Nancy Frates: Why my family started the ALS Ice Bucket Challenge. The rest is history

85,855 views ・ 2014-11-19

TED


Please double-click on the English subtitles below to play the video.

Prevodilac: Stefan Zrnović Lektor: Mile Živković
00:12
Well, good afternoon.
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Dobar dan.
00:14
How many of you
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Koliko vas je učestvovalo
00:16
took the ALS Ice Bucket Challenge?
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u Ledenom izazovu?
00:19
(Applause)
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(Aplauz)
00:20
Woo hoo!
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Opa!
00:22
Well, I have to tell you, from the bottom of our hearts,
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Moram da vam kažem, iz dubine duše,
00:26
thank you so very, very much.
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mnogo, mnogo vam hvala.
00:28
Do you know to date the ALS Association
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Da li znate da je do sada ALS udruženje
00:31
has raised 125 million dollars?
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sakupilo 125 miliona dolara?
00:36
Woo hoo! (Applause)
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Vuhu! (Aplauz)
00:43
It takes me back to the summer of 2011.
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To me vraća u leto 2011. godine.
00:46
My family, my kids had all grown up.
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Moja porodica, sva moja deca su odrasla.
00:48
We were officially empty nesters,
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Zvanično smo imali prazno porodično gnezdo,
00:50
and we decided, let's go on a family vacation.
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i odlučili smo da odemo na porodični odmor.
00:53
Jenn, my daughter, and my son-in-law
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Džen, moja ćerka, i moj zet
00:55
came down from New York.
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je došao iz Njujorka.
00:56
My youngest, Andrew,
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Moj najmlađi zet, Endrju
00:58
he came down from his home in Charlestown
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došao je od kuće iz Čarlstauna
01:00
where he was working in Boston,
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gde je radio u Bostonu,
01:02
and my son Pete,
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i moj sin Pit,
01:03
who had played at Boston College, baseball,
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koji je igrao bejzbol na koledžu u Bostonu,
01:06
had played baseball professionally in Europe,
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profesionalno je igrao bejzbol u Evropi
01:09
and had now come home and was selling group insurance, he also joined us.
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i tada je došao jer je prodavao grupna osiguranja, i on nam se pridružio.
01:14
And one night, I found myself
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Jedne noći, našla sam se
01:15
having a beer with Pete,
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kako pijem pivo sa Pitom,
01:17
and Pete was looking at me and he just said,
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i Pit me je gledao i samo mi rekao:
01:20
"You know, Mom, I don't know,
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"Znaš mama, ne znam,
01:22
selling group insurance is just not my passion."
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prodavanje grupnog osiguranja jednostavno nije moja strast."
01:26
He said, "I just don't feel I'm living up to my potential.
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Rekao je: "Ne osećam se kao da ostvarujem svoj pun potencijal.
01:32
I don't feel this is my mission in life."
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Ne osećam da je ovo moja misija u životu."
01:35
And he said, "You know, oh by the way, Mom,
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I rekao je: "Inače, znaš mama,
01:38
I have to leave early from vacation
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moram da se vratim ranije sa odmora
01:41
because my inter-city league team that I play for made the playoffs,
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jer je moj tim u međugradskoj ligi za koji sam igrao prošao u plejof,
01:45
and I have to get back to Boston because I can't let my team down.
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i moram da se vratim nazad u Boston jer ne smem da izdam svoj tim.
01:50
I'm just not as passionate about my job
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Ne osećam strast u svom poslu
01:53
as I am about baseball."
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kao što osećam u igranju bejzbola."
01:56
So off Pete went, and left the family vacation —
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Tako je Pit otišao i napustio porodični odmor -
01:59
break a mother's heart —
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slomio majčino srce -
02:00
and he went, and we followed four days later
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i otišao a mi smo pratili naredna četiri dana
02:05
to see the next playoff game.
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da vidimo sledeću utakmicu plejofa.
02:07
We're at the playoff game, Pete's at the plate,
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Bili smo na plejof utakmici, Pit je bio na mestu udarača,
02:10
and a fastball's coming in,
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i brza loptica se približavala,
02:12
and it hits him on the wrist.
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i udarila ga je u ručni zglob.
02:15
Oh, Pete.
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O, Pit.
02:17
His wrist went completely limp, like this.
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Zglob mu je postao potpuno savitljiv, ovako.
02:20
So for the next six months,
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Narednih 6 meseci,
02:21
Pete went back to his home in Southie,
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Pit se vratio nazad kući u Sauti,
02:24
kept working that unpassionate job,
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nastavlja da radi taj nezanimljivi posao,
02:27
and was going to doctors
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i išao je kod lekara
02:28
to see what was wrong with this wrist
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da vidi šta se dešava sa tim zglobom
02:30
that never came back.
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koji se nikada nije vratio na svoje mesto.
02:32
Six months later, in March,
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Šest meseci kasnije, u martu,
02:34
he called my husband and me, and he said,
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pozvao je mog muža i mene i rekao:
02:36
"Oh, Mom and Dad, we have a doctor
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"Mama, tata, našao sam doktora
02:38
that found a diagnosis for that wrist.
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koji je otkrio dijagnozu za taj zglob.
02:41
Do you want to come with the doctor's appointment with me?"
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Da li biste želeli da idete sa mnom na zakazani sastanak?"
02:44
I said, "Sure, we'll come in."
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Rekla sam: "Naravno, ići ćemo."
02:46
That morning, Pete, John and I
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Tog jutra, Pit, Džon i ja
02:49
all got up, got dressed, got in our cars —
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smo ustali, obukli se, seli u svoja kola -
02:52
three separate cars
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tri odvojena automobila
02:53
because we were going to go to work
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jer smo išli na posao
02:55
after the doctor's appointment to find out what happened to the wrist.
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nakon sastanka sa doktorom kako bismo otkrili šta se dogodilo sa zglobom.
02:58
We walked into the neurologist's office, sat down,
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Ušli smo u kancelariju neurologa, seli,
03:01
four doctors walk in,
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četiri doktora je ušetalo,
03:02
and the head neurologist sits down.
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i glavni neurolog je seo.
03:05
And he says, "Well, Pete, we've been looking at all the tests,
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Rekao je: "Pit, posmatrali smo sve testove,
03:08
and I have to tell you, it's not a sprained wrist,
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i moram da ti kažem, da nije iščašen zglob,
03:11
it's not a broken wrist,
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nije polomljen zglob,
03:13
it's not nerve damage in the wrist,
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nije oštećenje nerava u zglobu,
03:15
it's not an infection,
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nije infekcija,
03:17
it's not Lyme disease."
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nije Lajmova bolest."
03:21
And there was this deliberate elimination going up,
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Dok se nizala ova detaljna eliminacija,
03:25
and I was thinking to myself,
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razmišljala sam,
03:26
where is he going with this?
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gde ide sa ovim?
03:30
Then he put his hands on his knees,
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Onda je stavio ruke na kolena,
03:32
he looked right at my 27-year-old kid, and said,
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pogledao je direktno u mog 27-godišnjeg sina, i rekao:
03:35
"I don't know how to tell a 27-year-old this:
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"Ne znam kako da kažem ovo 27-godišnjaku:
03:38
Pete, you have ALS."
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Pite, imaš ALS."
03:42
ALS?
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ALS?
03:44
I had had a friend whose 80-year-old father had ALS.
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Imala sam prijateljicu čiji je 80-godišnji otac imao ALS.
03:49
I looked at my husband, he looked at me,
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Pogledala sam muža, on je pogledao mene,
03:51
and then we looked at the doctor, and we said, "ALS?
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a onda smo pogledali doktora i rekli: "ALS?
03:53
Okay, what treatment? Let's go.
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Okej, koji je tretman? Hajde.
03:56
What do we do? Let's go."
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Šta treba da radimo? Hajde."
03:59
And he looked at us, and he said, "Mr. and Mrs. Frates,
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Pogledao nas je i rekao: "Gospođo i gospodine Frejtis,
04:02
I'm sorry to tell you this,
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žao mi je što ovo kažem,
04:04
but there's no treatment and there's no cure."
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ali nema tretmana, jer nema leka."
04:08
We were the worst culprits.
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Bili smo najgori osuđenici.
04:11
We didn't even understand
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Nismo čak ni shvatili
04:14
that it had been 75 years since Lou Gehrig
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da je prošlo 75 godina od Lua Geriga
04:16
and nothing had been done in the progress against ALS.
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i ništa se nije urađeno u napretku borbe protiv ALS-a.
04:21
So we all went home, and Jenn and Dan
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Svi smo se vratili kući, i Džen i Den
04:24
flew home from Wall Street,
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su odleteli avionom kući sa Vol Strita,
04:27
Andrew came home from Charlestown,
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Endru je došao kući iz Čarlstauna,
04:29
and Pete went to B.C. to pick up
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a Pit je otišao u Britansku Kolumbiju da pokupi
04:32
his then-girlfriend Julie and brought her home,
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svoju datašnju devojku Džuli i vrati je kući,
04:35
and six hours later after diagnosis,
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i šest sati kasnije nakon dijagnoze,
04:37
we're sitting around having a family dinner,
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sedeli smo za stolom na porodičnoj večeri,
04:40
and we're having small chat.
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i razgovarali.
04:42
I don't even remember cooking dinner that night.
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Čak se i ne sećam šta sam kuvala te noći.
04:45
But then our leader, Pete, set the vision,
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Onda je naš vođa Pit postavio viziju
04:51
and talked to us just like we were his new team.
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i govorio nam kao da smo mi njegov tim.
04:54
He said, "There will be no wallowing, people."
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Rekao je: "Nema žaljenja, ljudi."
04:58
He goes, "We're not looking back,
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Nastavio je: "Ne gledamo nazad,
05:00
we're looking forward.
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gledamo napred.
05:02
What an amazing opportunity we have to change the world.
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Kakvu divnu priliku imamo da promenimo svet.
05:08
I'm going to change the face
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Promeniću izgled
05:10
of this unacceptable situation of ALS.
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ove neprihvatljive situacije ALS-a.
05:14
We're going to move the needle,
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Pokrenućemo stvari
05:15
and I'm going to get it in front of philanthropists like Bill Gates."
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i dospeću ispred filantropa poput Bil Gejtsa."
05:20
And that was it. We were given our directive.
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I to je bilo to. Dobili smo uputstva.
05:23
So in the days and months that followed,
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U narednim danima i mesecima,
05:26
within a week, we had our brothers and sisters
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u nedelju dana imali smo braću i sestre
05:29
and our family come to us,
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i našu porodicu kod nas u domu,
05:31
that they were already creating Team Frate Train.
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tako da su uveliko stvarali Tim Frejti.
05:34
Uncle Dave, he was the webmaster;
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Ujak Dejv je bio internet profesionalac,
05:36
Uncle Artie, he was the accountant;
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ujak Arti je bio knjigovođa;
05:39
Auntie Dana, she was the graphic artist;
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ujna Dejna je bila grafički umetnik;
05:42
and my youngest son, Andrew,
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a moj najmlađi sin, Endru,
05:44
quit his job, left his apartment in Charlestown
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nakon što je napustio posao i svoj stan u Čarlstaunu
05:47
and says, "I'm going to take care of Pete and be his caregiver."
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rekao je: "Ja ću se brinuti o Pitu i biti njegov negovatelj."
05:51
Then all those people, classmates, teammates,
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Potom su svi ti ljudi, drugari iz škole i saigrači,
05:54
coworkers that Pete had inspired
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kolege koje je Pit inspirisao
05:57
throughout his whole life,
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tokom čitavog svog života,
05:59
the circles of Pete all started intersecting with one another,
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Pitovi krugovi su počeli da se ukrštaju jedan sa drugim,
06:03
and made Team Frate Train.
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i načinili su Tim Frejti.
06:07
Six months after diagnosis,
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Šest meseci nakon dijagnoze
06:10
Pete was given an award at a research summit for advocacy.
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Pit je dobio nagradu za zalaganje na istraživačkom skupu.
06:15
He got up and gave a very eloquent speech,
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Ustao je i održao veoma elokventan govor,
06:17
and at the end of the speech, there was a panel,
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i na kraju govora održana je panel diskusija
06:20
and on the panel were these pharmaceutical executives
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i na panelu su bili farmacetuski rukovodioci,
06:23
and biochemists and clinicians
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biohemičari i kliničari
06:25
and I'm sitting there and I'm listening to them
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i sedim tamo i slušam ih
06:28
and most of the content went straight over my head.
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i najviše tog sadržaja mi je bilo preko glave.
06:31
I avoided every science class I ever could.
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Izbegavala sam svaki čas biologije koji sam ikada mogla.
06:33
But I was watching these people, and I was listening to them,
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Posmatrala sam te ljude i slušala sam ih,
06:36
and they were saying, "I, I do this, I do that,"
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i govorili su: "Ja, ja radim ovo, ja radim ono,"
06:39
and there was a real unfamiliarity between them.
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i postojala je istinska nepovezanost među njima.
06:43
So at the end of their talk, the panel,
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Na kraju njihovog razgovora
06:46
they had questions and answers,
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imali su pitanja i odgovore
06:48
and boom, my hand went right up,
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i bum, moja ruka se podigla,
06:50
and I get the microphone,
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i uzela sam mikrofon,
06:51
and I look at them and I say, "Thank you.
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pogledala sam ih i rekla: "Hvala vam.
06:53
Thank you so much for working in ALS.
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Mnogo vam hvala što radite na ALS-u.
06:56
It means so very much to us."
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Veoma nam znači to."
06:57
I said, "But I do have to tell you
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Rekla sam: "Ali moram da vam kažem
06:59
that I'm watching your body language
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da posmatram vaš govor tela
07:01
and I'm listening to what you're saying.
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i slušam šta govorite.
07:03
It just doesn't seem like there's a whole lot of collaboration going on here.
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Nekako mi se ne čini da se ovde ne dešava baš puno saradnje.
07:09
And not only that, where's the flip chart
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I ne samo to, gde je papir
07:12
with the action items and the follow-up and the accountability?
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sa akcionim stavkama, pratećim koracima i odgovornostima?
07:17
What are you going to do after you leave this room?"
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Šta ćete da uradite kada napustite ovu prostoriju?
07:21
And then I turned around
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Potom sam se okrenula
07:23
and there was about 200 pairs of eyes just staring at me.
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i bilo je oko 200 pari očiju uprtih u mene.
07:30
And it was that point that I realized
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To je bila tačka gde sam shvatila
07:34
that I had talked about the elephant in the room.
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da sam govorila o problemu o kom se ćutalo.
07:38
Thus my mission had begun.
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Tu je moja misija započela.
07:41
So over the next couple of years,
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Tokom nekoliko godina,
07:44
Pete — we've had our highs and our lows.
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imali smo uspone i padove sa Pitom.
07:47
Pete was put on a compassionate use drug.
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Pit je stavljen na samilosno korišćenje lekova.
07:49
It was hope in a bottle for the whole ALS community.
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To je bila nada za čitavu ALS zajednicu.
07:53
It was in a phase III trial.
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Bio je pokušaj faze 3.
07:55
Then six months later, the data comes back: no efficacy.
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Šest meseci kasnije, podaci su se vratili: bez efekta.
07:59
We were supposed to have therapies overseas,
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Trebalo je da imamo terapije preko okeana,
08:02
and the rug was pulled out from under us.
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i tlo pod nogama nam se izmicalo.
08:04
So for the next two years,
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Naredne 2 godine,
08:06
we just watched my son be taken away from me,
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posmatrali smo kako nam oduzimaju sina,
08:10
little by little every day.
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malo po malo svakog dana.
08:14
Two and a half years ago,
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Pre dve ipo godine,
08:16
Pete was hitting home runs at baseball fields.
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Pit je postizao uspehe na bejzbol terenima.
08:20
Today, Pete's completely paralyzed.
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Danas je Pit totalno paralizovan.
08:23
He can't hold his head up any longer.
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Ne može više da drži glavu uspravljeno.
08:26
He's confined to a motorized wheelchair.
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Osuđen je na motorna kolica.
08:28
He can no longer swallow or eat.
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Ne može više da guta i jede.
08:31
He has a feeding tube.
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Ima cev za hranjenje.
08:33
He can't speak.
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Ne može da govori.
08:37
He talks with eye gaze technology
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Govori pomoću tehnologije pokretanja očiju
08:40
and a speech generating device,
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i sprave za stvaranje govora,
08:42
and we're watching his lungs,
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i posmatramo njegova pluća
08:44
because his diaphragm eventually is going to give out
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jer će mu dijafragma verovatno otkazati
08:47
and then the decision will be made to put him on a ventilator or not.
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i biće odlučeno da li će ga staviti na ventilator ili ne.
08:51
ALS robs the human of all their physical parts, but the brain stays intact.
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ALS zarobljuje čoveka u svim fizičkim delovima, ali mozak ostaje netaknut.
09:01
So July 4th, 2014,
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Dakle, 4. jula 2014. godine,
09:06
75th year of Lou Gehrig's inspirational speech comes,
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desio se inspirativni govor 75-godišnjeg Lua Geriga,
09:10
and Pete is asked by MLB.com to write an article in the Bleacher Report.
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i uredništvo sajta MLB.com je pitalo Pita da napiše članak u Bličer Riportu.
09:16
And it was very significant, because he wrote it using his eye gaze technology.
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I bio je veoma značajan, jer ga je napisao koristeći tehnologiju pomeranja očiju.
09:23
Twenty days later, the ice started to fall.
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Dvadeset dana kasnije, led je počeo da pada.
09:29
On July 27th, Pete's roommate in New York City,
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27. jula, Pitov cimer iz Njujorka,
09:34
wearing a Quinn For The Win shirt,
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noseći majicu sa natpisom "Kvin do pobede",
09:36
signifying Pat Quinn, another ALS patient known in New York,
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označavajući Peta Kvina, drugog ALS pacijenta iz Njujorka,
09:40
and B.C. shorts
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i B.C. šorc
09:42
said, "I'm taking the ALS Ice Bucket Challenge,"
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rekao je: "Prihvatam ovaj ALS izazov"
09:47
picked up the ice, put it over his head.
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podigao led i prelio ga preko glave.
09:49
"And I'm nominating ..." And he sent it up to Boston.
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"I nominujem...", i to poslao u Boston.
09:54
And that was on July 27th.
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To je bilo 27. jula.
09:57
Over the next couple of days, our news feed
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Tokom nekoliko narednih dana, naša naslovna stranica
10:00
was full of family and friends.
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je bila puna porodice i prijatelja.
10:02
If you haven't gone back, the nice thing about Facebook
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Ako se niste vratili unazad, dobra stvar oko Fejsbuka je
10:05
is that you have the dates, you can go back.
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da imate datume i možete da se vratite unazad.
10:07
You've got to see Uncle Artie's human Bloody Mary.
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Morate da vidite ujka Artijev ljudski Bladi meri.
10:11
I'm telling you, it's one of the best ones,
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Uveravam vas, to je jedan od najboljih,
10:14
and that was probably in day two.
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i verovatno je snimljen drugog dana.
10:17
By about day four, Uncle Dave, the webmaster,
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Oko četvrtog dana, ujka Dejv, veb profesionalac
10:21
he isn't on Facebook,
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on nije na Fejsbuku,
10:23
and I get a text from him, and it says, "Nancy,
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dobila sam poruku od njega u kojoj piše: "Nensi,
10:26
what the hell is going on?"
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šta se zaboga dešava?"
10:29
Uncle Dave gets a hit every time Pete's website
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Ujka Dejv dobija obaveštenje svaki put kad neko ode
10:32
is gone onto, and his phone was blowing up.
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na Pitov sajt, a njegov telefon je goreo.
10:36
So we all sat down and we realized,
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Onda smo se svi okupili i shvatili,
10:37
money is coming in — how amazing.
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novac se sliva - sjajno.
10:41
So we knew awareness would lead to funding,
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Znali smo da osvešćenje vodi do finansiranja,
10:44
we just didn't know it would only take a couple of days.
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samo što nismo znali da se to dogodilo u nekoliko dana.
10:47
So we got together, put our best 501(c)(3)s on Pete's website,
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Svi smo se skupili, stavili svoje najbolje formulare na Pitov vebsajt,
10:52
and off we went.
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i tako je krenulo.
10:54
So week one, Boston media.
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Prve nedelje, Bostonski mediji.
10:57
Week two, national media.
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Druge nedelje, nacionalni mediji.
11:00
It was during week two that our neighbor next door
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Tokom druge nedelje naš komšija vrata do nas
11:02
opened up our door and threw a pizza
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je otvorio vrata i bacio picu
11:05
across the kitchen floor, saying,
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preko kuhinjskog poda, govoreći:
11:07
"I think you people might need food in there."
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"Mislim da će vam tamo trebati hrane."
11:10
(Laughter)
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(Smeh)
11:12
Week three, celebrities — Entertainment Tonight,
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Treće nedelje, zvezde - Entertejnment Tunajt,
11:16
Access Hollywood.
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Akses Holivud.
11:18
Week four, global — BBC, Irish Radio.
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Četvrte nedelje, globalno - Bi Bi Si, Ajriš Radio.
11:24
Did anyone see "Lost In Translation"?
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Da li je neko gledao "Izgubljene u prevodu"?
11:27
My husband did Japanese television.
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Moj muž je gostovao na japanskoj televiziji.
11:29
It was interesting.
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Bilo je zanimljivo.
11:31
(Laughter)
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(Smeh)
11:33
And those videos, the popular ones.
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Svi ti popularni video klipovi.
11:39
Paul Bissonnette's glacier video, incredible.
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Ledeni video Pola Bizoneta, neverovatno.
11:43
How about the redemption nuns of Dublin?
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Šta kažete na opatice u Dablinu?
11:46
Who's seen that one?
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Ko je video taj?
11:48
It's absolutely fantastic.
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Fenomenalan je.
11:50
J.T., Justin Timberlake.
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Džej Ti, Džastin Timberlejk.
11:53
That's when we knew, that was a real A-list celebrity.
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To su oni za koje smo tada znali, to su bile zvezde sa A liste.
11:56
I go back on my texts, and I can see
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Kada se vratim u svoje poruke mogu da pronađem
11:59
"JT! JT!" My sister texting me.
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"Džej Ti! Džej Ti!" Moja sestra mi šalje.
12:04
Angela Merkel, the chancellor of Germany.
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Angela Merkel, nemačka kancelarka.
12:08
Incredible.
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Neverovatno.
12:09
And the ALS patients,
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ALS pacijenti,
12:12
you know what their favorite ones are, and their families'?
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znate li koji su omiljeni klipovi njima i njihovim porodicama?
12:15
All of them.
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Svi.
12:17
Because this misunderstood and underfunded "rare" disease,
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Jer su podlegli ovoj neshvaćenoj, potcenjenoj i "retkoj" bolesti,
12:21
they just sat and watched people saying it over and over: "ALS, ALS."
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samo su sedeli i gledali ljude kako govore iznova i iznova: "ALS, ALS."
12:28
It was unbelievable.
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Bilo je za ne poverovati.
12:31
And those naysayers,
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I za sve one koji nisu verovali,
12:33
let's just talk a couple of stats, shall we?
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hajde da pomenemo nekoliko statistika.
12:36
Okay, so the ALS Association,
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ALS udruženje
12:39
they think by year end, it'll be 160 million dollars.
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smatra da će do kraja godine skupiti 160 miliona dolara.
12:43
ALS TDI in Cambridge,
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ALS TDI u Kembridžu,
12:45
they raised three million dollars.
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je sakupio 3 miliona dolara.
12:47
Well, guess what?
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Znate šta?
12:49
They had a clinical trial for a drug that they've been developing.
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Imali su kliničko isprobavanje za lek koji su razvijali.
12:52
It was on a three-year track for funding.
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Bilo je trogodišnje finansiranje.
12:55
Two months.
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Dva meseca.
12:57
It's coming out starting in two months.
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Izlazi za dva meseca.
12:59
(Applause)
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(Aplauz)
13:05
And YouTube has reported
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Jutjub je izvestio
13:10
that over 150 countries have posted Ice Bucket Challenges for ALS.
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da je preko 150 zemalja postavilo Ledeni izazov za ALS.
13:17
And Facebook, 2.5 million videos,
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A Fejsbuk - 2,5 miliona video snimka,
13:24
and I had the awesome adventure
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a ja sam imala sjajnu avanturu
13:27
visiting the Facebook campus last week,
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tokom posete kampusa Fejsbuka prošle nedelje,
13:30
and I said to them, "I know what it was like in my house.
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i rekla sam im: "Znam kako je bilo u mojoj kući.
13:33
I can't imagine what it was like around here."
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Ne mogu da zamislim kako je to izgledalo ovde."
13:35
All she said was, "Jaw-dropping."
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Samo je rekla: "Fascinantno".
13:40
And my family's favorite video?
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Omiljeni video moje porodice?
13:45
Bill Gates.
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Bil Gejts.
13:48
Because the night Pete was diagnosed,
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Jer u noć kada je Pitu dijagnostikovana bolest,
13:51
he told us that he was going to get ALS in front of philanthropists like Bill Gates,
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rekao je da će istaći ALS ispred filantropa poput Bila Gejtsa.
13:59
and he did it.
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I uspeo je.
14:00
Goal number one, check.
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Svetski broj jedan, obavljeno.
14:03
Now on to the treatment and cure.
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Sada sledi tretman i nega.
14:05
(Applause)
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(Aplauz)
14:14
So okay, after all of this ice,
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U redu, nakon svog ovog leda,
14:17
we know that it was much more
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znamo da je tu mnogo više
14:19
than just pouring buckets of ice water over your head,
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od samog polivanja kofom ledene vode preko glave,
14:22
and I really would like to leave you
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i volela bih da vas napustim
14:24
with a couple of things that I'd like you to remember.
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sa nekoliko stvari koje bih volela da zapamtite.
14:27
The first thing is,
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Prva stvar je
14:28
every morning when you wake up,
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da svako jutro kada se probudite
14:31
you can choose to live your day in positivity.
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možete da birate da živite svoj dan pozitivno.
14:36
Would any of you blame me
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Da li bi me iko od vas krivio
14:38
if I just was in the fetal position
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da sam bila u fetalnoj poziciji
14:40
and pulled the covers over my head every day?
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i povlačila prekrivač preko glave svakog dana?
14:44
No, I don't think anybody would blame me,
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Ne, ne mislim da bi me iko krivio,
14:46
but Pete has inspired us to wake up
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ali Pit nas je inspirisao da se probudimo
14:49
every morning and be positive and proactive.
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svakog jutra i budemo pozitivni i proaktivni.
14:52
I actually had to ditch support groups
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Morala sam da odbacim grupe podrške
14:55
because everybody was in there saying that
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jer je svaka bila tu govoreći
14:57
spraying their lawns with chemicals,
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da je prskanje svojih dvorišta hemikalijama
14:59
that's why they got ALS,
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razlog zbog kojeg su dobili ALS,
15:01
and I was like, "I don't think so,"
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a ja sam im odgovorila: "Ne bih se složila."
15:03
but I had to get away from the negativity.
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ali sam morala da pobegnem od negativnosti.
15:07
The second thing I want to leave you with
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Druga stvar sa kojom sam želela da vas napustim
15:10
is the person at the middle of the challenge
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je da osoba u sred izazova
15:13
has to be willing to have the mental toughness
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mora da bude voljna da poseduje psihičku snagu
15:16
to put themselves out there.
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da se izmesti odatle.
15:19
Pete still goes to baseball games
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Pit i dalje ide na bejzbol utakmice
15:22
and he still sits with his teammates in the dugout,
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i još uvek sedi sa svojim saigračima u zemunicama
15:25
and he hangs his gravity feed bag
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i drži svoju kesu za hranjenje
15:28
right on the cages.
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na svojim plućima.
15:29
You'll see the kids, they're up there hanging it up.
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Videćete tu decu, tu su.
15:31
"Pete, is that okay?" "Yup."
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"Pite, jel' ovako u redu?" "Da"
15:32
And then they put it right into his stomach.
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I stave mu je na stomak.
15:36
Because he wants them to see what the reality of this is,
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Jer želi da vide koja je stvarnost ovoga,
15:39
and how he's never, ever going to give up.
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i kako nikada neće odustati.
15:43
And the third thing I want to leave you with:
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I treća stvar sa kojom želim da vas napustim:
15:45
If you ever come across a situation
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Ako se ikada nađete u situaciji
15:48
that you see as so unacceptable,
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3139
koju vidite kao neprihvatljivu,
15:51
I want you to dig down as deep as you can
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želim da kopate unutar sebe što više možete
15:55
and find your best mother bear
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i nađete najbolju stvar
15:58
and go after it.
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i streimte ka tome.
16:00
(Applause)
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(Aplauz)
16:34
Thank you.
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Hvala vam.
16:36
(Applause)
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(Aplauz)
16:40
I know that I'm running over,
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Znam da prelazim vreme,
16:42
but I've got to leave you with this:
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ali moram da vas ostavim i sa ovime:
16:44
the gifts that my son has given me.
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pokloni koje mi je dao sin.
16:47
I have had 29 years
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Imala sam priliku da 29 godina
16:50
of having the honor of being the mother
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budem počastvovana što sam majka
16:53
of Pete Frates.
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Pita Frejtisa.
16:55
Pete Frates has been inspiring and leading his whole life.
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Pit Frejts je inspirisao i bio lider čitavog svog života.
17:00
He's thrown out kindness,
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Pružio je dobrotu,
17:03
and all that kindness has come back to him.
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i sva ta dobrota mu se vratila.
17:06
He walks the face of the Earth right now and knows why he's here.
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Trenutno šeta po Zemlji i zna zašto je ovde.
17:13
What a gift.
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Kakav poklon.
17:16
The second thing that my son has given me
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Druga stvar koju mi je sin poklonio
17:18
is he's given me my mission in life.
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je da mi je dao misiju u životu.
17:21
Now I know why I'm here.
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Sada znam zašto sam ovde.
17:23
I'm going to save my son,
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Spasiću svog sina
17:26
and if it doesn't happen in time for him,
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i ako se to ne desi na vreme
17:29
I'm going to work so that no other mother
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potrudiću se da nijedna majka
17:32
has to go through what I'm going through.
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ne mora da prolazi kroz ono što sam ja.
17:35
And the third thing, and last but not least
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I treća stvar, poslednji ali ne i beznačajan
17:38
gift that my son has given me,
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poklon koji mi je sin dao,
17:41
as an exclamation point
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kao uzvičnik
17:43
to the miraculous month
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na fantastičan mesec
17:45
of August 2014:
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avgust 2014: devojka sa kojom je izašao
17:49
That girlfriend that he went to get on the night of diagnosis is now his wife,
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te noći kad je dijagnostikovan je sada njegova žena,
17:55
and Pete and Julie have given me my granddaughter, Lucy Fitzgerald Frates.
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i Pit i Džuli su mi podarili unuku, Lusi Ficdžerald Frejtis.
18:03
Lucy Fitzgerald Frates came two weeks early
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Lusi Ficdžerald Frejtis je došla na svet dve nedelje ranije
18:08
as the exclamation point
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kao uzvičnik
18:10
on August 31st, 2014.
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31. avugsta 2014. godine,
18:15
And so —
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I -
18:16
(Applause) —
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(Aplauz)
18:25
And so let me leave you with Pete's words of inspiration
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Dozvolite mi da vas napustim sa Pitovim inspirativnim rečima
18:29
that he would use to classmates, coworkers and teammates.
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kojima bi se obraćao svojim drugarima iz škole, kolegama i saigračima.
18:36
Be passionate.
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Budite strastveni.
18:40
Be genuine.
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Budite jedinstveni.
18:42
Be hardworking.
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Budite vredni.
18:45
And don't forget to be great.
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I ne zaboravite da budete sjajni.
18:49
Thank you. (Applause)
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Hvala vam. (Aplauz)
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