Carina Morillo: To understand autism, don't look away (with English subtitles) | TED

Prevoditelj: Julijana Čikara Recezent: Sanda L

"Look at me!"

"Pogledaj me!"

That phrase turned me into an eye-contact coach.

S tim riječima pretvorila sam se u trenericu pogleda.

I'm the mother of Ivan; he's 15 years old.

Ja sam Ivanova mama, koji ima 15 godina,

Ivan has autism,

Ivan ima autizam, ne govori,

he doesn't speak,

and he communicates through an iPad,

i komunicira preko iPad-a

where his whole universe of words exists in images.

na kojemu je cijeli njegov svijet riječi u slikama.

He was diagnosed when he was two and a half.

Saznali smo za njegovu dijagnozu kada je imao dvije i pol godine

I still remember that day painfully.

i još uvijek mi je prisjećanje na taj trenutak vrlo bolno.

My husband and I felt really lost;

Muž i ja smo se osjećali vrlo izgubljeno.

we didn't know where to begin.

Nismo znali odakle da počnemo.

There was no internet,

Nije bilo interneta kao danas,

you couldn't Google information,

informacije se nisu mogle guglati,

so we made those first steps

tako da su ti prvi koraci

out of sheer intuition.

bili čista intuicija.

Ivan would not maintain eye contact,

Ivan nije mogao zadržati pogled,

he had lost the words that he did know,

izgubio je riječi koje je govorio,

and he didn't respond to his name or to anything we asked him,

nije se odazivao na svoje ime

ni na što što bismo od njega tražili,

as if words were noise.

kao da su riječi bile buka.

The only way I could know

Jedini način koji sam pronašla

da saznam što mu se događa,

what was going on with him,

what he felt,

što on osjeća,

was looking him in the eye.

bio je gledati ga u oči.

But that bridge was broken.

No, taj je most bio srušen.

How could I teach him about life?

Kako Ivana naučiti živjeti?

When I did things he liked, he would look at me,

Kada sam radila stvari koje su mu se sviđale,

tada bi me gledao

and we were connected.

i bili smo zajedno.

So I dedicated myself to working with him on those things,

Tako da sam se posvetila pratiti ga u tim stvarima,

so we would have more and more eye-contact moments.

kako bi svaki puta bilo sve više i više trenutaka u kojima bi se gledali.

We would spend hours and hours playing tag with his older sister, Alexia,

Provodili smo sate i sate igrajući se lovice

s njegovom starijom sestrom, Alexiom,

and when we said: "I caught you!"

a kada bismo rekli: "Ulovljen si!"

he would look around for us,

tražio nas je pogledom,

and at that moment, I could feel he was alive.

a ja sam tada, u tom trenutku, osjećala da je živ.

We also hold a record for hours spent in a swimming pool.

Također, držimo rekord u broju sati provedenih u bazenu.

Ivan always had a passion for water.

Ivan je oduvijek pokazivao veliku strast prema vodi.

I remember when he was two and a half,

Sjećam se da je imao dvije i pol godine,

on a rainy winter day,

i jednog zimskog dana, jako kišnog,

I was taking him to an indoor pool,

vodila sam ga u zatvoreni bazen,

because even on rainy days we'd go swimming.

zato što čak ni tada nismo prestajali ići.

We were on the highway, and I took the wrong exit.

Vozili smo se autocestom

i pogriješila sam izlaz.

He burst into tears and cried inconsolably, nonstop,

I tada je počeo plakati, neutješno, bez prestanka,

until I turned back.

dok nisam bila na pravom putu

Only then did he calm down.

i tek se tada smirio.

How was it possible that a two and a half year old

Kako je moguće

da se s dvije i pol godine nije odazivao na svoje ime,

didn't respond to his own name,

yet in the middle of the rain and fog, where I couldn't see anything,

no usred kiše i magle, kroz koju nisam uspijevala išta vidjeti,

he knew the exact route?

on je bio sposoban savršeno prepoznati put?

That's when I realized that Ivan had an exceptional visual memory,

Tada sam shvatila da je Ivan imao izvanredno vizualno pamćenje

and that that would be my way in.

i da će to biti moja polazna točka.

So I started taking pictures of everything,

Tako da sam počela sve slikati

and teaching him what life was like,

i tako ga učiti životu,

showing it to him, picture by picture.

pokazivajući mu sliku po sliku.

Even now, it's the way Ivan communicates

I dan danas Ivan nam tako govori

what he wants,

što želi, što treba,

what he needs

and also what he feels.

kao i što osjeća.

But it wasn't just Ivan's eye contact that mattered.

No nije se samo radilo o Ivanovom pogledu.

Everyone else's did, too.

Nego i o pogledima drugih.

How could I make people see not only his autism,

Kako postići

da ne gledaju samo njegov autizam,

but see him the person

već da gledaju njega,

and everything he can give;

sa svime onime što on može pružiti?

everything he can do;

Sa svime onime što je sposoban raditi?

the things he likes and doesn't like,

Sa stvarima koje mu se sviđaju i s onima koje ne,

just like any one of us?

kao i svakome od nas?

But for that, I also had to give of myself.

No zato, i ja sam trebala dati svoj doprinos.

I had to have the strength to let him go,

Trebala sam se usuditi pustiti ga.

which was extremely difficult.

A to mi je bilo jako teško.

Ivan was 11 years old,

Ivan je imao 11 godina

and he went for treatment in a neighborhood near our house.

i išao je na liječenje vrlo blizu kuće, u susjednom kvartu.

One afternoon, while I was waiting for him,

Jednog popodneva, dok sam ubijala vrijeme čekajući ga,

I went into a greengrocer,

otišla sam u jednu voćarnu,

a typical neighborhood store with a little bit of everything.

tipična kvartovska voćarna koja ima pomalo od svega.

While doing the shopping,

I dok sam kupovala,

I started talking to Jose, the owner.

počela sam pričati s Joseom, vlasnikom.

I told him about Ivan,

Ispričala sam mu za Ivana, da ima autizam,

that he had autism,

and that I wanted him to learn to walk down the street by himself,

i da sam ja htjela da on nauči sam hodati ulicom,

without anyone holding his hand.

a da ga nitko ne drži za ruku.

So I decided to ask Jose if Thursdays around 2pm,

I skupila sam hrabrosti pitati ga

može li četvrtkom u dva popodne

Ivan could come and help him arrange the water bottles on the shelves,

Ivan pomoći slagati police s bocama vode

zato što je on obožavao slagati,

because he loved to organize things.

And as a reward, he could buy some chocolate cookies,

i da za nagradu dobije čokoladne kolačiće,

which were his favorite.

njegove omiljene.

He said "yes" right away.

Odmah mi je rekao da može.

So that's how it went for a year:

I tako je godinu dana

Ivan would go to Jose's greengrocer,

Ivan odlazio u Joseovu voćarnu,

help him arrange the shelves of water bottles

pomagao mu je slagati boce vode na police

čije je etikete savršeno poravnavao,

with the labels perfectly lined up on the same side,

točno u milimetar sa svake strane.

and he would leave happy with his chocolate cookies.

I odlazio bi sretan

sa svojim čokoladnim keksićima.

Jose is not an expert in autism.

Jose nije stručnjak za autizam.

There is no need to be an expert

Nije potrebno biti stručnjak ni za što,

nor do anything heroic to include someone.

niti činiti nikakva velika djela da biste uključili nekoga.

We just need to be there --

Jednostavno moramo biti...

(Applause)

(Pljesak)

(Applause ends)

Really, no heroic deed --

tako je, nikakvo veliko djelo.

we simply need to be close.

Jednostavno moramo biti blizu.

And if we are afraid of something

A ako se nečega plašimo

or we don't understand something,

ili ako ne razumijemo, pitajmo;

we need to ask.

Let's be curious

budimo znatiželjni,

but never indifferent.

no nikada ravnodušni.

Let's have the courage to look each other in the eye,

Budimo dovoljno hrabri gledati u oči,

because by looking,

jer našim pogledom

we can open a whole world to someone else.

možemo nekome otvoriti čitav svijet.

(Applause)

(Pljesak)

(Cheers)

(Uzvici)