Leana Wen: What your doctor won’t disclose

610,243 views ・ 2014-11-13

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Translator: Petra Aquamarine Reviewer: Linda Magáthová
00:13
They told me that I'm a traitor to my own profession,
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Povedali, že som zradila svoje povolanie,
00:17
that I should be fired,
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že by ma mali vyhodiť,
00:19
have my medical license taken away,
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zobrať mi licenciu,
00:21
that I should go back to my own country.
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že by som sa mala vrátiť, odkiaľ som prišla.
00:26
My email got hacked.
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Hackli môj e-mail.
00:28
In a discussion forum for other doctors,
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V jednom fóre pre lekárov
00:31
someone took credit for "Twitter-bombing" my account.
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sa niekto pochválil, že „bombarduje“ môj twitter.
00:35
Now, I didn't know if this was a good or bad thing,
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Nebolo mi celkom jasné, či je to dobre alebo zle,
00:38
but then came the response:
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ale potom prišla odpoveď:
00:40
"Too bad it wasn't a real bomb."
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„Škoda, že to neboli reálne bomby.“
00:44
I never thought that I would do something
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Nikdy by som si nepomyslela,
00:46
that would provoke this level of anger among other doctors.
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že niečím spôsobím toľko hnevu medzi lekármi.
00:50
Becoming a doctor was my dream.
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Stať sa lekárkou bol môj sen.
00:52
I grew up in China,
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Vyrastala som v Číne
00:53
and my earliest memories are of being rushed to the hospital
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a moje prvé spomienky sú na prevoz do nemocnice,
00:57
because I had such bad asthma that I was there nearly every week.
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kde som bola skoro každý týždeň kvôli ťažkej astme.
01:01
I had this one doctor, Dr. Sam, who always took care of me.
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Starala sa tam o mňa pani doktorka Sam.
01:04
She was about the same age as my mother.
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Bola vo veku mojej mamy.
01:06
She had this wild, curly hair,
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Mala veľké kučeravé vlasy
01:08
and she always wore these bright yellow flowery dresses.
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a nosievala žlté kvietkované šaty.
01:12
She was one of those doctors who,
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Bola z tých lekárov,
01:13
if you fell and you broke your arm,
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ktorí, keď si zlomíte ruku,
01:16
she would ask you why you weren't laughing
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spýtajú sa, prečo sa nesmejete,
01:18
because it's your humerus. Get it?
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veď ide o váš humerus. Chápete.
01:22
See, you'd groan,
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Takže stonáte,
01:24
but she'd always make you feel better after having seen her.
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ale po jej návšteve je vám vždy lepšie.
01:27
Well, we all have that childhood hero
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Každý máme svojho hrdinu z detstva,
01:29
that we want to grow up to be just like, right?
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a chceme byť ako on, keď vyrastieme, nie?
01:32
Well, I wanted to be just like Dr. Sam.
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Ja som chcela byť ako doktorka Sam.
01:35
When I was eight, my parents and I moved to the U.S.,
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Keď som mala osem rokov, presťahovali sme sa s rodičmi do USA
01:39
and ours became the typical immigrant narrative.
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a stali sme sa typickými prisťahovalcami.
01:41
My parents cleaned hotel rooms and washed dishes and pumped gas
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Moji rodičia upratovali v hoteloch, umývali riad a robili na pumpe,
01:46
so that I could pursue my dream.
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aby som ja mohla ísť za svojím snom.
01:49
Well, eventually I learned enough English,
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Naučila som sa po anglicky
01:51
and my parents were so happy
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a naši boli strašne šťastní,
01:53
the day that I got into medical school and took my oath of healing and service.
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keď ma vzali na medicínu a zložila som lekársku prísahu.
01:58
But then one day, everything changed.
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Jedného dňa sa všetko zmenilo.
02:01
My mother called me to tell me that she wasn't feeling well,
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Volala mi mama, že sa necíti dobre,
02:04
she had a cough that wouldn't go away, she was short of breath and tired.
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neutíšiteľný kašeľ, únava a nemohla sa nadýchnuť.
02:07
Well, I knew that my mother was someone who never complained about anything.
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Vedela som, že mama je z tých, čo sa nikdy nesťažujú.
02:11
For her to tell me that something was the matter,
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Keď už s niečím prišla,
bolo jasné, že je to vážne.
02:14
I knew something had to be really wrong.
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02:16
And it was:
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A bolo.
02:17
We found out that she had stage IV breast cancer,
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Zistili sme že má rakovinu prsníka v pokročilom štádiu,
02:20
cancer that by then had spread to her lungs, her bones, and her brain.
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metastázy na pľúcach, kostiach a mozgu.
02:26
My mother was brave, though, and she had hope.
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Bola statočná a nezúfala si.
02:28
She went through surgery and radiation,
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Podstúpila operáciu a ožarovanie
02:30
and was on her third round of chemotherapy
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a práve prechádzala tretím kolom chemoterapie,
02:32
when she lost her address book.
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keď stratila svoj notes.
02:34
She tried to look up her oncologist's phone number on the Internet
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Skúsila nájsť číslo na svojho onkológa na internete,
02:37
and she found it, but she found something else too.
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čo sa jej podarilo, ale našla aj niečo iné.
02:40
On several websites,
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Na rôznych stránkach
02:41
he was listed as a highly paid speaker to a drug company,
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sa písalo, že je platený farmaceutickou firmou,
02:45
and in fact often spoke on behalf
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aby propagoval
02:47
of the same chemo regimen that he had prescribed her.
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práve takú chemoliečbu, ktorú predpísal aj mame.
02:50
She called me in a panic,
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Volala mi v panike
02:52
and I didn't know what to believe.
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a ja som nevedela, čomu veriť.
02:54
Maybe this was the right chemo regimen for her,
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Možno to bola pre ňu vhodná liečba,
02:56
but maybe it wasn't.
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ale možno nie.
02:58
It made her scared and it made her doubt.
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Bola vystrašená a na pochybách.
03:01
When it comes to medicine,
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Čo sa týka liečenia,
03:03
having that trust is a must,
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dôvera je nevyhnutná
03:06
and when that trust is gone, then all that's left is fear.
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a keď sa stratí, zostane len strach.
03:11
There's another side to this fear.
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Tento strach má aj ďalšiu stránku.
03:13
As a medical student, I was taking care of this 19-year-old
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Ešte ako študentka som zažila prípad 19-ročného chalana,
03:17
who was biking back to his dorm
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ktorý sa vracal
03:18
when he got struck and hit,
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na bicykli na intrák,
03:20
run over by an SUV.
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keď ho zrazilo SUV.
03:23
He had seven broken ribs,
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Mal zlomených sedem rebier,
03:24
shattered hip bones,
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roztrieštenú panvu
03:26
and he was bleeding inside his belly and inside his brain.
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a vnútorné krvácanie do brucha a do mozgu.
03:29
Now, imagine being his parents
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Predstavte si jeho rodičov,
03:31
who flew in from Seattle, 2,000 miles away,
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ktorí prileteli 3 000 km zo Seattlu
03:33
to find their son in a coma.
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a našli svojho syna v kóme.
03:35
I mean, you'd want to find out what's going on with him, right?
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Asi by ste chceli vedieť, čo s ním je, nie?
03:38
They asked to attend our bedside rounds
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Chceli byť prítomní pri vizite,
03:40
where we discussed his condition and his plan,
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kde sme preberali jeho stav a možnosti,
03:42
which I thought was a reasonable request,
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čo mi prišlo pochopiteľné
03:44
and also would give us a chance to show them
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a tiež sme im mohli ukázať,
03:46
how much we were trying and how much we cared.
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ako sa snažíme pomôcť mu.
03:49
The head doctor, though, said no.
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Hlavný lekár ale povedal nie.
03:52
He gave all kinds of reasons.
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Pre všetky možné dôvody.
03:53
Maybe they'll get in the nurse's way.
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Aby nezavadzali sestrám.
03:55
Maybe they'll stop students from asking questions.
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Aby sa študenti nebáli pýtať.
03:59
He even said,
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Dokonca povedal:
04:01
"What if they see mistakes and sue us?"
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„Čo keď nás budú žalovať pre nejaké chyby?“
04:05
What I saw behind every excuse was deep fear,
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Za každou výhovorkou som videla jeho strach
04:08
and what I learned was that to become a doctor,
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a naučila som sa, že byť lekárom znamená
04:11
we have to put on our white coats,
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obliecť si plášť,
04:13
put up a wall, and hide behind it.
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vytvoriť múr a skryť za zaň.
04:17
There's a hidden epidemic in medicine.
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V medicíne je jedna skrytá epidémia.
04:20
Of course, patients are scared when they come to the doctor.
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Jasné, že pacient sa bojí, keď ide k lekárovi.
04:23
Imagine you wake up with this terrible bellyache,
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Predstavte si, že sa zobudíte s hroznou bolesťou brucha,
04:25
you go to the hospital,
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idete do nemocnice,
04:26
you're lying in this strange place, you're on this hospital gurney,
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ležíte v tej divnej budove, na kolieskovom lôžku,
04:29
you're wearing this flimsy gown,
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v tenučkej nemocničnej blúze,
04:31
strangers are coming to poke and prod at you.
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cudzí ľudia chodia do vás šťuchať.
04:33
You don't know what's going to happen.
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Neviete, čo bude.
04:35
You don't even know if you're going to get the blanket you asked for 30 minutes ago.
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Neviete ani, či dostanete tú deku, o ktorú ste žiadali pred pol hodinou.
04:39
But it's not just patients who are scared;
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Ale nielen pacienti majú strach,
04:41
doctors are scared too.
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lekári sa boja tiež.
04:43
We're scared of patients finding out who we are
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Bojíme sa, že pacienti zistia, kto sme
04:46
and what medicine is all about.
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a o čom je celá medicína.
04:48
And so what do we do?
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Takže robíme čo?
04:50
We put on our white coats and we hide behind them.
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Dáme si tie plášte a skryjeme sa za nimi.
04:53
Of course, the more we hide,
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Jasné, že čím viac sa skrývame,
04:54
the more people want to know what it is that we're hiding.
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tým viac chcú ľudia vedieť, čo skrývame.
04:57
The more fear then spirals into mistrust and poor medical care.
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Výsledkom tejto špirály nedôvery je potom slabá lekárska starostlivosť.
05:01
We don't just have a fear of sickness,
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Nemáme len strach z choroby,
05:03
we have a sickness of fear.
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sme chorí strachom.
05:07
Can we bridge this disconnect
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Môžeme premostiť túto medzeru
05:09
between what patients need and what doctors do?
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medzi potrebami pacientov a konaním lekárov?
05:13
Can we overcome the sickness of fear?
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Prekonať našu chorobu zo strachu?
05:15
Let me ask you differently:
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Spýtam sa inak:
05:17
If hiding isn't the answer, what if we did the opposite?
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Skrývanie nepomáha, čo keby sme to skúsili opačne?
05:21
What if doctors were to become totally transparent with their patients?
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Čo keby sa lekári voči pacientom totálne otvorili?
05:26
Last fall, I conducted a research study to find out
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Vlani na jeseň som viedla výskum, ktorý zisťoval,
05:29
what it is that people want to know about their healthcare.
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čo chcú ľudia vedieť o svojej zdravotnej starostlivosti.
05:32
I didn't just want to study patients in a hospital,
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Pýtali sme sa nielen pacientov v nemocnici,
05:34
but everyday people.
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ale aj obyčajných ľudí.
05:35
So my two medical students, Suhavi Tucker and Laura Johns,
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Dvaja z mojich študentov - medikov, Suhavi Tucker a Laura Johns,
05:39
literally took their research to the streets.
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vyšli s naším výskumom do ulíc.
05:41
They went to banks, coffee shops, senior centers,
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Do bánk, kaviarní, domovov dôchodcov,
05:45
Chinese restaurants and train stations.
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čínskych reštaurácií, na vlakové stanice.
05:49
What did they find?
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Čo zistili?
05:50
Well, when we asked people,
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Na otázku
05:51
"What do you want to know about your healthcare?"
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„Čo chcete vedieť o vašej zdravotnej starostlivosti?“
05:54
people responded with what they want to know about their doctors,
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ľudia odpovedali tým, čo chcú vedieť o svojich lekároch,
05:58
because people understand health care
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lebo chápu zdravotnú starostlivosť
05:59
to be the individual interaction between them and their doctors.
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ako individuálnu interakciu medzi nimi a lekárom.
06:03
When we asked, "What do you want to know about your doctors?"
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Tak sme sa pýtali: „Čo chcete vedieť o vašich lekároch?“
06:06
people gave three different answers.
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Dostali sme tri odpovede:
06:08
Some want to know that their doctor is competent
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Niektorých zajímalo, či je ich lekár kompetentný
06:11
and certified to practice medicine.
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a má príslušné atestácie.
06:13
Some want to be sure that their doctor is unbiased
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Ďalší sa chceli uistiť, že lekár je nezaujatý
06:16
and is making decisions based on evidence and science,
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a jeho rozhodnutia sú založené na vede
06:19
not on who pays them.
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a nie na tom, kto ho platí.
06:21
Surprisingly to us,
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Prekvapilo nás,
06:23
many people want to know something else about their doctors.
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že mnoho ľudí chce o svojich lekároch vedieť aj čosi iné.
06:26
Jonathan, a 28-year-old law student,
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Jonathan, 28-ročný študent práv,
06:29
says he wants to find someone who is comfortable with LGBTQ patients
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by rád našiel lekára, ktorý nie je zaujatý voči LGBTQ
06:34
and specializes in LGBT health.
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a špecializuje sa na takýchto pacientov.
06:36
Serena, a 32-year-old accountant,
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Pre Serenu, 32-ročnú účtovníčku,
06:38
says that it's important to her for her doctor to share her values
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je dôležité, aby lekár zdieľal jej hodnoty
06:41
when it comes to reproductive choice and women's rights.
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ohľadne práva ženy na reprodukčné rozhodnutia.
06:45
Frank, a 59-year-old hardware store owner,
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Frank, 59-ročný majiteľ železiarstva,
06:47
doesn't even like going to the doctor
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by najradšej k lekárom vôbec nechodil
06:50
and wants to find someone who believes in prevention first,
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a chce nájsť niekoho, kto verí najmä v prevenciu,
06:53
but who is comfortable with alternative treatments.
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ale je otvorený aj alternatívnej liečbe.
06:56
One after another, our respondents told us
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Jeden za druhým nám respondenti odhaľovali,
06:59
that that doctor-patient relationship is a deeply intimate one —
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že vzťah lekár-pacient je veľmi intímny,
07:02
that to show their doctors their bodies
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že skôr než ukážu lekárom svoje telo
07:04
and tell them their deepest secrets,
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a povedia im svoje tajomstvá,
07:06
they want to first understand their doctor's values.
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chcú poznať lekárove hodnoty.
07:09
Just because doctors have to see every patient
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To, že lekár musí prijať každého pacienta,
07:12
doesn't mean that patients have to see every doctor.
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neznamená, že pacient by mal byť spokojný s každým lekárom.
07:15
People want to know about their doctors first
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Pacienti by najprv chceli niečo o lekároch vedieť,
07:17
so that they can make an informed choice.
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aby si mohli medzi nimi vybrať.
07:20
As a result of this, I formed a campaign,
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Na základe toho som spustila kampaň
07:22
Who's My Doctor?
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„Kto je môj doktor?“
07:24
that calls for total transparency in medicine.
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za úplnú transparentnosť v medicíne.
07:27
Participating doctors voluntarily disclose
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Zúčastnení lekári dobrovoľne odhaľujú
07:29
on a public website
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na internetovej stránke
07:30
not just information about where we went to medical school
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nielen informácie o svojom štúdiu
07:33
and what specialty we're in,
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a špecializácii,
07:35
but also our conflicts of interest.
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ale tiež o strete záujmov.
07:36
We go beyond the Government in the Sunshine Act
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Ideme za Zákon o strete záujmov
07:39
about drug company affiliations,
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o príklone k farma-firmám,
07:41
and we talk about how we're paid.
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a hovoríme o tom, ako sme platení.
07:44
Incentives matter.
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Na odmenách záleží.
07:46
If you go to your doctor because of back pain,
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Ak idete k lekárovi s bolesťou chrbta,
07:48
you might want to know he's getting paid 5,000 dollars to perform spine surgery
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radi by ste vedeli, či berie 5 000 dolárov za operáciu
07:52
versus 25 dollars to refer you to see a physical therapist,
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oproti 25 dolárom za to, že vás pošle k fyzioterapeutovi
07:56
or if he's getting paid the same thing no matter what he recommends.
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alebo či zarába nezávisle na tom, čo vám odporučí.
08:00
Then, we go one step further.
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Ideme ešte o krok ďalej.
08:03
We add our values when it comes to women's health,
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Zverejňujeme svoje postoje k ženskému zdraviu,
08:05
LGBT health, alternative medicine,
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LGBT zdraviu, alternatívym metódam,
08:08
preventive health, and end-of-life decisions.
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prevencii a eutanázii.
08:11
We pledge to our patients that we are here to serve you,
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Ako lekári sme sľúbili pacientom, že vám budeme slúžiť,
08:14
so you have a right to know who we are.
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takže máte právo vedieť, kto sme.
08:17
We believe that transparency can be the cure for fear.
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Veríme, že transparentnosť môže vyliečiť ten strach.
08:21
I thought some doctors would sign on and others wouldn't,
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Čakala som, že niektorí lekári do toho pôjdu a iní nie,
08:24
but I had no idea of the huge backlash that would ensue.
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ale netušila som, akú reakciu to vyvolá.
08:29
Within one week of starting Who's My Doctor?
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Za týždeň od spustenia „Kto je môj doktor?“
08:31
Medscape's public forum
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pribudli na fóre Medscape
08:33
and several online doctors' communities
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a ďalších lekárskych weboch
08:35
had thousands of posts about this topic.
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tisíce postov na túto tému.
08:39
Here are a few.
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Tu je pár z nich.
08:40
From a gastroenterologist in Portland:
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Gastroenterológ z Portlandu:
08:42
"I devoted 12 years of my life to being a slave.
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„12 rokov som otrokom.
08:45
I have loans and mortgages.
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1947
Mám pôžičky a hypotéky.
08:47
I depend on lunches from drug companies to serve patients."
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Som závislý na obedoch od farma-firiem, aby som mohol slúžiť pacientom.“
08:51
Well, times may be hard for everyone,
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OK, časy sú ťažké pre všetkých,
08:54
but try telling your patient
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ale skúste povedať pacientovi,
08:55
making 35,000 dollars a year to serve a family of four
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3014
ktorý s príjmom 35 000 dolárov ročne živí štvorčlennú rodinu,
08:58
that you need the free lunch.
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že vy potrebujete obedy zadarmo.
09:02
From an orthopedic surgeon in Charlotte:
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Ortopéd z Charlotte:
09:05
"I find it an invasion of my privacy to disclose where my income comes from.
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„Zverejnenie zdrojov mojich príjmov považujem za zásah do súkromia.
09:09
My patients don't disclose their incomes to me."
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Pacienti mi neodhaľujú svoje príjmy.“
09:13
But your patients' sources of income don't affect your health.
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Ale pacientove zdroje príjmu nemajú vplyv na vaše zdravie.
09:17
From a psychiatrist in New York City:
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Psychiater z New Yorku:
09:19
"Pretty soon we will have to disclose whether we prefer cats to dogs,
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„Čoskoro budeme nútení rozhlasovať, či máme radšej psy či mačky,
09:23
what model of car we drive,
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aké máme auto
09:24
and what toilet paper we use."
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a aký používame toaleťák.“
09:27
Well, how you feel about Toyotas or Cottonelle
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Či máte radšej Toyoty alebo Cottonellky
09:30
won't affect your patients' health,
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neovplyvní zdravie vašich pacientov,
09:32
but your views on a woman's right to choose
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2001
ale váš postoj k právu ženy na rozhodnutie,
09:34
and preventive medicine and end-of-life decisions just might.
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k preventívnej medicíne či k eutanázii ho ovplyvniť môže.
09:38
And my favorite, from a Kansas City cardiologist:
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A môj obľúbený, kardiológ z Kansas City:
09:41
"More government-mandated stuff?
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„Ďalšie vládou nariadené sra… ndy?
09:44
Dr. Wen needs to move back to her own country."
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To sa Dr. Wen môže vrátiť do rodnej krajiny.“
09:48
Well, two pieces of good news.
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K tomu mám dve dobré správy.
09:50
First of all, this is meant to be voluntary and not mandatory,
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Celé to má byť dobrovoľné a nie nariadené.
09:53
and second of all, I'm American and I'm already here.
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Po druhé, ja som Američanka a už som tu.
09:57
(Laughter) (Applause)
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(smiech) (potlesk)
10:05
Within a month, my employers were getting calls
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V priebehu mesiaca dostávali moji šéfovia
telefonické žiadosti, aby ma vykopli.
10:08
asking for me to be fired.
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1400
10:10
I received mail at my undisclosed home address
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Na moju nezverejnenú domácu adresu chodila pošta
10:13
with threats to contact the medical board to sanction me.
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s vyhrážkami, že ma udajú lekárskej komisii.
10:17
My friends and family urged me to quit this campaign.
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Priatelia a rodina naliehali, nech s kampaňou skončím.
10:21
After the bomb threat, I was done.
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Po tej hrozbe s bombami som bola hotová.
10:24
But then I heard from patients.
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1942
Ale potom sa ozvali pacienti.
10:26
Over social media, a TweetChat,
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Cez sociálne médiá; TweetChat,
10:29
which I'd learned what that was by then,
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o ktorom som už vedela, čo to je,
10:31
generated 4.3 million impressions,
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priniesol 4,3 miliónu „dojmov“
10:34
and thousands of people wrote to encourage me to continue.
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a tisíce ľudí ma povzbudzovali, aby som pokračovala.
10:38
They wrote with things like,
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Písali veci ako:
10:40
"If doctors are doing something they're that ashamed of,
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„Ak lekári robia niečo, za čo sa tak hanbia,
10:43
they shouldn't be doing it."
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tak by to robiť nemali.“
10:46
"Elected officials have to disclose campaign contributions.
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„Volení činitelia musia priznať príspevky na kampaň,
10:49
Lawyers have to disclose conflicts of interests.
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právnici musia priznať strety záujmov.
10:51
Why shouldn't doctors?"
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Prečo nie lekári?“
10:53
And finally, many people wrote and said,
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A veľa ľudí písalo:
10:56
"Let us patients decide
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„Nech my pacienti rozhodujeme
10:58
what's important when we're choosing a doctor."
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o tom, čo je dôležité pri voľbe lekára.“
11:02
In our initial trial,
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V našej skúšobnej verzii
11:03
over 300 doctors have taken the total transparency pledge.
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sa vyše 300 lekárov zaviazalo k totálnej transparentnosti.
11:08
What a crazy new idea, right?
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K tej šialenej novinke.
11:10
But actually, this is not that new of a concept at all.
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Ale v skutočnosti to nie je taký novátorský koncept.
11:13
Remember Dr. Sam, my doctor in China,
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1792
Pamätáte na moju čínsku doktorku Sam,
11:15
with the goofy jokes and the wild hair?
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s jej vtípkami a divokým három?
11:18
Well, she was my doctor,
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1540
Bola moja lekárka,
11:19
but she was also our neighbor
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ale aj naša suseda,
11:21
who lived in the building across the street.
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2182
bývala oproti cez ulicu.
11:23
I went to the same school as her daughter.
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S jej dcérou sme boli spolužiačky.
11:26
My parents and I trusted her
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Moji rodičia a ja sme jej verili,
11:28
because we knew who she was and what she stood for,
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2396
lebo sme vedeli, kto je a o čo jej ide,
11:30
and she had no need to hide from us.
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nemala potrebu to pred nami skrývať.
11:33
Just one generation ago, this was the norm in the U.S. as well.
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Jednu generáciu dozadu bol toto štandard aj v USA.
11:37
You knew that your family doctor was the father of two teenage boys,
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O vašom rodinnom lekárovi ste vedeli, že má dvoch pubertálnych synov,
11:40
that he quit smoking a few years ago,
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1845
že pred pár rokmi prestal fajčiť,
11:42
that he says he's a regular churchgoer,
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1991
že hovorí, že chodí do kostola,
11:44
but you see him twice a year: once at Easter
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2317
ale vy viete, že len dvakrát ročne: na Veľkú noc
11:46
and once when his mother-in-law comes to town.
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2234
a keď príde do mesta jeho svokra.
11:50
You knew what he was about,
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Vedeli ste, aký je,
11:51
and he had no need to hide from you.
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1777
a on to nepotreboval pred vami skryť.
11:54
But the sickness of fear has taken over,
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2331
Ale choroba strachu nás premohla
11:57
and patients suffer the consequences.
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a doplácajú na to pacienti.
11:59
I know this firsthand.
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1380
Poznám to z prvej ruky.
12:02
My mother fought her cancer for eight years.
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2293
Mama bojovala s rakovinou osem rokov.
12:05
She was a planner,
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1143
Rada plánovala,
12:06
and she thought a lot about how she wanted to live
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2384
veľa premýšľala o tom, ako chce žiť
12:08
and how she wanted to die.
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aj ako chce umrieť.
12:10
Not only did she sign advance directives,
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2571
Napísala poslednú vôľu s presnými inštrukciami
12:13
she wrote a 12-page document about how she had suffered enough,
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aj 12-stranový list o tom, ako už trpela dosť
12:16
how it was time for her to go.
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a že už je čas ísť.
12:19
One day, when I was a resident physician,
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2034
Jedného dňa, to som pracovala v nemocnici,
12:21
I got a call to say that she was in the intensive care unit.
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mi volali, že mamu previezli na ARO.
12:25
By the time I got there, she was about to be intubated
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Keď som prišla, práve sa chystali
12:29
and put on a breathing machine.
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1619
pripojiť ju na dýchací prístroj.
12:31
"But this is not what she wants," I said, "and we have documents."
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3404
„Ale ona toto nechcela,“ vravím, „máme na to papiere.“
12:36
The ICU doctor looked at me in the eye,
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2746
Lekár z ARO sa mi pozrel do očí,
12:38
pointed at my then 16-year-old sister, and said,
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ukázal na moju 16-ročnú sestru a povedal:
12:43
"Do you remember when you were that age?
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„Pamätáš, keď si bola v jej veku?
12:45
How would you have liked to grow up without your mother?"
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2968
Ako by sa ti páčilo vyrastať bez mamy?“
12:49
Her oncologist was there too, and said,
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2631
Bol tam aj jej onkológ, ten povedal:
12:52
"This is your mother.
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1939
„Je to tvoja matka.
12:54
Can you really face yourself for the rest of your life
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2653
Vedela by si sa po zvyšok života pozrieť sebe do očí,
12:56
if you don't do everything for her?"
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keby si pre ňu nespravila všetko?“
13:00
I knew my mother so well.
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Poznala som mamu dokonale.
13:02
I understood what her directives meant so well,
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Dokonale som vedela, čo si priala,
13:05
but I was a physician.
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1440
ale bola som lekárka.
13:09
That was the single hardest decision I ever made,
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4471
Bolo to najťažšie rozhodnutie môjho života,
13:13
to let her die in peace,
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nechať ju v kľude umrieť
13:16
and I carry those words of those doctors with me
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a doteraz si nesiem slová tých doktorov so sebou,
13:19
every single day.
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každý jeden deň.
13:23
We can bridge the disconnect
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Môžeme premostiť tú medzeru
13:25
between what doctors do and what patients need.
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medzi tým, čo robia lekári a čo potrebujú pacienti.
13:30
We can get there, because we've been there before,
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Dostaneme sa tam, lebo sme tam už kedysi boli
13:32
and we know that transparency gets us to that trust.
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a vieme, že transparentnosť nás dovedie k dôvere.
13:35
Research has shown us that openness also helps doctors,
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2765
Výskum ukázal, že otvorenosť pomáha aj lekárom,
13:38
that having open medical records,
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1606
že otvorenie záznamov
13:39
being willing to talk about medical errors,
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2037
a ochota rozprávať o lekárskych omyloch
13:41
will increase patient trust,
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1690
zvýšia dôveru pacientov,
13:43
improve health outcomes,
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1721
zlepšia výsledky liečby
13:45
and reduce malpractice.
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2060
a zredukujú nedbalosť.
13:47
That openness, that trust,
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1480
Tá otvorenosť a dôvera
13:48
is only going to be more important
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1634
je dôležitejšia
13:50
as we move from the infectious to the behavioral model of disease.
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3590
pri behaviorálnom modeli choroby než pri infekčnom modeli.
13:54
Bacteria may not care so much about trust and intimacy,
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3474
Baktériám môže byť dôvera a intimita ukradnutá,
13:57
but for people to tackle the hard lifestyle choices,
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3943
ale keď ide o zmeny životného štýlu,
14:01
to address issues like smoking cessation,
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2298
aby sme dokázali prestať fajčiť,
14:03
blood-pressure management and diabetes control,
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3037
mať pod kontrolou krvný tlak alebo cukrovku,
14:06
well, that requires us to establish trust.
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2730
to vyžaduje dôveru k lekárovi.
14:11
Here's what other transparent doctors have said.
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Toto povedal jeden z transparentných lekárov,
14:13
Brandon Combs, an internist in Denver:
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853873
2917
Brandon Combs, internista z Denveru:
14:16
"This has brought me closer to my patients.
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3013
„Priviedlo ma to bližšie k pacientom.
14:19
The type of relationship I've developed —
307
859803
2699
Ten vzťah, čo sme si vybudovali...
14:22
that's why I entered medicine."
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862547
2015
preto som vlastne šiel na medicínu.“
14:26
Aaron Stupple, an internist in Denver:
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866117
2673
Aaron Stupple, internista z Denveru:
14:28
"I tell my patients that I am totally open with them.
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3496
„Hovorím pacientom, že som k nim totálne úprimný.
14:32
I don't hide anything from them.
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2074
Nič pred nimi neskrývam.
14:34
This is me. Now tell me about you.
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2926
Toto som ja. A teraz mi povedzte o sebe.
14:37
We're in this together."
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2232
Sme v tom spolu.“
14:39
May Nguyen, a family physician in Houston:
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2402
May Nguyen, rodinná lekárka z Houstonu:
14:41
"My colleagues are astounded by what I'm doing.
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4078
„Mojich kolegov šokuje, čo robím.
14:45
They ask me how I could be so brave.
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2586
Pýtajú sa, ako to, že som taká odvážna.
14:48
I said, I'm not being brave,
317
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2888
Hovorím, nie som odvážna,
14:51
it's my job."
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1389
je to moja práca.“
14:55
I leave you today with a final thought.
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2194
Myšlienka na koniec.
14:58
Being totally transparent is scary.
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3304
Byť úplne otvorený je desivé.
15:01
You feel naked, exposed and vulnerable,
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3330
Cítite sa nahý, nechránený a zraniteľný,
15:05
but that vulnerability, that humility,
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3638
ale tá zraniteľnosť a pokora
15:08
it can be an extraordinary benefit to the practice of medicine.
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4516
môže byť jedinečným darom pre lekársku prax.
15:13
When doctors are willing to step off our pedestals,
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2408
Keď budú lekári ochotní zostúpiť z piedestálu,
15:15
take off our white coats,
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1476
vyzliecť biele plášte
15:17
and show our patients who we are and what medicine is all about,
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3381
a ukázať pacientom, kto sme a o čom je medicína,
15:20
that's when we begin to overcome the sickness of fear.
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3265
vtedy začneme prekonávať tú chorobu strachu.
15:23
That's when we establish trust.
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1929
Vtedy sa nastolí dôvera.
15:25
That's when we change the paradigm of medicine
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2460
Vtedy zmeníme lekársku paradigmu
15:28
from one of secrecy and hiding
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1810
z tajností a ukrývania
15:29
to one that is fully open and engaged
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2359
na otvorenosť a angažovanosť
15:32
for our patients.
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1374
pre našich pacientov.
15:35
Thank you.
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1897
Ďakujem.
15:36
(Applause)
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4000
(potlesk)
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