Kitra Cahana: My father, locked in his body but soaring free

87,505 views ・ 2014-10-17

TED


Please double-click on the English subtitles below to play the video.

Prevodilac: Bojana Rajić Lektor: Mile Živković
00:12
I know a man who soars above the city every night.
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Znam čoveka koji se uzdiže iznad grada svake noći.
00:18
In his dreams, he twirls and swirls
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U svojim snovima on se vitla i kovitla
00:21
with his toes kissing the Earth.
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i stopalima ljubi tlo.
00:24
Everything has motion, he claims,
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Sve se pokreće, on tvrdi,
00:27
even a body as paralyzed as his own.
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čak i telo paralizovano kao njegovo.
00:31
This man is my father.
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Ovaj čovek je moj otac.
00:36
Three years ago, when I found out
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Pre tri godine, kada sam otkrila
00:38
that my father had suffered a severe stroke
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da je moj otac pretrpeo ozbiljan infarkt
00:41
in his brain stem,
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u moždanom stablu,
00:43
I walked into his room in the ICU
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ušla sam u njegovu sobu na intenzivnoj nezi
00:46
at the Montreal Neurological Institute
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na Neurološkom institutu u Montrealu
00:49
and found him lying deathly still,
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i našla ga kako leži smrtno miran,
00:52
tethered to a breathing machine.
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prikačen na mašinu za disanje.
00:55
Paralysis had closed over his body slowly,
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Paraliza je pokorila njegovo telo polako,
00:59
beginning in his toes, then legs,
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počevši u nožnim prstima, pa nogama,
01:01
torso, fingers and arms.
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trupu, prstima i rukama.
01:04
It made its way up his neck,
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Pronašla je svoj put do vrata,
01:06
cutting off his ability to breathe,
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presecajući njegovu mogućnost da diše,
01:08
and stopped just beneath the eyes.
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i zastala ispod očiju.
01:13
He never lost consciousness.
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Nikada nije izgubio svest.
01:15
Rather, he watched from within
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Posmatrao je iznutra
01:18
as his body shut down,
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kako mu se telo gasi,
01:20
limb by limb,
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ud po ud,
01:22
muscle by muscle.
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mišić po mišić.
01:25
In that ICU room, I walked up to my father's body,
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U toj sobi, prišla sam telu svog oca,
01:30
and with a quivering voice and through tears,
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i drhtavim glasom i kroz suze,
01:33
I began reciting the alphabet.
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počela da izgovaram abecedu.
01:37
A, B, C, D, E, F, G,
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A, B, C, D, E, F, G,
01:43
H, I, J, K.
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H, I, J, K.
01:47
At K, he blinked his eyes.
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Na K je trepnuo.
01:50
I began again.
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Počela sam ponovo.
01:52
A, B, C, D, E, F, G,
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A, B, C, D, E, F, G,
01:56
H, I.
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H, I.
01:58
He blinked again at the letter I,
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Ponovo je trepnuo na slovo I,
02:01
then at T, then at R, and A:
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pa T, onda R, pa A:
02:05
Kitra.
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Kitra.
02:07
He said "Kitra, my beauty, don't cry.
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Rekao je "Kitra, lepoto moja, nemoj da plačeš.
02:11
This is a blessing."
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Ovo je blagoslov."
02:16
There was no audible voice, but my father
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Nije bilo zvuka, ali je moj otac
02:18
called out my name powerfully.
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pozvao moje ime snažno.
02:21
Just 72 hours after his stroke,
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Samo 72 sata posle udara,
02:24
he had already embraced
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već je prigrlio
02:26
the totality of his condition.
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celinu svog stanja.
02:30
Despite his extreme physical state,
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Uprkos njegovom ekstremnom fizičkom stanju,
02:32
he was completely present with me,
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bio je u potpunosti prisutan sa mnom,
02:35
guiding, nurturing,
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vodeći, negujući,
02:38
and being my father as much
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i bivavši moj otac toliko
02:40
if not more than ever before.
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ako ne i više nego pre.
02:43
Locked-in syndrome
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Sindrom: zarobljen u svom telu
02:45
is many people's worst nightmare.
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je noćna mora većine ljudi.
02:48
In French, it's sometimes called
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Na francuskom je ponekad nazvan
02:51
"maladie de l'emmuré vivant."
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"maladie de l'emmuré vivant".
02:53
Literally, "walled-in-alive disease."
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Doslovno, "oboljenje živ sahranjen".
02:58
For many people, perhaps most,
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Za mnogo ljudi, većinu možda,
03:00
paralysis is an unspeakable horror,
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paraliza je neizreciv horor,
03:03
but my father's experience
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ali iskustvo moga oca
03:06
losing every system of his body
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koji gubi svaki sistem svog tela
03:08
was not an experience of feeling trapped,
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nije bilo iskustvo osećaja zarobljenosti,
03:11
but rather of turning the psyche inwards,
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već okretanje psihi,
03:15
dimming down the external chatter,
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zatamnjivanje spoljašnjeg izgleda,
03:18
facing the recesses of his own mind,
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suočavanje sa dubinama njegovog uma,
03:21
and in that place,
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i u tom trenutku,
03:23
falling in love with life and body anew.
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zaljubljivanje u život i telo iznova.
03:28
As a rabbi and spiritual man
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Kao rabin i duhovna osoba
03:31
dangling between mind and body, life and death,
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njišući se između uma i tela, života i smrti,
03:35
the paralysis opened up a new awareness for him.
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paraliza mu je otvorila nove vidike.
03:39
He realized he no longer needed to look
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Shvatio je da više nije morao da gleda
03:42
beyond the corporeal world
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izvan telesnog sveta
03:45
in order to find the divine.
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da bi pronašao božansko.
03:48
"Paradise is in this body.
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"Raj je u ovom telu.
03:52
It's in this world," he said.
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Na ovom je svetu," rekao je.
03:56
I slept by my father's side for the first four months,
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Spavala sam pored njega prva četiri meseca,
04:00
tending as much as I could
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negujući koliko sam mogla
04:02
to his every discomfort,
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svaku njegovu nelagodnost,
04:04
understanding the deep human psychological fear
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razumevajući dubok ljudski psihološki strah
04:08
of not being able to call out for help.
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nemogućnosti da se pozove u pomoć.
04:11
My mother, sisters, brother and I,
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Moja majka, sestre, brat i ja
04:15
we surrounded him in a cocoon of healing.
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smo ga zatvorili u čauru isceljenja.
04:19
We became his mouthpiece,
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Postali smo njegovi portparoli
04:21
spending hours each day reciting the alphabet
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provodeći sate svakoga dana recitujući abecedu,
04:25
as he whispered back sermons
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dok je on šaputao propovedi
04:27
and poetry with blinks of his eye.
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i poeziju treptajima oka.
04:31
His room, it became our temple of healing.
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Njegova soba postala je hram isceljenja.
04:37
His bedside became a site for those
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Njegova postelja postala je mesto za one
04:39
seeking advice and spiritual counsel, and through us,
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koji traže savet i duhovnu utehu, i kroz nas
04:43
my father was able to speak
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moj otac mogao je da govori
04:46
and uplift,
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i stimuliše,
04:48
letter by letter,
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slovo po slovo,
04:50
blink by blink.
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treptaj po treptaj.
04:53
Everything in our world became slow and tender
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Sve je u našem svetu postalo sporije i nežnije
04:56
as the din, drama and death of the hospital ward
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dok su buka, drama i smrt bolničkog odeljenja
05:00
faded into the background.
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bledeli u pozadini.
05:03
I want to read to you one of the first things
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Želim da vam pročitam jednu od prvih stvari
05:05
that we transcribed in the week following the stroke.
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koju smo zapisali u nedelji posle udara.
05:10
He composed a letter,
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Sastavio je pismo,
05:12
addressing his synagogue congregation,
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obraćajući se svojoj zajednici u sinagogi,
05:15
and ended it with the following lines:
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i završio ga sledećim redovima:
05:18
"When my nape exploded,
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"Kada je moj potiljak eksplodirao,
05:21
I entered another dimension:
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ušao sam u drugu dimenziju:
05:23
inchoate, sub-planetary, protozoan.
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početnu, nadplanetarnu, protozoansku.
05:28
Universes are opened and closed continually.
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Univerzumi se otvaraju i zatvaraju stalno.
05:33
There are many when low,
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Postoje mnogi koji, kada je nisko,
05:35
who stop growing.
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prestaju da rastu.
05:37
Last week, I was brought so low,
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Prošle nedelje, pao sam tako nisko,
05:39
but I felt the hand of my father around me,
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ali sam osetio ruku svoga oca oko sebe,
05:43
and my father brought me back."
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i moj otac vratio me je nazad."
05:46
When we weren't his voice,
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Kada mi nismo bili njegov glas,
05:48
we were his legs and arms.
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bili smo njegove noge i ruke.
05:52
I moved them like I know I would have wanted
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Pomerala sam ih kao da sam znala kako bih želela
05:54
my own arms and legs to be moved
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da moje ruke i noge budu pomerane
05:57
were they still for all the hours of the day.
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kada bi bile mirne sve sate u toku dana.
06:01
I remember I'd hold his fingers near my face,
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Sećam se da bih držala njegove prste blizu svog lica,
06:05
bending each joint to keep it soft and limber.
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savijajući svaki zglob da bi ostao mek i savitljiv.
06:09
I'd ask him again and again
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Pitala bih ga iznova i iznova
06:11
to visualize the motion,
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da vizualizuje pokrete,
06:14
to watch from within as the finger curled
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da posmatra iznutra dok se prst uvija
06:17
and extended, and to move along with it
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i ispravlja, i da se kreće zajedno sa njim
06:21
in his mind.
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u svom umu.
06:24
Then, one day, from the corner of my eye,
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Onda, jednog dana, krajičkom svog oka,
06:26
I saw his body slither like a snake,
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videla sam kako njegovo telo klizi kao zmija,
06:30
an involuntary spasm passing through the course
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nehotičan trzaj prolazi kroz tok
06:33
of his limbs.
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njegovih udova.
06:35
At first, I thought it was my own hallucination,
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Isprva, mislila sam da haluciniram,
06:38
having spent so much time tending to this one body,
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provevši toliko vremena negujući ovo jedno telo,
06:41
so desperate to see anything react on its own.
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tako očajno želeći da vidim da bilo šta samostalno reaguje.
06:46
But he told me he felt tingles,
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Ali mi je rekao da je osetio golicanje,
06:48
sparks of electricity flickering on and off
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iskre elektriciteta koje se pale i gase
06:52
just beneath the surface of the skin.
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ispod površine kože.
06:56
The following week, he began ever so slightly
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Sledeće nedelje, počeo je da neznatno
06:59
to show muscle resistance.
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pokazuje otpor mišića.
07:02
Connections were being made.
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Povezanost je napravljena.
07:04
Body was slowly and gently reawakening,
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Telo se polako i nežno ponovo budilo,
07:10
limb by limb, muscle by muscle,
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ud po ud, mišić po mišić,
07:13
twitch by twitch.
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trzaj po trzaj.
07:16
As a documentary photographer,
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Kao dokumentarni fotograf,
07:19
I felt the need to photograph
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osetila sam potrebu da fotografišem
07:21
each of his first movements
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svaki od ovih prvih pokreta
07:23
like a mother with her newborn.
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kao majka svoje novorođenče.
07:25
I photographed him taking his first unaided breath,
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Fotografisala sam ga kako uzima svoj prvi nepomognut uzdah,
07:30
the celebratory moment after he showed
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slavljenički trenutak nakon što je pokazao
07:33
muscle resistance for the very first time,
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otpor mišića po prvi put,
07:37
the new adapted technologies that allowed him
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nove tehnologije prilagođene da mu dozvole
07:39
to gain more and more independence.
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da stekne sve više i više nezavisnosti.
07:43
I photographed the care and the love
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Fotografisala sam brigu i ljubav
07:45
that surrounded him.
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koja ga je okruživala.
07:56
But my photographs only told the outside story
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Ali moje slike pričaju samo spoljašnju priču
08:00
of a man lying in a hospital bed
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čoveka koji leži u bolničkom krevetu
08:03
attached to a breathing machine.
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privezan na mašinu za disanje.
08:05
I wasn't able to portray his story from within,
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Nisam bila u mogućnosti da oslikam njegovu priču iznutra,
08:08
and so I began to search for a new visual language,
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pa sam počela da tragam za novim vizuelnim jezikom,
08:12
one which strived to express the ephemeral quality
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onim koji teži da izrazi kvalitet kratkotrajnosti
08:15
of his spiritual experience.
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duhovnog iskustva.
08:38
Finally, I want to share with you
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Na kraju, želim da podelim sa vama
08:40
a video from a series that I've been working on
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video iz serije na kojoj radim,
08:43
that tries to express the slow, in-between existence
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koja pokušava da izrazi usporeno postojanje između,
08:46
that my father has experienced.
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koje je moj otac doživeo.
08:49
As he began to regain his ability to breathe,
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Kada je počeo da povraća svoju sposobnost da diše,
08:53
I started recording his thoughts,
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počela sam da snimam njegove misli,
08:55
and so the voice that you hear in this video
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pa je glas koji čujete na ovom videu
08:57
is his voice.
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njegov glas.
09:00
(Video) Ronnie Cahana: You have to believe
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(Video) Roni Kahana: Morate da verujete
09:03
you're paralyzed
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da ste paralizovani
09:06
to play the part
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da biste odigrali ulogu
09:08
of a quadriplegic.
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kvadriplegičara.
09:14
I don't.
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Ja ne verujem.
09:16
In my mind,
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U svom umu
09:18
and in my dreams
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i svojim snovima
09:21
every night
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svake noći
09:24
I Chagall-man float
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ja Šigal-čovek lebdim
09:29
over the city
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iznad grada,
09:32
twirl and swirl
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vitlam i kovitlam
09:35
with my toes kissing the floor.
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i stopalima ljubim tlo.
09:43
I know nothing about the statement
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Ne znam ništa o izrazu
09:50
of man without motion.
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čoveka bez kretanja.
09:56
Everything has motion.
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Sve ima pokrete.
09:59
The heart pumps.
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Srce pumpa.
10:03
The body heaves.
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Telo se podiže.
10:07
The mouth moves.
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Usne se pomeraju.
10:12
We never stagnate.
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Nikada ne mirujemo.
10:16
Life triumphs up and down.
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Život trijumfuje gore i dole.
10:23
Kitra Cahana: For most of us,
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Kitra Kahana: Za većinu nas,
10:25
our muscles begin to twitch and move
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naši mišići počinju da se grče i pomeraju
10:27
long before we are conscious,
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mnogo pre nego što smo svesni,
10:30
but my father tells me his privilege
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ali moj otac kaže da je njegova privilegija
10:33
is living on the far periphery
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život na dalekoj periferiji
10:35
of the human experience.
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ljudskog iskustva.
10:38
Like an astronaut who sees a perspective
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Kao astronaut koji vidi perspektivu
10:41
that very few of us will ever get to share,
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koju će mali broj nas moći da podeli,
10:44
he wonders and watches as he takes
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on se čudi i posmatra dok uzima
10:47
his first breaths
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svoje prve uzdahe
10:49
and dreams about crawling back home.
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i sanja da se puzeći vrati kući.
10:53
So begins life at 57, he says.
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Tako počinje život u 57-oj, on kaže.
10:57
A toddler has no attitude in its being,
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Beba nema stav u svom biću,
11:00
but a man insists on his world every day.
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ali čovek insistira na svom svetu svakoga dana.
11:06
Few of us will ever have to face physical limitations
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Malo nas će ikada morati da se suoči sa fizičkim ograničenjima
11:09
to the degree that my father has,
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do te mere kao moj otac,
11:12
but we will all have moments of paralysis
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ali ćemo svi imati momente paralize
11:16
in our lives.
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u svojim životima.
11:18
I know I frequently confront walls
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Znam da se ja često suočavam sa zidovima
11:21
that feel completely unscalable,
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koji se čine kompletno nedostižnim,
11:24
but my father insists
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ali moj otac insistira
11:27
that there are no dead ends.
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da ne postoje ćorsokaci.
11:30
Instead, he invites me into his space of co-healing
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Umesto toga, on me pozove u svoj prostor isceljenja
11:35
to give the very best of myself, and for him
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da dam najbolje od sebe, i za njega
11:38
to give the very best of himself to me.
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da da najbolje od sebe za mene.
11:42
Paralysis was an opening for him.
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Paraliza je bila otvaranje za njega.
11:45
It was an opportunity to emerge,
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To je bila prilika da razjasni,
11:47
to rekindle life force,
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ponovo zapali životnu snagu,
11:49
to sit still long enough with himself
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da dovoljno dugo mirno sedi sam sa sobom
11:51
so as to fall in love with the full continuum
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da se ponovo zaljubi u punu beskonačnost
stvaranja.
11:55
of creation.
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11:57
Today, my father is no longer locked in.
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Danas, moj otac više nije zaključan.
12:01
He moves his neck with ease,
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Pokreće svoj vrat sa lakoćom,
12:04
has had his feeding peg removed,
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klin za hranjenje mu je uklonjen,
12:07
breathes with his own lungs,
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diše sopstvenim plućima,
12:10
speaks slowly with his own quiet voice,
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govori polako sopstvenim tihim glasom,
12:13
and works every day
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i radi svakog dana na tome
12:15
to gain more movement in his paralyzed body.
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da stekne više pokreta u svom paralizovanom telu.
12:21
But the work will never be finished.
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Ali posao nikada neće biti završen.
12:23
As he says, "I'm living in a broken world,
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Kao što on kaže, "Živim u pokvarenom svetu,
12:28
and there is holy work to do."
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i imam svetog posla da radim."
12:31
Thank you.
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Hvala vam.
12:33
(Applause)
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(Aplauz)
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