My Inner Life with Asperger's | Alix Generous | TED Talks

427,048 views ・ 2015-09-08

TED


Please double-click on the English subtitles below to play the video.

00:12
Today, I want to talk to you about dreams.
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I have been a lucid dreamer my whole life,
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and it's cooler than in the movies.
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(Laughter)
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Beyond flying, breathing fire,
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and making hot men spontaneously appear ...
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(Laughter)
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I can do things like read and write music.
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Fun fact is that I wrote my personal statement to college
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in a dream.
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And I did accepted. So, yeah.
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I am a very visual thinker.
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I think in pictures, not words.
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To me, words are more like instincts and language.
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There are many people like me;
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Nikola Tesla, for example,
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who could visualize, design, test, and troubleshoot everything --
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all of his inventions -- in his mind, accurately.
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Language is kind of exclusive to our species, anyway.
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I am a bit more primitive,
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like a beta version of Google Translate.
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(Laughter)
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My brain has the ability to hyper-focus on things that interest me.
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For example, once I had an affair with calculus
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that lasted longer than some celebrity marriages.
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(Laughter)
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There are some other unusual things about me.
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You may have noticed that I don't have much inflection
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in my voice.
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That's why people often confuse me with a GPS.
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(Laughter)
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This can make basic communication a challenge, unless you need directions.
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(Laughter)
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Thank you.
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(Applause)
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02:02
A few years ago, when I started doing presentations,
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I went to get head shots done for the first time.
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The photographer told me to look flirty.
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(Laughter)
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And I had no idea what she was talking about.
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(Laughter)
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She said, "Do that thing, you know, with your eyes,
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when you're flirting with guys."
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"What thing?" I asked.
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"You know, squint."
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And so I tried, really.
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It looked something like this.
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(Laughter)
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I looked like I was searching for Waldo.
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(Laughter)
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There's a reason for this,
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as there is a reason that Waldo is hiding.
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(Laughter)
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I have Asperger's,
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a high-functioning form of autism
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that impairs the basic social skills one is expected to display.
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It's made life difficult in many ways,
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and growing up, I struggled to fit in socially.
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My friends would tell jokes, but I didn't understand them.
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My personal heroes were George Carlin and Stephen Colbert --
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and they taught me humor.
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My personality switched from being shy and awkward
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to being defiant and cursing out a storm.
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Needless to say, I did not have many friends.
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I was also hypersensitive to texture.
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The feel of water on my skin was like pins and needles,
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and so for years, I refused to shower.
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I can assure you that my hygiene routine is up to standards now, though.
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(Laughter)
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I had to do a lot to get here, and my parents --
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things kind of got out of control when I was sexually assaulted by a peer,
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and on top of everything, it made a difficult situation worse.
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And I had to travel 2,000 miles across the country to get treatment,
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but within days of them prescribing a new medication,
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my life turned into an episode of the Walking Dead.
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I became paranoid, and began to hallucinate
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that rotting corpses were coming towards me.
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My family finally rescued me,
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but by that time, I had lost 19 pounds in those three weeks,
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as well as developing severe anemia,
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and was on the verge of suicide.
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I transferred to a new treatment center that understood my aversions,
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my trauma, and my social anxiety,
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and they knew how to treat it, and I got the help I finally needed.
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And after 18 months of hard work,
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I went on to do incredible things.
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One of the things with Asperger's is that oftentimes,
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these people have a very complex inner life,
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and I know for myself, I have a very colorful personality,
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rich ideas, and just a lot going on in my mind.
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But there's a gap between where that stands,
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and how I communicate it with the rest of the world.
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And this can make basic communication a challenge.
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Not many places would hire me, due to my lack of social skills,
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which is why I applied to Waffle House.
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(Laughter)
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Waffle House is an exceptional 24-hour diner --
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(Laughter)
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(Applause)
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thank you --
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where you can order your hash browns
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the many ways that someone would dispose of a human corpse ...
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(Laughter)
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Sliced, diced, peppered, chunked, topped, capped, and covered.
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(Laughter)
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As social norms would have it,
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you should only go to Waffle House at an ungodly hour in the night.
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(Laughter)
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So one time, at 2 am, I was chatting with a waitress, and I asked her,
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"What's the most ridiculous thing that's happened to you on the job?"
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And she told me that one time, a man walked in completely naked.
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(Laughter)
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I said, "Great! Sign me up for the graveyard shift!"
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(Laughter)
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Needless to say, Waffle House did not hire me.
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So in terms of having Asperger's, it can be viewed as a disadvantage,
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and sometimes it is a real pain in the butt,
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but it's also the opposite.
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It's a gift, and it allows me to think innovatively.
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At 19, I won a research competition for my research on coral reefs,
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and I ended up speaking
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at the UN Convention of Biological Diversity,
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presenting this research.
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(Applause)
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Thank you.
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(Applause)
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And at 22, I'm getting ready to graduate college,
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and I am a co-founder of a biotech company called AutismSees.
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(Applause)
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Thank you.
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(Applause)
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But consider what I had to do to get here:
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25 therapists, 11 misdiagnoses, and years of pain and trauma.
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I spent a lot of time thinking if there's a better way,
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and I think there is: autism-assistive technology.
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This technology could play an integral role
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in helping people with autistic spectrum disorder,
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or ASD.
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The app Podium, released by my company, AutismSees,
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has the ability to independently assess and help develop communication skills.
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In addition to this, it tracks eye contact through camera
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and simulates a public-speaking and job-interview experience.
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And so maybe one day, Waffle House will hire me,
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after practicing on it some more.
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(Laughter)
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And one of the great things is that I've used Podium
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to help me prepare for today, and it's been a great help.
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But it's more than that.
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There's more that can be done.
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For people with ASD --
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it has been speculated that many innovative scientists,
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researchers, artists, and engineers have it;
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like, for example, Emily Dickinson, Jane Austen, Isaac Newton, and Bill Gates
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are some examples.
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But the problem that's encountered
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is that these brilliant ideas often can't be shared
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if there are communication roadblocks.
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And so, many people with autism are being overlooked every day,
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and they're being taken advantage of.
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So my dream for people with autism is to change that,
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to remove the roadblocks that prevent them from succeeding.
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One of the reasons I love lucid dreaming
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is because it allows me to be free,
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without judgment of social and physical consequences.
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When I'm flying over scenes that I create in my mind,
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I am at peace.
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I am free from judgment,
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and so I can do whatever I want, you know?
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I'm making out with Brad Pitt, and Angelina is totally cool with it.
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(Laughter)
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But the goal of autism-assistive technology is bigger than that,
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and more important.
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My goal is to shift people's perspective
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of autism and people with higher-functioning Asperger's
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because there is a lot they can do.
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I mean, look at Temple Grandin, for example.
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And by doing so, we allow people to share their talents with this world
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and move this world forward.
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In addition, we give them the courage to pursue their dreams
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in the real world, in real time.
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Thank you.
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(Applause)
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Thank you.
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(Applause)
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