Roberto D'Angelo + Francesca Fedeli: In our baby's illness, a life lesson

122,147 views

2013-07-24 ・ TED


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Roberto D'Angelo + Francesca Fedeli: In our baby's illness, a life lesson

122,147 views ・ 2013-07-24

TED


Dvaput kliknite na engleske titlove ispod za reprodukciju videozapisa.

Prevoditelj: Mladen Barešić Recezent: Senzos Osijek
00:13
Francesca Fedeli: Ciao.
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Francesca Fedeli: Ciao!
00:15
So he's Mario. He's our son.
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Ovo je Mario. Naš sin.
00:18
He was born two and a half years ago,
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Rođen je prije dvije pol godine.
00:21
and I had a pretty tough pregnancy
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Moja je trudnoća bila prilično teška,
00:25
because I had to stay still in a bed for, like, eight months.
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jer sam morala mirovati oko osam mjeseci.
00:29
But in the end everything seemed to be under control.
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Na koncu, činilo se da je sve pod kontrolom.
00:32
So he got the right weight at birth.
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Pri rođenju, tjelesna težina je bila dobra.
00:35
He got the right Apgar index.
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Apgar-indeks bio je dobar.
00:37
So we were pretty reassured by this.
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Sve nas je to prilično ohrabrilo.
00:40
But at the end, 10 days later after he was born,
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Međutim, nakon svega, deset dana nakon rođenja,
00:47
we discovered that he had a stroke.
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otkrili smo da je imao moždani udar.
00:49
As you might know,
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Kao što vjerojatno znate,
00:51
a stroke is a brain injury.
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moždani udar znači ozljedu mozga.
00:54
A perinatal stroke could be something
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Perinatalni moždani udar može se
00:56
that can happen during the nine months of pregnancy
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dogoditi tijekom devet mjeseci trudnoće
01:00
or just suddenly after the birth,
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ili neposredno nakon rođenja.
01:03
and in his case, as you can see,
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A u njegovom slučaju, kao što možete vidjeti,
01:06
the right part of his brain has gone.
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desni dio mozga je nestao.
01:10
So the effect that this stroke could have on Mario's body
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Moguća posljedica ovakvog udara je
01:15
could be the fact that he couldn't be able to control
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da Mario neće biti u stanju kontrolirati
01:19
the left side of his body.
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lijevu stranu svoga tijela.
01:21
Just imagine, if you have a computer and a printer
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Zamislite samo da imate računalo i pisač,
01:25
and you want to transmit, to input to print out a document,
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i želite ispisati neki dokument,
01:29
but the printer doesn't have the right drives,
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ali desna strana pisača ne funkcionira...
01:33
so the same is for Mario.
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Mario je u takvom stanju.
01:36
It's just like, he would like to move his left side
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Ako bi poželio pomaknuti lijevu stranu svoga tijela,
01:39
of his body, but he's not able to transmit the right input
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ne bi bio u stanju odaslati pravu informaciju
01:43
to move his left arm and left leg.
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svojoj lijevoj ruci ili lijevoj nozi.
01:48
So life had to change.
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I tako se život morao promijeniti...
01:50
We needed to change our schedule.
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Morali smo izmijeniti svoje planove...
01:52
We needed to change the impact that this birth had
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Morali smo nekako preokrenuti utjecaj
01:58
on our life.
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koji je ovo rođenje imalo na naš život.
02:00
Roberto D'Angelo: As you may imagine,
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Roberto D'Angelo: Kao što možete zamisliti,
02:02
unfortunately, we were not ready.
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mi, nažalost, nismo bili spremni...
02:05
Nobody taught us how to deal with such kinds of disabilities,
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Nitko nas nije poučio suočavanju s ovakvim vrstama oštećenja,
02:09
and as many questions as possible started
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i bezbroj nam je pitanja
02:11
to come to our minds.
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započelo navirati u misli.
02:13
And that has been really a tough time.
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Bilo je to zaista teško razdoblje.
02:16
Questions, some basics, like, you know,
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Pitanja, neka temeljna poput, znate:
02:18
why did this happen to us?
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Zašto se ovo dogodilo baš nama?
02:20
And what went wrong?
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Što je pošlo po zlu?
02:22
Some more tough, like, really,
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Kao i neka zahtjevnija pitanja poput:
02:25
what will be the impact on Mario's life?
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Kako će ovo utjecati na Marijev život?
02:27
I mean, at the end, will he be able to work?
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Na koncu, hoće li biti sposoban raditi?
Hoće li biti normalan?
02:29
Will he be able to be normal?
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02:30
And, you know, as a parent, especially for the first time,
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I, znate, kao roditelj, osobito kad ste tek postali roditelj:
02:33
why is he not going to be better than us?
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Zašto on neće postati bolji od nas?
02:37
And this, indeed, really is tough to say,
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I, zbilja je teško to reći,
02:40
but a few months later, we realized that
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ali nekoliko mjeseci kasnije, shvatili smo
02:43
we were really feeling like a failure.
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da smo se stvarno osjećali kao potpuni gubitnici.
02:46
I mean, the only real product of our life,
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Hoću reći, jedini stvarni proizvod našega života,
02:49
at the end, was a failure.
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ispao je, na kraju, potpuni neuspjeh.
02:51
And you know, it was not a failure for ourselves in itself,
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Znate, nije to, sam po sebi, bio naš neuspjeh,
02:57
but it was a failure that will impact his full life.
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već neuspjeh koji će utjecati na čitav njegov život.
03:02
Honestly, we went down.
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Iskreno, skršilo nas je.
03:03
I mean we went really down, but at the end,
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Mislim, stvarno nas je slomilo...
03:07
we started to look at him,
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Međutim, počeli smo promatrati njega,
03:09
and we said, we have to react.
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i rekli smo si: Moramo se pokrenuti!
03:11
So immediately, as Francesca said, we changed our life.
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I odmah smo, kao što je Francesca rekla, izmijenili svoj život.
03:14
We started physiotherapy, we started the rehabilitation,
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Započeli smo sa fizioterapijom, krenuli smo na rehabilitaciju,
03:17
and one of the paths that we were following
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i jedan od smjerova koje smo u rehabilitaciji
03:19
in terms of rehabilitation is the mirror neurons pilot.
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slijedili bili su nalazi istraživanja o zrcalnim neuronima.
03:22
Basically, we spent months doing this with Mario.
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U osnovi, mjesecima smo to radili s Mariom.
03:26
You have an object, and we showed him
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Uzeli bismo predmet i pokazali mu
03:29
how to grab the object.
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kako da ga zgrabi.
03:31
Now, the theory of mirror neurons simply says
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Teorija o zrcalnim neuronima jednostavno kaže
03:34
that in your brains, exactly now, as you watch me doing this,
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da upravo sad, dok me promatrate kako ovo činim, u vašem mozgu se
03:38
you are activating exactly the same neurons
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aktiviraju upravo oni neuroni
03:40
as if you do the actions.
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kao i kad biste to stvarno činili.
03:44
It looks like this is the leading edge in terms of rehabilitation.
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Ovo su, čini se, najnovije spoznaje u području rehabilitacije.
03:48
But one day we found that Mario
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No, jednoga dana otkrili smo da Mario
03:51
was not looking at our hand.
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ne gleda u naše ruke.
03:55
He was looking at us.
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Gledao je u nas.
03:57
We were his mirror.
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Mi smo bili njegovo zrcalo.
04:00
And the problem, as you might feel,
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A problem je, kao što možda slutite,
04:02
is that we were down, we were depressed,
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bio u tome što smo mi bili na dnu. Bili smo depresivni.
04:04
we were looking at him as a problem,
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Njega smo doživljavali kao problem...
04:06
not as a son, not from a positive perspective.
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Ne kao sina. Ne iz pozitivnog kuta.
04:11
And that day really changed our perspective.
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Taj je dan potpuno izmijenio našu perspektivu.
04:14
We realized that we had to become
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Uvidjeli smo da moramo postati
04:18
a better mirror for Mario.
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bolje zrcalo našemu Mariju.
04:20
We restarted from our strengths,
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Krenuli smo ponovno od naših snaga,
04:22
and at the same time we restarted from his strengths.
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istodobno se vrativši i njegovim snagama.
04:26
We stopped looking at him as a problem,
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Prestali smo u njemu vidjeti samo problem,
04:29
and we started to look at him as an opportunity to improve.
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i započeli smo ga promatrati kao potencijal koji se može razviti.
04:33
And really, this was the change,
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I doista, to je bila istinska promjena.
04:36
and from our side, we said,
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Sa svoje smo se strane pitali:
04:39
"What are our strengths that we really can bring to Mario?"
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"Koje su to naše jake strane kojima možemo pomoći Mariju?"
04:42
And we started from our passions.
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I krenuli smo od svojih strasti...
04:43
I mean, at the end, my wife and myself
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Mislim, moja supruga i ja smo
04:45
are quite different,
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prilično različiti,
ali imamo i dosta zajedničkoga.
04:47
but we have many things in common.
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04:49
We love to travel, we love music,
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Volimo putovati, volimo glazbu,
04:51
we love to be in places like this,
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volimo biti na mjestima poput ovoga,
04:53
and we started to bring Mario with us
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i počeli smo Marija voditi sa sobom!
04:55
just to show to him the best things that we can show to him.
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Samo da bismo mu pokazali ono najbolje što mu možemo pokazati.
04:59
This short video is from last week.
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Ovaj je kratki video od prošloga tjedna...
05:05
I am not saying --
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Ne kažem da...
05:06
(Applause) —
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(Pljesak)
05:08
I am not saying it's a miracle. That's not the message,
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Ne kažem da je ovo čudo. Nije to poruka,
05:11
because we are just at the beginning of the path.
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jer tek smo na početku puta.
05:13
But we want to share what was the key learning,
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Ali, ono što želimo podijeliti s vama ključna je pouka,
05:17
the key learning that Mario drove to us,
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ključna pouka koju nam je Mario dao,
05:19
and it is to consider what you have as a gift
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a to je da razmislite o svome daru,
05:22
and not only what you miss,
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a ne samo o onome što vam nedostaje!
05:26
and to consider what you miss just as an opportunity.
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I da u onome što vam nedostaje uočavate priliku!
05:30
And this is the message that we want to share with you.
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To je poruka koju smo željeli podijeliti s vama.
05:33
This is why we are here.
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Radi toga smo ovdje!
05:37
Mario!
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Mario!
05:39
And this is why --
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Radi ovoga...
05:40
(Applause) —
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(Pljesak)
05:45
And this is why
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Radi ovoga smo
05:50
we decided to share the best mirror in the world with him.
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odlučili najbolje zrcalo na svijetu podijeliti - s njim!
05:56
And we thank you so much, all of you.
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Silno smo vam zahvalni! Svima vama!
05:59
FF: Thank you. RD: Thank you. Bye.
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FF: Hvala vam! RD: Hvala vam! Doviđenja!
06:01
(Applause)
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(Pljesak)
06:05
FF: Thank you. (Applause)
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FF: Hvala vam. (Pljesak)
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