Lucien Engelen: Crowdsource your health

譯者: I-Hsiang Lin 審譯者: Chia-hui Hung

I would like to talk to you about why many ehealth projects fail.

我要跟你們說

為什麼很多線上健康企劃會失敗。

And I really think that the most important thing of it

我真的認為最主要的原因是

is that we stopped listening to patients.

我們不再聽病人說什麼。

And one thing we did at Radboud University

我們在荷蘭奈美恩大學做了一件事，

is we appointed a Chief Listening Officer.

我們指定一個主要的傾聽人員。

Not in a very scientific way --

這不是非常科學的方法 --

she puts up a little cup of coffee or a cup of tea

她倒了一些咖啡或茶，

and asks patients, family, relatives,

問病人或者他的家人和親戚們：

「最近好嗎？

"What's up?

How could we help you?"

我們可以給你什麼協助？」

And we think, we like to think,

我們的想法是，

that this is one of the major problems

幾乎全部 -- 可能不是全部 --

why all -- maybe not all --

但大部分線上健康企劃

but most of the ehealth projects fail,

失敗的主要原因之一

since we stopped listening.

是我們不再傾聽。

This is my weight scale.

這是我的可無線上網體重機，非常簡單的東西。

It's a very simple thing. It's got one knob, on/off.

上面有一個按鈕，開和關。

每天早上我站到上面。

And every morning I hop on it.

是的，我有一個挑戰，

And yes, I've got a challenge,

如你所見。

as you might see.

And I put my challenge on 95 kg.

我要挑戰減重到95公斤。

But the thing is that it's made this simple

這台體重機讓事情變得很簡單，

that whenever I hop on,

當我隨時站上去，

it sends my data to Google Health as well.

它也會將我的資料傳輸到Google Healthe(開放性醫療管理平台)。

And it's collected by my general practitioner as well,

我的醫師也會收到這些資料，

so he can see what's my problem in weight,

所以他可以觀察我的體重問題，

not on the very moment that I need cardiologic support

而不是等到

我有心臟病時需要接受幫助之類的時候，

or something like it,

but also looking backward.

還有他也可以查詢歷史紀錄。

But there's another thing.

還有一件事。

As some of you might know,

你們當中可能有人知道，我在推特上有超過4000名跟隨者。

I've got more than 4000 followers on Twitter.

於是每天早上

So every morning, I hop on my weight scale

我站上我的可無線上網的體重機，

and before I'm in my car,

當我進入我的車前，人們開始跟我說：

people start talking to me,

「我想你今天午餐要吃少一點，Lucien。」

"I think you need a light lunch today, Lucien."

(笑聲)

(Laughter)

But that's the nicest thing that could happen,

但是往好處想，

since this is peer pressure.

這是同儕壓力，

Peer pressure used to help patients --

同儕壓力可幫助病人 --

像是有肥胖問題，

since this could be used for obesity,

或者是要

it could be used to stop patients from smoking.

戒菸的病人。

But on the other hand,

此外，這也可以用來

it also could be used to get people out of their chairs

讓人們離開座位

and try to work together in some kind of gaming activity

且試著一起參予些有比賽性質的活動

來控制他們的健康。

to get more control of their health.

As of next week, it will soon be available,

下周即將上市的

there will be this little blood-pressure meter

是這個小的血壓計，

connected to an iPhone or something or other.

可以連接到iPhone或者其它設備，

And people will be able, from their homes,

所以人們將能夠在家裡

測量血壓，

to take their blood pressure,

將數值傳給他們的醫生，

send it to their doctor

and eventually share it with others, for instance,

最後和其他人分享，

for over a 100 dollars.

費用大約是100歐元出頭。

And this is the point where patients get into position

這樣一來，病人可以搜集自己的資料，

and can collect, not only their own control again,

他們不僅再度擁有控制權，

be captain of their own ship,

當自己的掌舵者，

but also can help us in health care

這也對保健事業有所幫助，

due to the challenges that we face,

考慮到我們現在所面臨的挑戰，

like health-care cost explosion,

像是保健成本劇增，

doubled demand and things like that,

需求倍增等情況，

make techniques that are easy to use

製作容易使用的技術，

and start with this to embrace patients in the team.

開始將病患納入這團隊中。

你可以透過像是這種技術參與其中，

And you can do this with techniques like this,

也可以透過群眾外包的力量。

but also by crowdsourcing.

我想要藉由一小段影片

And one of the things we did,

that I would like to share with you introduced by a little video.

介紹我們做的一件事。

(音樂)

(Music)

(Heart-beat)

我們在車內都有安裝導航系統。

We've all got navigation controls in our car.

甚至也有裝在手機裡。

We maybe even have it in our cellphone.

We perfectly know where all the ATMs are,

我們知道在馬斯垂克市裡

所有的自動提款機在哪裡。

just about the city of Maastricht.

The other thing is we know where all the gas stations are.

我們也知道所有的加油站在哪。

毫無疑問，我們也可以找到速食連鎖店。

And sure, we could find fast food chains.

但是哪裡可以找到最近的電擊器

But where would be the nearest AED to help this patient?

以幫助病患？

我們四處詢問，但沒有人知道。

We asked around, and nobody knew.

Nobody knew where the nearest lifesaving AED

沒人知道現在可以在附近哪裡取得

was to be obtained right now.

可救命的電擊器。

So what we did, we crowdsourced the Netherlands.

我們做的是在荷蘭進行群眾外包。

我們架設一個網站

We set up a website, and asked the crowd,

請求大家，「如果你看到一個電擊器，

"If you see an AED, please submit it,

請傳送此資訊，告訴我們它在哪哩，

tell us where it is, tell us when it's open,"

告訴我們店什麼時候開。」

since sometimes in office hours it's closed, of course.

因為店家有營業和休息的時間。

群眾已經傳送超過一萬個

And over 10,000 AEDs in the Netherlands

在荷蘭的電擊器資訊。

already have been submitted.

The next step we took was to find the applications for it.

我們接著要找到搭配的應用程式，

And we built an iPad application.

於是我們製作了一個iPad應用程式。

We made an application for Layar: Augmented Reality,

我們為Layar製作一個擴增實境定位的應用程式，

to find these AEDs.

以找到這些電擊器。

And whenever you are in a city like Maastricht,

於是當你在像馬斯垂克這樣一個城市中的任何地方，有人倒下了，

and somebody collapses, you can use your iPhone,

你可以使用你的iPhone，

and within the next weeks also your Microsoft cellphone,

還有再過幾個星期，你也可以用你的微軟手機，

找到最近的電擊器

to find the nearest AED,

which can save lives.

以搶救生命。

And as of today,

今天，

we would like to introduce this, not only as AED4EU,

我們要介紹這程式，不僅是以程式名稱，

which is what the product is called,

AED4U (為你)，

but also AED4US.

這也是AED4US (為我們)。

And we would like to start this on a worldwide level.

而且我們想要以全世界為基礎作為起點。

And ask all of our colleagues in the rest of the world,

我們請求散布在世界其它各地的同事們，

colleague universities, to help us

同類型大學來幫助我們，

to find and work and act like a hub

蒐集，合作且做為

to crowdsource all these AEDs all around the world,

全世界各地進行群眾外包蒐集電擊器資訊的中心。

that whenever you're on holiday and somebody collapses,

當你度假時，剛好有人倒下，

might it be your own relative or someone just in front of you,

那人可能是你的親戚或者站在你前面的人，

你就可以找到這個。

you can find this.

The other thing we would like to ask

另外我們想要請求

is of companies also all over the world

全世界可幫助我們

that will be able to help us validate these AEDs.

驗證這些電擊器資訊的公司，

These might be courier services

有可能是快遞公司

or cable guys, for instance,

或者有線電視業者之類的，

just to see whether the AED that is submitted

能確認這些被提交的電擊器位置

is still in place.

是否仍在原地。

So please help us on this one

所以請幫助我們

and try to make not only health a little bit better,

不僅是嘗試提升健康，也試著掌握健康。

but take control of it.

謝謝。

Thank you.

(Applause)

(掌聲)