Roberto D'Angelo + Francesca Fedeli: In our baby's illness, a life lesson

Translator: Anna Misutkova Reviewer: Roman Studenic

Francesca Fedeli: Ciao.

Francesca Fedeli: Čau

So he's Mario. He's our son.

Takže, toto je Mario, náš syn.

He was born two and a half years ago,

Narodil sa pred dva a pol rokmi

and I had a pretty tough pregnancy

a moje tehotenstvo bolo dosť ťažké,

because I had to stay still in a bed for, like, eight months.

pretože som musela ležať v posteli okolo osem mesiacov.

But in the end everything seemed to be under control.

Nakoniec sa ale všetko zdalo byť v poriadku.

So he got the right weight at birth.

Váhu mal pri narodení správnu.

He got the right Apgar index.

Apgarovo skóre mal tiež v poriadku.

So we were pretty reassured by this.

Takže sme boli pokojní.

But at the end, 10 days later after he was born,

Ale nakoniec, 10 dní po pôrode

we discovered that he had a stroke.

sme zistili, že mal mrtvicu.

As you might know,

A ako asi viete,

a stroke is a brain injury.

mrtvica je mozgové zranenie.

A perinatal stroke could be something

Pôrodná mozgová príhoda je niečo,

that can happen during the nine months of pregnancy

čo sa môže stať behom 9 mesiacov tehotenstva

or just suddenly after the birth,

alebo len tak po narodení

and in his case, as you can see,

a v jeho prípade, ako tu vidíte

the right part of his brain has gone.

prestala fungovať pravá časť mozgu.

So the effect that this stroke could have on Mario's body

Takže účinkom tejto mrtvice na Mariovo telo

could be the fact that he couldn't be able to control

bolo, že nebol schopný ovládať

the left side of his body.

ľavú časť jeho tela.

Just imagine, if you have a computer and a printer

Predstavte si, že máte počítač a tlačiareň

and you want to transmit, to input to print out a document,

a chcete poslať dokument do tlačiarne na vytlačenie,

but the printer doesn't have the right drives,

ale tlačiareň nemá tie správne ovládače,

so the same is for Mario.

a to isté platí pre Maria.

It's just like, he would like to move his left side

Ide o to, že on by chcel hýbať svojou ľavou časťou tela,

of his body, but he's not able to transmit the right input

ale nie je schopný urobiť správný prenos,

to move his left arm and left leg.

aby mohol pohnúť ľavou rukou a ľavou nohou.

So life had to change.

A tak sa náš život musel zmeniť.

We needed to change our schedule.

Museli sme zmeniť náš denný rytmus.

We needed to change the impact that this birth had

Museli sme zmeniť ten dopad, ktorý mal pôrod

on our life.

na náš život.

Roberto D'Angelo: As you may imagine,

Roberto D'Angelo: A ako asi tušíte,

unfortunately, we were not ready.

nanešťastie sme neboli pripravení.

Nobody taught us how to deal with such kinds of disabilities,

Nikto nám nepovedal, ako zvládnuť takýto druh postihnutia

and as many questions as possible started

a v hlave sa nám začalo rojiť

to come to our minds.

množstvo otázok.

And that has been really a tough time.

A bolo to skutočne ťažké obdobie.

Questions, some basics, like, you know,

Boli to jednoduché otázky ako napríklad,

why did this happen to us?

prečo sa nám toto stalo?

And what went wrong?

A čo sme urobili zle?

Some more tough, like, really,

Niektoré boli závažnejšie -

what will be the impact on Mario's life?

aký to bude mať dopad na Mariov život?

I mean, at the end, will he be able to work?

Respektíve, bude vôbec schopný pracovať?

Bude normálny?

Will he be able to be normal?

And, you know, as a parent, especially for the first time,

A viete, ako rodič, hlavne po prvý krát,

why is he not going to be better than us?

prečo nebude lepší ako my?

And this, indeed, really is tough to say,

A je to skutočne ťažké priznať,

but a few months later, we realized that

ale o pár mesiacov sme si uvedomili, že

we were really feeling like a failure.

sme cítili, že sme zlyhali.

I mean, the only real product of our life,

Myslím tým, že jediným skutočným produktom nášho života

at the end, was a failure.

bolo nakoniec zlyhanie.

And you know, it was not a failure for ourselves in itself,

A nebolo to zlyhanie len pre nás,

but it was a failure that will impact his full life.

ale aj zlyhanie, ktoré ovplyvní celý jeho život.

Honestly, we went down.

Úprimne, cítili sme sa hrozne.

I mean we went really down, but at the end,

Fakt hrozne, ale nakoniec

we started to look at him,

sme sa naňho pozreli

and we said, we have to react.

a povedali sme si, že musíme niečo urobiť.

So immediately, as Francesca said, we changed our life.

A tak sme, ako už Francesca povedala, zmenili náš život.

We started physiotherapy, we started the rehabilitation,

Začali sme s fyzioterapiou, s rehabilitáciami

and one of the paths that we were following

a jedna z metód, ktorú sme využili

in terms of rehabilitation is the mirror neurons pilot.

v rámci rehabilitácií, je pilotná metóda zrkadlových neurónov.

Basically, we spent months doing this with Mario.

V podstate sme ju robili mesiace s Mariom.

You have an object, and we showed him

Máte predmet a a ukázali sme mu

how to grab the object.

ako tento predmet zobrať do ruky.

Now, the theory of mirror neurons simply says

A teória zrkadlových neurónov jednoduvho tvrdí,

that in your brains, exactly now, as you watch me doing this,

že sa vo vašom mozgu práve teraz, ako ma sledujete vykonávať tento pohyb,

you are activating exactly the same neurons

aktivujú tie isté neuróny,

as if you do the actions.

ako keby ste tento pohyb vykonávali vy.

It looks like this is the leading edge in terms of rehabilitation.

Vyzerá to, že toto je tá optimálna rehabilitačná metóda.

But one day we found that Mario

Ale jedného dňa sme zistili, že Mario

was not looking at our hand.

sa nepozerá na našu ruku.

He was looking at us.

Pozeral sa na nás.

We were his mirror.

My sme boli jeho zrkadlom.

And the problem, as you might feel,

A problémom, ako asi tušíte,

is that we were down, we were depressed,

bolo, že sme boli sklesnutí, v depresii,

we were looking at him as a problem,

vnímali sme ho ako problém,

not as a son, not from a positive perspective.

a nie ako syna, nie z pozitívnej perspektívy.

And that day really changed our perspective.

A onen deň skutočne zmenil náš uhol pohľadu.

We realized that we had to become

Uvedomili sme si, že sme sa stali

a better mirror for Mario.

lepším zrkadlom pre Maria.

We restarted from our strengths,

Začali sme nanovo vďaka našim silným stránkam

and at the same time we restarted from his strengths.

a tiež vďaka jeho silným stránkam.

We stopped looking at him as a problem,

Prestali sme ho vnímať ako problém

and we started to look at him as an opportunity to improve.

a začali sme sa naňho pozerať ako na príležitosť na zlepšenie sa.

And really, this was the change,

A toto bola fakt tá zmena

and from our side, we said,

a z našej strany sme si povedali,

"What are our strengths that we really can bring to Mario?"

"Aké sú naše silné stránky, ktoré môžeme odovzdať Mariovi?"

And we started from our passions.

A začali sme od našich koníčkov.

I mean, at the end, my wife and myself

Síce som ja i moja žena

are quite different,

dosť rozdielni,

ale máme veľa spoločných vecí.

but we have many things in common.

We love to travel, we love music,

Radi cestujeme, počúvame hudbu

we love to be in places like this,

a sme radi na miestach, ako je toto,

and we started to bring Mario with us

a tak sme začali brávať Maria s nami,

just to show to him the best things that we can show to him.

aby sme mu ukázali tie najlepšie veci, ktoré mu môžeme ukázať.

This short video is from last week.

Toto video z minulého týždňa.

I am not saying --

Nehovorím, že -

(Applause) —

(Potlesk) -

I am not saying it's a miracle. That's not the message,

Nehovorím, že je to zázrak. To nie je to posolstvo,

because we are just at the beginning of the path.

pretože sme len na začiatku.

But we want to share what was the key learning,

Ale chceme sa podeliť o to, čo bolo tým hlavným ponaučením,

the key learning that Mario drove to us,

ponaučením, ku ktorému nás doviedol Mario

and it is to consider what you have as a gift

a tým je brať, čo máš, ako dar

and not only what you miss,

a nielen myslieť na to, čo ti chýba,

and to consider what you miss just as an opportunity.

a brať to, čo máš, ako príležitosť.

And this is the message that we want to share with you.

Toto je tá správa, s ktorou sme sa chceli s vami podeliť.

This is why we are here.

Toto je prečo sme tu.

Mario!

Mario!

And this is why --

A preto -

(Applause) —

(Potlesk) -

And this is why

A preto

we decided to share the best mirror in the world with him.

sme sa rozhodli podeliť o najlepšie zrkadlo na svete s vami.

And we thank you so much, all of you.

A ďakujeme vám všetkým veľmi pekne.

FF: Thank you. RD: Thank you. Bye.

FF: Ďakujeme. RD: Vďaka, dovidenia.

(Applause)

(Potlesk)

FF: Thank you. (Applause)

FF: Ďakujeme Vám. (Potlesk)