is the mirror neurons pilot.

en termes de rehabilitació era treballar les neurones mirall.

Basically, we spent months doing this with Mario.

Bàsicament, vam passar mesos fent això amb el Mario.

You have an object, and we showed him

Tu tens un objecte, i li ensenyàvem

how to grab the object.

com agafar l'objecte.

Now, the theory of mirror neurons simply says

Bé doncs, la teoria de les neurones mirall simplement diu

that in your brains, exactly now, as you watch me doing this,

que en el teu cervell, exactament ara, mentre tu em mires a mi fent això,

you are activating exactly the same neurons

tu estàs activant exactament les mateixes neurones

as if you do the actions.

com si estiguessis fent l'acció.

It looks like this is the leading edge in terms of rehabilitation.

Sembla que això és la tècnica puntera en termes de rehabilitació.

But one day we found that Mario

Però un dia vam veure que el Mario

was not looking at our hand.

no mirava la nostra mà.

He was looking at us.

Ens mirava a nosaltres.

We were his mirror.

Nosaltres erem el seu mirall.

And the problem, as you might feel,

I el problema, tal i com deveu percebre-ho,

is that we were down, we were depressed,

és que estàvem enfonsats, estàvem deprimits,

we were looking at him as a problem,

nosaltres el vèiem a ell com a un problema,

not as a son, not from a positive perspective.

i no com a un fill, no des d'una perspectiva positiva.

And that day really changed our perspective.

I aquell dia realment va canviar la nostra perspectiva.

We realized that we had to become

Ens vam adonar de que havíem d'arribar a ser

a better mirror for Mario.

un millor mirall per al Mario.

We restarted from our strengths,

Vam tornar a començar des de les nostres fortaleses,

and at the same time we restarted from his strengths.

i al mateix temps vam reiniciar des de les seves fortaleses.

We stopped looking at him as a problem,

Vam deixar de mirar-lo com a un problema,

and we started to look at him as an opportunity to improve.

i vam començar a veure'l com a una oportunitat per a millorar.

And really, this was the change,

I de debò, aquest va ser el canvi,

and from our side, we said,

i per la nostra banda, nosaltres vam dir,

"What are our strengths that we really can bring to Mario?"

"Quines són les fortaleses que podem realment aportar al Mario?"

And we started from our passions.

I vam començar per les nostres passions.

I mean, at the end, my wife and myself

Vull dir, al final, la meva dona i jo

are quite different,

som força diferents,

però tenim moltes coses en comú.

but we have many things in common.

We love to travel, we love music,

Ens encanta viatjar, ens encanta la música,

we love to be in places like this,

ens encanta estar en llocs com aquest,

and we started to bring Mario with us

i vam començar a portar el Mario amb nosaltres

just to show to him the best things that we can show to him.

tan sols per mostrar-li les millors coses que podem ensenyar-li.

This short video is from last week.

Aquest curt vídeo és de la setmana passada.

I am not saying --

No estic dient --

(Applause) —

(Aplaudiments) —

I am not saying it's a miracle. That's not the message,

No estic dient que és un miracle. Aquest no és el missatge,

because we are just at the beginning of the path.

perquè nosaltres estem tot just a l'inici del camí.

But we want to share what was the key learning,

Però volem compartir el que va ser l'aprenentatge clau,

the key learning that Mario drove to us,

l'aprenentatge clau al que ens va portar el Mario,

and it is to consider what you have as a gift

i aquest és tenir en compte el què tens com un do

and not only what you miss,

i no només el què trobes a faltar,

and to consider what you miss just as an opportunity.

i considerar el què trobes a faltar com a una oportunitat.

And this is the message that we want to share with you.

I aquest és el missatge que nosaltres volem compartir aquí.

This is why we are here.

És per això que som aquí.

Mario!

Mario!

And this is why --

I és per això que --

(Applause) —

(Aplaudiments) —

And this is why

I és per això que

we decided to share the best mirror in the world with him.

vam decidir compartir el millor mirall del món amb ell.

And we thank you so much, all of you.

I us ho agraïm moltíssim, a tots vosaltres.

FF: Thank you. RD: Thank you. Bye.

FF: Gràcies RD: Gràcies. Adéu

(Applause)

(Aplaudiments)

FF: Thank you. (Applause)

FF: Gràcies. (Aplaudiments)