Norman Spack: How I help transgender teens become who they want to be

137,081 views ・ 2014-04-16

TED


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譯者: Becky Ma 審譯者: Neoh Yi Yuan
00:12
I want you all to think
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我希望大家回想一些:
00:16
about the third word that was ever said about you --
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別人形容你那句話的第三個詞彙
00:23
or, if you were delivering,
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或如果你正在接生一個嬰兒
00:26
about the person you were delivering.
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你會如何形容這個孩子?
00:31
And you can all mouth it if you want or say it out loud.
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請你把答案默念或者大聲說出來
00:35
It was -- the first two were, "It's a ..."
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最開頭兩個字是:Ta是...
(觀眾:男孩 ... 女孩 ...)
00:41
Audience: (Mixed reply) Girl. Boy.
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好吧,我這話使你知道
00:43
(Laughter)
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00:44
Well, it shows you that --
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00:46
I also deal with issues where there's not certainty
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我也處理有關到底是 男孩或女孩的問題
00:49
of whether it's a girl or a boy,
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00:50
so the mixed answer was very appropriate.
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所以我剛剛那樣的措辭十分得體
00:54
Of course, now the answer often comes not at birth but at the ultrasound,
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當然,現在這問題的答案
通常是在照射超音波時 而非出生時揭曉
00:58
unless the prospective parents choose to be surprised,
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除非未來的父母們像我們以前那樣
把驚喜留到孩子出生那天 才知道孩子的性別。
01:02
like we all were.
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01:05
But I want you to think about what it is that leads to that statement
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但我希望你們想一想
是什麼決定了
那第三個詞彙
01:12
on the third word,
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01:14
because the third word
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因為它
01:17
is a description of your sex.
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描述你的性別
我的意思是
01:25
And by that I mean,
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01:27
made by a description of your genitals.
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它的判斷來自於你的生殖器
01:32
Now, as a pediatric endocrinologist,
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現在,身為一個小兒科內分泌學家
01:35
I used to be very, very involved and still somewhat am, in cases
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我曾經非常熱衷於研究 (現在也算是)
關於種種通過生殖器的判斷會不會出錯
01:41
in which there are mismatches in the externals
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外觀上
01:47
or between the externals and the internals,
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或內外之間的性別不符合
01:51
and we literally have to figure out
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而我們實際上必須設法釐清
01:56
what is the description of your sex.
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什麼才能客觀描述你的性別
02:00
But there is nothing that is definable at the time of birth
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在出生那刻
我們實在難以定義你的性別。
02:05
that would define you.
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而當我談及定義
02:10
And when I talk about definition,
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我是在說你的性別取向
02:12
I'm talking about your sexual orientation.
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02:18
We don't say, "It's a ... gay boy!"
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我們不說:他是個男同志男孩
02:23
"A lesbian girl!"
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她是個女同志女孩
02:26
Those situations don't really define themselves
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這些情況還要等到 他們10幾歲之後才會出現。
02:29
more until the second decade of life.
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02:33
Nor do they define your gender,
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性取向也不能定義你的性別
02:38
which, as different from your anatomic sex,
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而這性別並不等同於解剖學上的
02:42
describes your self-concept:
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而是關乎你的自我意識
02:45
Do you see yourself as a male or female,
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你認為自己
是男性或女性
02:51
or somewhere in the spectrum in between?
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或者在這之間徘徊
02:56
That sometimes shows up
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性別混淆有時發生在
03:01
in the first decade of life,
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孩子10歲以前
03:04
but it can be very confusing for parents,
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卻會讓父母十分困惑
03:08
because it is quite normative for children
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因為一般而言
孩童表現出跨性別的舉止 或遊戲方式是很正常的
03:13
to act in a cross-gender play and way,
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03:17
and, in fact, there are studies that show
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且事實上有許多研究顯示
03:19
that even 80 percent of children who act in that fashion
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只有八成的兒童
在那樣的行為模式下
03:25
will not persist in wanting to be the opposite gender
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於青春期來臨時
不會想再扮演
03:32
at the time when puberty begins.
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其另外一種性別的角色
03:36
But, at the time that puberty begins --
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青春期開始時
03:42
that means between about age 10 to 12 in girls, 12 to 14 in boys --
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約當於女孩在10到12歲間
男孩在12到14歲間
03:49
with breast budding,
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胸部開始發育
03:50
or two to three times' increase in the gonads
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而在生理男性方面: 性腺會成長兩到三倍
03:54
in the case of genetic males,
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03:57
by that particular point,
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在那特定時間點
03:59
the child who says they are in the absolute wrong body
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聲稱自己處在錯誤身體裡的那些孩子
04:05
is almost certain to be transgender
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幾乎可以確定將會是跨性別的
04:09
and is extremely unlikely to change those feelings,
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且改變這樣想法的可能性極小
04:16
no matter how anybody tries reparative therapy
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無論任何人對他做修復療法
04:20
or any other noxious things.
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或其他任何有害的事
04:24
Now, this is relatively rare,
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現在這種情況相對罕見
04:27
so I had relatively little personal experience with this.
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所以我個人經驗也相對較少
04:30
And my experience was more typical,
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而我的經歷較典型
04:33
only because I had an adolescent practice.
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因為我接觸的是青少年治療
04:35
And I saw someone age 24,
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我曾見過一個24歲的人
04:37
genetically female, went through Harvard with three male roommates
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就讀哈佛,基因上是女性
與三位知道它故事的男性室友
04:41
who knew the whole story,
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度過哈佛時光
04:43
a registrar who always listed his name on course lists as a male name,
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總在註冊時
在選課單上填寫男性姓名
並在畢業後尋求我的協助
04:49
and came to me after graduating,
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04:52
saying, "Help me. I know you know a lot of endocrinology."
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他說:幫我。我知道你是內分泌專家
事實上我也的確治癒了很多
04:56
And indeed, I've treated a lot of people who were born without gonads.
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出生時缺乏性腺的人
04:59
This wasn't rocket science.
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這不是什麼難如登天的科學
05:01
But I made a deal with him:
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但我跟他做了個約定:
05:02
"I'll treat you if you teach me."
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如果你教導我,我就治療你
05:05
And so he did.
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他照辦了
而我從照顧
05:09
And what an education I got
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05:10
from taking care of all the members of his support group.
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他的支持小組所有成員中
真的學到了很多
05:15
And then I got really confused,
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我當時十分困惑
因我當時認為在那種年紀
05:18
because I thought it was relatively easy at that age
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05:20
to just give people the hormones
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只要為他們施打 想成為的性別的賀爾蒙
05:22
of the gender in which they were affirming.
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事情就能簡單解決
05:26
But then my patient married,
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但接下來我的病患結婚了
05:29
and he married a woman who had been born as a male,
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他與一個女人結合
而她出生時是生理男性
05:34
had married as a male, had two children,
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曾以男性的身分結婚,育有兩個孩子
05:37
then went through a transition into female.
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之後才轉為女性
05:43
And now this delightful female
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現在這快樂做自己的女性
05:48
was attached to my male patient -- in fact, got legally married,
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與我的男性病患結合了
實際上是合法結婚了
05:54
because they showed up as a man and a woman, and who knew, right?
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因為他們看起來是一男一女,誰又看得出來呢?
你說是吧?(笑聲)
05:57
(Laughter)
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05:59
And I was confused --
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當我正感到困惑:
06:03
"Does this make so-and-so gay?
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這種情況該說是男同性戀呢?
06:05
Does this make so-and-so straight?"
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還是正常呢?
06:07
I was getting sexual orientation confused with gender identity.
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我正是把性傾向
跟性別自我認可搞混了
06:13
And my patient said to me,
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我的病患跟我說:
06:15
"Look, look, look.
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"嘿,聽我說,聽我說。
06:17
If you just think of the following, you'll get it right:
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你只要照我說的去想,就會搞懂了。
06:20
Sexual orientation is who you go to bed with.
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性傾向代表你要同床的對象
性別自我認同就是你赴床上時的身分
06:24
Gender identity is who you go to bed as."
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06:27
(Laughter)
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06:29
And I subsequently learned from the many adults --
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而我接著從許多成年人身上學到--
06:32
I took care of about 200 adults --
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我曾照顧了約200個成年人--
我學到了
06:35
I learned from them
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06:36
that if I didn't peek as to who their partner was in the waiting room,
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如果我不看或偷瞄
他們在等待室裡的伴侶的話
06:41
I would never be able to guess better than chance,
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我永遠也沒法猜到--
單純用機率都比我準--
06:45
whether they were gay, straight, bi or asexual
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他們會是男同、直、女同
或是無性者
06:49
in their affirmed gender.
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06:51
In other words,
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換句話說
06:52
one thing has absolutely nothing to do with the other.
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許多事情之間
是沒有絕對的關聯的
06:57
And the data show it.
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而資料也如此顯示
現在,當我照顧這200個成年人
07:02
Now, as I took care of the 200 adults,
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07:04
I found it extremely painful.
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我發現這極度令人傷痛
07:06
These people -- many of them --
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這些人們
07:09
had to give up so much of their lives.
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大多必須放棄自己的人生
他們有時會被父母給否定
07:14
Sometimes their parents would reject them,
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07:16
siblings, their own children,
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被手足、自己的子女拒絕
07:18
and then their divorcing spouse
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與他們離婚的配偶
07:20
would forbid them from seeing their children.
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也會禁止他們與孩子見面
07:24
It was so awful,
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結果如此悲慘
07:26
but why did they do it at 40 and 50?
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他們為何要在四、五十歲時這麼做?
07:30
Because they felt they had to affirm themselves
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因為他們覺得有必要在自殺之前
確認自己的性別
07:35
before they would kill themselves.
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07:37
And indeed, the rate of suicide among untreated transgendered people
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而的確,
未受治療的跨性別者的自殺率
07:43
is among the highest in the world.
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在世上是數一數二的高
所以該怎麼辦?
07:47
So, what to do?
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07:49
I was intrigued, in going to a conference in Holland,
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我曾被一個研討會給吸引去
07:52
where they are experts in this,
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在荷蘭,那兒有許多專家
並見識了許多令人印象深刻的事
07:55
and saw the most remarkable thing.
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07:58
They were treating young adolescents
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他們治療的是年輕的青少年
08:01
after giving them the most intense psychometric testing of gender,
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先給予最密集的心理測試
以鑑定性別
08:07
and they were treating them by blocking the puberty that they didn't want.
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再用阻擋他們不想要的青春期
來治療他們
因為基本上,無論哪個性別
08:12
Because basically, kids look about the same,
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08:14
each sex, until they go through puberty,
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孩子們在經歷青少年時期之前看起來都一樣
08:17
at which point, if you feel you're in the wrong sex,
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在青少年時期若認為自己性別錯了
08:20
you feel like Pinocchio becoming a donkey.
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感覺就像自己是一個正變成驢子的皮諾丘
08:23
The fantasy that you had that your body will change
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認為自己身體會隨著青春期而改變
08:26
to be who you want it to be, with puberty,
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成為自己想要的樣子的幻想
08:28
actually is nullified by the puberty you get.
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實際上正是被自己 所成為的青少年給毀滅
08:33
And they fall apart.
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而他們也因此崩潰了
所以這就是為什麼要先保留這些青少年--
08:37
So that's why putting the puberty on hold -- why on hold?
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為什麼是保留? 因為你不能 在他們這麼年輕的時候
08:40
You can't just give them the opposite hormones that young.
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就給他們相反性別的賀爾蒙
08:43
They'll end up stunted in growth,
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因為那會使他們發育不良
08:45
and you think you can have a meaningful conversation
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而你覺得你和一個十歲女孩或十二歲男孩
08:48
about the fertility effects of such treatment
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在這種療程會造成的生殖能力影響上
08:50
with a 10-year-old girl, a 12-year-old boy?
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能有什麼有意義的對話嗎
08:54
So this buys time in the diagnostic process
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這種情況下
能夠爭取四到五年的診斷時間
08:57
for four or five years,
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所以那些青少年可以有機會克服
08:59
so that they can work it out.
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09:01
They can have more and more testing,
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可以做更多檢測
09:04
they can live without feeling their bodies are running away from them.
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可以好好活著,而不會感到自己的身體
正離自己而去
09:08
And then, in a program they call 12-16-18,
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而接著,在一個叫做12-16-18的計畫中
09:12
around age 12 is when they give the blocking hormones,
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十二歲左右給予阻擋青春期的賀爾蒙
09:17
and then at age 16, with retesting,
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在十六歲時再度測試時
09:19
they re-qualify to receive --
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他們必須能夠符合
現在注意,那些賀爾蒙是可逆的
09:22
now remember, the blocking hormones are reversible,
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09:25
but when you give the hormones of the opposite sex,
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但只要給予相反性別的賀爾蒙
09:28
you now start spouting breasts and facial hair and voice change,
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他們就能開始長出胸部和臉毛
而聲音決定於你要使用什麼
09:31
depending on what you're using,
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且那些效應是永久的
09:33
and those effects are permanent,
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09:35
or require surgery to remove,
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或需要手術去移除
09:37
or electrolysis,
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或電離法
09:38
and you can never really affect the voice.
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且你其實沒法真的改變聲音
所以這很嚴肅,而且這跟著你有15、16年久了
09:41
So this is serious, and this is 15-, 16-year-old stuff.
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09:45
And then at 18, they're eligible for surgery.
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接著到18歲,他們能夠接受手術了
09:48
And while there's no good surgery for females to males genitally,
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雖然女轉男的生殖器 改變手術無法盡善盡美
09:52
the male-to-female surgery has fooled gynecologists.
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男轉女的手術卻能騙過婦產科醫師
09:57
That's how good it can be.
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你看看它有多完善
10:00
So I looked at how the patients were doing,
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所以我觀察病患的改善情況
也觀察病患順利融入人群,與別人並無二致
10:04
and I looked at patients who just looked like everybody else,
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10:06
except they were pubertally delayed.
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除了他們青春期有被延遲之外
10:09
But once they gave them the hormones
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一旦給了與他們所認同的性別
10:11
consistent with the gender they affirm,
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相符合的賀爾蒙
他們會變得美麗
10:14
they look beautiful.
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看起來正常,有著正常的身高
10:16
They look normal.
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10:18
They had normal heights.
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10:19
You would never be able to pick them out in a crowd.
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你永遠無法在人群中
挑出他們來
10:24
So at that point, I decided I'm going to do this.
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在那時刻,我決定自己也要往這方面去做
這就是我踏入
10:27
This is really where the pediatric endocrine realm comes in,
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小兒科內分泌領域的時候
10:31
because, in fact, if you're going to deal with it in kids aged 10 to 14,
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因為事實上
假如你要治療10-12或10-14歲的孩子
10:36
that's pediatric endocrinology.
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那就該是小兒科內分泌學啦
10:39
So I brought some kids in,
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所以我引入了一些孩子
10:43
and this now became the standard of care,
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而這現在成了照護的標準
有兒童醫院在後面支援
10:46
and the [Boston] Children's Hospital was behind it.
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10:48
By my showing them the kids before and after,
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展示了這些孩子的前後樣貌後
10:53
people who never got treated and people who wished to be treated,
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從未受治療的人們
想接受治療的人們
10:56
and pictures of the Dutch --
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以及荷蘭人
11:00
they came to me and said,
185
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都來找我並說:
11:01
"You've got to do something for these kids."
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"你必須為這些孩子做點事"
11:03
Well, where were these kids before?
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那麼,之前這些孩子們在哪?
11:06
They were out there suffering, is where they were.
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他們在那兒承受痛苦
11:09
So we started a program in 2007.
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所以我們在2007年開始了一個計劃
它成為這類型中的第一個計劃--
11:16
It became the first program of its kind --
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2396
11:18
but it's really of the Dutch kind --
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但它其實是之前說的荷蘭方法--
11:20
in North America.
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不過是在北美洲實行
11:22
And since then, we have 160 patients.
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自那時起,我們有了160個病患
11:27
Did they come from Afghanistan? No.
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他們來自阿富汗嗎?不。
11:30
75 percent of them came from within 150 miles of Boston.
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他們其中有百分之七十五
來自距波士頓150哩以內的地方
11:38
And some came from England.
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而有些人來自英格蘭
11:42
Jackie had been abused in the Midlands, in England.
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傑琪曾在英格蘭的米德蘭茲被虐
那時她十二歲
11:46
She's 12 years old there,
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以女孩的身分過活
11:48
she was living as a girl,
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11:49
but she was being beaten up.
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但一直受到毒打
11:51
It was a horror show, they had to homeschool her.
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那情形慘不忍睹
他們得讓她在家自學
11:54
And the reason the British were coming
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2344
這些英國人會來求助的原因是
11:57
was because they would not treat anybody with anything under age 16,
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在英國任何未滿16歲的人
都不能接受治療
12:02
which means they were consigning them to an adult body
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3713
等同於無論多可怕的事會發生
他們都會被交付一個成年的身軀
12:06
no matter what happened,
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1459
12:07
even if they tested them well.
206
727961
1576
就算已經做過良好的檢驗了
在這情況下
12:10
Jackie, on top of it, was, by virtue of skeletal markings,
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4678
傑琪雖在骨骼測量中
12:14
destined to be six feet five.
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被預測能長到約195公分
但她才剛開始進入
12:19
And yet, she had just begun a male puberty.
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2904
男性的青春期
12:22
Well, I did something a little bit innovative,
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3575
我做了件有點創新的事
12:26
because I do know hormones,
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2098
因為我的確了解賀爾蒙
12:28
and that estrogen is much more potent
212
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1938
知道雌激素在關閉骨端生長板
12:30
in closing epiphyses, the growth plates,
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3790
是很有能力的
12:34
and stopping growth, than testosterone is.
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3293
比睪固酮更能停止成長發育
12:37
So we blocked her testosterone with a blocking hormone,
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所以我們使用了賀爾蒙
去阻斷她的睪固酮
12:42
but we added estrogen, not at 16, but at 13.
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並在13而非16歲時為她施打雌激素
12:46
And so here she is at 16, on the left.
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左邊這個就是她16歲時的樣子
12:50
And on her 16th birthday, she went to Thailand,
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在她16歲生日,她去了泰國
12:52
where they would do a genital plastic surgery.
219
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2278
去做生殖器整形手術
12:54
They will do it at 18 now.
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1876
現在他們是在18歲時做
12:56
And she ended up 5'11".
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2040
結果她只長了約180公分
12:59
But more than that, she has normal breast size,
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3223
更棒的是,她擁有正常的胸部大小
13:02
because by blocking testosterone,
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2288
因為藉由阻斷睪固酮
13:04
every one of our patients has normal breast size
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3354
我們的每個病患
都能有正常胸部大小
13:08
if they get to us at the appropriate age,
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3010
只要他們及早在適當年齡來找我們
13:11
not too late.
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1151
而在最右邊,也是她
13:13
And on the far right, there she is.
227
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1759
13:14
She went public -- semifinalist in the Miss England competition.
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3825
她公開參加英國小姐選美
進入準決賽
評審們互相辯論,他們該怎麼做
13:21
The judges debated as to, can they do this?
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13:24
And one of them quipped, I'm told,
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4151
他們能不能讓她進入決賽
據我所知,其中有一人諷刺道:
13:28
"But she has more natural self than half the other contestants."
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3966
"但她比起其他參賽者的一半
擁有更多的自然的自我"
13:32
(Laughter)
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(笑聲)
13:34
And some of them have been rearranged a little bit,
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4247
雖然其中有些部分被重新排列更動
13:38
but it's all her DNA.
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2084
但畢竟全是她的DNA啊
13:41
And she's become a remarkable spokeswoman.
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接著她成為一個令人印象深刻的發言人
並得到模特兒的合約
13:45
And she was offered contracts as a model,
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3861
當時她開玩笑說:
13:49
at which point she teased me, when she said,
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2125
"你知道的,要是你當時讓我長到185,
13:51
"You know, I might have had a better chance as a model
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2545
現在我就有更好的條件可以當模特兒"
13:53
if you'd made me six feet one."
239
833724
1708
13:55
(Laughter)
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835456
1980
天知道(笑聲)
13:57
Go figure.
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837460
1151
14:00
So this picture, I think, says it all.
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840038
2928
所以這張照片,我想,解釋了一切
14:03
It really says it all.
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1341
真的解釋了一切
14:05
These are Nicole and brother Jonas,
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3624
他們是尼蔻和她兄弟,瓊納斯
14:09
identical twin boys,
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849408
1939
同卵雙生男孩
14:12
and proven to be identical.
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852427
1504
經過證實的
但尼蔻早在三歲時
14:15
Nicole had affirmed herself as a girl as early as age three.
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3594
就確定自己是女的
14:19
At age seven, they changed her name,
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2507
七歲時,他們改了她的名
並在剛進入青春期時
14:22
and came to me at the very beginnings of a male puberty.
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862127
4444
來找我求診
14:26
Now you can imagine looking at Jonas at only 14,
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2784
現在你們看著14歲的瓊納斯
可以想像在他家族裡
14:29
that male puberty is early in this family,
251
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2787
青春期很早開始
14:32
because he looks more like a 16-year-old.
252
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2039
因為他看起來比較像16歲了
但這只是再次強調了
14:35
But it makes the point all the more,
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1810
14:36
of why you have to be conscious of where the patient is.
254
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3285
為什麼你應該更加留意
病人的年齡狀況
14:40
Nicole is on pubertal blockade in here,
255
880665
2706
尼蔻當時就做了中斷青春期的措施
14:44
and Jonas is just going -- biologic control.
256
884451
3111
而瓊納斯只有做生理控制
14:48
This is what Nicole would look like
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1697
假如我們不做任何事
14:49
if we weren't doing what we were doing.
258
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2057
他是尼蔻會變成的樣子
14:51
He's got a prominent Adam's apple.
259
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2467
他有一個明顯的喉結
14:54
He's got angular bones to the face, a mustache,
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3557
臉骨有稜有角,有鬍鬚
且你也看得出有身高差距
14:58
and you can see there's a height difference,
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2063
因為他經歷了青春期成長
15:00
because he's gone through a growth spurt that she won't get.
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2879
而她沒有
現在尼蔻正使用雌激素
15:03
Now Nicole is on estrogen.
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1517
15:04
She has a bit of a form to her.
264
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2467
很有成效
15:07
This family went to the White House last spring,
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3615
這個家族去年春天去了白宮
15:11
because of their work in overturning an anti-discrimination --
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5739
因為他們的成就
也就是翻轉了歧視
15:17
there was a bill that would block
267
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2382
在緬因州曾有一個法條
15:19
the right of transgender people in Maine to use public bathrooms,
268
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4603
禁止跨性別的人
使用公廁
15:24
and it looked like the bill was going to pass,
269
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2745
這法條一度很有機會通過
15:27
and that would have been a problem,
270
927091
1707
將造成一大麻煩
15:28
but Nicole went personally to every legislator in Maine
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3477
但尼蔻個人拜訪了緬因州每個議員
15:32
and said, "I can do this.
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1988
並說:"我能做到。
15:34
If they see me, they'll understand
273
934335
1992
如果他們看到了我
15:36
why I'm no threat in the ladies' room,
274
936351
2146
他們就會了解為什麼我在女廁不會構成任何威脅
15:38
but I can be threatened in the men's room."
275
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2082
而會在男廁受到威脅。"
15:40
And then they finally got it.
276
940627
1499
而他們最終真的懂了
所以我們究竟能到達怎樣的目標呢?
15:44
So where do we go from here?
277
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1675
15:47
Well, we still have a ways to go in terms of anti-discrimination.
278
947022
4069
我敢說在反歧視方面
還有一段很長的路要走
15:51
There are only 17 states that have an anti-discrimination law
279
951115
3667
只有17個州
擁有反歧視法律
15:54
against discrimination in housing,
280
954806
2576
避免在居住、
15:57
employment, public accommodation --
281
957406
3092
工作、公共場所可能出現的各種歧視
16:00
only 17 states, and five of them are in New England.
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2988
只有17州,其中五個在新英格蘭
16:03
We need less expensive drugs.
283
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1901
我們還需要不那麼昂貴的藥
16:05
They cost a fortune.
284
965459
1387
藥物是一筆很大的花費
且我們需要把這情況
16:07
And we need to get this condition out of the DSM.
285
967164
3893
帶出《精神疾病診斷與統計手冊》
16:11
It is as much a psychiatric disease as being gay and lesbian,
286
971081
4700
這是精神疾病
不單單是男同志或女同志的問題
16:15
and that went out the window in 1973,
287
975805
2919
它在1973年就走了樣
16:18
and the whole world changed.
288
978748
1504
使得全世界都改變
16:20
And this isn't going to break anybody's budget.
289
980649
2345
而這不會超出任何人的預算
因為這問題沒有那麼普遍
16:23
This is not that common.
290
983018
1467
16:25
But the risks of not doing anything for them
291
985279
3381
但不為他們做任何事的風險
不只是讓他們
16:30
not only puts all of them at risk of losing their lives to suicide,
292
990005
6472
處於自殺的危險中
16:36
but it also says something about whether we are a truly inclusive society.
293
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6252
也是考驗著我們這社會
究竟是不是真正有包容性
16:42
Thank you.
294
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1151
謝謝
16:43
(Applause)
295
1003952
3976
(掌聲)
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