Talk about your death while you're still healthy | Michelle Knox

70,679 views ・ 2018-02-08

TED


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00:00
Translator: Joseph Geni Reviewer: Krystian Aparta
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譯者: Lilian Chiu 審譯者: Thomas Tam
00:12
To kick the bucket,
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踢開桶子、
00:14
bite the dust,
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咬土、
00:16
cash in your chips,
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把籌碼兌成錢、
00:18
check out, depart, expire,
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退房、離去、過期、
00:21
launch into eternity ...
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朝永恆出發…
00:24
These are all euphemisms we use in humor
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這些都是我們使用的幽默婉轉說法,
00:27
to describe the one life event we are all going to experience:
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用來描述所有人都將會 經歷的一項人生大事:
00:32
death.
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死亡。
00:34
But most of us don't want to acknowledge death,
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但我們大部分人都不想答理死亡,
00:37
we don't want to plan for it,
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我們不想為死亡做規劃,
00:39
and we don't want to discuss it with the most important people in our lives.
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我們不想和我們生命中 最重要的人討論死亡。
00:44
I grew up in an Australian community where people got old or sick
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我在澳洲社區長大, 在那裡,人們變老或生病,
00:47
and passed away,
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然後過世,
00:48
and only the adults attended the funeral.
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只有成人會出席葬禮。
00:51
My parents would come home looking sad and drained,
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我父母回家時, 看起來很悲傷、精疲力竭,
00:54
but they didn't discuss it with us.
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但他們不會和我們談這些事。
00:56
So I was ignorant to death and of the grieving process.
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所以我對於死亡以及 哀悼過程是很無知的。
01:01
At 15, I got my invitation.
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在十五歲時,我收到了邀請。
01:03
A dear neighbor who was like an aunt to me
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一個對我而言像是阿姨一樣親的鄰居
01:06
died suddenly of a heart attack,
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因為心臟病發而突然過世,
01:08
and I attended my first funeral and did my first reading.
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那是我第一次參加葬禮, 第一次朗讀。
01:12
I didn't know the tightness in my chest and the dryness in my mouth was normal.
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我不知道胸口很緊、 嘴巴很乾的感覺是正常的。
01:18
The celebrant got some of the facts wrong, and it made me really angry.
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主持儀式的人把一些事實 弄錯了,讓我很生氣。
01:23
He talked about how she loved knitting.
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他談到她有多熱愛編織。
01:28
Knitting.
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編織。
01:29
(Laughter)
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(笑聲)
01:30
He didn't mention that, at 75, she still mowed her own lawn,
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他沒有提到,在 75 歲時, 她仍然自己刈自己的草坪,
01:34
built an amazing fish pond in her front yard
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在她的前院建了個很了不起的魚池,
01:36
and made her own ginger beer.
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她還會自己做薑汁汽水。
01:39
I'm pretty sure "keen knitter"
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我很確定,「編織熱愛者」
01:41
isn't what she would have chosen for her eulogy.
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不會是她想要的悼詞。
01:44
(Laughter)
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(笑聲)
01:46
I believe if we discuss death as part of day-to-day living,
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我相信,如果我們能 在日常中討論死亡,
01:49
we give ourselves the opportunity to reflect on our core values,
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就能給自己機會來 反思我們的核心價值,
01:52
share them with our loved ones,
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並和我們所愛的人分享這些,
01:54
and then our survivors can make informed decisions
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然後我們尚在世的家人 就可以做出有根據的的決定,
01:58
without fear or regret of having failed to honor our legacy.
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不會害怕或後悔 沒有尊重到自己的傳承。
02:04
I am blessed to lead a wonderful, culturally diverse team,
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我很有福氣,能夠領導一個 美好且有著文化多樣性的團隊,
02:08
and in the last 12 months,
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在過去十二個月中,
02:09
we've lost five parents,
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我們失去了五個父母親,
02:11
including my own father,
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包括我自己的父親,
02:13
and most recently, a former colleague who died at 41 from bowel cancer.
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最近,一位前同事因為腸癌, 才 41 歲就過世了。
02:19
We started having open and frank conversations
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我們開始進行開放且坦白的對談,
02:21
about what we were experiencing.
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談我們所經歷的。
02:24
We talked about the practical stuff,
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我們談到了實際的情況,
02:26
the stuff no one prepares you for:
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沒有人幫你準備面對的事:
02:29
dealing with government agencies,
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需打交道的包括政府機關、
02:31
hospitals, nursing homes,
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醫院、療養院、
02:33
advanced care directives,
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預後指示、
02:34
funeral directors
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禮儀師,
02:36
and extended family members,
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以及大家庭的成員;
02:39
(Laughter)
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(笑聲)
02:40
making decisions about coffins,
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決定用哪種棺材、
02:43
headstones,
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墓碑、
02:44
headstone wording,
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墓碑上的字、
02:45
headstone font size,
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墓碑上的字體大小,
02:47
all while sleep-deprived.
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都在睡眠不足時要決定。
02:50
We also discussed some of the issues
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我們也討論了一些議題,
02:52
triggered by our various cultural backgrounds,
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我們各種文化背景所觸發的議題,
02:55
and we realized there can be some significant differences
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我們發現,在我們如何對過世的愛人
02:58
in how we honor the passing of a loved one.
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展現敬意上,可以造成明顯的不同。
03:01
A great example of this is "Sorry Business,"
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一個很好的例子是「遺憾事業」,
03:04
practiced by Aboriginal and Torres Strait Islander people.
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它是原住民以及托雷斯 海峽群島人所用的儀式。
03:07
During Sorry Business,
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在遺憾事業的過程中,
03:10
family members will take on specific roles and responsibilities,
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家庭成員要承擔特定的角色和責任,
03:13
protocols such as limiting the use of photographs,
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照片使用限制等等禮儀,
03:16
saying the name of the deceased,
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說出死者的名字,
03:19
and holding a smoking ceremony
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並舉辦一項煙儀式,
03:21
are all a sign of respect and allow for a peaceful transition of the spirit.
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這些都是尊敬的象徵, 並讓亡靈能平靜地轉換。
03:26
These customs can be a complete contrast
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這些習俗很可能
03:28
to those we might practice in Western cultures,
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和西方文化的儀式完全相反,
03:31
where we would honor the memory of a loved one
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在西方,我們對愛人的記憶 表示敬意的方式,
03:33
by talking about them and sharing photographs.
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是談論他們、分享他們的照片。
03:37
So my lesson from this last year is,
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過去一年我學到的是,
03:39
life would be a lot easier to live if we talked about death now,
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如果我們現在就談論死亡, 生命就會容易許多,
03:45
while we're healthy.
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當我們還健康時就談。
03:47
For most of us, we wait until we are too emotional,
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我們大部分的人都會 等到太情緒化的時候,
03:50
too ill
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太病的時候,
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or too physically exhausted --
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或身體太疲累的時候,
03:55
and then it's too late.
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那就太晚了。
03:57
Isn't it time we started taking ownership of our finale on this earth?
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該是我們開始掌控我們在地球上的 終曲的時候了,不是嗎?
04:03
So let's get going.
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我們就開始吧。
04:05
Do you know what you want when you die?
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你知道當你死時你想要什麼嗎?
04:08
Do you know how you want to be remembered?
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你知道你希望人們 記得你是怎樣的嗎?
04:10
Is location important?
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地點重要嗎?
04:13
Do you want to be near the ocean
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你想要靠近海洋
04:15
or in the ocean?
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或是在海洋中?
04:16
(Laughter)
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(笑聲)
04:18
Do you want a religious service or an informal party,
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你想要宗教儀式還是非正式的聚會?
04:22
or do you want to go out with a bang,
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還是你想要轟轟烈烈地走,
04:24
literally, in a firework?
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就是字面上的意思,放煙火?
04:27
(Laughter)
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(笑聲)
04:28
When it comes to death, there's so much to discuss,
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說到死亡,有好多要討論的,
04:31
but I want to focus on two aspects:
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但我想要把焦點放在兩個面向上:
04:33
why talking about and planning your death can help you experience a good death,
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為什麼談論和規劃你的死亡, 能夠協助你體驗好的死亡,
04:39
and then reduce the stress on your loved ones;
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並減輕你所愛的人的壓力;
04:41
and how talking about death can help us support those who are grieving.
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以及談論死亡如何能 協助我們支持哀悼的人。
04:45
So let's start with planning.
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所以,咱們從規劃開始。
04:48
How many of you have a will?
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在座有哪些人有遺囑?
04:50
Put your hand up.
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請舉手。
04:51
Oh, this is fantastic.
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喔,真棒。
04:53
In Australia, 45 percent of adults over the age of 18
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在澳洲,18 歲以上的成人,有 45%
04:58
do not have a legal will.
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沒有法定遺囑。
05:01
You're a little bit above average.
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你們比平均高一些。
05:03
This is a startling statistic
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這個統計數字蠻驚人的,
05:06
given that writing a will can actually be quite simple and inexpensive.
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因為寫遺囑其實 很簡單且不用花什麼錢。
05:10
So I started asking my friends and neighbors
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所以我開始問我的朋友和鄰居,
05:12
and was really surprised to learn many of them don't have a will,
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讓我驚訝的是,他們當中 好多人都沒有立遺囑,
05:16
and some couples don't realize they need individual wills.
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有些夫妻不知道他們 需要立個別的遺囑。
05:19
The usual explanation was, well, it's all going to go to my partner anyway.
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他們通常都這樣解釋:嗯, 反正遺產都會到我另一半那邊。
05:24
So keep in mind that laws vary
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請牢記在心,每個州、
05:26
from state to state and country to country,
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每個國家的法律都不一樣,
05:29
but this is what happens in New South Wales
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在新南威爾斯州,
05:31
if you die without leaving a legal will.
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若你死時沒有遺囑,
05:35
Firstly, a suitable administrator must be appointed
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首先,必須要指派 一個適合的遺產管理人,
05:38
by the Supreme Court of New South Wales.
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新南威爾斯州最高法院會負責指派。
05:41
Chances are this is someone who would never have met the deceased.
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有可能被指派的人是 完全沒見過死者的人。
05:45
That person is then responsible for arranging your funeral,
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接著,那個人有責任 要安排你的葬禮,
05:49
collecting assets and distributing them after paying debts and taxes.
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收集資產,付清了債務和 稅款之後,剩下的再做分配。
05:54
And one of those debts will be the bill for their services.
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而其中一項債務, 就是他們的服務帳單。
05:57
This is not someone who would have known
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這個人不會知道
05:59
you want the four-foot wooden giraffe in your living room
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你希望你客廳中那隻 四呎高的木製長頸鹿
06:02
to go to the person who helped you carry it halfway across the world,
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能留給當初協助你 把它搬過半個地球的人,
06:05
and yes, that's in my will.
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是的,那寫在我的遺囑裡。
06:07
(Laughter)
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(笑聲)
06:10
If you die leaving a spouse or a domestic partner,
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如果你死時還有留下 配偶或同居伴侶,
06:12
then chances are they will receive your estate,
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有可能他們會得到你的遺產;
06:15
but if you are single, it's far more complicated,
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但是如果你單身,情況就複雜許多,
06:18
as parents, siblings, half-siblings and dependents all come into play.
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因為父母、手足、半手足、 受撫養者通通來參一腳。
06:24
And did you know that if you make a regular donation to charity,
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你是否知道,如果你向 慈善機構做一般捐贈,
06:28
that charity may have grounds to make a claim on your estate?
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那間慈善機構就可能 有理由索求你的遺產?
06:32
The most important thing to know is the bigger your estate,
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最重要的是要知道,你的遺產越多,
06:35
the more complicated that will will be,
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情況就會越複雜,
06:37
and the more expensive that bill.
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帳單也會越貴。
06:40
So if you don't have a will, I ask you ...
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所以如果你還沒立遺囑,那我問你,
06:45
when else in your life
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你人生中除了在不得已的情況下,
06:47
have you willingly given money to the government
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還有什麼時候你會願意
06:50
when you didn't have to?
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把錢給政府?
06:52
(Laughter)
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(笑聲)
06:55
I lost my father in February to a progressive lung disease.
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我在二月失去了我的父親, 他因為進行性肺病而過世。
06:59
When dad knew his death was imminent,
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當爸爸知道大限已到,
07:01
he had three clear wishes.
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他有三項明確的願望。
07:03
He wanted to die at home;
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他希望在家裡離開人世;
07:06
he wanted to die surrounded by family;
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他希望離開時身邊圍繞著家人;
07:08
and he wanted to die peacefully, not choking or gasping for air.
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他希望能平靜地離開, 不是窒息或缺氧。
07:13
And I'm pleased to say that my family were able to support dad's wishes,
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我很高興能說,我的家人 能夠支持我爸爸的願望,
07:17
and he achieved his goals,
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他達成了他的目標,
07:18
and in that sense, he had a good death.
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就那方面來說,他有個很好的死亡。
07:22
He had the death he planned for.
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他得到了他規劃的死亡。
07:25
Because dad wanted to die at home,
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因為爸爸最後想待在家中,
07:27
we had to have some pretty tough conversations
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我們得要進行一些很困難的談話,
07:29
and fill out a lot of paperwork.
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還要填寫許多文書資料。
07:31
The questions on the forms cover everything from resuscitation to organ donation.
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表格上的問題無所不包, 從急救到器官捐贈都有。
07:37
Dad said, "Take whatever organs you can use."
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爸爸說:「能用的器官就拿去用。」
07:41
This was upsetting to my mum,
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這讓我媽媽很沮喪,
07:43
as my dad's health was deteriorating rapidly,
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隨著我爸爸的健康狀況急速惡化,
07:45
and it was no longer the right time to talk about organ donation.
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已經不再是適合談論 器官捐贈的時間了。
07:50
I believe we need to discuss these issues when we are fit and healthy,
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我相信,應該在我們還強健、 健康的時候就討論這些議題,
07:54
so we can take the emotion out of it,
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我們才能不受情緒影響,
07:56
and then we can learn not just what is important,
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我們不只能學到什麼才重要,
07:59
but why it's important.
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還有它為什麼很重要。
08:02
So as part of my journey,
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所以,我旅程的一部分是,
08:04
I started engaging my family and friends to find out their thoughts on death,
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我開始和我的家人、朋友接觸, 了解他們對死亡的想法,
08:09
and how they wanted to be remembered.
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以及他們希望人們如何記得他們。
08:12
I discovered you can host a "Death Over Dinner,"
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我發現,你可以主持 「晚餐談死亡」,
08:16
or a "Death Cafe,"
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或是「死亡咖啡」,
08:18
which is a great, casual way to introduce the topic ...
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這是一種很好很隨意的方式, 來帶入這個主題…
08:21
(Laughter)
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(笑聲)
08:23
and gain some wonderful insight.
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並得到些美好的洞見。
08:25
(Laughter)
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(笑聲)
08:27
Did you know that your body has to be legally disposed of,
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你們是否知道,你們的屍體 必須要依法處理,
08:30
and you can't just be shoved off a cliff
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你們不能把屍體直接丟下懸崖,
08:33
or set fire to in the backyard?
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或是在院子裡點火焚化?
08:35
(Laughter)
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(笑聲)
08:36
In Australia, you have three options.
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在澳洲,有三種選擇。
08:38
The two most common are burial and cremation,
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其中兩種最普遍的,是埋葬和火化,
08:40
but you can also donate your body to science.
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但你還可以把你的屍體 捐出做科學用途。
08:43
And I am pleased to report that innovation has touched
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我很高興向各位報告, 創新已經觸及了
08:46
the world of corpse disposal.
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屍體處理的世界。
08:48
(Laughter)
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(笑聲)
08:49
You can now opt for an eco-funeral.
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你現在可以選擇環保葬禮。
08:51
You can be buried at the base of a tree
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你可以被埋在一棵樹木的基部,
08:53
in recycled cardboard or a wicker basket,
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放在可回收的紙板或柳條籃子中,
08:56
and for those who love the ocean,
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至於熱愛海洋的人,
08:57
there are eco-friendly urns that will dissolve at sea.
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也有環保骨灰甕,在海中會分解。
09:01
Personally, I plan to be cremated,
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我個人的規劃是要被火化,
09:04
but given that I get seasick,
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但因為我會暈船,
09:06
I can think of nothing worse
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我想不出有什麼會比
09:08
than having my ashes flung into a huge ocean swell.
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把我的骨灰丟入 洶湧大海中更糟的了。
09:12
I've actually bought a plot in the rose garden next to my dad.
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我在埋葬我爸爸的玫瑰花園裡 買了一小塊他旁邊的土地。
09:16
I call it my investment property.
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我稱它為我的地產投資。
09:18
(Laughter)
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(笑聲)
09:20
But sadly, there's no tax deduction.
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感傷的是,沒有辦法減稅。
09:23
(Laughter)
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(笑聲)
09:26
So if you plan for your death,
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如果你為你的死亡做規劃,
09:29
then your survivors will know how to experience a healthy bereavement
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還存活的人就知道如何 度過一段健康的喪親/友之痛,
09:33
without fear or guilt of having failed to honor your legacy.
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不用害怕或有罪惡感, 覺得沒有尊重你的傳承。
09:37
As part of my research, I've been to seminars,
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為了我的研究,我會去參加研討會,
09:40
read books and talked to palliative care nurses.
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閱讀書籍,並和安寧照護護士談談。
09:43
And I've come to understand
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我漸漸了解到,
09:44
as a consequence of not talking about death,
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不去談論死亡的一項後果,
09:48
we don't know how to be around grief.
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就是我們不知道要如何處理悲痛。
09:51
And on the flip side, if we talk about death more,
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反過來說,如果我們多談談死亡,
09:54
we will become more comfortable with the emotions we experience around grief.
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對於在悲痛中所感受到的情緒, 我們會感到更舒適些。
10:01
I discovered, this year,
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今年,我發現,
10:03
it's actually a privilege to help someone exit this life,
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能夠協助一個人 離開此生,是一項殊榮,
10:07
and although my heart is heavy with loss and sadness,
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雖然失去和悲傷會讓我的心很沉重,
10:11
it is not heavy with regret.
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但不是悔恨讓它沉重。
10:13
I knew what dad wanted,
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我知道我爸爸想要什麼,
10:15
and I feel at peace knowing I could support his wishes.
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知道我可以支持他的願望, 讓我感到平靜。
10:21
My dad's last 24 hours were in a peaceful coma,
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我爸爸人生中的最後 24 小時 是在平靜的昏迷中度過,
10:24
and after days of around-the-clock care,
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經過幾天日以繼夜的照護,
10:26
we had time to sit, hold his hand,
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我們有時間坐下來,握住他的手,
10:29
and say goodbye.
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跟他道別。
10:31
He passed away on a Monday morning just before breakfast,
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他在一個星期一早晨過世, 就在早餐之前,
10:34
and after the doctor came
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醫生來了之後,
10:36
and we waited for the funeral home,
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我們等待葬儀社過來,
10:39
I went into the kitchen, and I ate a big bowl of porridge.
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我走進廚房,吃了一大碗的粥。
10:45
When I told some of my friends this, they were really shocked.
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當我告訴一些朋友 這件事時,他們很吃驚。
10:48
"How could you eat at a time like that?"
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「在這樣的時刻,你怎麼能吃?」
10:53
Well, I was hungry.
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嗯,我那時餓了。
10:56
(Laughter)
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(笑聲)
11:00
You see, grief impacted my sleep and my ability to concentrate,
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悲痛會影響我的睡眠和專注力,
11:04
but it never impacted my stomach. I was always hungry.
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但它從來沒有影響我的胃。 我總是很餓。
11:08
(Laughter)
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(笑聲)
11:09
It's different for all of us,
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每個人狀況都不一樣,
11:10
and it's really important that we acknowledge that.
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很重要的是我們要承認這一點。
11:14
So if we don't talk about our death and the death of loved ones,
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如果我們不談我們的死亡 以及我們所愛的人的死亡,
11:17
how can we possibly support a friend, a colleague, a neighbor
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我們怎麼有可能支持 正在悲痛中的朋友、
11:22
who is grieving?
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同事、鄰居?
11:23
How do we support someone who has lost someone suddenly,
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我們要如何支持突然失去某人的人,
11:26
like an accident or suicide?
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比如發生意外或自殺的情況?
11:29
We tend to avoid them ...
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我們會傾向避開他們。
11:32
not because we don't care,
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不是因為我們不在乎,
11:34
because we don't know what to say.
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因為我們不知道要說什麼。
11:37
We know as a friend we can't fix it,
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我們知道,身為朋友, 我們也無法修復這狀況,
11:40
we can't take away that pain,
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我們無法消除痛苦,
11:43
so we say things to fill that awkward silence,
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所以我們會說些話 來填補尷尬的寂靜,
11:46
sometimes things we regret saying.
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有時會說出讓我們後悔的話。
11:49
Examples would be:
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舉例來說:
11:53
"At least he isn't suffering anymore."
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「至少他不會再受苦了。」
11:56
"At least you've got your memories."
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「至少你還有你的記憶。」
12:00
"At least you don't have to pay for hospital parking anymore."
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「至少你不用再付 醫院的停車費了。」
12:03
(Laughter)
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(笑聲)
12:05
Really, we don't need to say anything.
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我們其實不用硬找話來說,
12:08
We just need to be.
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我們只要在那裡。
12:11
Be patient,
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有耐心、
12:13
be understanding,
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善解人意,
12:15
and be a listener.
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並當一個傾聽者。
12:17
And if you can't be any of those things,
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如果以上的你都做不到,
12:20
then please, be the person who makes the lasagna, the curry or the casserole,
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那麼,拜託,去當煮義大利麵、 咖哩、或砂鍋菜的人,
12:25
because your offerings will be greatly appreciated.
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因為你的貢獻也會被大大感激。
12:27
(Laughter)
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(笑聲)
12:29
I've been to 10 funerals in the last year,
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去年我參加了十場葬禮,
12:32
one of which I helped arrange.
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我協助安排了其中一場。
12:34
They ran the full gamut:
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葬禮包羅萬象:
12:36
a very solemn Greek Orthodox service,
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一個非常莊重的希臘正教儀式、
12:38
four Catholic requiem masses
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四次天主教安魂彌撒,
12:41
and a garden party
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還有一場花園派對,
12:43
where I made a toast while scattering my friend's ashes around her garden
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在派對上,我舉杯敬酒,同時 把我朋友的骨灰灑在她的花園中,
12:47
with a soup ladle.
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用長柄湯杓來灑。
12:48
(Laughter)
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(笑聲)
12:50
I have carried, kissed, written on and toasted coffins with a shot of ouzo.
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我抬舉棺木、親吻它、 用一小杯茴香烈酒向它敬酒。
12:55
I have worn all black,
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我穿過全黑服裝、
12:57
all color and a party dress.
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彩色服裝,以及一件派對禮服。
13:00
Despite the vast differences in sendoff,
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儘管在送葬上有很大的差異,
13:02
despite me being at times out of my comfort zone
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儘管我有時候會離開我的舒適圈,
13:05
doing something I've never done before,
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做我以前從來沒有做過的事,
13:07
I drew comfort from one thing --
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我取得慰藉的來源是
13:10
knowing that this is what each person would have wanted.
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知道這是每個人會想要的。
13:15
So what do I want?
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我想要什麼?
13:17
Well, I like to be organized, so I have the will,
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我想要條理分明,所以我立有遺囑,
13:21
I'm a registered organ donor, and I have my investment property.
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我是註冊的器官捐贈者, 我還有我的墓地。
13:25
All that is left is planning my sendoff,
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剩下的只有規劃我的送葬,
13:27
a big party, lots of champagne,
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一個大派對,很多香檳,
13:31
color, laughter, and of course, music to remember me by.
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有色彩,有笑聲,當然 還有讓人們記得我的音樂。
13:35
Thank you.
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謝謝。
13:36
(Applause)
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(掌聲)
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