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譯者: Ming Lee
審譯者: Winston Szeto
00:12
As patients,
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身為病人,
00:13
we usually remember
the names of our doctors,
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通常大家只會記住醫生的名字,
00:17
but often we forget
the names of our nurses.
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而常常忘記護士的名字。
00:21
I remember one.
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我就記住了一位。
00:23
I had breast cancer a few years ago,
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幾年前我罹患了乳癌,
00:25
and somehow I managed
to get through the surgeries
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我總算把手術熬過去,
00:28
and the beginning
of the treatment just fine.
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而且治療在開始時還算順利。
00:31
I could hide what was going on.
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我其實可以隱瞞當中發生的事,
00:33
Everybody didn't really have to know.
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沒有必要讓任何人知道。
00:36
I could walk my daughter to school,
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我可以走路陪女兒上學,
00:38
I could go out to dinner with my husband;
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我可以陪丈夫去外面吃晚餐;
00:40
I could fool people.
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我可以欺騙大家。
00:42
But then my chemo was scheduled to begin
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可是我的化療在預定時間開始時,
00:44
and that terrified me
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真的讓我嚇到了,
00:46
because I knew that I was going to lose
every single hair on my body
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因為我知道
我將會失去身上所有的毛髮,
00:51
because of the kind of chemo
that I was going to have.
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這是由於我接受的化療種類造成的。
00:54
I wasn't going to be able
to pretend anymore
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我沒辦法繼續裝作一切如常。
00:56
as though everything was normal.
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00:59
I was scared.
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我當時很害怕。
01:00
I knew what it felt like to have
everybody treating me with kid gloves,
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我懂得那種被所有人
小心翼翼對待的感覺,
01:04
and I just wanted to feel normal.
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而我只希望跟平常一樣。
01:06
I had a port installed in my chest.
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當時我胸口放了一條人工血管。
01:08
I went to my first day of chemotherapy,
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第一天去做化療的時候,
01:11
and I was an emotional wreck.
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我的情緒崩潰了。
01:13
My nurse, Joanne, walked in the door,
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我的護士喬安妮走進房間,
01:16
and every bone in my body was telling
me to get up out of that chair
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我骨子裡只想站起來離開座椅,
01:20
and take for the hills.
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然後逃到山上去。
01:22
But Joanne looked at me and talked
to me like we were old friends.
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但是喬安妮看著我,
把我當成老朋友一樣跟我說話。
01:27
And then she asked me,
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然後她問我:
01:28
"Where'd you get your highlights done?"
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你是在哪裡給頭髮挑染?
01:30
(Laughter)
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(笑聲)
01:31
And I was like, are you kidding me?
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我的反應就像說;你在開玩笑嗎?
01:33
You're going to talk to me about my hair
when I'm on the verge of losing it?
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在我就要喪失頭髮的時候,
你還要談我頭髮的事?
01:38
I was kind of angry,
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當時我有點不高興,
01:40
and I said, "Really? Hair?"
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我回答她說:「沒搞錯吧?頭髮?」
01:43
And with a shrug
of her shoulders she said,
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她聳聳肩膀說:
01:45
"It's gonna grow back."
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「還是會再長回來的。」
01:48
And in that moment she said
the one thing I had overlooked,
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在那一瞬間,她說出了
我之前忽略掉的事,
01:51
and that was that at some point,
my life would get back to normal.
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那就是我的人生
在某一刻會恢復正常。
01:55
She really believed that.
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她真的相信這樣。
01:56
And so I believed it, too.
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於是我也跟著相信了。
01:59
Now, worrying about losing your hair
when you're fighting cancer
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在與癌症奮戰時卻擔心失去頭髮,
最初看起來好像很愚蠢,
02:04
may seem silly at first,
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02:05
but it's not just that you're worried
about how you're going to look.
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但其實這不只關乎擔心外表如何。
02:09
It's that you're worried that everybody's
going to treat you so carefully.
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這關乎擔心每個人都會
很細心地照顧你。
02:14
Joanne made me feel normal
for the first time in six months.
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喬安妮使我在六個月以來
首次感到正常。
02:18
We talked about her boyfriends,
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我們聊她的男朋友,
02:20
we talked about looking
for apartments in New York City,
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討論有關在紐約市尋找公寓的事,
02:22
and we talked about my reaction
to the chemotherapy --
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我們也聊到我對化療的反應,
02:25
all kind of mixed in together.
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甚麼話題都一併去聊。
02:28
And I always wondered,
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我總是想知道,
02:30
how did she so instinctively
know just how to talk to me?
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她怎麼本能地知道怎樣跟我交談?
02:35
Joanne Staha and my admiration for her
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喬安妮.斯塔哈和我對她的景仰,
02:38
marked the beginning of my journey
into the world of nurses.
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使我展開進入護士世界的探索之旅。
02:43
A few years later,
I was asked to do a project
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幾年後,我被要求進行一個計劃,
02:45
that would celebrate
the work that nurses do.
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主題是讚揚護士的工作。
02:48
I started with Joanne,
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我就先從喬安妮着手,
02:50
and I met over 100 nurses
across the country.
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然後我遊走全國
跟 100 多位護士見面。
02:54
I spent five years interviewing,
photographing and filming nurses
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我利用五年的時間,
對護士進行面談,拍照和攝影,
02:59
for a book and a documentary film.
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用來寫書並製作紀錄片。
03:02
With my team,
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我和我的團隊一起
安排橫跨美國的路程,
03:03
we mapped a trip across America
that would take us to places
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去一些正在面臨
龐大公共衞生問題的地方:
03:06
dealing with some of the biggest
public health issues facing our nation --
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03:11
aging, war, poverty, prisons.
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人口老化、戰爭、貧窮、牢獄。
03:16
And then we went places
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然後我們訪問最多病人集中、
處理這些問題的地方。
03:17
where we would find
the largest concentration of patients
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03:21
dealing with those issues.
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03:24
Then we asked hospitals and facilities
to nominate nurses
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然後我們請求醫院和相關單位
提名最能代表他們的護士。
03:28
who would best represent them.
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03:30
One of the first nurses I met
was Bridget Kumbella.
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其中一位我見過面的護士
名叫布莉姬.坎培拉。
03:34
Bridget was born in Cameroon,
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布莉姬出生在喀麥隆,
03:35
the oldest of four children.
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是四個小孩中的老大。
03:38
Her father was at work
when he had fallen from the fourth floor
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她的父親在工作期間從四樓掉下來,
03:42
and really hurt his back.
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背部傷勢嚴重。
03:44
And he talked a lot about what it was like
to be flat on your back
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他提到很多關於臥床、
沒有受到必要護理照顧的那種感覺,
03:48
and not get the kind
of care that you need.
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03:51
And that propelled Bridget
to go into the profession of nursing.
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這驅使布莉姬投身護士專業。
03:55
Now, as a nurse in the Bronx,
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現時她在布朗克斯區當護士,
03:57
she has a really diverse group
of patients that she cares for,
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必須照顧很多不同種類的病人,
04:00
from all walks of life,
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他們來自各行各業,
04:02
and from all different religions.
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也各有不同宗教信仰。
04:05
And she's devoted her career
to understanding the impact
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她全程投入在事業中
以了解文化差異對健康的影響。
04:09
of our cultural differences
when it comes to our health.
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04:14
She spoke of a patient --
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她談到一個病人,
04:15
a Native American patient that she had --
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她的一位美洲原住民病人,
04:18
that wanted to bring
a bunch of feathers into the ICU.
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那位病人
想將大量羽毛帶入加護病房。
04:22
That's how he found spiritual comfort.
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他這樣做才找到精神上的慰藉。
04:25
And she spoke of advocating for him
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她談到曾為他請願,
04:28
and said that patients come
from all different religions
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表示病人各有不同宗教信仰,
04:30
and use all different kinds
of objects for comfort;
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使用各式各樣的物件來獲得慰藉;
04:34
whether it's a holy rosary
or a symbolic feather,
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無論是天主教的玫瑰念珠,
或是具有象徵意義的羽毛。
04:38
it all needs to be supported.
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都需要得到支持。
04:41
This is Jason Short.
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這一位是傑森.秀特。
04:42
Jason is a home health nurse
in the Appalachian mountains,
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傑森在阿巴拉契亞山一帶
擔任家庭保健護士,
04:45
and his dad had a gas station
and a repair shop when he was growing up.
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他年幼時父親經營加油站和修理廠。
04:50
So he worked on cars in the community
that he now serves as a nurse.
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所以他在社區當護士前
是從事汽車修理。
04:55
When he was in college,
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當他在讀大學的時候,
04:56
it was just not macho at all
to become a nurse,
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當護士簡直一點男子氣概也沒有,
05:00
so he avoided it for years.
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所以他抗拒當護士好幾年。
05:02
He drove trucks for a little while,
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他開了一段時間的卡車,
05:04
but his life path was always
pulling him back to nursing.
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但是他的人生路途
總是把他拉回到護士行業。
05:10
As a nurse in the Appalachian mountains,
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作為阿巴拉契亞山地區的
家庭保健護士,
05:12
Jason goes places
that an ambulance can't even get to.
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傑森所到之處
甚至救護車都無法去到。
05:15
In this photograph,
he's standing in what used to be a road.
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在這張照片中,
他站的地方原本是一條馬路。
05:19
Top of the mountain mining
flooded that road,
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因為山頂挖礦,
所以馬路被土石流埋沒了,
05:22
and now the only way
for Jason to get to the patient
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傑森的病人患有肺塵病,
而現在傑森往病人房子的唯一方式,
05:26
living in that house
with black lung disease
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05:28
is to drive his SUV
against the current up that creek.
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就是開着他的越野休旅車
逆著溪流而上。
05:34
The day I was with him,
we ripped the front fender off the car.
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那天我跟他一起,
車子的前擋泥板被掀走。
05:37
The next morning he got up,
put the car on the lift,
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第二天早上他起來後,把車頂高,
05:41
fixed the fender,
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把前擋泥板裝回去,
05:42
and then headed out
to meet his next patient.
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然後出發去看下一位病人。
05:45
I witnessed Jason
caring for this gentleman
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我見證了傑森充滿憐憫地
照顧這位男士,
05:48
with such enormous compassion,
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05:51
and I was struck again by how intimate
the work of nursing really is.
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護士工作的無微不至
再次令我印象深刻。
05:57
When I met Brian McMillion, he was raw.
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跟布萊恩.馬克米里安見面時,
他簡直棒極了。
06:00
He had just come back from a deployment
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他剛完成戰地派駐工作回來,
06:03
and he hadn't really settled back in
to life in San Diego yet.
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在聖地牙哥的生活還未安頓下來。
06:08
He talked about his experience
of being a nurse in Germany
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他談到在德國擔任護士的經驗,
06:11
and taking care of the soldiers
coming right off the battlefield.
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也談到照顧從戰場回來的士兵。
06:15
Very often, he would be
the first person they would see
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他們在醫院睜開眼睛後
看到的第一個人往往就是他。
06:19
when they opened
their eyes in the hospital.
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06:22
And they would look at him
as they were lying there,
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他們躺在病床上肢體不全時望着他,
06:24
missing limbs,
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06:26
and the first thing they would say is,
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然後開口問的第一件事就是:
06:29
"When can I go back?
I left my brothers out there."
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「我甚麼時候可以回去?
我的弟兄還留在那裡。」
06:33
And Brian would have to say,
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然後布萊恩會這麼說:
06:35
"You're not going anywhere.
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「弟兄,你哪裡都不用去。
你已經付出得夠了。」
06:37
You've already given enough, brother."
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06:39
Brian is both a nurse and a soldier
who's seen combat.
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布萊恩身兼護士和親歷戰事的士兵。
06:45
So that puts him in a unique position
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因此他的身分獨特,這讓他可以
在照料退伍軍人時明白並治癒他們。
06:47
to be able to relate to and help heal
the veterans in his care.
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06:53
This is Sister Stephen,
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這一位是史蒂芬修女,
06:54
and she runs a nursing home
in Wisconsin called Villa Loretto.
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她在威斯康辛州經營一家
名為「洛雷托別墅」的護理之家。
06:59
And the entire circle of life
can be found under her roof.
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整個生老病死
都可在她的屋簷下看到。
07:03
She grew up wishing they lived on a farm,
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她年少時一直希望他們住在農場裡,
07:06
so given the opportunity
to adopt local farm animals,
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於是一有收養當地農場動物的機會,
07:10
she enthusiastically brings them in.
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她就熱切地把牠們帶進安養院。
07:13
And in the springtime,
those animals have babies.
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春天時那些動物就會生出崽子。
07:17
And Sister Stephen uses
those baby ducks, goats and lambs
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史蒂芬修女就會利用那些
小鴨、小山羊和小羔羊,
07:22
as animal therapy
for the residents at Villa Loretto
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為洛雷托別墅的住客進行動物療法;
07:26
who sometimes can't
remember their own name,
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那些住客有時連自己名字也記不起,
07:30
but they do rejoice
in the holding of a baby lamb.
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但他們抱著小山羊時確實充滿喜悅。
07:35
The day I was with Sister Stephen,
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那一天我和史蒂芬修女一起時,
07:37
I needed to take her away
from Villa Loretto
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我要把她帶離別墅
去拍攝她的故事的其中一段。
07:39
to film part of her story.
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07:41
And before we left,
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在我們離開之前,
07:42
she went into the room of a dying patient.
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她走進一間垂死病人的房間。
07:45
And she leaned over and she said,
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她靠過去並且說:
07:48
"I have to go away for the day,
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「我今天必須離開一下,
07:51
but if Jesus calls you,
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但是假如耶穌召喚你,
07:53
you go.
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你就去吧。
07:54
You go straight home to Jesus."
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你直接回到耶穌那裡去吧。」
07:57
I was standing there and thinking
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我站在那邊思考,
07:59
it was the first time in my life
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這是我有生以來第一次目睹,
08:01
I witnessed that you could show
someone you love them completely
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原來可以透過放下,
來表達你對某人全心全意的愛。
08:06
by letting go.
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08:07
We don't have to hold on so tightly.
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我們不一定要緊抓著不放。
08:11
I saw more life rolled up at Villa Loretto
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我在洛雷托別墅所見的往生的人
08:14
than I have ever seen at any other time
at any other place in my life.
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比我在任何時間和地方
看到的還要多。
08:21
We live in a complicated time
when it comes to our health care.
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談到保健,我們活在複雜的世代。
08:25
It's easy to lose sight
of the need for quality of life,
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人們重視壽命,
卻容易忽視對生活品質的需求。
08:29
not just quantity of life.
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08:31
As new life-saving
technologies are created,
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當救命科技推陳出新時,
08:35
we're going to have really
complicated decisions to make.
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我們就要作出非常複雜的決定。
08:39
These technologies often save lives,
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這些科技往往能拯救生命,
08:41
but they can also prolong pain
and the dying process.
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但卻同時延長痛楚和垂死的過程。
08:47
How in the world are we supposed
to navigate these waters?
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我們應該如何處理這些難題呢?
08:50
We're going to need
all the help we can get.
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我們必須盡其所能的去尋求協助。
08:53
Nurses have a really unique
relationship with us
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護士和我們的關係相當獨特,
08:57
because of the time spent at bedside.
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原因在於他們守護在床邊的時間。
09:00
During that time,
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在這段時間,
09:01
a kind of emotional intimacy develops.
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一種情感上的微妙關係油然而生。
09:06
This past summer, on August 9,
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在去年夏季八月九日,
09:09
my father died of a heart attack.
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我父親死於心臟病發。
09:12
My mother was devastated,
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我母親深受折磨,
09:14
and she couldn't imagine
her world without him in it.
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她無法想像沒有我父親存在的日子。
09:19
Four days later she fell,
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四天後,她跌倒了,
09:21
she broke her hip,
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臀部髖骨破裂,
09:23
she needed surgery
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需要動手術,
09:24
and she found herself
fighting for her own life.
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發現只能靠自己為生存搏鬥。
09:28
Once again I found myself
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我發現自己再次站在
接受護士照料的一方,
09:30
on the receiving end
of the care of nurses --
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09:33
this time for my mom.
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而這次是為著我的母親。
09:36
My brother and my sister and I
stayed by her side
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我和弟妹在及後三天
留在加護病房守候她。
09:38
for the next three days in the ICU.
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09:41
And as we tried
to make the right decisions
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正當我們嘗試遵從母親的意願
去做出正確的決定時,
09:44
and follow my mother's wishes,
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09:47
we found that we were depending
upon the guidance of nurses.
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我們才發覺
原來一直倚賴護士的指引。
09:52
And once again,
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他們再一次沒讓我們失望。
09:53
they didn't let us down.
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09:56
They had an amazing insight
in terms of how to care for my mom
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他們在母親臨終前四天照料她時
表現出超卓的洞察力。
10:01
in the last four days of her life.
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10:03
They brought her comfort
and relief from pain.
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他們使她舒適自在,為她減輕痛苦。
10:08
They knew to encourage my sister and I
to put a pretty nightgown on my mom,
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他們懂得如何鼓勵我和妹妹
去替母親換上一件漂亮的睡衣;
10:13
long after it mattered to her,
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雖然這對她來說不再重要了,
10:15
but it sure meant a lot to us.
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但對我們來說肯定意義重大。
10:18
And they knew to come and wake me up
just in time for my mom's last breath.
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他們知道在母親呼出最後一口氣前
及時過來喚醒我們。
10:25
And then they knew
how long to leave me in the room
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他們也知道預留多少時間,
讓我留在房間裡陪著剛逝去的母親。
10:27
with my mother after she died.
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10:30
I have no idea how they know these things,
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我無從了解他們如何懂得這些竅門,
10:34
but I do know that I am eternally grateful
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但我肯定知道
自己永遠感激她們再次給我指引。
10:37
that they've guided me once again.
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10:40
Thank you so very much.
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非常感謝大家。
10:42
(Applause)
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(掌聲)
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