A video game to cope with grief | Amy Green

114,202 views ใƒป 2017-05-17

TED


ืื ื ืœื—ืฅ ืคืขืžื™ื™ื ืขืœ ื”ื›ืชื•ื‘ื™ื•ืช ื‘ืื ื’ืœื™ืช ืœืžื˜ื” ื›ื“ื™ ืœื”ืคืขื™ืœ ืืช ื”ืกืจื˜ื•ืŸ.

ืžืชืจื’ื: Alsa Saal ืžื‘ืงืจ: Roni Ravia
00:12
Two months ago, my kids and I huddled around a cell phone
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ืœืคื ื™ ื—ื•ื“ืฉื™ื™ื, ืื ื™ ื•ื”ื™ืœื“ื™ื ืฉืœื™ ื”ืชืงื‘ืฆื ื• ืกื‘ื™ื‘ ื˜ืœืคื•ืŸ ื ื™ื™ื“
00:16
watching the live stream of the Game Awards,
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ื•ืฆืคื™ื ื• ื‘ืฉื™ื“ื•ืจ ื”ื—ื™ ืฉืœ ื˜ืงืก ื”ืขื ืงืช ืคืจืกื™ ื”ืžืฉื—ืงื™ื,
00:19
one of the video game industry's biggest nights.
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ืื—ื“ ืžื”ืขืจื‘ื™ื ื”ื’ื“ื•ืœื™ื ื‘ื™ื•ืชืจ ืฉืœ ืชืขืฉื™ื™ืช ืžืฉื—ืงื™ ื”ื•ื™ื“ืื•.
00:22
They announced the nominees for the Game for Impact,
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ื”ื ื”ื›ืจื™ื–ื• ืขืœ ื”ืžื•ืขืžื“ื™ื ืœืคืจืก ื”ืžืฉื—ืง ื”ืžืฉืคื™ืข,
00:25
an award that's given to a thought-provoking video game
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ืคืจืก ืฉืžื•ืขื ืง ืœืžืฉื—ืง ื•ื™ื“ืื• ืžืขื•ืจืจ ืžื—ืฉื‘ื”
00:28
with a profound prosocial message or meaning.
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ืขื ืžืกืจ ืžืฉืžืขื•ืชื™ ืขื‘ื•ืจ ื”ื—ื‘ืจื”.
00:32
They opened the envelope
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ื”ื ืคืชื—ื• ืืช ื”ืžืขื˜ืคื”
00:34
and they read the title of our video game.
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ื•ื”ืงืจื™ืื• ืืช ื”ืฉื ืฉืœ ืžืฉื—ืง ื”ื•ื™ื“ืื• ืฉืœื ื•.
00:37
An award ...
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ืคืจืก...
00:39
for impact.
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ืขืœ ื”ืฉืคืขื”.
00:40
It was almost funny, actually,
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ื–ื” ื”ื™ื” ื›ืžืขื˜ ืžืฆื—ื™ืง, ืœืžืขืฉื”,
00:42
because I always thought that winning an award like that
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ืžื›ื™ื•ืŸ ืฉืชืžื™ื“ ื—ืฉื‘ืชื™ ืฉืœื–ื›ื™ื™ื” ื‘ืคืจืก ื›ื–ื”
00:45
would have this huge impact on my life,
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ืชื”ื™ื” ื”ืฉืคืขื” ืขืฆื•ืžื” ืขืœ ื—ื™ื™,
00:48
but I found that the opposite is true.
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ืื‘ืœ ืžืฆืืชื™ ืฉื”ื”ื™ืคืš ื”ื•ื ื”ื ื›ื•ืŸ.
00:51
The big nights,
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ื”ืœื™ืœื•ืช ื”ื’ื“ื•ืœื™ื,
00:53
the accomplishments --
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ื”ื”ื™ืฉื’ื™ื --
00:55
they fade.
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ื”ื ื ืžื•ื’ื™ื.
00:56
But the hardest nights of my life have stuck with me,
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ืื‘ืœ ื”ืœื™ืœื•ืช ื”ืงืฉื™ื ื‘ื™ื•ืชืจ ื‘ื—ื™ื™ ื ื•ืชืจื• ืขืžื™,
01:00
impacting who I am
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ืžืฉืคื™ืขื™ื ืขืœ ืžื™ ืฉืื ื™
01:02
and what I do.
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ื•ืขืœ ืžื” ืฉืื ื™ ืขื•ืฉื”.
01:05
In 2010, my third son, Joel, was diagnosed with a rare and aggressive brain tumor.
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ื‘- 2010, ื‘ื ื™ ื”ืฉืœื™ืฉื™, ื’'ื•ืืœ, ืื•ื‘ื—ืŸ ืขื ืกื•ื’ ื ื“ื™ืจ ืฉืœ ื’ื™ื“ื•ืœ ืื’ืจืกื™ื‘ื™ ื‘ืžื•ื—.
01:12
And before that year was finished,
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ืœืคื ื™ ืชื•ื ืื•ืชื” ืฉื ื”,
01:14
doctors sat my husband and I down
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ื”ืจื•ืคืื™ื ื”ื•ืฉื™ื‘ื• ืืช ื‘ืขืœื™ ื•ืื•ืชื™
01:16
and let us know that his tumor had returned
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ื•ื”ื•ื“ื™ืขื• ืœื ื• ืฉื”ื’ื™ื“ื•ืœ ืฉืœื• ื—ื–ืจ
01:20
despite the most aggressive chemotherapy and radiation that they could offer him.
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ืœืžืจื•ืช ื”ื›ื™ืžื•ืชืจืคื™ื” ื•ื”ื”ืงืจื ื•ืช ื”ืื’ืจืกื™ื‘ื™ื™ื ื‘ื™ื•ืชืจ ืฉื”ื ื™ื›ืœื• ืœื”ืฆื™ืข ืœื•.
01:25
On that terrible night,
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ื‘ืื•ืชื• ืœื™ืœื” ื ื•ืจื,
01:27
after learning that Joel had perhaps four months to live,
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ืื—ืจื™ ืฉืœืžื“ื ื• ืฉืœื’'ื•ืืœ ื ื•ืชืจื• ืื•ืœื™ ืืจื‘ืขื” ื—ื•ื“ืฉื™ื ืœื—ื™ื•ืช,
01:31
I cuddled up with my two older sons in bed --
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ื”ืชื›ืจื‘ืœืชื™ ืขื ืฉื ื™ ื‘ื ื™ื™ ื”ื’ื“ื•ืœื™ื ื‘ืžื™ื˜ื” --
01:34
they were five and three at the time --
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ื”ื ื”ื™ื• ื‘ื ื™ ื—ืžืฉ ื•ืฉืœื•ืฉ ื‘ืื•ืชื” ืขืช --
01:37
and I never really knew how much they understood,
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ื•ืœื ื™ื“ืขืชื™ ืขื“ ื›ืžื” ื‘ืืžืช ื”ื ื”ื‘ื™ื ื•,
01:40
so I started telling them a bedtime story.
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ืื– ื”ืชื—ืœืชื™ ืœืกืคืจ ืœื”ื ืกื™ืคื•ืจ ืœืคื ื™ ื”ืฉื™ื ื”.
01:44
I told them about this very brave knight named Joel
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ืกื™ืคืจืชื™ ืœื”ื ืขืœ ืื‘ื™ืจ ืืžื™ืฅ ืื—ื“ ืฉืฉืžื• ื’'ื•ืืœ
01:48
and his adventure fighting a terrible dragon called cancer.
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ื•ืขืœ ื”ื”ืจืคืชืงื” ืฉืœื• ื›ืฉื ืœื—ื ื‘ื“ืจืงื•ืŸ ื”ื ื•ืจื ืฉืฉืžื• ืกืจื˜ืŸ.
01:53
Every night, I told them more of the story,
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ื‘ื›ืœ ืœื™ืœื”, ืกื™ืคืจืชื™ ืœื”ื ื—ืœืง ื ื•ืกืฃ ืžื”ืกื™ืคื•ืจ,
01:56
but I never let the story end.
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ืื‘ืœ ืืฃ ืคืขื ืœื ื ืชืชื™ ืœืกื™ืคื•ืจ ืœื”ืกืชื™ื™ื.
01:58
I was just building up a context that they could understand
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ืคืฉื•ื˜ ื‘ื ื™ืชื™ ื”ืงืฉืจ ืฉืื•ืชื• ื”ื ื™ื›ืœื• ืœื”ื‘ื™ืŸ
02:01
and hoping that our prayers would be answered
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ื•ืงื™ื•ื•ื™ืชื™ ืฉื”ืชืคื™ืœื•ืช ืฉืœื ื• ื™ื™ืขื ื•
02:04
and I would never have to tell them that that knight,
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ื•ืฉืœืขื•ืœื ืœื ืืฆื˜ืจืš ืœืกืคืจ ืœื”ื ืฉื”ืื‘ื™ืจ ื”ื–ื”,
02:06
who had fought so bravely,
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ืฉืœื—ื ื›ืœ ื›ืš ื‘ืื•ืžืฅ,
02:08
was done fighting
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ืกื™ื™ื ืœื”ืœื—ื
02:10
and could rest now, forever.
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ื•ื™ื›ื•ืœ ืœื ื•ื— ืขื›ืฉื™ื•, ืœื ืฆื—.
02:14
Fortunately, I never did have to finish that bedtime story.
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ืœืžืจื‘ื” ื”ืžื–ืœ, ืžืขื•ืœื ืœื ื ืืœืฆืชื™ ืœืกื™ื™ื ืืช ื”ืกื™ืคื•ืจ ืฉืœืคื ื™ ื”ืฉื™ื ื”.
02:18
My children outgrew it.
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ื”ื™ืœื“ื™ื ืฉืœื™ ืขื‘ืจื• ืืช ื”ื’ื™ืœ ืขื‘ื•ืจื•.
02:20
Joel responded better than anyone expected to palliative treatment,
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ื’'ื•ืืœ ื”ื’ื™ื‘ ื˜ื•ื‘ ื™ื•ืชืจ ืžื”ืžืฆื•ืคื” ืœื˜ื™ืคื•ืœ ื”ืคืœื™ืื˜ื™ื‘ื™,
02:25
and so instead of months,
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ื›ืš ืฉื‘ืžืงื•ื ื—ื•ื“ืฉื™ื,
02:26
we spent years learning how to love our dying child with all of our hearts.
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ืœืžื“ื ื• ืœืื•ืจืš ื”ืฉื ื™ื ืื™ืš ืœืื”ื•ื‘ ืืช ื™ืœื“ื ื• ื”ื’ื•ืกืก ื‘ืœื‘ ืฉืœื.
02:33
Learning to recognize that shameful feeling
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ืœืžื“ื ื• ืœื–ื”ื•ืช ืืช ื”ืชื—ื•ืฉื” ื”ืžื‘ื™ื™ืฉืช
02:36
of holding back just a little love
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ืฉืœ ื ืชื™ื ืช ืคื—ื•ืช ืื”ื‘ื”
02:39
to try to spare ourselves just a little pain
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ืขืœ ืžื ืช ืœื ืกื•ืช ืœื—ืกื•ืš ืžืขืฆืžื ื• ื˜ื™ืคืช ื›ืื‘
02:42
somewhere further down the road.
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ืžืชื™ืฉื”ื• ื‘ืขืชื™ื“.
02:45
We pushed past that self-preservation
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ื”ืคืกืงื ื• ืœื ืกื•ืช ืœื”ื’ืŸ ืขืœ ืขืฆืžื ื•
02:48
because Joel was worth loving even if that love could crush us.
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ืžืคื ื™ ืฉื’'ื•ืืœ ื”ื™ื” ืจืื•ื™ ืœืื”ื‘ื” ืืคื™ืœื• ืื ื”ืื”ื‘ื” ื”ื–ื• ืขืชื™ื“ื” ืœืจืกืง ืื•ืชื ื•.
02:54
And that lesson of intense vulnerability has changed me ...
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ื•ื”ืœืงื— ื”ื–ื” ืฉืœ ืฉื‘ืจื™ืจื™ื•ืช ืขื–ื” ืฉื™ื ื” ืื•ืชื™...
02:59
more than any award ever could.
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ื™ื•ืชืจ ืžื›ืœ ืคืจืก.
03:02
We started living like Joel could live,
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ื”ืชื—ืœื ื• ืœื—ื™ื•ืช ื‘ืžื—ืฉื‘ื” ืฉื’ืณื•ืืœ ื™ืฉืจื•ื“,
03:05
and we began developing a video game called "That Dragon, Cancer."
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ื•ื”ืชื—ืœื ื• ืœืคืชื— ืžืฉื—ืง ื•ื™ื“ืื• ืฉืฉืžื• "ื”ื“ืจืงื•ืŸ ื”ื–ื”, ืกืจื˜ืŸ".
03:11
It was the story of Joel.
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ื–ื” ื”ื™ื” ื”ืกื™ืคื•ืจ ืฉืœ ื’'ื•ืืœ.
03:14
It was the story of hope in the shadow of death.
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ื–ื” ื”ื™ื” ืกื™ืคื•ืจ ืฉืœ ืชืงื•ื•ื” ื‘ืฆืœ ื”ืžื•ื•ืช.
03:18
It was the story of faith
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ื–ื” ื”ื™ื” ืกื™ืคื•ืจ ืฉืœ ืืžื•ื ื”
03:20
and doubt,
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ื•ืกืคืง,
03:21
and the realization that a wrestle with doubt is a part of faith --
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ื•ื”ื”ื‘ื ื” ืฉื”ืžืื‘ืง ื‘ืกืคืง ื”ื•ื ื—ืœืง ืžื”ืืžื•ื ื” --
03:27
maybe the biggest part of it.
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ืื•ืœื™ ื”ื—ืœืง ื”ื›ื™ ื’ื“ื•ืœ ื‘ื”.
03:30
It was a story that began as a miracle
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ื–ื” ื”ื™ื” ืกื™ืคื•ืจ ืฉื”ื—ืœ ื›ื ืก
03:33
and ended as a memorial.
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ื•ื”ืกืชื™ื™ื ื‘ื–ื™ื›ืจื•ืŸ.
03:37
(Music)
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(ืžื•ืกื™ืงื”)
03:39
(Giggle)
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(ืฆื™ื—ืงื•ืง)
03:41
(Clapping)
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(ืžื—ื™ืื•ืช ื›ืฃ)
03:42
(Music)
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(ืžื•ืกื™ืงื”)
03:46
(Video) Dad: Bouncing around, do you like that?
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ืื‘ื: ืงืคื™ืฆื•ืช, ื–ื” ืžื•ืฆื ื—ืŸ ื‘ืขื™ื ื™ื™ืš?
03:49
(Giggle)
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(ืฆื™ื—ืงื•ืง)
03:50
I love your giggle.
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ืื ื™ ืื•ื”ื‘ ืืช ื”ืฆื™ื—ืงื•ืง ืฉืœืš
03:51
(Music)
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(ืžื•ืกื™ืงื”)
03:58
(Giggle)
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(ืฆื™ื—ืงื•ืง)
04:01
[A Journey of Hope In the Shadow of Death]
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[ืžืกืข ืฉืœ ืชืงื•ื•ื” ื‘ืฆืœ ื”ืžื•ื•ืช]
04:07
[That Dragon, Cancer]
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[ื”ื“ืจืงื•ืŸ ื”ื–ื”, ืกืจื˜ืŸ]
04:10
(Music)
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(ืžื•ืกื™ืงื”)
04:15
When you play "That Dragon, Cancer,"
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ื›ืฉืืชื ืžืฉื—ืงื™ื ื‘"ื”ื“ืจืงื•ืŸ ื”ื–ื”, ืกืจื˜ืŸ",
04:17
you're transformed into a witness of Joel's life,
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ืืชื ื”ื•ืคื›ื™ื ืขื“ื™ื ืœื—ื™ื™ื• ืฉืœ ื’'ื•ืืœ,
04:21
exploring an emotional landscape,
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ื—ื•ืงืจื™ื ื ื•ืฃ ืจื’ืฉื™,
04:23
clicking to discover more of what we as a family felt and experienced.
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ืžืงืœื™ืงื™ื ื›ื“ื™ ืœื’ืœื•ืช ืขื•ื“ ืžืžื” ืฉืื ื—ื ื• ื›ืžืฉืคื—ื” ื”ืจื’ืฉื ื• ื•ื—ื•ื•ื™ื ื•.
04:29
It feels a little bit like analyzing interactive poetry
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ื–ื” ืžืจื’ื™ืฉ ืงืฆืช ื›ืžื• ืœื ืชื— ืฉื™ืจื” ืื™ื ื˜ืจืืงื˜ื™ื‘ื™ืช
04:33
because every game mechanic is a metaphor,
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ื›ื™ ื›ืœ ืžืจื›ื™ื‘ ื‘ืžืฉื—ืง ื”ื•ื ืžื˜ืคื•ืจื”,
04:35
and so the more the player asks themselves
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ื›ืš ืฉื›ื›ืœ ืฉื”ืฉื—ืงื ื™ื ื™ื•ืชืจ ืฉื•ืืœื™ื ืืช ืขืฆืžื
04:38
what we as designers were trying to express and why,
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ืžื” ืื ื—ื ื• ื›ืžืขืฆื‘ื™ื ื ื™ืกื™ื ื• ืœื”ื‘ื™ืข ื•ืœืžื”,
04:42
the richer the experience becomes.
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ื›ืš ื—ื•ื•ื™ืชื ื”ื•ืคื›ืช ืœืขืฉื™ืจื” ื™ื•ืชืจ.
04:45
We took that vulnerability that Joel taught us,
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ืœืงื—ื ื• ืืช ื”ืคื’ื™ืขื•ืช ื”ื–ื• ืฉื’'ื•ืืœ ืœื™ืžื“ ืื•ืชื ื•,
04:48
and we encoded the game with it.
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ื•ืงื•ื“ื“ื ื• ื‘ืืžืฆืขื•ืชื” ืืช ื”ืžืฉื—ืง.
04:51
Players expect their video games to offer them branching narrative
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ืฉื—ืงื ื™ื ืžืฆืคื™ื ืฉืžืฉื—ืง ื”ื•ื™ื“ืื• ืฉืœื”ื ื™ืฆื™ืข ืœื”ื ืกื™ืคื•ืจ ืžืกื•ืขืฃ
04:54
so that every decision that they make feels important
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ื›ืš ืฉื›ืœ ื”ื—ืœื˜ื” ืฉื”ื ืžืงื‘ืœื™ื ื ืจืื™ืช ื—ืฉื•ื‘ื”
04:58
and can change the outcome of the game.
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ื•ื™ื›ื•ืœื” ืœืฉื ื•ืช ืืช ืชื•ืฆืืช ื”ืžืฉื—ืง.
05:01
We subverted that principle of game design,
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ืื ื—ื ื• ืขืจืขืจื ื• ืขืœ ืขืงืจื•ืŸ ืขื™ืฆื•ื‘ ื”ืžืฉื—ืงื™ื ื”ื–ื”,
05:04
collapsing the choices in on the player
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ื•ืžื ืขื ื• ืžื”ืฉื—ืงื ื™ื ื™ื›ื•ืœืช ืงื‘ืœืช ื”ื—ืœื˜ื•ืช
05:07
so that they discover for themselves
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ื›ื“ื™ ืฉื”ื ื™ื’ืœื• ื‘ืขืฆืžื
05:09
that there is nothing that they can do that will change the outcome for Joel.
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ืฉืื™ืŸ ืฉื•ื ื“ื‘ืจ ืฉื”ื ื™ื›ื•ืœื™ื ืœืขืฉื•ืช ืฉื™ืฉื ื” ืืช ื”ืชื•ืฆืื” ืขื‘ื•ืจ ื’'ื•ืืœ.
05:14
And they feel that discovery as deeply and desperately as we felt it
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ื•ื”ื ืžืจื’ื™ืฉื™ื ืืช ื”ื’ื™ืœื•ื™ ื”ื–ื” ื‘ืขื•ืฆืžื” ื•ื™ืื•ืฉ ื”ื–ื”ื™ื ืœืืœื” ืฉืื ื—ื ื• ื”ืจื’ืฉื ื•
05:19
on nights when we held Joel in our arms praying for hours,
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ื‘ืœื™ืœื•ืช ืฉื‘ื”ื ื”ื—ื–ืงื ื• ืืช ื’'ื•ืืœ ื‘ื™ื“ื™ื ื• ื•ื”ืชืคืœืœื ื• ื‘ืžืฉืš ืฉืขื•ืช,
05:24
stubbornly holding out hope for a grace that we could not create for ourselves.
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ื‘ืขื•ื“ื ื• ืžื˜ืคื—ื™ื ื‘ืขืงืฉื ื•ืช ืชืงื•ื•ื” ืœื—ืกื“ ืฉืœื ื™ื›ื•ืœื ื• ืœื™ืฆื•ืจ ืขื‘ื•ืจ ืขืฆืžื ื•.
05:30
We'd all prefer to win,
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ื›ื•ืœื ื• ืžืขื“ื™ืคื™ื ืœื ืฆื—,
05:32
but when you discover that you can't win,
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ืื‘ืœ ื›ืฉืืชื ืžื’ืœื™ื ืฉืืชื ืœื ื™ื›ื•ืœื™ื ืœื ืฆื—,
05:36
what do you value instead?
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ืžื” ืืชื ืžืขืจื™ื›ื™ื ื‘ืžืงื•ื ื–ืืช?
05:39
I never planned to write video games,
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ืžืขื•ืœื ืœื ืชื›ื ื ืชื™ ืœื›ืชื•ื‘ ืžืฉื—ืง ื•ื™ื“ืื•,
05:41
but these moments that really change our lives,
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ืื‘ืœ ื”ืจื’ืขื™ื ื”ืืœื• ืฉื‘ืืžืช ืžืฉื ื™ื ืืช ื—ื™ื™ื ื•,
05:44
they often come as the result of our hardship -- and not our glory.
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ืคืขืžื™ื ืจื‘ื•ืช ืžื’ื™ืขื™ื ื›ืชื•ืฆืื” ืžื”ืงื•ืฉื™ ืฉืœื ื• -- ื•ืœื ืžื”ืชื”ื™ืœื” ืฉืœื ื•.
05:49
When we thought that Joel could live,
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ื›ืฉื—ืฉื‘ื ื• ืฉื’'ื•ืืœ ื™ื›ื•ืœ ืœื—ื™ื•ืช,
05:51
I left the game designing to my husband.
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ื”ืฉืืจืชื™ ืืช ืขื™ืฆื•ื‘ ื”ืžืฉื—ืง ืœื‘ืขืœื™.
05:53
I chimed in here and there
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ื”ืชืขืจื‘ืชื™ ืคื” ื•ืฉื
05:55
with a scene or two and some suggestions.
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ืขื ืกืฆื ื” ืื• ืฉืชื™ื™ื ืื• ืขื ืžืกืคืจ ื”ืฆืขื•ืช.
05:58
But after the night that Joel died,
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ืื‘ืœ ืื—ืจื™ ื”ืœื™ืœื” ืฉื‘ื• ื’'ื•ืืœ ืžืช,
06:02
the passion,
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ื”ืชืฉื•ืงื”,
06:03
the possibility of sharing Joel's life through our video game --
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ื”ืืคืฉืจื•ืช ืœื—ืœื•ืง ืืช ื—ื™ื™ื• ืฉืœ ื’'ื•ืืœ ื‘ืืžืฆืขื•ืช ืžืฉื—ืง ื”ื•ื™ื“ืื• ืฉืœื ื• --
06:07
it was something that I couldn't resist.
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ื–ื” ื”ื™ื” ืžืฉื”ื• ืฉืœื ื™ื›ื•ืœืชื™ ืœืขืžื•ื“ ื‘ืคื ื™ื•.
06:10
I started writing more,
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ื”ืชื—ืœืชื™ ืœื›ืชื•ื‘ ื™ื•ืชืจ,
06:11
I sat in on our team's design meetings,
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ื™ืฉื‘ืชื™ ื‘ืคื’ื™ืฉื•ืช ื”ืขื™ืฆื•ื‘ ืฉืœ ื”ืฆื•ื•ืช ืฉืœื ื•,
06:13
I added more ideas and I helped direct scenes.
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ื”ื•ืกืคืชื™ ืขื•ื“ ืจืขื™ื•ื ื•ืช ื•ืขื–ืจืชื™ ืœื‘ื™ื™ื ืกืฆื ื•ืช.
06:17
And I discovered that creating a video game is telling a story,
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ื•ื’ื™ืœื™ืชื™ ืฉืœื™ืฆื•ืจ ืžืฉื—ืง ื•ื™ื“ืื• ื–ื” ืœืกืคืจ ืกื™ืคื•ืจ,
06:21
but with an entirely new vocabulary.
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ืื‘ืœ ืขื ืื•ืฆืจ ืžื™ืœื™ื ื—ื“ืฉ ืœื’ืžืจื™.
06:24
All the same elements of imagination and symbolism are there,
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ื›ืœ ื”ืืœืžื ื˜ื™ื ืฉืœ ื“ืžื™ื•ืŸ ื•ืกืžืœื™ื•ืช ื ืžืฆืื™ื ืฉื,
06:30
but they're just partnered with player agency
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ืื‘ืœ ื ื•ืกืคื™ื ืขืœื™ื”ื ื”ืฉืœื™ื˜ื” ืฉืœ ื”ืฉื—ืงืŸ
06:32
and system responsiveness.
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ื•ืžื™ื“ืช ื”ืชื’ื•ื‘ื” ืฉืœ ื”ืžืขืจื›ืช.
06:35
It's challenging work.
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ื–ื• ืขื‘ื•ื“ื” ืžืืชื’ืจืช.
06:37
I have to think in a totally new way to do it,
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ืื ื™ ืฆืจื™ื›ื” ืœื—ืฉื•ื‘ ื‘ื“ืจืš ื—ื“ืฉื” ืœื’ืžืจื™ ื›ื“ื™ ืœื‘ืฆืข ืื•ืชื”,
06:40
but I love it.
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ืื‘ืœ ืื ื™ ืื•ื”ื‘ืช ืืช ื–ื”.
06:42
And I wouldn't have known that without Joel.
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ื•ืœื ื”ื™ื™ืชื™ ื™ื•ื“ืขืช ืืช ื–ื” ืœื•ืœื ื’'ื•ืืœ.
06:46
Maybe you're a little surprised
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ืื•ืœื™ ืืชื ืžืขื˜ ืžื•ืคืชืขื™ื
06:48
by our choice to share our story of terminal cancer through a video game.
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ืžื”ื‘ื—ื™ืจื” ืฉืœื ื• ืœื—ืœื•ืง ืืช ืกื™ืคื•ืจ ื”ืกืจื˜ืŸ ื”ืกื•ืคื ื™ ืฉืœ ื’ืณื•ืืœ ื‘ืืžืฆืขื•ืช ืžืฉื—ืง ื•ื™ื“ืื•.
06:54
Perhaps you're even thinking like so many people before you:
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ืื•ืœื™ ืืชื ืืคื™ืœื• ื—ื•ืฉื‘ื™ื ื›ืžื• ืจื‘ื™ื ืœืคื ื™ื›ื:
06:57
cancer is not a game.
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ืกืจื˜ืŸ ืื™ื ื• ืžืฉื—ืง.
07:01
Well, tell that to any pediatric cancer parent
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ื•ื‘ื›ืŸ, ืกืคืจื• ืืช ื–ื” ืœื›ืœ ื”ื•ืจื” ืœื™ืœื“ ื—ื•ืœื” ืกืจื˜ืŸ
07:03
that's ever taken an exam glove and blown it up into a balloon,
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ืฉืื™ ืคืขื ืœืงื— ื›ืคืคืช ืžื ืชื—ื™ื ื•ื ื™ืคื— ืื•ืชื• ื›ืžื• ื‘ืœื•ืŸ,
07:07
or transformed a syringe into a rocket ship,
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ืื• ื”ืคืš ืžื–ืจืง ืœืกืคื™ื ืช ื—ืœืœ,
07:10
or let their child ride their IV pole through the hospital halls
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ืื• ื ืชืŸ ืœื™ืœื“ ืฉืœื• ืœื ืกื•ืข ืขื ืขืžื•ื“ ื”ืขื™ืจื•ื™ ื‘ืžืกื“ืจื•ื ื•ืช ื‘ื™ืช ื”ื—ื•ืœื™ื
07:14
like it was a race car.
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ื›ืื™ืœื• ื–ื• ืžื›ื•ื ื™ืช ืžื™ืจื•ืฅ.
07:16
Because when you have children,
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ื›ื™ ื›ืฉื™ืฉ ืœื›ื ื™ืœื“ื™ื,
07:18
everything is a game.
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ื›ืœ ื“ื‘ืจ ื”ื•ื ืžืฉื—ืง.
07:21
And when your young child experiences something traumatic,
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ื•ื›ืฉื”ื™ืœื“ ื”ืงื˜ืŸ ืฉืœืš ื—ื•ื•ื” ืžืฉื”ื• ื˜ืจืื•ืžื˜ื™,
07:25
you work even harder to make sure that their life feels like a game
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ืืชื” ืขื•ื‘ื“ ืงืฉื” ืขื•ื“ ื™ื•ืชืจ ื›ื“ื™ ืœื•ื•ื“ื ืฉื”ื—ื™ื™ื ืฉืœื”ื ืžืจื’ื™ืฉื™ื ื›ืžื• ืžืฉื—ืง
07:29
because children naturally explore their worlds through play.
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ืžืคื ื™ ืฉื™ืœื“ื™ื ื‘ืื•ืคืŸ ื˜ื‘ืขื™ ื—ื•ืงืจื™ื ืืช ื”ืขื•ืœื ืฉืœื”ื ื‘ืืžืฆืขื•ืช ืžืฉื—ืง.
07:34
While cancer can steal many things from a family,
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ืกืจื˜ืŸ ืืžื ื ื™ื›ื•ืœ ืœื’ื–ื•ืœ ื”ืจื‘ื” ื“ื‘ืจื™ื ืžืžืฉืคื—ื”,
07:37
it shouldn't steal play.
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ืืš ืืกื•ืจ ืฉื”ื•ื ื™ื’ื–ื•ืœ ืืช ื”ืžืฉื—ืง.
07:39
If you're listening to me and you're trying to imagine this family
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ืื ืืชื ืžืงืฉื™ื‘ื™ื ืœื™ ื•ืžื ืกื™ื ืœื“ืžื™ื™ืŸ ืืช ื”ืžืฉืคื—ื” ื”ื–ื•
07:43
that revolves entirely around a dying child,
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ืฉืกื•ื‘ื‘ืช ื›ื•ืœื” ืกื‘ื™ื‘ ื™ืœื“ ื’ื•ืกืก,
07:47
and you can't imagine joy as part of that picture,
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ื•ืืชื ืœื ื™ื›ื•ืœื™ื ืœื“ืžื™ื™ืŸ ืฉืžื—ื” ื›ื—ืœืง ืžื”ืชืžื•ื ื” ื”ื–ื•,
07:51
then we were right to share our story with you,
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ืื– ืฆื“ืงื ื• ื›ืฉื—ืœืงื ื• ืืช ื”ืกื™ืคื•ืจ ืฉืœื ื• ืืชื›ื,
07:54
because that season of our life was hard.
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ืžืคื ื™ ืฉื”ืชืงื•ืคื” ื”ื–ื• ื‘ื—ื™ื™ื ื• ื”ื™ืชื” ืงืฉื”.
07:58
Unspeakably hard at times,
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ืงืฉื” ืขื“ ืœืื™ืŸ ืฉื™ืขื•ืจ ืœืคืขืžื™ื,
08:01
but it was also pure hope,
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ืื‘ืœ ื”ื™ื ื’ื ื”ื™ืชื” ืชืงื•ื•ื” ืฆืจื•ืคื”,
08:03
deep love
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ืื”ื‘ื” ืขืžื•ืงื”
08:05
and joy like I have never experienced since.
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ื•ืฉืžื—ื” ื›ืžื• ืฉืžืขื•ืœื ืœื ื—ื•ื•ื™ืชื™ ืžืื–.
08:09
Our video game was our attempt to share that world
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ืžืฉื—ืง ื”ื•ื™ื“ืื• ืฉืœื ื• ื”ื™ื” ื ืกื™ื•ืŸ ืœื—ืœื•ืง ืืช ื”ืขื•ืœื ื”ื–ื”
08:13
with people who hadn't experienced it before,
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ืขื ืื ืฉื™ื ืฉืœื ื—ื•ื• ืื•ืชื• ืœืคื ื™ ื›ืŸ,
08:15
because we never could imagine that world until it became ours.
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ืžืคื ื™ ืฉืœื ื”ืฆืœื—ื ื• ืœื“ืžื™ื™ืŸ ืืช ื”ืขื•ืœื ื”ื–ื” ืขื“ ืฉื”ื•ื ื”ืคืš ืœืฉืœื ื•.
08:21
We made a video game that's hard to play.
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ื™ืฆืจื ื• ืžืฉื—ืง ืžื—ืฉื‘ ืฉืงืฉื” ืœืฉื—ืง ื‘ื•.
08:25
It will never be a blockbuster.
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ื”ื•ื ืœืขื•ืœื ืœื ื™ื”ื™ื” ืฉื•ื‘ืจ ืงื•ืคื•ืช.
08:27
People have to prepare themselves to invest emotionally
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ืื ืฉื™ื ืฆืจื™ื›ื™ื ืœื”ื›ื™ืŸ ืืช ืขืฆืžื ืœื”ืฉืงื™ืข ืจื’ืฉื™ืช
08:31
in a story that they know will break their hearts.
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ื‘ืกื™ืคื•ืจ ืฉื”ื ื™ื•ื“ืขื™ื ืฉื™ืฉื‘ื•ืจ ืืช ืœื™ื‘ื.
08:35
But when our hearts break,
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ืื‘ืœ ื›ืฉื”ืœื‘ื‘ื•ืช ืฉืœื ื• ื ืฉื‘ืจื™ื,
08:38
they heal a little differently.
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ื”ื ื ืจืคืื™ื ืžืขื˜ ืื—ืจืช.
08:41
My broken heart has been healing with a new and a deeper compassion --
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ื”ืœื‘ ื”ืฉื‘ื•ืจ ืฉืœื™ ื ืจืคื ืขื ื—ืžืœื” ื—ื“ืฉื” ื•ืขืžื•ืงื” ื™ื•ืชืจ --
08:46
a desire to sit with people in their pain,
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ืจืฆื•ืŸ ืœืฉื‘ืช ืขื ืื ืฉื™ื ื›ืฉื”ื ื›ื•ืื‘ื™ื,
08:49
to hear their stories and try to help tell them
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ืœืฉืžื•ืข ืืช ื”ืกื™ืคื•ืจื™ื ืฉืœื”ื ื•ืœื ืกื•ืช ืœืขื–ื•ืจ ืœืกืคืจ ืื•ืชื
08:52
so that they know that they're seen.
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ื›ื“ื™ ืฉื”ื ื™ื™ื“ืขื• ืฉืจื•ืื™ื ืื•ืชื.
08:56
On the night when "That Dragon, Cancer" won the Game for Impact Award,
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ื‘ืœื™ืœื” ืฉื‘ื• "ื”ื“ืจืงื•ืŸ ื”ื–ื”, ืกืจื˜ืŸ" ื–ื›ื” ื‘ืคืจืก ื”ืžืฉื—ืง ื”ืžืฉืคื™ืข,
09:00
we cheered,
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ื”ืจืขื ื•,
09:02
we smiled and we talked about Joel
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ื—ื™ื™ื›ื ื• ื•ืฉื•ื—ื—ื ื• ืื•ื“ื•ืช ื’'ื•ืืœ
09:05
and the impact he had on our life --
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ื•ืขืœ ื”ื”ืฉืคืขื” ืฉื”ื™ืชื” ืœื• ืขืœ ื—ื™ื™ื ื• --
09:07
on all of those hard and hopeful nights that we shared with him
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ืขืœ ื›ืœ ื”ืœื™ืœื•ืช ื”ืงืฉื™ื ื•ืžืœืื™ ื”ืชืงื•ื•ื” ืฉื—ืœืงื ื• ืื™ืชื•
09:11
when he changed our hearts
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ื›ืฉื”ื•ื ืฉื™ื ื” ืืช ืœื™ื‘ื ื•
09:13
and taught us so much more about life and love and faith and purpose.
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ื•ืœื™ืžื“ ืื•ืชื ื• ื›ืœ ื›ืš ื”ืจื‘ื” ืขืœ ื—ื™ื™ื, ืื”ื‘ื”, ืืžื•ื ื” ื•ื™ื™ืขื•ื“.
09:20
That award will never mean as much to me as even a single photograph of my son,
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ื”ืคืจืก ื”ื–ื” ืœืขื•ืœื ืœื ื™ื”ื™ื” ื™ื•ืชืจ ืžืฉืžืขื•ืชื™ ืขื‘ื•ืจื™ ืžืชืžื•ื ื” ืื—ืช ื‘ื•ื“ื“ื” ืฉืœ ื‘ื ื™,
09:27
but it does represent all of the people who his life has impacted,
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ืื‘ืœ ื”ื•ื ืžื™ื™ืฆื’ ืืช ื›ืœ ื”ืื ืฉื™ื ืฉื”ื•ืฉืคืขื• ืžืžื”ืœืš ื—ื™ื™ื•,
09:31
people I'll never meet.
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ืื ืฉื™ื ืฉืื ื™ ืœืขื•ืœื ืœื ืืคื’ื•ืฉ.
09:33
They write me emails sometimes.
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ื”ื ื›ื•ืชื‘ื™ื ืœื™ ืื™ืžื™ื™ืœื™ื ืœืคืขืžื™ื.
09:36
They tell me that they miss Joel, even though they never met him.
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ื”ื ืื•ืžืจื™ื ืœื™ ืฉื”ื ืžืชื’ืขื’ืขื™ื ืœื’'ื•ืืœ, ืœืžืจื•ืช ืฉืžืขื•ืœื ืœื ืคื’ืฉื• ืื•ืชื•.
09:42
They describe the tears that they've shed for my son,
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ื”ื ืžืชืืจื™ื ืืช ื”ื“ืžืขื•ืช ืฉื”ื–ื™ืœื• ืขืœ ื”ื‘ืŸ ืฉืœื™,
09:47
and it makes my burden of grief just a little bit lighter
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ื•ื–ื” ืžืงืœ ืืช ื ื˜ืœ ื”ืฆืขืจ ืฉืœื™
09:51
knowing that it's shared with a 10-year-old
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ืœื“ืขืช ืฉืื ื™ ื—ื•ืœืงืช ืื•ืชื• ืขื ื™ืœื“ ื‘ืŸ ืขืฉืจ
09:53
watching a YouTube playthrough,
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ืฉืจื•ืื” ื‘ื™ื•ื˜ื™ื•ื‘ ืกืจื˜ื•ืŸ ื”ื“ืจื›ื” ืฉืœ ื”ืžืฉื—ืง,
09:55
or a doctor playing on his airplane with a smartphone,
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ืื• ืขื ืจื•ืคื ืฉืžืฉื—ืง ื‘ืกืžืืจื˜ืคื•ืŸ ืฉืœื• ื‘ื˜ื™ืกื”,
09:59
or a professor introducing Joel to her first-year philosophy students.
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ืื• ืขื ืคืจื•ืคืกื•ืจ ืฉืžืฆื™ื’ื” ืืช ื’'ื•ืืœ ืœืกื˜ื•ื“ื ื˜ื™ื ืฉื ื” ื' ืœืคื™ืœื•ืกื•ืคื™ื” ืฉืœื”.
10:06
We made a video game that's hard to play.
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ื™ืฆืจื ื• ืžืฉื—ืง ืžื—ืฉื‘ ืฉืงืฉื” ืœืฉื—ืง ื‘ื•.
10:11
But that feels just right to me,
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ืื‘ืœ ื–ื” ืžืจื’ื™ืฉ ืœื™ ื ื›ื•ืŸ,
10:14
because the hardest moments of our lives
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ื›ื™ ื”ืจื’ืขื™ื ื”ืงืฉื™ื ื‘ื™ื•ืชืจ ื‘ื—ื™ื™ื ืฉืœื ื•
10:16
change us more than any goal we could ever accomplish.
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ืžืฉื ื™ื ืื•ืชื ื• ื™ื•ืชืจ ืžืืฉืจ ื›ืœ ืžื˜ืจื” ืฉืื™ ืคืขื ื ืฉื™ื’.
10:21
Tragedy has shifted my heart
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ื˜ืจื’ื“ื™ื” ืฉื™ื ืชื” ืืช ืœื‘ื™
10:23
more than any dream I could ever see come true.
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ื™ื•ืชืจ ืžื”ืชื’ืฉืžื•ืช ื›ืœ ื—ืœื•ื.
10:27
Thank you.
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ืชื•ื“ื” ืจื‘ื”.
10:29
(Applause)
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(ืžื—ื™ืื•ืช ื›ืคื™ื)
ืขืœ ืืชืจ ื–ื”

ืืชืจ ื–ื” ื™ืฆื™ื’ ื‘ืคื ื™ื›ื ืกืจื˜ื•ื ื™ YouTube ื”ืžื•ืขื™ืœื™ื ืœืœื™ืžื•ื“ ืื ื’ืœื™ืช. ืชื•ื›ืœื• ืœืจืื•ืช ืฉื™ืขื•ืจื™ ืื ื’ืœื™ืช ื”ืžื•ืขื‘ืจื™ื ืขืœ ื™ื“ื™ ืžื•ืจื™ื ืžื”ืฉื•ืจื” ื”ืจืืฉื•ื ื” ืžืจื—ื‘ื™ ื”ืขื•ืœื. ืœื—ืฅ ืคืขืžื™ื™ื ืขืœ ื”ื›ืชื•ื‘ื™ื•ืช ื‘ืื ื’ืœื™ืช ื”ืžื•ืฆื’ื•ืช ื‘ื›ืœ ื“ืฃ ื•ื™ื“ืื• ื›ื“ื™ ืœื”ืคืขื™ืœ ืืช ื”ืกืจื˜ื•ืŸ ืžืฉื. ื”ื›ืชื•ื‘ื™ื•ืช ื’ื•ืœืœื•ืช ื‘ืกื ื›ืจื•ืŸ ืขื ื”ืคืขืœืช ื”ื•ื•ื™ื“ืื•. ืื ื™ืฉ ืœืš ื”ืขืจื•ืช ืื• ื‘ืงืฉื•ืช, ืื ื ืฆื•ืจ ืื™ืชื ื• ืงืฉืจ ื‘ืืžืฆืขื•ืช ื˜ื•ืคืก ื™ืฆื™ืจืช ืงืฉืจ ื–ื”.

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