Judy MacDonald Johnston: Prepare for a good end of life

93,692 views ・ 2013-05-22

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00:00
Translator: Joseph Geni Reviewer: Morton Bast
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翻译人员: Scarlett Huang 校对人员: Yuting Liu
00:12
What would be a good end of life?
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什么是一个生活美好的结尾?
00:16
And I'm talking about the very end.
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我所说的是最终的结尾
00:18
I'm talking about dying.
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我所说的是死亡
00:21
We all think a lot about how to live well.
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我们都在想如何更好的生活
00:25
I'd like to talk about increasing our chances of dying well.
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而我想要谈的是 如何更美好地告别人生
00:30
I'm not a geriatrician.
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我并不是老年病学家
00:32
I design reading programs for preschoolers.
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我为学前班的孩子设计阅读课程
00:34
What I know about this topic
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我对这个话题的了解
00:36
comes from a qualitative study with a sample size of two.
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来源于一个定性的研究,其中有两个案例
00:41
In the last few years, I helped two friends
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在过去的几年,我帮助两个好朋友
00:43
have the end of life they wanted.
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以他们想要的方式,结束了他们的生命
00:46
Jim and Shirley Modini spent their 68 years of marriage
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Jim 和 Shirley Modini 度过了他们68年的婚姻生活
00:49
living off the grid on their 1,700-acre ranch
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生活在远离城镇的,1,700英亩的牧场里
00:52
in the mountains of Sonoma County.
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Sonoma 县的山区
00:54
They kept just enough livestock to make ends meet
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他们喂养了仅仅是能养活他们自己的家禽
00:58
so that the majority of their ranch would remain a refuge
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所以这大部分的牧场变成了避难所
01:01
for the bears and lions and so many other things
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给熊,狮子和其他的动物
01:03
that lived there.
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生活在那里
01:05
This was their dream.
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这正是他们的梦想
01:07
I met Jim and Shirley in their 80s.
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我在两个老人年迈八十的时候遇见他们
01:10
They were both only children who chose not to have kids.
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他们只有一个子女,而他选择不要孩子
01:14
As we became friends, I became their trustee
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当我们成为朋友后,我变成了他们的托管人
01:16
and their medical advocate,
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与他们的医疗顾问
01:18
but more importantly, I became
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但是更重要的是
01:20
the person who managed their end-of-life experiences.
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我成为了帮助他们结束生活的那个人
01:24
And we learned a few things about how to have a good end.
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并且我们学到了 如何有个好的结局
01:28
In their final years, Jim and Shirley
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在最后的几年里, Jim 和 Shirley
01:30
faced cancers, fractures, infections, neurological illness.
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他们面对着癌症,骨折,传染病和神经上上的疾病
01:34
It's true.
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这是真的
01:35
At the end, our bodily functions
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人到了最后,我们身体的功能
01:37
and independence are declining to zero.
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和独立性会降低到零
01:40
What we found is that, with a plan and the right people,
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我们发现,如果有正确的计划和人
01:43
quality of life can remain high.
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他们还是可以拥有高品质的生活
01:46
The beginning of the end is triggered
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结束的开始是被其他所引起的
01:48
by a mortality awareness event, and during this time,
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像对死亡的意识 并且在此期间
01:51
Jim and Shirley chose ACR nature preserves
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Jim 和 Shirley 选择了ACR 自然保护区
01:55
to take their ranch over when they were gone.
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在他们去世后接手牧场
01:57
This gave them the peace of mind to move forward.
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这给了他们一片祥和,然后继续前行
02:01
It might be a diagnosis. It might be your intuition.
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这可能是个诊断,也可能是你的直觉
02:05
But one day, you're going to say, "This thing is going to get me."
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有一天,你会说,这样的事情会打垮我
02:08
Jim and Shirley spent this time
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Jim 和 Shirley 用这些时间
02:09
letting friends know that their end was near
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让他们的朋友知道,离他们离开人世的时间不远了
02:11
and that they were okay with that.
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而他们对此没有埋怨
02:16
Dying from cancer and dying from neurological illness
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因为患癌症与神经疾病而死去
02:19
are different.
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是不一样的
02:21
In both cases, last days are about quiet reassurance.
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两种情况,最后的几天都非常安详
02:25
Jim died first. He was conscious until the very end,
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Jim 先离去, 到最后他都非常的清醒
02:29
but on his last day he couldn't talk.
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但是在他最后一天,他说不了话
02:31
Through his eyes, we knew when he needed to hear again,
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通过他的眼睛,我们知道当他想听我们说话
02:33
"It is all set, Jim. We're going to take care of Shirley
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“什么都很好,Jim。 我们会好好照顾 Shirley。
02:36
right here at the ranch,
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就在此时,在牧场
02:37
and ACR's going to take care of your wildlife forever."
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ACR 会永远帮你保护好这里的野生动植物
02:41
From this experience I'm going to share five practices.
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从这个经历中,我想和大家分享五个方案
02:44
I've put worksheets online,
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我已经把步骤公布在了网上
02:45
so if you'd like, you can plan your own end.
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所以如果你愿意,你可以计划你自己结束的方式
02:48
It starts with a plan.
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这个步骤以着手计划开始
02:51
Most people say, "I'd like to die at home."
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很多人会说”我愿意死在家里."
02:53
Eighty percent of Americans die in a hospital
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但是百分之八十的美国人,在医院里死去
02:55
or a nursing home.
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或者是养老院
02:57
Saying we'd like to die at home is not a plan.
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所以说想死在家里,并不是一个计划
03:01
A lot of people say, "If I get like that, just shoot me."
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很多人又会说“如果我像那样,一枪打死我”
03:04
This is not a plan either; this is illegal.
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这也不是,因为不合法
03:06
(Laughter)
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(笑声)
03:10
A plan involves answering
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这个计划是能包含了回应的
03:13
straightforward questions about the end you want.
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直接了当关于你想如何结束的问题
03:16
Where do you want to be when you're no longer independent?
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如果你不能再独立,你希望自己在哪里?
03:18
What do you want in terms of medical intervention?
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你希望医疗保护的干预么?
03:21
And who's going to make sure your plan is followed?
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谁能让你的计划继续紧接着进行
03:24
You will need advocates.
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你需要顾问
03:25
Having more than one increases your chance
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拥有多个顾问增加了
03:27
of getting the end you want.
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你获得想要的结果的可能性
03:28
Don't assume the natural choice is your spouse or child.
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不要断然的说你的配偶和孩子是你最合适的选择
03:31
You want someone who has the time and proximity
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你需要的是一个有时间和亲近感的人
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to do this job well, and you want someone
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如果你需要顺利的进行,你需要这样的人
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who can work with people under the pressure
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那些可以与有压力的人一起工作的人
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of an ever-changing situation.
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有着变化莫测的可能性
03:41
Hospital readiness is critical.
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医院随时准备就绪很重要
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You are likely to be headed to the emergency room,
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你可能随时被带入急救室
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and you want to get this right.
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而你也希望准确无误的做到这一点
03:46
Prepare a one-page summary of your medical history,
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所以,准备一页你的医疗病史
03:49
medications and physician information.
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药物治疗,和医生信息
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Put this in a really bright envelope
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把这些放在一个很明显的信封里
03:53
with copies of your insurance cards, your power of attorney,
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并一同放入你的保险卡,和委托书
03:56
and your do-not-resuscitate order.
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与你不想要恢复的命令
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Have advocates keep a set in their car.
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把这些留一份给你的顾问
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Tape a set to your refrigerator.
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并把录像放入冰箱里
04:02
When you show up in the E.R. with this packet,
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当你出现在急诊室,带着这样的包裹
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your admission is streamlined in a material way.
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你把许可用合法的文件合理化
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You're going to need caregivers.
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你将需要看护人
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You'll need to assess your personality and financial situation
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你需要评估你的人格和财政状况
04:14
to determine whether an elder care community
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去决定你是否需要养老社区
04:17
or staying at home is your best choice.
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或者呆在家里,是你最好的选择
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In either case, do not settle.
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不管哪种情况,都不要定下来
04:22
We went through a number of not-quite-right caregivers
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我们看到过一些不太称职的看护
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before we found the perfect team
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在我们找到最好的团队之前
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led by Marsha,
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以Marcia领导的团队
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who won't let you win at bingo just because you're dying
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我们不会因为你将死去就敷衍了事
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but will go out and take videos of your ranch for you
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我们会将你所拥有的录成视频
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when you can't get out there,
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当你如果不能离开疗养院
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and Caitlin, who won't let you skip your morning exercises
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而Caitlin 不过让你省略每天的晨练
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but knows when you need to hear
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但是知道什么时候你想听到
04:47
that your wife is in good hands.
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你的妻子被照顾得很好
04:50
Finally, last words.
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最后,遗言
04:53
What do you want to hear at the very end,
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在生命的最后,你想听到什么
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and from whom would you like to hear it?
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想听谁说这些
04:57
In my experience, you'll want to hear
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从我的经验来说,你想听到的
04:59
that whatever you're worried about is going to be fine.
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是那些你担心的事情,都会好起来
05:03
When you believe it's okay to let go, you will.
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当你真正的相信了,你就放下了,你会的
05:07
So, this is a topic that normally inspires fear and denial.
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所以,这是一个关于鼓励恐惧与否定的话题
05:13
What I've learned
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我学到的是
05:15
is if we put some time into planning our end of life,
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如果我们有计划的规划人生的最后
05:18
we have the best chance of maintaining our quality of life.
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我们会有最大的可能去维护我们生活的质量
05:21
Here are Jim and Shirley just after deciding
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这是Jim 和 Shirley,当他们决定了之后
05:24
who would take care of their ranch.
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谁会照看他们的牧场
05:26
Here's Jim just a few weeks before he died,
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这是Jim, 死之前的几个星期
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celebrating a birthday he didn't expect to see.
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意外的收获到了一个庆生会
05:33
And here's Shirley just a few days before she died
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这是Shirley,她离去前的几天
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being read an article in that day's paper
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看到自己上了报纸
05:39
about the significance of the wildlife refuge
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关于野生动植物避难所的重要性
05:42
at the Modini ranch.
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在Modini 牧场
05:44
Jim and Shirley had a good end of life,
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Jim 和 Shirley 有了很好的结束
05:47
and by sharing their story with you,
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在这里分享着他们的故事
05:49
I hope to increase our chances of doing the same.
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我希望能大家也能有同样美满的结点
05:52
Thank you.
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谢谢
05:53
(Applause)
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(鼓掌)
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