What happens when you have a disease doctors can't diagnose | Jennifer Brea

Translator: Joseph Geni Reviewer: Camille Martínez

Prevodilac: Ljubica Samardžić Lektor: Tijana Mihajlović

Hi.

Zdravo.

Thank you.

Hvala.

[Jennifer Brea is sound-sensitive.

[Dženifer je osetljiva na zvuk.

The live audience was asked to applaud ASL-style, in silence.]

Publici je rečeno da aplaudira na znakovnom jeziku, u tišini.]

So, five years ago, this was me.

Dakle, ovo sam ja pre pet godina.

I was a PhD student at Harvard,

Bila sam doktorant na Harvardu

and I loved to travel.

i volela sam da putujem.

I had just gotten engaged to marry the love of my life.

Tek sam se verila za ljubav svog života.

Imala sam 28 godina i, kao i mnogi od nas kada su zdravi,

I was 28, and like so many of us when we are in good health,

osećala sam se nepobedivo.

I felt like I was invincible.

Then one day I had a fever of 104.7 degrees.

Onda sam jednog dana dobila temperaturu preko 40 stepeni.

I probably should have gone to the doctor,

Verovatno je trebalo da odem kod doktora,

but I'd never really been sick in my life,

ali nikada ranije nisam bila bolesna,

and I knew that usually, if you have a virus,

i znala sam da, kad dobijete virus,

treba da ostanete kod kuće, skuvate pileću supu

you stay home and you make some chicken soup,

and in a few days, everything will be fine.

i za par dana će sve biti u redu.

But this time it wasn't fine.

Međutim, ovog puta nije bilo u redu.

After the fever broke,

Kad je groznica prestala,

naredne tri nedelje zbog vrtoglavice nisam mogla da izađem iz kuće.

for three weeks I was so dizzy, I couldn't leave my house.

I would walk straight into door frames.

Udarala sam u okvire od vrata.

Morala sam da se pridržavam za zid da bih stigla do kupatila.

I had to hug the walls just to make it to the bathroom.

That spring I got infection after infection,

Tog proleća sam dobijala infekciju za infekcijom,

and every time I went to the doctor,

a svaki put kada bih otišla kod doktora

he said there was absolutely nothing wrong.

rekao bi mi da je sve u redu.

He had his laboratory tests,

Uradio je laboratorijske testove,

čiji bi se nalazi uvek vratili kao normalni.

which always came back normal.

All I had were my symptoms,

Jedino što sam imala bili su simptomi

which I could describe,

koje sam mogla da opišem,

but no one else can see.

ali koje niko drugi nije mogao da vidi.

Znam da zvuči smešno,

I know it sounds silly,

but you have to find a way to explain things like this to yourself,

ali morate da potražite način da ovakve stvari objasnite sebi,

and so I thought maybe I was just aging.

pa sam mislila da možda samo starim.

Možda ovako izgleda biti stariji od 25.

Maybe this is what it's like to be on the other side of 25.

(Laughter)

(Smeh)

Then the neurological symptoms started.

Onda su počeli neurološki simptomi.

Sometimes I would find that I couldn't draw the right side of a circle.

Ponekad ne bih mogla da nacrtam desnu stranu kruga.

Other times I wouldn't be able to speak or move at all.

Drugom prilikom nisam mogla da pričam ni da se krećem.

Bila sam kod svih specijalista,

I saw every kind of specialist:

doktora za zarazne bolesti, dermatologa, endokrinologa, kardiologa.

infectious disease doctors, dermatologists, endocrinologists,

cardiologists.

I even saw a psychiatrist.

Bila sam čak i kod psihijatra.

My psychiatrist said, "It's clear you're really sick,

Rekao mi je: „Očigledno je da ste veoma bolesni,

but not with anything psychiatric.

ali vaš problem nije psihički.

Nadam se da će otkriti šta nije u redu.“

I hope they can find out what's wrong with you."

Sutradan mi je neurolog dijagnostikovao konverzivni poremećaj.

The next day, my neurologist diagnosed me with conversion disorder.

He told me that everything --

Rekao mi je da sve simptome -

the fevers, the sore throats, the sinus infection,

temperaturu, bol u grlu, sinusnu infekciju,

all of the gastrointestinal, neurological and cardiac symptoms --

sve stomačne, neurološke i srčane simptome

were being caused by some distant emotional trauma

izaziva neka daleka emocionalna trauma

that I could not remember.

koje se ne sećam.

Ti simptomi su pravi, rekao je,

The symptoms were real, he said,

but they had no biological cause.

ali nemaju biološki uzrok.

I was training to be a social scientist.

Studirala sam da postanem sociolog koji se bavi naukom.

Učila sam statistiku, teoriju verovatnoće

I had studied statistics, probability theory,

mathematical modeling, experimental design.

matematičko modeliranje, dizajn eksperimenata.

Nisam mogla tek tako da odbacim dijagnozu neurologa.

I felt like I couldn't just reject my neurologist's diagnosis.

It didn't feel true,

Nije se činilo istinitim,

ali su me studije naučile da je istina često nelogična,

but I knew from my training that the truth is often counterintuitive,

so easily obscured by what we want to believe.

tako lako zamračena onim u šta želimo da verujemo.

So I had to consider the possibility that he was right.

Stoga sam morala da razmotrim mogućnost da je u pravu.

That day, I ran a small experiment.

Tog dana sam sprovela mali ekspriment.

I walked back the two miles from my neurologist's office to my house,

Prošetala sam tri kilometra od njegove kancelarije do kuće.

Noge mi je obuzeo neki čudan bol, skoro kao bol izazivan elektricitetom.

my legs wrapped in this strange, almost electric kind of pain.

I meditated on that pain,

Razmišljala sam o tom bolu,

pitala se kako bi moj um mogao da stvori sve to.

contemplating how my mind could have possibly generated all this.

Čim sam prešla preko praga,

As soon as I walked through the door,

srušila sam se.

I collapsed.

My brain and my spinal cord were burning.

Mozak i kičmena moždina su mi goreli.

My neck was so stiff I couldn't touch my chin to my chest,

Vrat mi je bio tako ukočen da nisam mogla da savijem glavu do grudi,

and the slightest sound --

a i najtiši zvuk poput šuškanja čaršava

the rustling of the sheets,

my husband walking barefoot in the next room --

i koraka mog muža bosonogog u susednoj sobi

could cause excruciating pain.

mogao je da izazove neizdrživ bol.

I would spend most of the next two years in bed.

Većinu sledeće dve godine provešću u krevetu.

Kako je moj doktor mogao da napravi takvu grešku?

How could my doctor have gotten it so wrong?

I thought I had a rare disease,

Mislila sam da imam neku retku bolest,

nešto što doktori nikada nisu videli,

something doctors had never seen.

And then I went online

ali onda sam na netu

otkrila hiljade ljudi širom sveta

and found thousands of people all over the world

living with the same symptoms,

koji žive sa istim simptomima,

na isti način izolovanim,

similarly isolated,

similarly disbelieved.

kojima, takođe, nisu verovali.

Some could still work,

Neki su i dalje radili,

ali su morali da provedu večeri i vikende u krevetu

but had to spend their evenings and weekends in bed,

just so they could show up the next Monday.

kako bi mogli da se pojave na poslu sledećeg ponedeljka.

On the other end of the spectrum,

S druge strane,

some were so sick

bilo je onih toliko bolesnih

da su morali da žive u potpunoj tami,

they had to live in complete darkness,

unable to tolerate the sound of a human voice

nesposobni da podnesu čak i glas drugog čoveka

or the touch of a loved one.

ili dodir voljene osobe.

I was diagnosed with myalgic encephalomyelitis.

Moja dijagnoza bila je mijalgični encefalomijelitis.

You've probably heard it called "chronic fatigue syndrome."

Verovatno ste čuli da ga zovu sindrom hroničnog umora.

For decades, that's a name

Decenijama je to ime

that's meant that this

značilo da je ovo preovlađujuća slika

has been the dominant image

of a disease that can be as serious as this.

bolesti koja može biti ovoliko ozbiljna.

The key symptom we all share

Glavni simptom koji delimo

je da svaki put kada se napregnemo, fizički ili psihički,

is that whenever we exert ourselves -- physically, mentally --

platimo debelo za to.

we pay and we pay hard.

If my husband goes for a run, he might be sore for a couple of days.

Ako moj muž ode na trčanje, imaće upalu mišića nekoliko dana.

If I try to walk half a block, I might be bedridden for a week.

Ako ja pokušam da prošetam polovinom bloka,

provešću nedelju dana u krevetu.

It is a perfect custom prison.

To je pravi zatvor napravljen po meri.

I know ballet dancers who can't dance,

Znam za balerine koje ne mogu da plešu,

za računovođe koji ne znaju da sabiraju,

accountants who can't add,

medical students who never became doctors.

studente medicine koji nikad ne postanu doktori.

It doesn't matter what you once were;

Nije bitno šta ste nekad bili;

to više ne možete da radite.

you can't do it anymore.

It's been four years,

Prošle su četiri godine,

a ja nikada nisam više bila zdrava kao onog trenutka

and I've still never been as well as I was

pre nego što sam otpešačila kući od neurologa.

the minute before I walked home from my neurologist's office.

It's estimated that about 15 to 30 million people around the world

Procenjuje se da između 15 i 30 miliona ljudi širom sveta

have this disease.

ima ovu bolest.

In the US, where I'm from, it's about one million people.

U SAD, odakle ja potičem, ima ih oko milion.

That makes it roughly twice as common as multiple sclerosis.

To znači da je obolelih oko dvaput više nego onih sa multiplom sklerozom.

Patients can live for decades with the physical function

Oboleli mogu da žive više decenija

sa fizičkim funkcijama nekog ko ima zatajenje srca.

of someone with congestive heart failure.

Dvadeset pet posto među nama ne može da izađe iz kuće ili kreveta,

Twenty-five percent of us are homebound or bedridden,

and 75 to 85 percent of us can't even work part-time.

a 75 do 85 posto ne mogu da rade ni honorarne poslove.

Yet doctors do not treat us

I pored toga, doktori nas ne leče,

a nauka nas ne proučava.

and science does not study us.

Kako je moguće da je medicina zaboravila

How could a disease this common and this devastating

have been forgotten by medicine?

na ovako čestu i razornu bolest?

Kada mi je doktor ustanovio konverzivni poremećaj,

When my doctor diagnosed me with conversion disorder,

he was invoking a lineage of ideas about women's bodies

pozivao se na srodne ideje o ženskim telima

stare preko 2 500 hiljade godina.

that are over 2,500 years old.

Rimski lekar Galen je mislio

The Roman physician Galen thought

that hysteria was caused by sexual deprivation

da histeriju izaziva seksualna apstinencija

in particularly passionate women.

kod posebno strastvenih žena.

Grci su smatrali da se materica bukvalno isuši

The Greeks thought the uterus would literally dry up

and wander around the body in search of moisture,

i luta po telu tražeći vlagu,

pritiskajući unutrašnje organe,

pressing on internal organs --

da,

yes --

causing symptoms from extreme emotions

i uzrokujući simptome od veoma snažnih osećanja

do vrtoglavice i paralize.

to dizziness and paralysis.

The cure was marriage and motherhood.

Lek je bio brak i majčinstvo.

These ideas went largely unchanged for several millennia until the 1880s,

Ove ideje se nisu mnogo promenile nekoliko hiljada godina,

do osamdesetih godina 19. veka,

when neurologists tried to modernize the theory of hysteria.

kada su neurolozi pokušali da osavremene teoriju histerije.

Sigmund Freud developed a theory

Sigmund Frojd je razvio teoriju

that the unconscious mind could produce physical symptoms

po kojoj podsvest može uzrokovati fizičke simptome

kada se nosi sa sećanjima i emocijama

when dealing with memories or emotions

koje su suviše bolne da ih svesno obuzdamo.

too painful for the conscious mind to handle.

It converted these emotions into physical symptoms.

To je pretvaralo ova osećanja u fizičke simptome.

This meant that men could now get hysteria,

To je značilo da sad i muškarci pate od histerije,

but of course women were still the most susceptible.

ali su žene ipak podložnije.

When I began investigating the history of my own disease,

Kada sam počela da istražujem istoriju svoje bolesti,

bila sam zapanjena time koliko su ove ideje duboko uvrežene.

I was amazed to find how deep these ideas still run.

Godine 1934,

In 1934,

198 doctors, nurses and staff at the Los Angeles County General Hospital

kada se 198 doktora, medicinskih sestara i osoblja

Opšte bolnice okruga Los Anđelesa razbolelo,

became seriously ill.

They had muscle weakness, stiffness in the neck and back, fevers --

osećali su slabost u mišićima, napetost u vratu i leđima, imali temperaturu,

sve simptome koje sam ja imala kada sam dobila prvu dijagnozu.

all of the same symptoms I had when I first got diagnosed.

Doctors thought it was a new form of polio.

Doktori su mislili da se radi o novom tipu dečje paralize.

Od tada, bilo je više od 70 zabeleženih epidemija širom svijeta

Since then, there have been more than 70 outbreaks documented

around the world,

zapanjujuće sličnog postinfektivnog oboljenja.

of a strikingly similar post-infectious disease.

All of these outbreaks have tended to disproportionately affect women,

U svim epidemijama žene su bile znatno više ugrožene,

and in time, when doctors failed to find the one cause of the disease,

a vremenom, kada doktori nisu uspeli da pronađu uzrok,

they thought that these outbreaks were mass hysteria.

mislili su da je to masovna histerija.

Kako je ova ideja i dalje na snazi?

Why has this idea had such staying power?

I do think it has to do with sexism,

Mislim da je to povezano sa seksizmom,

but I also think that fundamentally, doctors want to help.

ali takođe mislim da doktori zaista žele da pomognu.

They want to know the answer,

Žele da znaju odgovor,

and this category allows doctors to treat what would otherwise be untreatable,

a ova kategorija im omogućava da leče inače neizlečivu bolest,

to explain illnesses that have no explanation.

da objasne bolesti koje nemaju objašnjenje.

Problem je što ovo može biti istinski štetno.

The problem is that this can cause real harm.

In the 1950s, a psychiatrist named Eliot Slater

Psihijatar Eliot Slejter je 1950. godine

proučavao grupu od 85 pacijenata kojima je ustanovljena histerija.

studied a cohort of 85 patients who had been diagnosed with hysteria.

Nine years later, 12 of them were dead and 30 had become disabled.

Devet godina kasnije, dvanaestoro su bili mrtvi, a 30 su postali invalidi.

Many had undiagnosed conditions like multiple sclerosis,

Mnogi su patili od neotkrivenih oboljenja poput multiple skleroze,

epilepsije, tumora na mozgu.

epilepsy, brain tumors.

In 1980, hysteria was officially renamed "conversion disorder."

Histerija je zvanično preimenovana u konverzivni poremećaj 1980. godine.

When my neurologist gave me that diagnosis in 2012,

Kada mi je neurolog dao tu dijagnozu 2012. godine,

he was echoing Freud's words verbatim,

koristio je doslovce Frojdove riječi,

and even today,

a čak i danas,

women are 2 to 10 times more likely to receive that diagnosis.

žene imaju 2 do 10 puta veće šanse da dobiju tu dijagnozu.

The problem with the theory of hysteria or psychogenic illness

Problem sa teorijom o histeriji ili psihogenim oboljenjima

is that it can never be proven.

je to što ih je nemoguće dokazati.

It is by definition the absence of evidence,

To je po definiciji nedostatak dokaza,

a u slučaju SHU-a,

and in the case of ME,

psychological explanations have held back biological research.

psihološka objašnjenja su stala na put biološkim pretragama.

All around the world, ME is one of the least funded diseases.

Širom svijeta, istraživanje SHU-a je među najslabije finansiranim.

U SAD, godišnje potrošimo oko 2 500 dolara po obolelom od side,

In the US, we spend each year roughly 2,500 dollars per AIDS patient,

250 dollars per MS patient

250 dolara po obolelom od multiple skleroze,

i samo 5 dolara za obolelog od sindroma hroničnog umora.

and just 5 dollars per year per ME patient.

Ovo se nije desilo iz vedra neba.

This was not just lightning.

Nisam bila samo malerozna.

I was not just unlucky.

The ignorance surrounding my disease has been a choice,

Neznanje koje okružuje moju bolest je izbor,

a choice made by the institutions that were supposed to protect us.

izbor koji su donele institucije koje bi trebalo da nas zaštite.

We don't know why ME sometimes runs in families,

Ne znamo zbog čeka se SHU ponekad prenosi u porodici,

why you can get it after almost any infection,

zašto ga možete dobiti posle skoro bilo koje infekcije

from enteroviruses to Epstein-Barr virus to Q fever,

od enterovirusa do Epštajn-Barovog virusa i kju groznice.

Ne znamo ni zašto 2 do 3 puta češće napada žene.

or why it affects women at two to three times the rate of men.

Ovo pitanje je mnogo veće od samo moje bolesti.

This issue is much bigger than just my disease.

When I first got sick,

Kad sam se razbolela,

old friends were reaching out to me.

stari prijatelji su mi se javljali.

I soon found myself a part of a cohort of women in their late 20s

Uskoro sam bila u grupi žena u kasnim dvadesetim

čija su se tela raspadala.

whose bodies were falling apart.

Bilo je zapanjujuće to koliko je bilo teško učiniti

What was striking was just how much trouble we were having

being taken seriously.

da nas shvate ozbiljno.

I learned of one woman with scleroderma,

Saznala sam za ženu sa sklerodermom,

an autoimmune connective tissue disease,

autoimunom bolešću vezivnog tkiva,

who was told for years that it was all in her head.

kojoj su godinama govorili da je sve to u njenoj glavi.

Between the time of onset and diagnosis,

Od pojave simptoma do dijagnoze

her esophagus was so thoroughly damaged,

jednjak joj se toliko oštetio

she will never be able to eat again.

da više nikada neće moći da jede.

Another woman with ovarian cancer,

Drugoj ženi sa rakom jajnika

who for years was told that it was just early menopause.

godinama su govorili da je to samo rana menopauza.

A friend from college,

Prijateljici s koledža

whose brain tumor was misdiagnosed for years as anxiety.

godinama su tumor na mozgu pogrešno smatrali anksioznošću.

Evo zbog čega me ovo brine.

Here's why this worries me:

Od 50-ih godina 20. veka, učestalost mnogih autoimunih bolesti

since the 1950s, rates of many autoimmune diseases

have doubled to tripled.

se dvaput ili triput povećala.

Forty-five percent of patients who are eventually diagnosed

Za 45% obolelih za koje se najzad utvrdi da pate

with a recognized autoimmune disease

od poznate autoimune bolesti

are initially told they're hypochondriacs.

se na početku kaže da su hipohondri.

Like the hysteria of old, this has everything to do with gender

Kao nekad s histerijom, i ovo je u potpunosti povezano s polom

and with whose stories we believe.

i s tim čijim pričama verujemo.

Seventy-five percent of autoimmune disease patients are women,

Žene predstavljaju 75% obolelih od autoimunih bolesti,

and in some diseases, it's as high as 90 percent.

a za neke bolesti taj broj dostiže čak 90 posto.

Iako ove bolesti nesrazmerno češće napadaju žene,

Even though these diseases disproportionately affect women,

they are not women's diseases.

one nisu ženske bolesti.

ME affects children and ME affects millions of men.

SHU napada decu i milione muškaraca.

And as one patient told me,

Kako mi je jedan oboleli rekao,

u škripcu smo.

we get it coming and going --

if you're a woman, you're told you're exaggerating your symptoms,

Ako ste žena, kažu vam da preuveličavate simptome,

but if you're a guy, you're told to be strong, to buck up.

a ako ste muškarac, kažu vam da podignete glavu gore i budete jaki.

And men may even have a more difficult time getting diagnosed.

A muškarcima je možda i teže doći do dijagnoze.

My brain is not what it used to be.

Moj mozak nije više ono što je bio.

Here's the good part:

A sad vedrija strana.

despite everything, I still have hope.

Uprkos svemu, i dalje se nadam.

So many diseases were once thought of as psychological

Toliko mnogo bolesti se nekada smatralo psihološkim

until science uncovered their biological mechanisms.

dok nauka nije otkrila njihove biološke mehanizme.

Patients with epilepsy could be forcibly institutionalized

Obolele od epilepsije su nasilno stavljali u institucije,

until the EEG was able to measure abnormal electrical activity in the brain.

dok elektroencefalografija nije uspela da izmeri

abnormalnu moždanu električnu aktivnost.

Multiple sclerosis could be misdiagnosed as hysterical paralysis

Multipla skleroza se mogla pogrešno dijagnostikovati kao histerija,

until the CAT scan and the MRI discovered brain lesions.

dok tomografija i MRT nisu otkrile moždane lezije.

And recently, we used to think

A do nedavno smo mislili

da stres uzrokuje peptički ulkus,

that stomach ulcers were just caused by stress,

until we discovered that H. pylori was the culprit.

dok nismo otkrili bakteriju uzročnika.

ME has never benefited from the kind of science

SHU nikada nije dobio pažnju nauke

that other diseases have had,

poput drugih bolesti,

ali to počinje da se menja.

but that's starting to change.

In Germany, scientists are starting to find evidence of autoimmunity,

U Nemačkoj naučnici nalaze dokaze o autoimunosti,

a u Japanu o moždanim upalama.

and in Japan, of brain inflammation.

In the US, scientists at Stanford are finding abnormalities

U SAD, naučnici na Stendfordu otkrivaju abnormalnosti

in energy metabolism

u metaboličkom stvaranju energije,

that are 16 standard deviations away from normal.

koje su 16 standardnih devijacija dalje od normalnih.

And in Norway, researchers are running a phase-3 clinical trial

A u Norveškoj, istraživači vode treću fazu kliničkog ispitivanja

on a cancer drug that in some patients causes complete remission.

leka protiv raka koji kod nekih obolelih izaziva potpunu remisiju.

What also gives me hope

Ono što mi takođe daje nadu

je snaga obolelih osoba.

is the resilience of patients.

Online we came together,

Združili smo se putem interneta

i podelili svoje priče.

and we shared our stories.

We devoured what research there was.

Začas smo prošli kroz postojeća istraživanja.

We experimented on ourselves.

Vršili smo eksperimente na sebi.

We became our own scientists and our own doctors

Postali smo sami naučnici i sopstveni doktori,

because we had to be.

jer smo to morali da budemo.

And slowly I added five percent here, five percent there,

I polako sam dodala 5% tu i tamo,

dok konačno, jednog dobrog dana,

until eventually, on a good day,

I was able to leave my home.

nisam mogla da izađem iz kuće.

I still had to make ridiculous choices:

I dalje sam morala da pravim smešne izbore.

Will I sit in the garden for 15 minutes, or will I wash my hair today?

Da li da sedim u bašti 15 minuta ili da operem kosu danas?

But it gave me hope that I could be treated.

Ali to mi je dalo nadu da mogu biti izlečena.

I had a sick body; that was all.

Moje telo je bolesno, to je sve.

And with the right kind of help, maybe one day I could get better.

I možda će mi jednog dana biti bolje sa pravom vrstom pomoći.

I came together with patients around the world,

Združila sam se s pacijentima iz čitavog sveta

and we started to fight.

i počeli smo da se borimo.

We have filled the void with something wonderful,

Ispunili smo prazninu nečim divnim,

but it is not enough.

ali to nije dovoljno.

I still don't know if I will ever be able to run again,

I dalje ne znam da li ću ikada ponovo moći da trčim,

or walk at any distance,

ili duže hodam,

or do any of those kinetic things that I now only get to do in my dreams.

ili pravim bilo koje od pokreta koje sada imam samo u snovima.

ali sam zahvalna zbog ovog napretka.

But I am so grateful for how far I have come.

Progress is slow,

Napredak je spor

and it is up

i ima uspona

and it is down,

i padova,

but I am getting a little better each day.

a mi je svakog dana malo bolje.

Setim se kako je bilo zatvorenoj u sobi,

I remember what it was like when I was stuck in that bedroom,

when it had been months since I had seen the sun.

kada mesecima nisam videla sunce.

I thought that I would die there.

Mislila sam da ću tu umreti.

But here I am today,

Ali sam danas ovde,

with you,

sa vama,

and that is a miracle.

što je pravo čudo.

I don't know what would have happened had I not been one of the lucky ones,

Ne znam šta bih da nisam jedna od srećnih,

had I gotten sick before the internet,

da sam se razbolela pre interneta,

had I not found my community.

da nisam pronašla svoju zajednicu.

I probably would have already taken my own life,

Verovatno bih oduzela sebi život,

kao što su i mnogi drugi.

as so many others have done.

Koliko života smo mogli da spasemo još pre nekoliko decenija

How many lives could we have saved, decades ago,

if we had asked the right questions?

da smo samo postavili prava pitanja?

How many lives could we save today

Koliko života bismo sada mogli da sačuvamo

if we decide to make a real start?

ako odlučimo da se zaista potrudimo?

Čak i kada se otkrije pravi uzrok moje bolesti,

Even once the true cause of my disease is discovered,

if we don't change our institutions and our culture,

ako ne promenimo naše institucije i kulturu,

we will do this again to another disease.

učinićemo ovo isto sa nekom drugom bolešću.

Living with this illness has taught me

Život sa ovom bolešću me naučio

that science and medicine are profoundly human endeavors.

da su nauka i medicina tipični ljudski poduhvati.

Doktori, naučnici i sami stvaraoci politike

Doctors, scientists and policy makers

are not immune to the same biases

nisu imuni na pristrasnost

that affect all of us.

koja nam je svima svojstvena.

Moramo da razmišljamo na suptilnije načine o zdravlju žena.

We need to think in more nuanced ways about women's health.

Naši imuni sistemi su poprište borbe za jednakost,

Our immune systems are just as much a battleground for equality

baš kao i ostatak naših tela.

as the rest of our bodies.

Treba da saslušamo priče obolelih

We need to listen to patients' stories,

and we need to be willing to say, "I don't know."

i treba da budemo spremni da kažemo „ne znam“.

Reći „ne znam“ je prelepa stvar.

"I don't know" is a beautiful thing.

„Ne znam“ je početak potrage.

"I don't know" is where discovery starts.

And if we can do that,

I ako to možemo,

if we can approach the great vastness of all that we do not know,

ako možemo da pristupimo ogromnom mnoštvu stvari koje ne znamo

i umjesto da se plašimo neizvesnosti,

and then, rather than fear uncertainty,

možemo ih dočekati i zapitati se nad njima.

maybe we can greet it with a sense of wonder.

Thank you.

Hvala.

Hvala.

Thank you.