My Inner Life with Asperger's | Alix Generous | TED Talks

425,569 views ・ 2015-09-08

TED


Fai dobre clic nos subtítulos en inglés a continuación para reproducir o vídeo.

Translator: Antón Barrio Caxide Reviewer: Serv. de Norm. Lingüística U. de Santiago de Compostela
00:12
Today, I want to talk to you about dreams.
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Hoxe quérovos falar sobre os soños.
00:15
I have been a lucid dreamer my whole life,
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Toda a miña vida fun unha soñadora lúcida
00:18
and it's cooler than in the movies.
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e é moito máis guai que nas películas.
00:20
(Laughter)
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(Risas)
00:22
Beyond flying, breathing fire,
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Máis aló de voar, cuspir lume pola boca,
00:25
and making hot men spontaneously appear ...
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e facer que se aparezan homes atractivos
00:28
(Laughter)
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00:30
I can do things like read and write music.
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Podo facer cousas como ler e escribir música.
00:33
Fun fact is that I wrote my personal statement to college
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Como dato curioso, escribín a miña carta persoal para a universidade
00:36
in a dream.
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nun soño.
00:38
And I did accepted. So, yeah.
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E fun admitida. Aí o deixo.
00:41
I am a very visual thinker.
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Son unha pensadora moi visual.
00:44
I think in pictures, not words.
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Penso en imaxes, non en palabras.
00:47
To me, words are more like instincts and language.
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Para min, as palabras son unha mestura de instintos e linguaxe.
00:51
There are many people like me;
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Hai moita xente coma min,
00:53
Nikola Tesla, for example,
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Nikola Tesla, por exemplo,
00:56
who could visualize, design, test, and troubleshoot everything --
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podía visualizar, deseñar, comprobar e solucionar todo
01:01
all of his inventions -- in his mind, accurately.
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—todos os inventos— na súa mente de xeito preciso.
01:06
Language is kind of exclusive to our species, anyway.
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Aínda así, a linguaxe é algo exclusivo da nosa especie.
01:09
I am a bit more primitive,
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Eu son algo máis primitiva,
01:12
like a beta version of Google Translate.
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como a versión beta do Google Translate.
01:14
(Laughter)
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(Risas)
01:18
My brain has the ability to hyper-focus on things that interest me.
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O meu cerebro ten a habilidade de centrarse nas cousas que me interesan.
01:23
For example, once I had an affair with calculus
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Por exemplo, unha vez, tiven un amorío co cálculo
01:25
that lasted longer than some celebrity marriages.
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que durou máis que algún matrimonio deses dos famosos.
01:28
(Laughter)
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(Risas)
01:32
There are some other unusual things about me.
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Teño algunha outra peculiaridade.
01:36
You may have noticed that I don't have much inflection
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Notariades que non modulo moito a voz.
01:39
in my voice.
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01:40
That's why people often confuse me with a GPS.
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É por iso que moita xente me confunde cun GPS.
01:43
(Laughter)
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(Risas)
01:48
This can make basic communication a challenge, unless you need directions.
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Isto volve a conversa nun inferno, agás que precises indicacións.
01:52
(Laughter)
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(Risas)
01:56
Thank you.
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01:57
(Applause)
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Grazas.
(Aplausos)
02:02
A few years ago, when I started doing presentations,
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Hai xa un tempo, cando comecei nisto das charlas,
02:05
I went to get head shots done for the first time.
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fun sacar fotos por primeira vez.
02:09
The photographer told me to look flirty.
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A fotógrafa díxome que me puxese provocativa.
02:12
(Laughter)
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(Risas)
02:14
And I had no idea what she was talking about.
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Eu non tiña nin idea do que estaba a falar
(Risas)
02:17
(Laughter)
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02:18
She said, "Do that thing, you know, with your eyes,
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Díxome: "Fai iso, xa sabes, cos ollos,
02:21
when you're flirting with guys."
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coma cando ligas cos homes."
"O que?", pregunteille.
02:23
"What thing?" I asked.
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02:25
"You know, squint."
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"Xa sabes, entorna os ollos."
02:27
And so I tried, really.
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E de verdade que o intentei.
02:29
It looked something like this.
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Asemellábase algo a isto.
02:31
(Laughter)
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(Risas)
02:33
I looked like I was searching for Waldo.
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Parecía que buscaba a Wally.
02:36
(Laughter)
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(Risas)
02:40
There's a reason for this,
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Existe un motivo para isto,
02:42
as there is a reason that Waldo is hiding.
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do mesmo xeito que hai un motivo polo que Wally se agocha.
02:44
(Laughter)
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(Risas)
02:52
I have Asperger's,
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Teño Asperger, un tipo de autismo de alta funcionalidade
02:54
a high-functioning form of autism
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02:56
that impairs the basic social skills one is expected to display.
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que limita as habilidades sociais básicas que se esperan de nós.
03:02
It's made life difficult in many ways,
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Isto dificultou a miña vida de moitas maneiras,
03:05
and growing up, I struggled to fit in socially.
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e segundo fun medrando, custábame máis encaixar.
03:09
My friends would tell jokes, but I didn't understand them.
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Os meus amigos facían bromas que non era capaz de entender.
03:14
My personal heroes were George Carlin and Stephen Colbert --
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Os meus heroes eran George Carlin e Stephen Colbert --
03:19
and they taught me humor.
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e eles ensináronme o sentido do humor.
03:22
My personality switched from being shy and awkward
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A miña personalidade pasou de vergoñenta e torpe
03:26
to being defiant and cursing out a storm.
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a ser desafiante e xurar coma carreteiro.
03:30
Needless to say, I did not have many friends.
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Non fai falla engadir que non tiña moitos amigos.
03:33
I was also hypersensitive to texture.
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Era hipersensible ás texturas.
03:36
The feel of water on my skin was like pins and needles,
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Sentir auga na miña pel era coma se me cravasen agullas.
03:40
and so for years, I refused to shower.
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Así é que durante anos negueime a bañarme.
03:43
I can assure you that my hygiene routine is up to standards now, though.
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De todos xeitos, asegúrolles que a miña hixiene persoal é adecuada agora.
03:47
(Laughter)
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(Risas)
03:50
I had to do a lot to get here, and my parents --
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Custoume moito chegar ata aquí, e aos meus pais.
03:54
things kind of got out of control when I was sexually assaulted by a peer,
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A cousa descontrolouse cando fun agredida sexualmente por un colega,
03:59
and on top of everything, it made a difficult situation worse.
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e unha situación xa difícil empeorou.
04:05
And I had to travel 2,000 miles across the country to get treatment,
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Viaxei 3000 quilómetros atravesando o país para recibir tratamento
04:10
but within days of them prescribing a new medication,
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pero ao pouco de me receitaren unha nova menciña,
04:14
my life turned into an episode of the Walking Dead.
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a miña vida volveuse un episodio de The Walkind Dead.
04:18
I became paranoid, and began to hallucinate
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Volvinme paranoica e comecei a ver
04:21
that rotting corpses were coming towards me.
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corpos putrefactos que viñan cara a min.
04:24
My family finally rescued me,
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Ao final, a miña familia rescatoume,
04:27
but by that time, I had lost 19 pounds in those three weeks,
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pero para entón, xa perdera 9 quilos en 3 semanas,
04:32
as well as developing severe anemia,
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padecía anemia grave
04:34
and was on the verge of suicide.
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e estaba preto de me suicidar.
04:38
I transferred to a new treatment center that understood my aversions,
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Cambieime a un novo centro de tratamento que comprendía as miñas aversións,
04:42
my trauma, and my social anxiety,
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o meu trauma e a miña ansiedade social
e que sabían como tratalas, finalmente recibín a axuda que precisaba.
04:46
and they knew how to treat it, and I got the help I finally needed.
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04:50
And after 18 months of hard work,
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E despois de 18 meses de duro traballo
04:52
I went on to do incredible things.
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comecei a facer cousas incribles.
04:56
One of the things with Asperger's is that oftentimes,
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Unha das cousas cos Asperger é que a miúdo
05:00
these people have a very complex inner life,
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son persoas cunha vida interior moi complexa,
05:02
and I know for myself, I have a very colorful personality,
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e falo por experiencia propia, eu teño unha personalidade moi exuberante,
05:05
rich ideas, and just a lot going on in my mind.
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teño unha morea de ideas, e moito máis dentro da miña cabeza.
05:08
But there's a gap between where that stands,
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Pero hai unha diferenza entre onde todo isto ocorre
05:12
and how I communicate it with the rest of the world.
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e a forma na que eu o comunico ao mundo.
05:15
And this can make basic communication a challenge.
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Isto dificulta ata a comunicación máis simple.
Non moitos lugares quererían contratarme coa miña falta de habilidades sociais,
05:20
Not many places would hire me, due to my lack of social skills,
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05:23
which is why I applied to Waffle House.
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por iso pedín o posto en Waffle House.
05:25
(Laughter)
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(Risas)
05:32
Waffle House is an exceptional 24-hour diner --
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Waffle House é un restaurante excepcional aberto as 24 horas
05:35
(Laughter)
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(Risas)
05:37
(Applause)
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(Aplausos)
05:41
thank you --
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Grazas --
05:42
where you can order your hash browns
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onde podes pedir patacas fritidas
05:44
the many ways that someone would dispose of a human corpse ...
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de tantas maneiras como un se pode desfacer dun corpo
05:47
(Laughter)
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(Risas)
05:49
Sliced, diced, peppered, chunked, topped, capped, and covered.
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En liscos, en dados, sazonadas, en cachos, recubertas, rebozadas e bañadas.
05:54
(Laughter)
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(Risas)
05:56
As social norms would have it,
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Como dita a norma,
05:57
you should only go to Waffle House at an ungodly hour in the night.
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un só debe ir a Waffle House a horas intempestivas.
06:01
(Laughter)
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(Risas)
06:02
So one time, at 2 am, I was chatting with a waitress, and I asked her,
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Unha vez, ás 2 da mañá, estaba falando cunha camareira e pregunteille,
"Que é o máis ridículo que che pasou neste traballo?"
06:07
"What's the most ridiculous thing that's happened to you on the job?"
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06:10
And she told me that one time, a man walked in completely naked.
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E díxome que unha vez un home entrou completamente espido.
06:14
(Laughter)
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(Risas)
06:15
I said, "Great! Sign me up for the graveyard shift!"
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e respondín, "Xenial! Apúntame na quenda de noite"
06:18
(Laughter)
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(Risas)
06:20
Needless to say, Waffle House did not hire me.
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Non fai falla dicir que Waffle House non me contratou.
06:25
So in terms of having Asperger's, it can be viewed as a disadvantage,
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E é porque padecer Asperger pode verse coma unha desvantaxe
06:30
and sometimes it is a real pain in the butt,
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e ás veces é un encordio
06:32
but it's also the opposite.
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pero tamén é todo o contrario.
06:34
It's a gift, and it allows me to think innovatively.
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É un don que me permite pensar de xeito innovador.
06:38
At 19, I won a research competition for my research on coral reefs,
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Aos 19, gañei un concurso de investigación cun traballo sobre os arrecifes de coral
06:45
and I ended up speaking
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e acabei falando
06:47
at the UN Convention of Biological Diversity,
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no Convenio da ONU sobre Diversidade Biolóxica,
06:49
presenting this research.
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presentando a miña investigación.
06:50
(Applause)
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(Aplausos)
06:52
Thank you.
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06:53
(Applause)
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Grazas.
(Aplausos)
06:58
And at 22, I'm getting ready to graduate college,
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E con 22 anos, estou a piques de me graduar na universidade
07:02
and I am a co-founder of a biotech company called AutismSees.
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e son cofundadora dunha empresa chamada AutismSees.
07:08
(Applause)
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(Aplausos)
07:09
Thank you.
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Grazas.
07:10
(Applause)
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(Aplausos)
07:13
But consider what I had to do to get here:
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Pero pensade no pasei para chegar ata aquí:
07:16
25 therapists, 11 misdiagnoses, and years of pain and trauma.
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25 terapeutas, 11 diagnósticos erróneos, e anos de dor e trauma.
07:22
I spent a lot of time thinking if there's a better way,
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Pasei moito tempo pensando se habería algunha solución mellor,
07:25
and I think there is: autism-assistive technology.
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e eu creo que a hai: tecnoloxía de axuda para o autismo.
07:30
This technology could play an integral role
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Esta tecnoloxía podería xogar un papel central
07:32
in helping people with autistic spectrum disorder,
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axudando a xente con trastornos do espectro autista,
07:35
or ASD.
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ou TEA.
07:38
The app Podium, released by my company, AutismSees,
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A aplicación Podium, creada pola miña compañía, AutismSees,
07:43
has the ability to independently assess and help develop communication skills.
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ten a capacidade de avaliar de forma independente
e axudar a desenvolver competencias comunicativas.
07:49
In addition to this, it tracks eye contact through camera
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Ademais, controla o contacto visual cunha cámara
07:53
and simulates a public-speaking and job-interview experience.
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simulando un discurso e unha entrevista de traballo.
08:00
And so maybe one day, Waffle House will hire me,
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Pode que incluso Waffle House acabe por me contratar
08:03
after practicing on it some more.
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despois dunhas cantas prácticas.
08:05
(Laughter)
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(Risas)
08:09
And one of the great things is that I've used Podium
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Unha das cousas positivas é que empreguei Podium
08:14
to help me prepare for today, and it's been a great help.
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para axudarme no día de hoxe, e foi unha grande axuda.
08:19
But it's more than that.
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Pero é máis ca iso.
08:21
There's more that can be done.
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Queda moito por facer.
08:24
For people with ASD --
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Para a xente con síndrome de Asperger
08:27
it has been speculated that many innovative scientists,
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—especúlase que o padecen moitos científicos innovadores,
08:31
researchers, artists, and engineers have it;
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investigadores, artistas, e enxeñeiros;
08:36
like, for example, Emily Dickinson, Jane Austen, Isaac Newton, and Bill Gates
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por exemplo, Emily Dickinson, Jane Austen, Isaac Newton ou Bill Gates
08:42
are some examples.
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son algúns exemplos.
08:44
But the problem that's encountered
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Pero o problema co que nos atopamos
08:46
is that these brilliant ideas often can't be shared
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é que esas brillantes ideas a miúdo non se poden compartir
08:49
if there are communication roadblocks.
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se hai problemas de comunicación.
08:53
And so, many people with autism are being overlooked every day,
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A moitas persoas con autismo ignóranas todos os días,
08:57
and they're being taken advantage of.
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e aprovéitanse delas.
09:01
So my dream for people with autism is to change that,
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Por iso, o meu soño para a xente con autismo é cambiar iso,
09:08
to remove the roadblocks that prevent them from succeeding.
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eliminar os impedimentos que lles dificultan triunfar.
09:11
One of the reasons I love lucid dreaming
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Un dos motivos polos que adoro soñar esperta
09:14
is because it allows me to be free,
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é porque me permite ser libre
09:17
without judgment of social and physical consequences.
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sen xulgar as consecuencias sociais ou físicas.
09:21
When I'm flying over scenes that I create in my mind,
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Mentres me recreo nas situacións que eu creo na miña mente,
09:24
I am at peace.
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estou en paz.
09:27
I am free from judgment,
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Non podo ser xulgada,
09:29
and so I can do whatever I want, you know?
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entón podo facer o que queira, sabedes?
09:31
I'm making out with Brad Pitt, and Angelina is totally cool with it.
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Estou saíndo con Brad Pitt e a Angelina tanto lle ten.
09:36
(Laughter)
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(Risas)
09:39
But the goal of autism-assistive technology is bigger than that,
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Pero o obxectivo da tecnoloxía de apoio para o autismo vai máis alá,
09:43
and more important.
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e é máis importante.
09:45
My goal is to shift people's perspective
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O meu obxectivo é cambiar o punto de vista da xente
09:49
of autism and people with higher-functioning Asperger's
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sobre o autismo e sobre a xente con Asperger de alta funcionalidade
09:54
because there is a lot they can do.
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para amosar que hai moitas cousas que poden facer.
09:58
I mean, look at Temple Grandin, for example.
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Quero dicir, pensade en Temple Grandin, por exemplo.
10:02
And by doing so, we allow people to share their talents with this world
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E facendo isto, permitimos que a xente comparta o seu talento co mundo
e que o mundo avance.
10:07
and move this world forward.
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10:09
In addition, we give them the courage to pursue their dreams
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Ademais, dámoslles o valor para perseguir os seus soños
10:12
in the real world, in real time.
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no mundo real, en tempo real.
10:15
Thank you.
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Grazas.
10:16
(Applause)
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(Aplausos)
10:19
Thank you.
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Grazas.
10:21
(Applause)
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(Aplausos)
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Este sitio presentarache vídeos de YouTube que son útiles para aprender inglés. Verás clases de inglés impartidas por profesores de primeiro nivel de todo o mundo. Fai dobre clic nos subtítulos en inglés que aparecen en cada páxina de vídeo para reproducir o vídeo desde alí. Os subtítulos desprázanse sincronizados coa reprodución do vídeo. Se tes algún comentario ou solicitude, póñase en contacto connosco a través deste formulario de contacto.

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