Love, no matter what | Andrew Solomon

1,021,347 views ・ 2013-06-03

TED


Mesedez, egin klik bikoitza beheko ingelesezko azpitituluetan bideoa erreproduzitzeko.

00:00
Translator: Timothy Covell Reviewer: Morton Bast
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Translator: Begoña Laka Reviewer: Jone Aliri Lazcano
00:12
"Even in purely nonreligious terms,
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"Erlijioz kanpoko ikuspuntutik ere,
homosexualitatea sexu-gaitasunaren erabilera okerra da.
00:17
homosexuality represents a misuse of the sexual faculty.
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00:22
It is a pathetic little second-rate substitute for reality --
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Errealitatearen bigarren mailako ordezko penagarria da --
00:27
a pitiable flight from life.
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bizitzatik ihesa negargarria.
Beraz, ez du merezi inolako errukirik, ,
00:30
As such, it deserves no compassion,
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00:33
it deserves no treatment as minority martyrdom,
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ez du merezi tratatzea
gutxiengo martirizatu gisa,
eta gaixotasun kaltegarritzat jotzea baino ez du merezi."
00:39
and it deserves not to be deemed anything but a pernicious sickness."
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00:45
That's from "Time" magazine in 1966, when I was three years old.
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Hau Time Magazinen agertu zen 1966an, nik 3 urte nituenean.
Eta iaz, AEBtako presidenteak
00:51
And last year, the president of the United States
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00:54
came out in favor of gay marriage.
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gayen arteko ezkontzen alde azaldu zen.
00:57
(Applause)
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(Txaloak)
Nire galdera da, nola joan gara handik hona?
01:05
And my question is:
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01:07
How did we get from there to here?
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01:10
How did an illness become an identity?
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Nola bihurtu da gaixotasun bat identitate?
01:15
When I was perhaps six years old,
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Sei urte inguru nituenean,
01:18
I went to a shoe store with my mother and my brother.
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Zapata denda batera joan nintzen ama eta anaiarekin.
01:21
And at the end of buying our shoes,
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Zapatak erosten amaitu genuenean,
01:23
the salesman said to us that we could each have a balloon to take home.
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saltzaileak esan zigun puxika bat aukeratzeko etxera eramateko.
01:27
My brother wanted a red balloon,
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Anaiak puxika gorria nahi zuen, eta nik puxika arrosa.
01:29
and I wanted a pink balloon.
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Amak esan zuen nik puxika urdina nahiago izango nuela.
01:33
My mother said that she thought I'd really rather have a blue balloon.
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01:37
(Laughter)
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Baina nik esan nion puxika arrosa nahi nuela benetan.
01:38
But I said that I definitely wanted the pink one.
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Berak gogorarazi zidan nire kolore gustukoena urdina zela.
01:41
And she reminded me that my favorite color was blue.
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01:46
The fact that my favorite color now is blue, but I'm still gay --
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Gauza da orain nire kolore gustukoena urdina dela, baina gay naiz oraindik --
01:51
(Laughter)
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(Barreak) --
01:54
is evidence of both my mother's influence
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eta horrek erakusten ditu amaren eragina eta bere mugak.
01:57
and its limits.
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01:58
(Laughter)
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(Barreak)
02:00
(Applause)
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(Txaloak)
02:07
When I was little, my mother used to say,
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Txikia nintzenean, amak esaten zuen,
02:10
"The love you have for your children is like no other feeling in the world.
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"Umeenganako maitasunak ez du pareko sentimendurik munduan.
Eta umeak dituzunera arte, ez dakizu nolakoa den."
02:15
And until you have children, you don't know what it's like."
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Eta txikia nintzenean, munduko laudorio hoberena zen
02:18
And when I was little, I took it as the greatest compliment in the world
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02:21
that she would say that about parenting my brother and me.
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amak hori esatea ni eta anaiaren guraso izateari buruz.
02:24
And when I was an adolescent, I thought, "But I'm gay,
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Eta nerabe nintzenean, uste nuen
gay nintzela, beraz, ezin izango nuela familiarik izan.
02:27
and so I probably can't have a family."
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02:30
And when she said it, it made me anxious.
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Eta berak hau zionean, kezkatu egiten nintzen.
02:32
And after I came out of the closet,
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Eta armairutik irten nintzenean,
berak hori esaten jarraitzeak haserrarazten ninduen.
02:34
when she continued to say it, it made me furious.
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02:37
I said, "I'm gay. That's not the direction that I'm headed in.
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Esan nuen: "Gay naiz. Hori ez da nire jarraibidea.
02:41
And I want you to stop saying that."
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Eta hori esateari uztea nahi dut."
02:47
About 20 years ago,
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Direla 20 bat urte, The New York Times Magazineko editoreek eskatu zidaten
02:49
I was asked by my editors at the "New York Times Magazine"
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02:52
to write a piece about Deaf culture.
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gorren kulturari buruzko artikulua idazteko.
02:54
And I was rather taken aback.
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Guztiz txundituta geratu nintzen.
02:56
I had thought of deafness entirely as an illness:
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Gortasuna niretzako gaixotasun bat zen.
02:58
those poor people, they couldn't hear,
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Gizajo horiek ezin zuten entzun.
03:00
they lacked hearing, and what could we do for them?
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Ezin zuten entzun, eta zer egin genezaken euren alde?
03:03
And then I went out into the Deaf world.
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Eta gorren munduan murgildu nintzen.
03:05
I went to Deaf clubs.
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Gorren klubetara joan nintzen.
03:07
I saw performances of Deaf theater and of Deaf poetry.
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Gorren antzerki eta poesia saioak ikusi nituen.
Baita Nashvillen, Tennesseen, izan zen miss Amerika gorra lehiaketara ere
03:12
I even went to the Miss Deaf America contest in Nashville, Tennessee,
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03:17
where people complained about that slurry Southern signing.
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non jendea hegoaldeko kutsudun zeinu-hizkuntzari buruz kexatzen zen.
(Barreak)
03:22
(Laughter)
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Eta gor-munduan sakon murgiltzen nintzen bitartean,
03:26
And as I plunged deeper and deeper into the Deaf world,
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gortasuna kultura bat zela konbentzitu nintzen
03:30
I became convinced that Deafness was a culture
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eta gorren munduko kideek, hau esaten zutena:
03:33
and that the people in the Deaf world who said,
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03:35
"We don't lack hearing; we have membership in a culture,"
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"Ez zaigu entzutea falta, kultura baten kideak gara",
03:38
were saying something that was viable.
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gauza bideragarria adierazten zutela.
03:41
It wasn't my culture,
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Ez zen nire kultura,
03:42
and I didn't particularly want to rush off and join it,
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eta ez nuen gogo handirik bertan izena emateko,
03:45
but I appreciated that it was a culture
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baina kultura bat zelaz ohartu nintzen
03:48
and that for the people who were members of it,
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eta bertako kideentzat,
03:50
it felt as valuable as Latino culture or gay culture or Jewish culture.
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kultura latino, gay edo judua bezain baliotsua.
03:56
It felt as valid, perhaps, even as American culture.
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Amerikar kultura bezain baliotsua behar bada ere.
04:01
Then a friend of a friend of mine had a daughter who was a dwarf.
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Orduan, lagun baten lagunak alaba bat izan zuen, nanoa zena.
Bere alaba jaio zenean,
04:05
And when her daughter was born,
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04:06
she suddenly found herself confronting questions
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bere burua zenbait arazoen aurre ikusten zuen
nigan oihartzuna izaten hasi zena.
04:09
that now began to seem quite resonant to me.
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04:11
She was facing the question of what to do with this child.
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Arazoa zen ume honekin zer egin behar zuen.
04:15
Should she say, "You're just like everyone else but a little bit shorter?"
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Esan beharko luke: "Beste edonor bezalakoa zara, baina txikiagoa?”
Edo nano identitate bat sortzen saiatuko beharko litzateke,
04:19
Or should she try to construct some kind of dwarf identity,
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04:22
get involved in the Little People of America,
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Ameriketako Jende Txikiak elkartean sartu,
04:24
become aware of what was happening for dwarfs?
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nanoei gertatzen zaienaz ikasi?
04:27
And I suddenly thought,
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Bat-batean bururatu zitzaidan,
ume gor gehienak entzuten duten gurasoengandik jaiotzen direla.
04:29
"Most deaf children are born to hearing parents.
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04:31
Those hearing parents tend to try to cure them.
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Entzuten duten gurasoek umea sendatzen saiatzen dira.
04:34
Those deaf people discover community somehow in adolescence.
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Lagun gor horiek nerabezaroan aurkitzen dute komunitateren bat.
04:38
Most gay people are born to straight parents.
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Lagun gay gehienak guraso heterosexualengandik jaiotzen dira.
04:40
Those straight parents often want them to function
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Guraso horiek askotan nahi izaten dute
umea funtzionatzea korronte nagusia dena uste dutenaren arabera,
04:43
in what they think of as the mainstream world,
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04:45
and those gay people have to discover identity later on.
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eta lagun gay horiek identitatea beranduago deskubritu behar dute.
04:48
And here was this friend of mine,
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Eta hona hemen nire lagun hura
04:50
looking at these questions of identity with her dwarf daughter.
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identitateari inguruko arazoei so bere alaba nanoarekin.
Eta pentsatu nuen: hemen dago berriz.
04:54
And I thought, "There it is again:
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04:55
a family that perceives itself to be normal
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Bere burua normaltzat jotzen duen familia bat
04:58
with a child who seems to be extraordinary."
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ezohizkoa dirudien ume batekin.
05:00
And I hatched the idea that there are really two kinds of identity.
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Eta ideia hau errun nuen, identitate bi daudela egiaz.
05:05
There are vertical identities,
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Badira identitate bertikalak,
gurasoengandik umeengana doazenak.
05:07
which are passed down generationally from parent to child.
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Hor dira etnia, nazionalitatea askotan, hizkuntza, erlijioa maiz.
05:10
Those are things like ethnicity,
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05:12
frequently nationality, language, often religion.
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05:15
Those are things you have in common with your parents and with your children.
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Horiek dira guraso eta seme-alabengan bat datozen gauzak.
05:20
And while some of them can be difficult,
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Eta batzuk zailak badira ere,
05:22
there's no attempt to cure them.
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inor ez da haiek osatzen saiatzen.
05:24
You can argue that it's harder in the United States --
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Esan dezakezu AEBtan zailagoa dela --
05:27
our current presidency notwithstanding --
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gure oraingo presidentea gorabehera --
pertsona beltza izatea.
05:30
to be a person of color.
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05:31
And yet, we have nobody who is trying to ensure
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Eta jada, inor ez da saiatzen ari
05:34
that the next generation of children born to African-Americans and Asians
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Ameriketan jatorri afrikar edo asiarreko jaioko den hurrengo belaunaldia
05:38
come out with creamy skin and yellow hair.
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ile horia eta azal argia izateko.
Badira beste zenbait identitate taldeko kideengandik ikasi behar dituzunak.
05:42
There are these other identities which you have to learn from a peer group,
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Nik identitate horizontalak deritzet,
05:46
and I call them "horizontal identities,"
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05:48
because the peer group is the horizontal experience.
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kideen taldea esperientzia horizontala delako.
05:51
These are identities that are alien to your parents
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Identitate hauek arrotzak dira gurasoentzako
05:53
and that you have to discover when you get to see them in peers.
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eta kideengan ikustean deskubritu behar dira.
Identitate horizontal horiek,
05:58
And those identities, those horizontal identities,
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jendea beti saiatu da horiek sendatzen.
06:01
people have almost always tried to cure.
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Prozesu hori aztertu nahi nuen,
06:05
And I wanted to look at what the process is
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06:07
through which people who have those identities
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identitate hori dutenek
06:09
come to a good relationship with them.
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berarekin harreman onak izatera nola heltzen diren.
06:12
And it seemed to me that there were three levels of acceptance
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Iruditu zitzaidan hiru onarpen maila zeudela
06:16
that needed to take place.
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gertatu behar zirenak.
Badago norberaren onarpena, familiarena eta gizartearena.
06:18
There's self-acceptance, there's family acceptance, and there's social acceptance.
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06:23
And they don't always coincide.
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Eta ez dira beti aldi berean gertatzen.
06:25
And a lot of the time, people who have these conditions are very angry,
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Askotan, ezaugarri hauek dutenek oso haserre daude
06:29
because they feel as though their parents don't love them,
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gurasoek ez dituztela maite sentitzen dutelako,
egiaz gertatzen dena gurasoek ez dituztela onartzen izan arren.
06:33
when what actually has happened is that their parents don't accept them.
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Amodioa, inolako baldintzarik gabekoa izan beharko litzateke
06:37
Love is something that, ideally, is there unconditionally
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06:40
throughout the relationship between a parent and a child.
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guraso eta seme-alaben harremanetan.
06:43
But acceptance is something that takes time.
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Baina onarpenak denbora behar du.
06:46
It always takes time.
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Beti behar du denbora.
Ezagutu nuen nanoetako bat Clinton Brown zeritzon.
06:49
One of the dwarfs I got to know was a guy named Clinton Brown.
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06:53
When he was born, he was diagnosed with diastrophic dwarfism,
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Jaiotzean nanismo diastrofikoa diagnostikatu zioten,
gaixotasun oso larria,
06:57
a very disabling condition,
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06:58
and his parents were told that he would never walk,
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Eta gurasoei esan zieten ezin izango zuela inoiz ibili, hitz egin,
07:01
he would never talk,
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07:02
he would have no intellectual capacity,
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adimen gutxi izango zuela,
07:04
and he would probably not even recognize them.
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gurasoak ere ez zituela ezagutuko.
07:06
And it was suggested to them that they leave him at the hospital
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Iradoki zieten umea ospitalean uzteko
07:10
so that he could die there quietly.
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bertan lasai hil zedin.
07:12
His mother said she wasn't going to do it,
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Amak esan zuen ez zuela horrelakorik egingo.
07:14
and she took her son home.
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Eta umea etxera eraman zuen.
07:16
And even though she didn't have a lot of educational or financial advantages,
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Eta hezkuntza edo diruzko baliabide asko ez bazuen ere,
estatuko doktorerik hoberena aurkitu zuen
07:20
she found the best doctor in the country for dealing with diastrophic dwarfism,
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nanismo diastrofikoa tratatzeko,
07:24
and she got Clinton enrolled with him.
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eta medikuak Clinton zaintzea lortu zuen.
07:26
And in the course of his childhood,
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Eta haurtzaroan zehar,
07:28
he had 30 major surgical procedures.
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30 ebakuntza garrantzitsu egin zioten.
07:31
And he spent all this time stuck in the hospital
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Denbora hura ospitalean sartuta eman zuen
07:33
while he was having those procedures,
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ebakuntzak egiten zizkiotenean,
07:35
as a result of which, he now can walk.
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eta ondorioz gaur ibiltzeko gai da.
07:37
While he was there, they sent tutors around to help him with his schoolwork,
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Bertan zegoela, irakasleak bidali zizkioten eskola-lanarekin laguntzeko.
Gogor egin zuen lan ez baitzegoen beste zereginik.
07:42
and he worked very hard, because there was nothing else to do.
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Eta lortu zuen maila bat,
07:45
He ended up achieving at a level
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07:46
that had never before been contemplated by any member of his family.
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beste seniderik inoiz lortu izan ez zuena.
07:50
He was the first one in his family, in fact, to go to college,
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Bera izan zen bere familian unibertsitatera joan zen lehena,
07:53
where he lived on campus and drove a specially fitted car
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kanpusean bizi zen eta egokitutako kotxea gidatzen zuen,
07:56
that accommodated his unusual body.
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bere ezohizko gorputzari moldatutakoa.
07:59
And his mother told me the story of coming home one day --
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Amak kontatu zidanez, behin etxera zetorrela --
08:02
and he went to college nearby --
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auzoan zegoen unibertsitatea --
08:04
and she said, "I saw that car, which you can always recognize,
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amak esan zidan: "Kotxe hura ikusi nuen, erraz ezagutzen dena,
08:07
in the parking lot of a bar," she said.
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taberna baten aparkalekuan". (Barreak)
08:10
(Laughter)
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"Nire buruari esan nion: haiek 1,80 m dute, berak 0.90m.
08:12
"And I thought to myself,
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08:13
'They're six feet tall, he's three feet tall.
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08:16
Two beers for them is four beers for him.'"
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Haientzako 2 garagardo berarentzako 4 dira."
Esan zidan:"Banekien ezin nintzela sartu eta bera moztu,
08:19
She said, "I knew I couldn't go in there and interrupt him,
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08:21
but I went home, and I left him eight messages on his cell phone."
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baina etxera joan eta sakelakoan zortzi mezu utzi nizkion".
08:25
She said, "And then I thought,
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Esan zuen: "Orduan pentsatu nuen
08:27
if someone had said to me, when he was born,
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jaio zenean inork esan izan balit
08:29
that my future worry would be that he'd go drinking and driving
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etorkizunean kezkatuko nintzela lagunekin edaten eta gidatzen ibiliko zela -- "
08:33
with his college buddies ..."
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08:34
(Laughter)
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(Txaloak)
08:36
(Applause)
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08:43
And I said to her,
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Esan nion: "Zer uste duzu egin zenuela
08:45
"What do you think you did that helped him to emerge
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halako pertsona xarmant, oso, zoragarria izan dadin?
08:47
as this charming, accomplished, wonderful person?"
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08:50
And she said, "What did I do?
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Eta berak: "Zer egin dudan? Bera maitatu, hori baino ez.
08:53
I loved him, that's all.
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Clintonek beti izan du bere baitan argi hura.
08:55
Clinton just always had that light in him.
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Aita eta biok zoriontsuak gara hura ikusten lehenak garelako."
08:58
And his father and I were lucky enough to be the first to see it there."
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09:04
I'm going to quote from another magazine of the '60s.
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60 hamarkadako beste aldizkari bat aipatuko dut.
09:07
This one is from 1968 --
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Hau 1968koa da, The Atlantic Monthly, Amerika liberalaren ahotsa,
09:10
"The Atlantic Monthly," voice of liberal America --
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09:13
written by an important bioethicist.
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bioetikan aditu batek idatzia.
09:15
He said, "There is no reason to feel guilty
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Hau zioen: "Ez daukagu zertan errudun sentitu
09:19
about putting a Down's syndrome child away,
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haur trisomiko bat baztertzeagatik,
bai erietxe baten ezkutatzen dugulako
09:23
whether it is 'put away' in the sense of hidden in a sanitarium
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edo bai beste modu baten, arduratsuago eta hilgarriagoan.
09:28
or in a more responsible, lethal sense.
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Penagarria da, bai, izugarria. Baina ez dakar errurik.
09:32
It is sad, yes. Dreadful.
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09:35
But it carries no guilt.
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Benetako errua pertsona bati egindako kaltetik dator,
09:37
True guilt arises only from an offense against a person,
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eta haur trisomikoa ez da pertsona bat".
09:41
and a Down's is not a person."
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09:45
There's been a lot of ink given to the enormous progress that we've made
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Tinta asko gastatu da egin dugun aurrerapenari buruz
09:49
in the treatment of gay people.
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gay direnak tratatzen ditugun eran.
09:51
The fact that our attitude has changed is in the headlines every day.
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Gure jarrera aldatu dela egunero ikusten dugu egunkarietan.
09:55
But we forget how we used to see people who had other differences,
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Baina beste motako ezberdintasundunak nola tratatzen genituen ahazten dugu,
10:00
how we used to see people who were disabled,
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ezinduak nola ikusten genituen,
10:02
how inhuman we held people to be.
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ez genituela gizakitzat jotzen.
10:05
And the change that's been accomplished there,
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Eta hemen izan den aldaketa,
10:07
which is almost equally radical,
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ia hain erradikala dena,
10:09
is one that we pay not very much attention to.
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eta kontuan hartzen ez duguna.
Elkarrizketatu nuen familia bat, Tom and Karen Robards,
10:12
One of the families I interviewed, Tom and Karen Robards,
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txundituta gelditu ziren, newyorktar gazte eta arrakastatsu zirelarik,
10:16
were taken aback when, as young and successful New Yorkers,
195
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3532
10:19
their first child was diagnosed with Down syndrome.
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euren lehen umea Down sindromea zuela aurkitu zutenean.
10:23
They thought the educational opportunities for him were not what they should be,
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Iruditzen zitzaien heziketa aukerak ez zirela izan beharrekoak,
10:27
and so they decided they would build a little center --
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eta beraz ikastetxe txiki bat sortzea erabaki zuten,
10:31
two classrooms that they started with a few other parents --
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gela bi, beste guraso gutxiekin martxan jarri zutena
10:34
to educate kids with DS.
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haur trisomikoak hezteko.
10:37
And over the years, that center grew into something called the Cooke Center,
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Urteekin ikastetxea hazi eta Cook Center izena hartu du,
10:41
where there are now thousands upon thousands of children
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eta bertan orain milaka ume daude
adimen-ezgaitasunak izan eta hezkuntza jasotzen dutenak.
10:44
with intellectual disabilities
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10:45
who are being taught.
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10:47
In the time since that "Atlantic Monthly" story ran,
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Atlantic Monthlyko artikulua irten zen egunetik,
10:50
the life expectancy for people with Down syndrome has tripled.
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haur trisomikoen bizi-itxaropena hirukoiztu egin da.
Down sindromedunen esperientzian badaude aktoreak direnak,
10:55
The experience of Down syndrome people includes those who are actors,
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4545
10:59
those who are writers, some who are able to live fully independently in adulthood.
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idazleak direnak, helduak direnean guztiz independente bizi daitekeenak.
11:05
The Robards had a lot to do with that.
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1840
Robards bikoteak horretan badu zerikusia.
11:07
And I said, "Do you regret it?
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Esan nien: Damutzen al zarete?
11:08
Do you wish your child didn't have Down syndrome?
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Gustatuko litzaizueke zuen umea trisomikoa ez izatea?
11:11
Do you wish you'd never heard of it?"
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Horren berririk inoiz izan ez izatea?"
Aitaren erantzun bitxia hau izan zen:
11:13
And interestingly, his father said,
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2654
11:15
"Well, for David, our son, I regret it,
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2140
"Bai, David, semearengandik, pena ematen dit,
Davidek munduan duen bizimodua zaila baita,
11:18
because for David, it's a difficult way to be in the world,
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3468
11:21
and I'd like to give David an easier life.
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2805
eta Daviden bizitza erraztu nahiko nuke.
11:24
But I think if we lost everyone with Down syndrome,
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Baina Down sindromedunak desagertuz gero, galera katastrofikoa litzateke.”
11:27
it would be a catastrophic loss."
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11:29
And Karen Robards said to me, "I'm with Tom.
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Eta Karen Robardsek esan zidan: Bat nator Tomekin.
11:32
For David, I would cure it in an instant, to give him an easier life.
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3862
Davidi dagokionez, bai sendatuko nuke bizitza hobeagoa emateko.
11:36
But speaking for myself --
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696842
1911
Baina nitaz ari banaiz --, direla 23 urte, bera jaio zenean ez nuen inoiz sinistuko
11:38
well, I would never have believed 23 years ago when he was born
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puntu honetara helduko nintzenik --
11:42
that I could come to such a point.
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niri dagokidanez, hobea, gozoagoa egin nau
11:44
Speaking for myself, it's made me so much better and so much kinder
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11:48
and so much more purposeful in my whole life that, speaking for myself,
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eta nire bizitza esanguratsuago bihurtu du,
nik neuk ez nioke inoiz uko egingo."
11:53
I wouldn't give it up for anything in the world."
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Garai honetan gaixotasun honen eta beste zenbaiten gizartearen onarpena
11:58
We live at a point when social acceptance for these and many other conditions
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12:02
is on the up and up.
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gora doa.
Baina bizi garen une honetan
12:04
And yet we also live at the moment
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gaixotasun hauek ezabatzeko gure ahalmena
12:06
when our ability to eliminate those conditions
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12:08
has reached a height we never imagined before.
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inoiz uste izandako mailara heldu da.
12:11
Most deaf infants born in the United States now
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Gaur AEBn gor jaiotzen diren ume gehienek
12:14
will receive cochlear implants,
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1976
koklea inplanteak jasoko dituzte,
12:16
which are put into the brain and connected to a receiver,
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4708
burmuinean jartzen direnak hargailu bati konektatuta,
12:21
and which allow them to acquire a facsimile of hearing
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eta entzumen antzeko zerbait ematen diena eta hitza erabiltzeko gaitu.
12:24
and to use oral speech.
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2123
12:26
A compound that has been tested in mice, BMN-111,
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Arratoiengan probatu den konposatu batek,BMN-111ak,
12:30
is useful in preventing the action of the achondroplasia gene.
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akondroplasia-genearen eragina prebenitzeko balio du.
12:35
Achondroplasia is the most common form of dwarfism,
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Akondroplasia da nanismoaren forma arruntena,
12:38
and mice who have been given that substance
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2088
eta konposatu hura jaso duten akondroplasiadun arratoiek
12:40
and who have the achondroplasia gene
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1844
12:42
grow to full size.
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1713
normal hazten dira.
12:44
Testing in humans is around the corner.
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Laster egingo dituzte probak gizakiengan.
12:46
There are blood tests which are making progress
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2453
Odol-proba batzuk aurrerapena ekartzen ari dira,
haurdunaldian inoiz baino goizago Down sindromea detektatuko lukete
12:49
that would pick up Down syndrome more clearly and earlier in pregnancies
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769438
4056
12:53
than ever before,
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1155
12:54
making it easier and easier for people to eliminate those pregnancies,
247
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4890
haurdunaldi horiek errazago ekiditea erraztuz,
12:59
or to terminate them.
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edo haurdunaldia amaitzea.
13:00
So we have both social progress and medical progress.
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Beraz gizarte eta medikuntza arlo bietan daude aurrerapenak.
13:05
And I believe in both of them.
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Nik bietan sinesten dut.
13:07
I believe the social progress is fantastic and meaningful and wonderful,
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Uste dut gizarte-aurrerapena bikaina, esanguratsua, zoragarria dela,
13:11
and I think the same thing about the medical progress.
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eta berdin deritzot medikuntzaren aurrerapenari.
13:14
But I think it's a tragedy when one of them doesn't see the other.
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Baina uste dut tragedia dela batak ez duenean bestea ikusten.
Eta nola gurutzatzen diren ikusten dudanean
13:19
And when I see the way they're intersecting
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2048
aipatu ditudan hiru gaixotasunetan bezala,
13:21
in conditions like the three I've just described,
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2376
13:23
I sometimes think it's like those moments in grand opera
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3621
batzuetan iruditzen zait operako une horiek bezalakoa dela,
gizon heroia ohartzen denean emakume heroia maite duela
13:27
when the hero realizes he loves the heroine
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2557
13:29
at the exact moment that she lies expiring on a divan.
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emakumea dibanean etzanda hiltzen dagoen une berean.
(Barreak)
13:34
(Laughter)
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Hausnartu beharko genuke sendaketez sentitzen dugunari buruz.
13:37
We have to think about how we feel about cures altogether.
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13:40
And a lot of the time the question of parenthood is:
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Askotan, guraso izatearen arazoa hau da:
13:43
What do we validate in our children,
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zer da umeengan ontzat ematen duguna,
13:45
and what do we cure in them?
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1805
eta zer da sendatzen duguna?
13:47
Jim Sinclair, a prominent autism activist, said,
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Jim Sinclairek, autismoaren aktibista famatuak, esan zuen:
13:51
"When parents say, 'I wish my child did not have autism,'
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"Gurasoek diotenean: Gustatuko litzaidake nire haurrak autismorik ez izatea,
benetan diotena da:Gustatuko litzaidake umea existituko ez balitz
13:56
what they're really saying is, 'I wish the child I have did not exist
266
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4811
14:00
and I had a different, nonautistic child instead.'
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3352
eta beste ume bat, autista ez zena, izango banu.
14:04
Read that again. This is what we hear when you mourn over our existence.
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Berriz irakurri. Hau da entzuten duguna gure existentziaz kexatzen zarenean.
14:09
This is what we hear when you pray for a cure:
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3025
Hau da entzuten duguna sendaketa eskatzen duzunean --
guretzako gehien nahi duzuena dela
14:13
that your fondest wish for us is that someday we will cease to be,
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4402
inoiz gehiago ez existitzea
14:17
and strangers you can love will move in behind our faces."
271
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eta gure aurpegien atzean arrotz maitagarriak mugi daitezela”."
Muturreko ikuspuntua da,
14:23
It's a very extreme point of view,
272
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2469
14:25
but it points to the reality that people engage with the life they have
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baina erakusten du jendeak jada duen bizitza bizi duela
eta ez dutela nahi inork sendatu, aldatu edo ezabatzea.
14:30
and they don't want to be cured or changed or eliminated.
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4541
14:34
They want to be whoever it is that they've come to be.
275
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Existitu nahi dute, direnak direla.
Proiektu honetarako elkarrizketatutako familia bat
14:38
One of the families I interviewed for this project
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14:41
was the family of Dylan Klebold,
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1727
Dylan Kleboldena izan zen, Columbineko sarraskiaren egileetako bat.
14:43
who was one of the perpetrators of the Columbine massacre.
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3385
Kostatu zitzaidan nirekin hitz egiteko konbentzitzea,
14:47
It took a long time to persuade them to talk to me,
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887040
2641
14:49
and once they agreed, they were so full of their story
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2624
eta onartu zutenean, hain zuten istorioaz burua beteta
14:52
that they couldn't stop telling it,
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1696
ezin ziotela kontatzeari utzi.
Eurekin pasa nuen lehen asteburuan -- askoetatik lehena--
14:54
and the first weekend I spent with them, the first of many,
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14:56
I recorded more than 20 hours of conversation.
283
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2986
20 ordu baino gehiagoko elkarrizketa grabatu nuen.
14:59
And on Sunday night, we were all exhausted.
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2022
Igande gauean, jota geunden denak.
15:01
We were sitting in the kitchen. Sue Klebold was fixing dinner.
285
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3240
Sukaldean geunden jezarrita. Sue Klebold afaria prestatzen ari zen.
Eta esan nuen: "Dylan hemen balego orain,
15:05
And I said, "If Dylan were here now,
286
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2650
15:07
do you have a sense of what you'd want to ask him?"
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2647
ba al dakizue zer galdetuko zenioketen?"
15:10
And his father said, "I sure do.
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2204
Eta aitak: “Noski baietz.
15:12
I'd want to ask him what the hell he thought he was doing."
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2845
Galdetuko nioke zer uste zuen ari zela egiten."
15:16
And Sue looked at the floor, and she thought for a minute.
290
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3258
Suek lurrera begiratu zuen, eta minutu batez pentsatzen egon zen.
Orduan, begirada altxatu eta esan zuen:
15:20
And then she looked back up and said,
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2345
"Bere ama izateagatik barkatzeko eskatuko nioke
15:22
"I would ask him to forgive me for being his mother
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3633
inoiz ez bainuen asmatu buruan zeukana."
15:26
and never knowing what was going on inside his head."
293
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3081
15:30
When I had dinner with her a couple of years later --
294
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2945
Urte pare bat geroago berarekin afaldu nuenean --
15:33
one of many dinners that we had together --
295
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2213
maiz izan genuen afarietako baten --
15:35
she said, "You know, when it first happened,
296
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2856
esan zidan: "Ba al dakizu, hura gertatu zenean,
15:38
I used to wish that I had never married, that I had never had children.
297
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4059
nahi izaten nuen inoiz ez ezkondu izana, umeak izan ez izana.
15:42
If I hadn't gone to Ohio State and crossed paths with Tom,
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3427
Ohiora joan eta Tom aurkitu izan ez banu,
ume hau ez zen existituko eta gauza ikaragarri hura ez zen gertatuko.
15:46
this child wouldn't have existed,
299
946206
1697
15:47
and this terrible thing wouldn't have happened.
300
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2208
Baina sentitzen dut izan ditudan umeak hainbeste maitatzen ditudala
15:50
But I've come to feel that I love the children I had so much
301
950159
4029
15:54
that I don't want to imagine a life without them.
302
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2707
ez dudala nahi eurak gabeko bizitzan pentsatu ere.
15:57
I recognize the pain they caused to others,
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2847
Ikusten dut besteei egin zieten mina, eta ez dago hori barkatzerik,
16:00
for which there can be no forgiveness,
304
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2114
16:02
but the pain they caused to me, there is," she said.
305
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3559
baina niri eragindako minak, badu barkamena" esan zuen.
"Beraz, nahiz eta ikusi munduarentzako hobea izango zela
16:06
"So while I recognize that it would have been better for the world
306
966155
3588
16:09
if Dylan had never been born,
307
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2546
Dylan jaio ez izana,
16:12
I've decided that it would not have been better for me."
308
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4195
erabaki dut niretzako hori ez zela hobea izango."
16:18
I thought it was surprising
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978420
1518
Harrigarria zen familia hauek,arazo hauek dituzten ume hauek dituztenak,
16:19
how all of these families had all of these children
310
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2652
16:22
with all of these problems,
311
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1466
16:24
problems that they mostly would have done anything to avoid,
312
984128
3052
arazoa ez izateko gehienek edozer egingo luketen arazoak,
16:27
and that they had all found so much meaning in that experience of parenting.
313
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3890
eta zer nolako esangura aurkitu dioten guraso izateari ikustea.
Orduan pentsatu nuen, umeak ditugunok
16:31
And then I thought, all of us who have children
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16:34
love the children we have, with their flaws.
315
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2911
gure umeak maite ditugu, euren akatsekin.
Aingeru zoragarri bat tupustean salako sabaitik bera baletor
16:37
If some glorious angel suddenly descended through my living-room ceiling
316
997200
3929
16:41
and offered to take away the children I have
317
1001153
2202
eta eskainiko balit ditudan umeak eramatea
16:43
and give me other, better children --
318
1003379
2329
beste hobeago batzuk emateko, finagoak, dibertigarriagoak, goxoagoak, azkarragoak,
16:45
more polite, funnier, nicer, smarter --
319
1005732
3446
16:49
(Laughter)
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1209
umeak gogor heldu eta otoi egingo nuke ikuskizun anker hura desagertzeko.
16:50
I would cling to the children I have and pray away that atrocious spectacle.
321
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4594
Eta azkenean uste dut
16:55
And ultimately,
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1369
16:56
I feel that in the same way that we test flame-retardant pajamas in an inferno
323
1016446
4485
suaren kontrako pijamak su-ontzian probatzen ditugun modu berean
17:00
to ensure they won't catch fire when our child reaches across the stove,
324
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4185
gure umea labera hurbiltzean ez dela erreko ziurtatzeko,
17:05
so these stories of families negotiating these extreme differences
325
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4013
desberdintasun itzel hauetara moldatzen diren familien istorio hauek
17:09
reflect on the universal experience of parenting,
326
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2663
gurasotasunaren esperientzia unibertsala islatzen dutela.
17:11
which is always that sometimes, you look at your child, and you think,
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4520
Batzuetan zure umeari begiratu eta bururatzen zaizu:
Nondik etorri ote haiz hi?
17:16
"Where did you come from?"
328
1036432
1936
17:18
(Laughter)
329
1038392
2524
(Barreak)
17:20
It turns out that while each of these individual differences is siloed --
330
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4713
Kontua da banakako desberdintasunak zatituta gordetzen diren bitartean --
17:25
there are only so many families dealing with schizophrenia,
331
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2785
familia kopuru mugatu batean dago eskizofrenia,
17:28
only so many families of children who are transgender,
332
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2598
familia kopuru mugatu batean daude ume-transgeneroak,
familia kopuru mugatu batean haur prodijioak --
17:31
only so many families of prodigies --
333
1051108
1862
17:32
who also face similar challenges in many ways --
334
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2489
pareko erronkak dituzten familiak --
17:35
there are only so many families in each of those categories.
335
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2847
familia kopuru mugatu bat dago kategoria bakoitzean --
baina pentsatzen hasiz gero
17:38
But if you start to think
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1235
17:39
that the experience of negotiating difference within your family
337
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3508
familian desberdintasunei moldatzeko esperientzia
dela jendeak egin beharrekoa,
17:43
is what people are addressing,
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2079
orduan ikusten duzu arazo ia unibertsala dela.
17:45
then you discover that it's a nearly universal phenomenon.
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3321
17:48
Ironically, it turns out,
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Ironikoki, gure desberdintasunak eta berak moldatzen dugun modua direla
17:50
that it's our differences and our negotiation of difference
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17:53
that unite us.
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bat egiten gaituena.
17:55
I decided to have children while I was working on this project.
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Proiektu honetan ari nintzela erabaki nuen umeak izatea.
18:01
And many people were astonished and said,
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3198
Askok harrituta zioten:
18:04
"But how can you decide to have children
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1999
"Nola erabaki dezakezu umeak izatea
oker joan daitekeen guztia ikertzen duzun bitartean?"
18:06
in the midst of studying everything that can go wrong?"
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2981
18:10
And I said, "I'm not studying everything that can go wrong.
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Esan nien:"Ez dut ikertzen oker joan daitekeena.
18:13
What I'm studying is how much love there can be,
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3112
Ikertzen ari naizena da zenbat maitasun egon daitekeen,
18:16
even when everything appears to be going wrong."
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4040
dena oker doala dirudienean ere."
18:21
I thought a lot about the mother of one disabled child I had seen,
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5541
Asko akordatzen nintzen haur ezindu baten amarekin,
haur larri ezindu bat zaindarien utzikeriarengatik hil zena.
18:27
a severely disabled child who died through caregiver neglect.
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3586
18:30
And when his ashes were interred, his mother said,
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3024
Errautsak lurperatu zituztenean, amak esan zuen:
18:34
"I pray here for forgiveness for having been twice robbed:
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6911
"Bi gauza lapurtu dizkidatelako barkamena eskatzeko egiten dut otoi,
18:41
once of the child I wanted,
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2712
lehena, desiratzen nuen haurra eta bigarrena, maite nuen semea."
18:44
and once of the son I loved."
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2604
18:47
And I figured it was possible, then, for anyone to love any child,
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4530
Ulertu nuen edonor edozein haur maitatzeko gai zela
18:52
if they had the effective will to do so.
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2338
horretarako borondatea izanez gero.
Nire senarra ume biren aita biologikoa da
18:55
So, my husband is the biological father of two children
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4963
18:59
with some lesbian friends in Minneapolis.
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2105
Minneapoliseko bi lagun lesbianekin izandakoak.
Eskolako nire lagun min bat dibortziatuta zegoen eta ume bat izan nahi zuen.
19:03
I had a close friend from college who'd gone through a divorce
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3509
19:06
and wanted to have children.
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1664
Beraz, gu biok alaba bat izan genuen,
19:08
And so she and I have a daughter,
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1148514
1713
19:10
and mother and daughter live in Texas.
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2215
eta ama eta alaba Texasen bizi dira.
19:12
And my husband and I have a son who lives with us all the time,
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3348
Senarra eta biok seme bat dugu gurekin bizi dena.
19:15
of whom I am the biological father,
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1155862
2360
Ni naiz aita biologikoa,
eta Laura izan zen haurdunaldia bizi zuena,
19:18
and our surrogate for the pregnancy was Laura,
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1158246
3724
19:21
the lesbian mother of Oliver and Lucy in Minneapolis.
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2777
Minneapolisen bizi diren Lucy eta Oliverren ama lesbiana.
19:24
(Laughter)
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1427
19:26
So --
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1166246
1159
(Txaloak)
19:27
(Applause)
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6702
Hau da, 5 guraso 3 estatuetan 4 umeentzako.
19:34
The shorthand is: five parents of four children in three states.
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4375
19:38
(Laughter)
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1094
19:39
And there are people who think that the existence of my family
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3008
Bada jendea uste duena nire familia existitzeak
19:42
somehow undermines or weakens or damages their family.
374
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4489
bere familia ahuldu edo kaltetzen duela nolabait.
19:47
And there are people who think that families like mine
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1187217
3530
Bada jendea uste duena nirea bezalako familiak
19:50
shouldn't be allowed to exist.
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1654
ez liratekeela baimenduta egon beharko.
19:52
And I don't accept subtractive models of love,
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3900
Eta ez dut maitasun eredu kentzailerik onartzen, gehitzaileak bakarrik.
19:56
only additive ones.
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1379
19:58
And I believe that in the same way that we need species diversity
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3503
Uste dut espezieen aniztasuna behar dugun eran
20:01
to ensure that the planet can go on,
380
1201664
2425
planeta aurrera joango dela ziurtatzeko,
familia eta maitasun aniztasuna ere behar dugula
20:04
so we need this diversity of affection and diversity of family
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4277
20:08
in order to strengthen the ecosphere of kindness.
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3279
ontasunaren ekosfera indartzeko.
Gure umea jaio eta hurrengo egunean,
20:13
The day after our son was born,
383
1213082
2398
20:15
the pediatrician came into the hospital room
384
1215504
2439
pediatra ospitaleko gelan sartu eta kezkatuta zegoela esan zigun.
20:17
and said she was concerned.
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1217967
1891
20:19
He wasn't extending his legs appropriately.
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3118
Umeak ez zituen hankak ondo luzatzen.
Hori burmuineko kaltearen adierazgarri izan litzateke.
20:23
She said that might mean that he had brain damage.
387
1223024
2537
20:25
Insofar as he was extending them, he was doing so asymmetrically,
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3731
Luzatzen zituenean, asimetrikoki egiten zuen,
20:29
which she thought could mean that there was a tumor of some kind in action.
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3714
eta bere ustez tumore baten eraginagatik izan litzateke.
Eta buru oso handia zuen, hidrozefalia adieraz zezakeena.
20:33
And he had a very large head,
390
1233078
1664
20:34
which she thought might indicate hydrocephalus.
391
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2935
20:37
And as she told me all of these things,
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1888
Hau dena esan zidanean,
20:39
I felt the very center of my being pouring out onto the floor.
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3821
neure burua lurrean urtzen sentitu nuen.
20:43
And I thought, "Here I had been working for years
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2448
Pentsatu nuen; Hara, urtetan ibili naiz
20:45
on a book about how much meaning people had found
395
1245954
2525
liburu bat idazten, jendeak zer gauza aurkitu dituen
20:48
in the experience of parenting children who were disabled,
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3633
ume ezinduen guraso izatean,
eta nik ez nuen euretako bat izan nahi.
20:52
and I didn't want to join their number
397
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3478
20:55
because what I was encountering was an idea of illness."
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2774
Aurkitzen nuena gaixotasunaren ideia bat zelako.
20:58
And like all parents since the dawn of time,
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2742
Eta betidanik guraso guztiek nahi izan duten bezala,
nire umea gaixotasunetik babestu nahi nuen.
21:01
I wanted to protect my child from illness.
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2977
Neure burua ere gaixotasunetik babestu nahi nuen.
21:04
And I wanted, also, to protect myself from illness.
401
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3243
21:07
And yet, I knew from the work I had done
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2747
Haatik, nire lanarengatik banekien
umeak izango balu frogen bidez bilatuko genituen gauzaren bat,
21:10
that if he had any of the things we were about to start testing for,
403
1270265
3816
hura izango zela bere identitatea,
21:14
that those would ultimately be his identity,
404
1274105
2963
eta bere identitatea bazen, nire identitatea ere izango zela,
21:17
and if they were his identity, they would become my identity,
405
1277092
4039
21:21
that that illness was going to take a very different shape as it unfolded.
406
1281155
4268
gaixotasuna forma desberdinak hartuko zituela hedatzean.
21:25
We took him to the MRI machine, we took him to the CAT scanner,
407
1285447
3129
Erresonantzia makinara, OTA tomografiara eraman genuen,
21:28
we took this day-old child and gave him over for an arterial blood draw.
408
1288600
3784
egun bateko umea hartu eta odol arteriala har ziezaioten eman genuen.
21:32
We felt helpless.
409
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1261
Babesgabe sentitzen ginen.
21:33
And at the end of five hours,
410
1293693
1657
Bost orduren buruan,
esan zuten burmuina guztiz normala zuela
21:35
they said that his brain was completely clear
411
1295374
2212
21:37
and that he was by then extending his legs correctly.
412
1297610
2778
eta hankak ondo luzatzen zituela.
21:40
And when I asked the pediatrician what had been going on,
413
1300412
3000
Eta pediatrari galdetu genionean zer gertatu zen,
21:43
she said she thought in the morning, he had probably had a cramp.
414
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4160
esan zigun goizekoa karranpak izango zirela.
21:47
(Laughter)
415
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3451
(Barreak)
21:51
But I thought --
416
1311095
1262
Baina nik pentsatu nuen ene amak arrazoia zuela.
21:52
(Laughter)
417
1312381
3925
21:56
I thought how my mother was right.
418
1316330
2599
21:58
I thought, "The love you have for your children
419
1318953
3472
Pentsatu nuen, umeenganako maitasuna
22:02
is unlike any other feeling in the world.
420
1322449
3362
ez du parekorik beste edozein sentimenduekin,
22:05
And until you have children, you don't know what it feels like.
421
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4673
eta umeak dituzunera arte ez dakizu zer den.
Uste dut umeek harrapatu nindutela
22:12
I think children had ensnared me
422
1332158
2136
22:14
the moment I connected fatherhood with loss.
423
1334318
3002
guraso izatea galerarekin lotu nuenean.
Baina ez dakit hortaz konturatuko nintzatekeenik
22:18
But I'm not sure I would have noticed that
424
1338138
2034
22:20
if I hadn't been so in the thick of this research project of mine.
425
1340196
4344
nire ikerketa proiektuan sakon sartu izan ez banintz.
22:25
I'd encountered so much strange love,
426
1345462
3116
Hain maitasun arraro aurkitu dut,
22:28
and I fell very naturally into its bewitching patterns.
427
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3721
eredu liluragarri horietan amildu nintzela.
22:32
And I saw how splendor can illuminate even the most abject vulnerabilities.
428
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5873
Ikusi dut edertasunak zaurgarritasun gordinena argiztatu dezakeela.
10 urte hauetan, ikusi eta ikasi egin dut
22:39
During these 10 years, I had witnessed and learned
429
1359206
3782
ardura jasanezinaren poz izugarria,
22:43
the terrifying joy of unbearable responsibility,
430
1363012
3552
22:46
and I had come to see how it conquers everything else.
431
1366588
3088
eta ikusi dut horrek beste dena garaitzen duela.
Batzuetan elkarrizketatzen nituen gurasoak memeloak zirela pentsatu izan arren,
22:50
And while I had sometimes thought the parents I was interviewing were fools,
432
1370264
4049
22:54
enslaving themselves to a lifetime's journey with their thankless children
433
1374337
4997
bizitza osorako esker gutxiko umeen esklabo bihurtuz
zoritxarra identitate bihurtzen saiatzen,
22:59
and trying to breed identity out of misery,
434
1379358
3158
ohartu nintzen ikerketak euskarri bat eman zidala
23:02
I realized that day that my research had built me a plank
435
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4623
eta euren ontzian sartzeko prest nengoela.
23:07
and that I was ready to join them on their ship.
436
1387187
2514
23:10
Thank you.
437
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1208
Eskerrik asko.
23:11
(Applause and cheers)
438
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6979
(Txaloak)
23:20
Thank you.
439
1400096
1150
Webgune honi buruz

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