请双击下面的英文字幕来播放视频。
翻译人员: Wei Wu
校对人员: Yolanda Zhang
00:12
Two months ago, my kids and I
huddled around a cell phone
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两月前,我和孩子们围着一个手机
00:16
watching the live stream
of the Game Awards,
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观看 Game Awards 直播,
00:19
one of the video game
industry's biggest nights.
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这是视频游戏行业的年度盛事之一。
00:22
They announced the nominees
for the Game for Impact,
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他们宣布了年度
最有影响力的游戏提名,
00:25
an award that's given
to a thought-provoking video game
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该奖项颁发给那些触动思想的游戏,
00:28
with a profound prosocial
message or meaning.
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引发了显著的积极的社会影响。
00:32
They opened the envelope
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他们打开了信封,
00:34
and they read the title of our video game.
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念出了我们的游戏的名字。
00:37
An award ...
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最具……
00:39
for impact.
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影响力奖。
00:40
It was almost funny, actually,
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实际上想想非常好玩,
00:42
because I always thought
that winning an award like that
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因为我一直觉得赢得这样一个奖项
00:45
would have this huge impact on my life,
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会对我的生活产生巨大的影响。
00:48
but I found that the opposite is true.
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但是我发现恰恰相反。
00:51
The big nights,
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那个夜晚,
00:53
the accomplishments --
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这些成就——
00:55
they fade.
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都消退了。
00:56
But the hardest nights of my life
have stuck with me,
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真正难忘的是那些最艰难的时光,
01:00
impacting who I am
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影响了我对自我的定义,
01:02
and what I do.
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也改变了我的行为方式。
01:05
In 2010, my third son, Joel, was diagnosed
with a rare and aggressive brain tumor.
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2010年我的第三个儿子Joel被诊断出
一种罕见的、严重的脑瘤。
01:12
And before that year was finished,
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那年年底的时候,
01:14
doctors sat my husband and I down
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医生坐在我和我丈夫的身边
01:16
and let us know
that his tumor had returned
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告诉我们Joel的脑瘤复发了,
01:20
despite the most aggressive chemotherapy
and radiation that they could offer him.
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即使用最激进的放疗和
化疗方法也无济于事。
01:25
On that terrible night,
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那个可怕的夜晚,
01:27
after learning that Joel
had perhaps four months to live,
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当我们知道Joel可能
只有四个月时间之后,
01:31
I cuddled up with
my two older sons in bed --
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在我哄我另外两个孩子睡觉的时候——
01:34
they were five and three at the time --
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他们那时分别是五岁和三岁——
01:37
and I never really knew
how much they understood,
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我真的不知道他们能够理解多少,
01:40
so I started telling them a bedtime story.
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所以我用床边故事的方式开始讲述。
01:44
I told them about this
very brave knight named Joel
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我讲述故事的主人公
是一个叫Joel的勇士,
01:48
and his adventure fighting
a terrible dragon called cancer.
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他的历险故事是去战胜一头可怕的
叫做癌症的巨龙。
01:53
Every night, I told them
more of the story,
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每天晚上我都把故事多讲述一点,
01:56
but I never let the story end.
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但是我从未想过要结束这个故事。
01:58
I was just building up a context
that they could understand
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我创造了一个世界,让他们能够理解
02:01
and hoping that our prayers
would be answered
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并且希望我们的祈祷能够被应许,
02:04
and I would never
have to tell them that that knight,
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我永远不会告诉孩子们那个骑士,
02:06
who had fought so bravely,
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那个勇敢拼搏的骑士
02:08
was done fighting
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已经尽力了,
02:10
and could rest now, forever.
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现在可以永远的安息。
02:14
Fortunately, I never did have to
finish that bedtime story.
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幸运的是我不需要结束
这个床边故事。
02:18
My children outgrew it.
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我的孩子们已经长大了。
02:20
Joel responded better than anyone expected
to palliative treatment,
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Joel的治疗效果
超出了所有人的预期,
02:25
and so instead of months,
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他坚持了不止几个月,
02:26
we spent years learning how to love
our dying child with all of our hearts.
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而是几年的时间让我们学会
如何全身心的和他相处。
02:33
Learning to recognize
that shameful feeling
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我们学会了正视自己的
让人惭愧的心态,
02:36
of holding back just a little love
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希望能够爱得有所保留,
02:39
to try to spare ourselves
just a little pain
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这样在漫长的告别的道路上
02:42
somewhere further down the road.
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留给我们的痛苦就会少一些。
02:45
We pushed past that self-preservation
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我们克服了那种爱的保留,
02:48
because Joel was worth loving
even if that love could crush us.
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因为Joel值得我们去爱,
即使我们可能因此崩溃。
02:54
And that lesson of intense
vulnerability has changed me ...
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这种强烈的脆弱感改变了我——
02:59
more than any award ever could.
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这是任何奖项都做不到的。
03:02
We started living like Joel could live,
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我们开始按照Joel可能的方式来生活,
03:05
and we began developing a video game
called "That Dragon, Cancer."
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同时我们开始开发一款视频游戏,
叫做“巨龙:癌症”。
03:11
It was the story of Joel.
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这是Joel的故事。
03:14
It was the story of hope
in the shadow of death.
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这是一个在死亡阴影下追寻希望的故事。
03:18
It was the story of faith
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故事里有信念
03:20
and doubt,
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和动摇,
03:21
and the realization that a wrestle
with doubt is a part of faith --
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以及意识到跟动摇做抗争
也是信念的一部分——
03:27
maybe the biggest part of it.
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可能是最重要的一部分。
03:30
It was a story that began as a miracle
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这个故事从一个奇迹开始,
03:33
and ended as a memorial.
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以一座纪念碑结束。
03:37
(Music)
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(音乐)
03:39
(Giggle)
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(婴儿笑声)
03:41
(Clapping)
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(拍手)
03:42
(Music)
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(音乐)
(视频)爸爸:跳一跳~喜欢么?
03:46
(Video) Dad: Bouncing around,
do you like that?
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03:49
(Giggle)
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(咯咯笑)
03:50
I love your giggle.
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我喜欢你咯咯笑。
03:51
(Music)
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(音乐)
03:58
(Giggle)
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(咯咯笑)
04:01
[A Journey of Hope In the Shadow of Death]
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[这是一段在死亡阴影下追寻希望的旅程]
04:07
[That Dragon, Cancer]
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[巨龙,癌症]
04:10
(Music)
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(音乐)
04:15
When you play "That Dragon, Cancer,"
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当你玩“巨龙,癌症”这个游戏的时候,
04:17
you're transformed
into a witness of Joel's life,
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你变成了Joel一生的见证者,
04:21
exploring an emotional landscape,
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进入了我们的情感空间进行探索,
04:23
clicking to discover more of what
we as a family felt and experienced.
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通过点击发现更多我们做为一个家庭
感受和体验到的(情感)。
04:29
It feels a little bit
like analyzing interactive poetry
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这有点像是在分析感应诗,
04:33
because every game mechanic is a metaphor,
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因为游戏的每个环节都是一个隐喻,
04:35
and so the more the player asks themselves
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当玩家越频繁的好奇
04:38
what we as designers
were trying to express and why,
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游戏设计者的意图,以及原因,
04:42
the richer the experience becomes.
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玩家的体验就更加丰富。
04:45
We took that vulnerability
that Joel taught us,
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我们展现了Joel带给我们的脆弱,
04:48
and we encoded the game with it.
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并将其嵌入到了游戏中。
04:51
Players expect their video games
to offer them branching narrative
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玩家希望游戏能够提供多种剧情,
04:54
so that every decision
that they make feels important
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这样他们的每种选择都显得很重要,
04:58
and can change the outcome of the game.
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可以改变游戏的最终结果。
05:01
We subverted that principle
of game design,
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我们抛弃了这个游戏设计的原理,
将玩家的选择进行了压缩,
05:04
collapsing the choices in on the player
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05:07
so that they discover for themselves
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这样玩家就会发现
05:09
that there is nothing that they can do
that will change the outcome for Joel.
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无论他们怎么选择,都不会
改变Joel的命运。
05:14
And they feel that discovery
as deeply and desperately as we felt it
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当玩家意识到的时候,他们会
感受到我们当时深深的绝望,
05:19
on nights when we held Joel
in our arms praying for hours,
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无数夜晚我们将Joel拥在怀中,
不停的祈祷,
05:24
stubbornly holding out hope for a grace
that we could not create for ourselves.
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固执地希望奇迹能够发生,
即使我们知道不会。
05:30
We'd all prefer to win,
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我们都希望赢,
05:32
but when you discover that you can't win,
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但是如果你发现根本赢不了的时候,
05:36
what do you value instead?
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你会追求什么呢?
05:39
I never planned to write video games,
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我从来没有想过要做这款游戏,
05:41
but these moments
that really change our lives,
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但是那些时光真的改变了我们的生活,
05:44
they often come as the result
of our hardship -- and not our glory.
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改变我们的往往是我们最困难的时光
——而不是最荣耀的时刻。
05:49
When we thought that Joel could live,
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当我们认为Joel可以挺过去时,
05:51
I left the game designing to my husband.
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我将游戏的设计工作
转交给了我的丈夫。
05:53
I chimed in here and there
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我只是提一些思路,
05:55
with a scene or two and some suggestions.
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构思一两个场景并提一些建议。
05:58
But after the night that Joel died,
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但是当那晚Joel离去之后,
06:02
the passion,
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这股动力,
06:03
the possibility of sharing Joel's life
through our video game --
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将Joel的生活融入
我们的游戏的可能——
06:07
it was something that I couldn't resist.
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这是我觉得必须要去做的。
06:10
I started writing more,
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我开始更积极的参与,
06:11
I sat in on our team's design meetings,
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我参加团队的设计讨论会,
06:13
I added more ideas
and I helped direct scenes.
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我提供了更多的想法
并指导了多个场景。
我发现做视频游戏就是在讲述故事,
06:17
And I discovered that creating
a video game is telling a story,
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06:21
but with an entirely new vocabulary.
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只不过用完全不同的词汇。
06:24
All the same elements of imagination
and symbolism are there,
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想象力和表现形式的
基本元素都是一致的,
06:30
but they're just partnered
with player agency
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但是需要融入到游戏角色的设计
06:32
and system responsiveness.
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和整体的感染力中。
06:35
It's challenging work.
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挑战性非常大。
06:37
I have to think
in a totally new way to do it,
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我需要用全新的思维方式去做,
06:40
but I love it.
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但是我喜欢。
06:42
And I wouldn't have known
that without Joel.
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没有Joel我无法接触到这些。
可能你们会有些吃惊,
06:46
Maybe you're a little surprised
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06:48
by our choice to share our story
of terminal cancer through a video game.
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我们会选择在视频游戏中
分享晚期癌症的故事。
06:54
Perhaps you're even thinking
like so many people before you:
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或许你现在想的
跟之前很多人想的一样:
06:57
cancer is not a game.
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癌症不是儿戏。
07:01
Well, tell that
to any pediatric cancer parent
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但是对于任何
子女得了癌症的父母而言,
07:03
that's ever taken an exam glove
and blown it up into a balloon,
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他们可能会把医疗手套吹成个大气球,
07:07
or transformed a syringe
into a rocket ship,
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可能用注射器做一个火箭飞船,
或是让他们的孩子骑在
静脉注射架上,在医院走廊上玩,
07:10
or let their child ride their IV pole
through the hospital halls
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07:14
like it was a race car.
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就像赛车一样。
07:16
Because when you have children,
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因为当你有了孩子的时候,
07:18
everything is a game.
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做任何事都会变成游戏。
07:21
And when your young child
experiences something traumatic,
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尤其是当你的孩子
需要忍受痛苦的时候,
07:25
you work even harder to make sure
that their life feels like a game
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你会更加努力的
把这个过程做得更像是游戏,
07:29
because children naturally
explore their worlds through play.
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因为孩子天生是
通过游戏来理解这个世界的。
07:34
While cancer can steal
many things from a family,
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癌症会从家庭中偷走很多东西,
07:37
it shouldn't steal play.
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玩耍不应该被偷走。
07:39
If you're listening to me
and you're trying to imagine this family
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如果你听我讲述的时候,
想象这个家庭,
07:43
that revolves entirely
around a dying child,
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当你想象一个将死的孩子
周围的一切,
07:47
and you can't imagine joy
as part of that picture,
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但你想象的画面中
没有快乐,
07:51
then we were right
to share our story with you,
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那么跟你分享我们的故事就很正确了,
07:54
because that season of our life was hard.
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因为那个时候我们的生活非常艰难。
07:58
Unspeakably hard at times,
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无法言表的艰难,
08:01
but it was also pure hope,
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但是也有纯粹的希望,
08:03
deep love
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深刻的爱,
08:05
and joy like I have never
experienced since.
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和我从未体验过的快乐。
08:09
Our video game was our attempt
to share that world
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我们的游戏希望分享我们经历的故事
08:13
with people who hadn't
experienced it before,
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给那些从未体验过的人,
08:15
because we never could imagine
that world until it became ours.
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因为我们在亲身经历之前
也从未想象过。
08:21
We made a video game that's hard to play.
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我们的游戏玩起来很难。
08:25
It will never be a blockbuster.
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它永远不会成为畅销游戏。
08:27
People have to prepare themselves
to invest emotionally
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人们玩之前需要做好投入情感的准备,
08:31
in a story that they know
will break their hearts.
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他们知道这个游戏将会让人心碎。
08:35
But when our hearts break,
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但是当我们心碎了,
08:38
they heal a little differently.
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愈合之后的心会有些许的不同。
08:41
My broken heart has been healing
with a new and a deeper compassion --
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一种新的和深刻的热情
治愈了我的伤痛——
08:46
a desire to sit with people in their pain,
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我乐于坐在经历痛苦的人们身边,
08:49
to hear their stories
and try to help tell them
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倾听他们的故事,尽力帮助他们,
08:52
so that they know that they're seen.
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让他们知道自己并不孤独。
08:56
On the night when "That Dragon, Cancer"
won the Game for Impact Award,
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在“巨龙:癌症”赢得最具影响力
大奖的那个晚上,
09:00
we cheered,
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我们举杯庆祝,
09:02
we smiled and we talked about Joel
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我们笑着聊起Joel,
09:05
and the impact he had on our life --
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以及他对我们的生活的影响——
09:07
on all of those hard and hopeful nights
that we shared with him
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那些一起度过的艰难
又充满希望的夜晚,
09:11
when he changed our hearts
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那些他改变了我们,
09:13
and taught us so much more
about life and love and faith and purpose.
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并且教会了我们那么多
爱与信念的人生哲理。
09:20
That award will never mean as much to me
as even a single photograph of my son,
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那个奖项对我的分量远不及
我孩子的一张照片,
09:27
but it does represent all of the people
who his life has impacted,
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但是它代表了所有那些
生活被改变了的人,
09:31
people I'll never meet.
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那些我从未谋面的人。
09:33
They write me emails sometimes.
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有时我会收到他们的邮件。
09:36
They tell me that they miss Joel,
even though they never met him.
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他们说他们想念Joel,
即使从未见过他。
09:42
They describe the tears
that they've shed for my son,
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他们跟我讲述他们为我的孩子流泪了,
09:47
and it makes my burden of grief
just a little bit lighter
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当我听到这些,
我承受的悲伤会减轻一些,
09:51
knowing that it's shared
with a 10-year-old
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当我知道一个10岁的孩子
通过youtube视频
09:53
watching a YouTube playthrough,
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分享了这个故事,
09:55
or a doctor playing on his airplane
with a smartphone,
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或是一个医生在飞机上
用手机玩了这个游戏,
09:59
or a professor introducing Joel
to her first-year philosophy students.
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又或者听到一位教授向他的
一年级的新生介绍了Joel。
10:06
We made a video game that's hard to play.
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我们制作了一款很难玩的游戏。
10:11
But that feels just right to me,
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但是这正是我想要的,
10:14
because the hardest moments of our lives
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因为我们生命中最艰难的时光
10:16
change us more than any goal
we could ever accomplish.
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改变了我们,让我们达到了
未有过的成就。
10:21
Tragedy has shifted my heart
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悲剧改变了我的心扉,
10:23
more than any dream
I could ever see come true.
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让我从未想象过的梦得以成真。
10:27
Thank you.
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谢谢。
10:29
(Applause)
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(掌声)
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