Simple hacks for life with Parkinson's | Mileha Soneji

Prevodilac: Mile Živković Lektor: Milenka Okuka

In India, we have these huge families.

U Indiji imamo ogromne porodice.

I bet a lot of you all must have heard about it.

Kladim se da ste svi čuli za njih.

Which means that there are a lot of family events.

To znači da imamo mnogo porodičnih događaja.

So as a child, my parents used to drag me to these family events.

Kao dete, roditelji su me vukli na ove porodične događaje.

But the one thing that I always looked forward to

Ali najviše sam se radovala

was playing around with my cousins.

igranju sa mojim rođacima.

And there was always this one uncle

Tu je uvek bio jedan ujak

who used to be there,

koji bi bio tamo,

always ready, jumping around with us,

uvek spreman, skačući okolo s nama,

having games for us,

imao bi igre za nas,

making us kids have the time of our lives.

činio je da se mi deca ludo provodimo.

This man was extremely successful:

Ovaj čovek je bio veoma uspešan:

he was confident and powerful.

bio je samouveren i moćan.

But then I saw this hale and hearty person deteriorate in health.

Onda sam videla ovu čilu i srčanu osobu kako joj se polako urušava zdravlje.

He was diagnosed with Parkinson's.

Dijagnozirali su mu Parkinsonovu bolest.

Parkinson's is a disease that causes degeneration of the nervous system,

To je bolest koja izaziva degeneraciju nervnog sistema,

which means that this person who used to be independent

što znači da ova osoba, koja je bila nezavisna,

suddenly finds tasks like drinking coffee, because of tremors, much more difficult.

sada ima poteškoća sa aktivnostima, poput ispijanja kafe, zbog drhtanja.

My uncle started using a walker to walk,

Moj stric je počeo da šeta uz šetalicu,

and to take a turn,

a kako bi se okrenuo,

he literally had to take one step at a time, like this,

bukvalno je morao da ide korak po korak, ovako,

and it took forever.

i to je trajalo celu večnost.

So this person, who used to be the center of attention

Ova osoba koja je bila u centru pažnje

in every family gathering,

na svakom porodičnom okupljanju,

was suddenly hiding behind people.

odjednom se krila iza ljudi.

He was hiding from the pitiful look in people's eyes.

Krio se od sažaljivog pogleda u očima ljudi.

And he's not the only one in the world.

On nije jedini na svetu.

Every year, 60,000 people are newly diagnosed with Parkinson's,

Svake godine, kod novih 60 000 ljudi dijagnozira se Parkinsonova bolest,

and this number is only rising.

a ovaj broj samo raste.

As designers, we dream that our designs solve these multifaceted problems,

Kao dizajneri imamo san da svojim dizajnima

rešimo ove višestrane probleme,

one solution that solves it all,

jedno rešenje za sve,

but it need not always be like that.

ali ne mora uvek da bude tako.

You can also target simple problems

Možete se fokusirati na jednostavne probleme

and create small solutions for them and eventually make a big impact.

i za njih stvoriti mala rešenja i na kraju imati veliki uticaj.

So my aim here was to not cure Parkinson's,

Moj cilj nije bio da izlečim Parkinsonovu bolest,

but to make their everyday tasks much more simple,

već da obolelim pojednostavim njihove svakodnevne aktivnosti,

and then make an impact.

i tako napravim razliku.

Well, the first thing I targeted was tremors, right?

Prvo sam se fokusirala na drhtanje.

My uncle told me that he had stopped drinking coffee or tea in public

Stric mi je rekao da je prestao da pije kafu ili čaj u javnosti

just out of embarrassment,

iz sramote,

so, well, I designed the no-spill cup.

tako da sam dizajnirala šolju iz koje se ne prosipa.

It works just purely on its form.

Funkcioniše prosto zbog svog oblika.

The curve on top deflects the liquid back inside every time they have tremors,

Zaobljenje na vrhu vraća tečnost svaki put kada imaju drhtanje

and this keeps the liquid inside compared to a normal cup.

i ovo zadržava tečnost u poređenju s normalnom šoljom.

But the key here is that it is not tagged as a Parkinson's patient product.

Ključ je u tome da nije obeležena kao proizvod za obolele od Parkinsona.

It looks like a cup that could be used by you, me, any clumsy person,

Izgleda kao šolja koju možete koristiti vi, ja, bilo koja nespretna osoba

and that makes it much more comforting for them to use, to blend in.

i zbog toga je za njih mnogo lakše da je koriste, da se uklope.

So, well, one problem solved,

Jedan problem je rešen,

many more to go.

ostaje ih još dosta.

All this while, I was interviewing him,

Tokom svega ovoga sam ga intervjuisala,

questioning him,

ispitivala ga,

and then I realized that I was getting very superficial information,

i onda sam shvatila da sam dobijala samo površne informacije,

or just answers to my questions.

ili samo odgovore na moja pitanja.

But I really needed to dig deeper to get a new perspective.

Ali zaista je trebalo da zagrebem dublje da bih imala novu perspektivu.

So I thought, well, let's observe him in his daily tasks,

Pomislila sam, hajde da ga posmatram u svakodnevnim aktivnostima,

while he's eating, while he's watching TV.

dok jede, dok gleda TV.

And then, when I was actually observing him walking to his dining table,

Dok sam ga zapravo posmatrala dok ide do trpezarijskog stola,

it struck me, this man who finds it so difficult to walk on flat land,

palo mi je napamet, ovaj čovek kome je tako teško da hoda po ravnom,

how does he climb a staircase?

kako se penje uz stepenice?

Because in India we do not have a fancy rail that takes you up a staircase

Jer u Indiji nemamo prefinjeni eskalator koji vas povede uz stepenice

like in the developed countries.

kao u razvijenim zemljama.

One actually has to climb the stairs.

Morate da se popnete uz stepenice.

So he told me,

Rekao mi je:

"Well, let me show you how I do it."

"Hajde da ti pokažem kako to radim."

Let's take a look at what I saw.

Pogledajmo šta sam videla.

So he took really long to reach this position,

Trebalo mu je mnogo vremena da dođe do ovog mesta,

and then all this while, I'm thinking,

a sve to vreme, ja mislim:

"Oh my God, is he really going to do it?

"Bože, hoće li zaista uspeti?

Is he really, really going to do it without his walker?"

Hoće li zaista uspeti da to uradi bez svoje šetalice?"

And then ...

I onda...

(Laughter)

(Smeh)

And the turns, he took them so easily.

I tako se lako okretao.

So -- shocked?

Tako da - šokirani?

Well, I was too.

I ja sam bila.

So this person who could not walk on flat land

Ova osoba koja nije mogla da hoda po ravnoj površini

was suddenly a pro at climbing stairs.

odjednom je bila ekspert za penjanje uz stepenice.

On researching this, I realized that it's because it's a continuous motion.

Istraživajući ovo, shvatila sam da je tako jer se radi o kontinuiranom pokretu.

There's this other man who also suffers from the same symptoms

Postoji još jedan čovek koji pati od istih simptoma

and uses a walker,

i koristi šetalicu,

but the moment he's put on a cycle,

ali kada ga stavite na bicikl,

all his symptoms vanish,

svi njegovi simptomi nestaju,

because it is a continuous motion.

jer je to kontinuiran pokret.

So the key for me was to translate this feeling of walking on a staircase

Za mene je ključ bio u tome da se prevede ovaj osećaj hodanja po stepenicama

back to flat land.

u osećaj hodanja po ravnom.

And a lot of ideas were tested and tried on him,

Isprobali smo mnogo ideja na njemu,

but the one that finally worked was this one. Let's take a look.

ali konačno je funkcionisala ova. Hajde da pogledamo.

(Laughter)

(Smeh)

(Applause)

(Aplauz)

He walked faster, right?

Hodao je brže, zar ne?

(Applause)

(Aplauz)

I call this the staircase illusion,

Ovo zovem iluzijom stepenica,

and actually when the staircase illusion abruptly ended, he froze,

i zapravo kada se iluzija naglo završila, on se zamrznuo u mestu,

and this is called freezing of gait.

a ovo se zove zamrzavanje hoda.

So it happens a lot,

To se dešava često,

so why not have a staircase illusion flowing through all their rooms,

pa zašto ne bismo imali iluziju stepenica u svim njihovim sobama,

making them feel much more confident?

kako bi oni imali mnogo više samopouzdanja?

You know, technology is not always it.

Nije uvek stvar u tehnologiji.

What we need are human-centered solutions.

Potrebna su nam rešenja fokusirana na ljude.

I could have easily made it into a projection,

Lako sam mogla od toga da napravim projekciju

or a Google Glass, or something like that.

ili Gugl naočare ili nešto slično.

But I stuck to simple print on the floor.

Ali držala sam se jednostavne odštampane slike na podu.

This print could be taken into hospitals

Ova slika se može staviti u bolnice

to make them feel much more welcome.

kako bi se oni osećali dobrodošlim.

What I wish to do is make every Parkinson's patient

Želim da se svaka osoba obolela od Parkinsonove bolesti

feel like my uncle felt that day.

oseća kao moj ujak tog dana.

He told me that I made him feel like his old self again.

Rekao mi je da se zbog mene osećao kao onaj stari.

"Smart" in today's world has become synonymous to high tech,

"Pametno" je u današnjem svetu sinonim za visoku tehnologiju,

and the world is only getting smarter and smarter day by day.

i svet iz dana u dan postaje sve pametniji.

But why can't smart be something that's simple and yet effective?

Ali zašto pametno ne bi moglo biti nešto što je jednostavno i efikasno?

All we need is a little bit of empathy and some curiosity,

Potrebno nam je samo malo saosećanja i znatiželje

to go out there, observe.

da izađemo, posmatramo.

But let's not stop at that.

Ali nemojmo stati tu.

Let's find these complex problems. Don't be scared of them.

Pronađimo ove složene probleme. Nemojte ih se plašiti.

Break them, boil them down into much smaller problems,

Slomite ih, razgradite ih na mnogo manje probleme,

and then find simple solutions for them.

i onda za njih nađite prosta rešenja.

Test these solutions, fail if needed,

Isprobajte ova rešenja, neuspešno ako je to potrebno,

but with newer insights to make it better.

ali sa novim uvidima u to kako da ih poboljšate.

Imagine what we all could do if we all came up with simple solutions.

Zamislite šta bismo sve mogli da uradimo ako bismo smislili prosta rešenja.

What would the world be like if we combined all our simple solutions?

Kakav bi svet bio kada bismo svi kombinovali svoja prosta rešenja?

Let's make a smarter world, but with simplicity.

Napravimo pametniji svet, ali uz pomoć jednostavnosti.

Thank you.

Hvala vam.

(Applause)

(Aplauz)