What it means to be intersex | Susannah Temko

104,361 views ・ 2020-09-16

TED


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00:00
Transcriber: Leslie Gauthier Reviewer: Krystian Aparta
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譯者: Lilian Chiu 審譯者: Amanda Zhu
00:12
I have a confession to make, right off the bat.
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我要先向大家坦白一件事。
00:16
I don't know what you were doing at 16,
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我不知道你們十六歲時在做什麼,
00:19
but I'm a really big fan of "Harry Potter"
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但我當時很迷《哈利波特》,
00:22
and was waiting way too long to receive my letter
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且有好長好長的時間都在期盼收到
讓我進入霍格華茲魔法 與巫術學院的邀請信——
00:25
inviting me to Hogwarts School of Witchcraft and Wizardry --
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00:29
I could have gone for sixth form.
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我可以去讀它的預科。
00:31
I was also waiting for an invitation to the Jedi Temple
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我也在期盼絕地聖殿的邀請,
00:36
or a tap on the shoulder to invite me to the X-Men.
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或收到加入 X 戰警的秘密邀請。
00:41
I was that kid.
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我就是那種小孩。
00:43
When I was 16 years old, I got my wish.
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在我十六歲時,願望成真了。
00:48
I was taken into a doctor's office
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我被帶去看醫生,
00:51
and told that I am in fact part of a group of people
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醫生告訴我,我屬於一個幾乎隱形
00:55
who are still largely invisible and misunderstood.
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且被誤解的族群。
01:02
I am intersex.
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我是間性人。
01:05
That's my superpower.
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那是我的超能力。
01:07
For many of you in this room,
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在座許多人可能是第一次 聽到「間性人」這個詞。
01:08
it will be the first time you've even heard the word "intersex."
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01:12
Intersex is anatomy.
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間性是一種解剖的構造。
01:14
It refers to people who were born with one or more
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它指的是出生時就有一種或多種
01:18
of a variation of sex characteristics.
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性徵的變異。
01:21
That's your genitals, your hormones, your chromosomes
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也就是說,你的生殖器、 你的荷爾蒙、你的染色體
01:25
that fall outside of the traditional conceptions of male and female bodies.
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不符合傳統上對男性女性身體的觀念。
01:32
In other words,
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換言之,
01:34
the most basic assumption we've made about our species --
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我們對人類這個物種 所做的最基本假設——
01:38
what we're taught in schools that sex is binary,
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學校教導我們,性別是二元的,
01:42
just male and female --
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只有男性和女性——
01:45
is not correct.
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這並不正確。
01:47
Like most things in this world,
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和世界上大部分的事物一樣, 性別沒有二元這麼簡單。
01:49
it is much more complicated than that.
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01:53
Intersex people who fall outside of this false sex binary
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人類歷史上間性人一直都存在,
他們不屬於這種錯誤的二元性別。
01:58
have always existed, throughout human history.
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02:02
Like the wizards of "Harry Potter,"
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就像《哈利波特》裡的巫師,
02:05
we are pretty much invisible.
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我們幾乎是隱形的。
02:09
Some of us don't even know that we are intersex.
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有些間性人甚至不知道自己是間性人。
02:13
Like the X-Men,
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就像 X 戰警,
02:14
some of our traits are obvious at birth
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有些間性人的特徵在出生時就很明顯,
02:18
and others turn up around the time when puberty is supposed to kick in.
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有些人的特徵則要在 青春期時才會出現。
02:25
When we find out we are intersex,
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當我們發現自己是間性人時,
02:27
some of us believe we are the only ones in the world.
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有些人會以為自己 是世界上唯一一個這種人。
02:33
Me, specifically, I have XY chromosomes,
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明確來說,我有 XY 染色體,
02:39
which you may have understood to be typically male.
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各位應該知道, 那表示我是典型的男性。
02:43
I was also born with gonads instead of ovaries.
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我出生時,卵巢由性腺取代。
02:49
Standing here on this stage would have been my worst nightmare
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五年前,站在這個舞台上
會是我最糟糕的夢魘。
02:54
only five years ago.
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02:57
It would have been impossible.
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那是我絕對做不到的事。
03:01
I use the metaphor of the superhuman,
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我用超人類來做比喻,
03:04
but really, we are just like you.
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但其實,我們和各位都一樣。
03:07
Intersex people are thought to make up to 1.7 percent of the population.
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人口中有 1.7% 是間性人。
03:13
That means more, depending on where you are in the world,
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那表示其實間性人很多, 要看你身在何處,
03:16
but you get the picture.
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但你懂我的意思。
03:18
We are in front of you, getting coffee;
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你排隊買咖啡, 排在前面的可能就是間性人;
03:21
we are sitting next to you on the train;
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在火車上,坐在你旁邊的 可能就是間性人;
03:22
we are swiping you left and right on dating apps --
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可能有間性人在 約會 APP 上滑你的資料。
03:25
(Laughter)
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(笑聲)
03:28
So why haven't you heard of us?
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所以,為什麼你都沒聽過我們?
03:33
If we are so common, why don't you see us?
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如果我們這麼常見,
為什麼你都沒有看過我們?
03:38
How has the world responded to us?
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世界對我們是什麼反應?
03:43
We often think of disciplines like medicine and the law
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我們通常認為醫學及法律等學術領域
03:47
as supposedly neutral --
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應該是中立的,
03:49
immune to bias.
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應該對偏見免疫。
03:52
The law is "reason free from passion."
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法律是「不受情感影響的理性」。
03:55
The doctors' Hippocratic oath states
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醫生的希波克拉底誓詞中說到
03:58
that "warmth, sympathy and understanding
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「溫暖、同情,和理解
04:00
may outweigh the surgeon's knife or the chemist's pill."
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比醫生的手術刀 或藥師的藥丸更重要。」
04:06
In truth, these disciplines that touch our lives are impressive,
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事實上,
雖然這些領域的知識 對我們生活的貢獻很讓人欽佩,
04:12
but they are filled with our prejudices.
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但也充滿了偏見。
04:15
They are not immune,
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它們並沒有對偏見免疫,
04:17
just as we are not immune to the effects of that prejudice,
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同樣的,我們也沒有對 那些偏見造成的效應免疫,
04:22
which can be devastating.
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那些效應可能很有殺傷力。
04:25
In medicine, intersex babies who are born with ambiguous genitalia
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在醫學上,
出生時生殖器難以確定的雙性寶寶
04:32
are routinely operated on without consent,
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會接受例行手術,
不需要得到同意,
04:37
without medical need,
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這在醫療上沒有必要性,
04:40
irreversibly,
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而且手術是不可逆的。
04:42
in order to make their healthy anatomy appear more "normal."
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目的是要讓他們 本來就很健康的身體構造
看起來更「正常」。
04:49
This is before they've even said their first words,
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這在寶寶能開口說話之前就發生了,
04:54
indicated a sexuality or a gender identity.
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他就這樣被指定了 一種性向或性別身分。
05:00
Many people are never told the truth about their intersex traits,
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許多人都不知道事實上 自己有間性人的特徵。
05:06
and those who are are instructed, often, not to tell anyone.
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知道的人,通常則被吩咐 不可以告訴任何人。
05:12
Secrecy is enforced and shame is a close shadow.
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被迫要保密,羞恥感總是形影不離。
05:17
In the law,
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在法律上,
05:19
intersex people fall outside of categorization,
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間性人不屬於任何分類,
05:23
and more importantly, protection.
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更重要的是,他們也不受到保護。
05:27
This concerns the banal tasks --
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從無聊的事講起,
05:29
if you can imagine the number of forms you've filled out
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想像看看有多少表格上面
05:32
that you had to check "M" of "F" on --
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必須要勾選「男」或「女」。
05:34
to lacking protection under any law,
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更不要說在法律下沒有任何保障,
05:39
specifically, the Gender Recognition or Equality Act.
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特別是性別認同或性別平等法案。
05:44
And intersex people cannot correct the sex classification
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且間性人無法修改他們在出生時
被決定的性別,
05:49
they've been given at birth
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05:51
unless they declare they are transgender.
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唯一的辦法就是宣稱自己是變性人。
05:55
After decades of activism,
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經過幾十年積極推行改革之後,
05:58
these life-altering problems are starting to be addressed.
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這些會改變人生的問題 漸漸有人開始因應。
06:04
So why does this matter to those of you who aren't intersex,
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如果你們不是間性人, 沒有變異的性徵,
06:09
who don't have variations of sex characteristics?
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這些有什麼重要的?
06:14
I imagine many people in this audience have,
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我猜想,在座有許多人都曾經
06:17
in the privacy of their own bathrooms,
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私下在自己家裡的浴室中納悶……
06:20
wondered ...
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06:23
"Are my labia too long?"
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「我的陰脣會太長嗎?」
06:25
"Are my testicles uneven?"
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「我兩邊睪丸不一樣大嗎?」 「我的陰莖會太小嗎?」
06:26
"Is my penis too small?"
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06:28
"Is my vagina too wide or too shallow?"
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「我的陰道會太寬或太淺嗎?」
06:31
Nothing that hurts or gets in the way, just aesthetically:
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都不會痛或是造成麻煩, 只為了美觀,你還是會問:
06:36
"Are mine 'normal?'"
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「我的正常嗎?」
06:39
I imagine that many people in this audience have those small concerns
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我猜想在座有許多人 都有過這種小小憂心,
06:45
but generally go about their lives not thinking about it.
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但通常就繼續過日子,不多想。
06:50
These variations in our bodies,
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我們身體的有些差異,
06:51
like the color of our eyes or the size of our feet,
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比如眼睛的顏色或腳的大小,
06:55
rarely affect our health, materially.
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很少會對我們的健康 造成實質的影響。
06:59
To put it another way,
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為了各位更能了解間性人的感受,
07:01
to give you an idea of the intersex experience,
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我換個方式說。
07:06
what if when you were an infant,
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如果,你在嬰兒時期,
07:08
your parents or your doctors looked at your labia,
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你的父母或你的醫生
看了你的陰脣、你的陰莖、你的睪丸,
07:13
your penis, your testicles,
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07:17
and thought,
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心想:
07:19
"They're healthy, feeling,
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「它們很健康、有感覺,
07:22
but they're not 'normal,'"
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但它們不『正常』。」
07:25
even before you knew what you wanted to do with them,
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這發生在你自己可以決定 要拿它怎麼辦或怎麼用它之前。
07:28
or you know, want to put them.
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07:30
(Laughter)
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(笑聲)
07:33
What if they went so far
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如果他們做到了這種程度:
07:36
as to assign you a different sex based off these measurements ...
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根據這些對正常的觀念 就把你改成另一種性別……
07:45
And then they lied to you about what they'd done?
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接著他們說謊, 不告訴你他們做了什麼?
07:50
What if these surgeries sterilized you?
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如果這些手術會讓你無法生育呢?
07:56
What if they resulted in immense pain and scarring?
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如果這些手術造成 很大的痛苦或創傷呢?
08:02
What if you had to take medicine for the rest of your life
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如果你終身都得持續服藥
08:06
to replace the healthy organs they took away,
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以補償他們拿走的健康器官,
08:09
and you had to pay for that medicine yourself?
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且藥錢還要你自己付呢?
08:13
And then every time you went to a doctor's office for a cold,
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且每次你因為感冒去看醫生,
08:18
you were questioned about your sex life,
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醫生還要問你的性生活、
08:22
your gender identity,
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你的性別身分、
08:24
what your private parts looked like.
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你的私處是什麼樣子的。
08:27
And then more doctors and medical students were invited
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接著還有更多醫生 和醫學系學生被邀請來
08:30
to add to these questions,
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問更多問題,
08:33
ask you to drop your trousers
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請你脫下褲子,
08:35
or submit to an unnecessary medical exam.
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或接受不必要的醫學檢查?
08:41
This is a picture of what is happening to the intersex community --
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間性人族群就會發生這種狀況,
08:47
people like me, every day, around the world.
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全世界每天都有像我這樣的人會遇到。
08:53
Our community is not antimedicine or antisurgery.
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我們這些人並不反對醫學或手術。
08:58
We are for the right to make decisions about our bodies
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我們想要的是有權利
為我們的身體及我們的生活做決定。
09:03
and our lives.
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09:05
The current approach to intersex people stems from a now-debunked academic study
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目前對間性人採用的方式,
源自於一項現在已經 被揭穿的不實學術研究,
09:12
from a man who, over 50 years ago,
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一項五十年前的研究。
09:14
believed that you could raise a child in any gender
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研究者相信,你想要孩子 是什麼性別都可以,
09:19
by changing their genitals, never telling them
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只要改變他們的生殖器, 不要告訴他們真相,
09:22
and reinforcing that gender over and over again.
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並一再強化他們 對那個性別的認同即可。
09:27
It also stems from referring to healthy intersex variations as abnormal
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另一個源頭則是將 健康的間性人雙性性徵
視為異常或生病的觀念。
09:34
or disordered.
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09:36
This makes sense.
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這也難怪。
09:38
If you refer to something as a disorder, it suggests there's a fix.
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如果你稱它是種病, 就意味著有方法可以治療。
09:42
It also stems [from] the fear and stigma of being intersex,
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還有一個源頭是 對間性人的恐懼和汙名,
09:47
from homophobia, transphobia, sexism
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來自對同性戀、變性人的恐懼,
來自性別主義;
09:51
and ultimately, our colonial past.
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最終,是來自我們的殖民歷史。
09:56
I am not here to say that the categories of men and women don't exist.
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我並不是要說男和女的分類不存在。
10:02
I'm saying, like most things in this world,
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我要說是,和世界上 大部分的事物一樣,
10:05
it is more complicated than that.
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性別不能簡單地 用黑白分明的方式來看。
10:08
The world is complex,
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世界很複雜,
10:10
and we can choose to see that as beautiful,
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我們可以選擇把複雜視為是美好的,
10:13
or we can choose to continue to deny the existence of that complexity,
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也可以選擇繼續否認那複雜度的存在,
10:19
push people into artificial, binary boxes,
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迫使大家採用人工、二元的觀念,
10:23
fix what isn't broken
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去修理沒有壞的東西,
10:26
and restrict our own field of vision.
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去限制我們自己的視野。
10:30
One of the challenges that intersex people face today
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現今,間性人面對的挑戰之一
10:34
is making ourselves visible
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就是讓自己被看見,
10:38
and making ourselves safe at the same time.
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同時還要確保自己的安全。
10:41
By that, I mean we are appealing to the humanity of lawmakers
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我這麼說是要呼籲立法者發揮人性,
10:46
to make us safe
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讓我們能安全,
10:48
whilst putting ourselves into the public eye,
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同時我們能讓自己被大眾看見、
10:51
sharing our stories,
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分享我們的故事,
10:53
trying to build community with people like us ...
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希望他們試著和像我們這樣的人 一起建立我們共存的社會,
10:57
Even when it isn't safe to do so.
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即使這麼做並不安全。
11:02
For parents of intersex children listening and watching,
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正在聽、正在看 這場演說的間性孩童家長,
11:06
for those in the audience
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在座有可能變成間性人守護者的人,
11:08
who may become the guardians of intersex people,
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11:11
I want you to know I love my life,
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我希望你們知道,我愛我的人生,
11:16
but it has not be free of issue,
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但這個人生並非沒有問題,
11:18
especially in relation to being intersex.
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特別是在身為間性人這方面。
11:21
No life is free of issue.
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人生不會都沒有問題。
11:24
All coins have two sides.
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所有的硬幣都有兩面。
11:27
On the one side,
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在一面,
11:29
I have been humiliated in doctors' offices.
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我曾經在醫生的診間中被羞辱。
11:34
I have stood in front of prospective partners and felt afraid
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我曾經站在未來的伴侶面前,
感到害怕且覺得自己不夠好。
11:39
and so not good enough.
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11:43
I have watched other women pass me in the street
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我曾經在街上看著 從我身邊經過的其他女性,
11:46
and imagine the ways that they were more woman than me,
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想像她們有哪些地方比我更像女人,
11:51
more human than me.
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比我更像人。
11:54
I have questioned whether I have a place in this world.
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我曾經質疑過, 世界上是否有我的容身處。
12:00
On the other,
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在另一面,
12:01
I have been deeply loved for everything that I am,
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真實的我,在友情和愛情世界中,
12:08
in friendship and romantically.
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被深愛著。
12:12
I have learned compassion and empathy for a wider range of society.
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我學會了對更廣範圍的社會 發揮同理心和同情心。
12:18
I have taken the time to love my body
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我花了時間去愛我的身體,
12:22
and not judge the bodies of others.
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且不去評斷他人的身體。
12:25
I have developed a strength and a hope
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我發展出因為擁有這種生命
12:29
that would have been impossible without this particular life.
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才可能發展出的力量與希望。
12:36
The instinct to protect children is instinctive and it's admirable,
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想要保護孩子的直覺是一種本能,
也令人敬佩,
12:42
but the truth is that love, acceptance
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但事實是,
愛、接受,
12:47
and refusing to bathe that child in shame
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以及拒絕讓孩子沉浸在羞恥中
12:50
will protect them more than trying to fix something that isn't broken.
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會比去修補沒有壞掉的東西 更能夠保護他們。
12:56
This is why it is in our interest to protect intersex people
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這就是為什麼保護間性人 且讓他們被看見,
其實對我們有好處。
13:01
and make them visible.
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13:04
For as long as societies reinforce one form of acceptable,
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因為只要社會強迫大家
只接受某種形式的「正常」,
13:09
of "normal,"
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13:11
everyone will face insecurity for being different in any way.
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人人都會因為自己在任何方面 和別人不同而有不安全感,
13:18
Simply trying to erase variation, difference,
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若只是試著消除差異、不同,
13:24
builds shame.
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那只會造成羞恥感。
13:28
Being intersex has not materialized the powers
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身為間性人並沒有讓我產生
我在青少年時期所期望的超能力,
13:32
that I wished for as a teenager ...
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13:35
beyond being able to see where this false sex binary harms us all.
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但讓我看出這種錯誤的 性別二元論會傷害所有人。
13:41
It is my belief
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我相信,
13:44
that if intersex people can gain equality,
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如果間性人能得到平等,
13:49
can be seen,
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能被看見,
13:50
can be accepted
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能被接受,
13:52
and can be loved,
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且能被愛,
13:54
then we all will.
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那麼所有人也都能獲得這些東西。
13:56
Thank you.
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謝謝。
13:57
(Applause and cheers)
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(掌聲及歡呼聲)
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