A love letter to realism in a time of grief | Mark Pollock and Simone George

105,457 views ・ 2018-09-28

TED


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譯者: Lilian Chiu 審譯者: Helen Chang
00:13
Simone George: I met Mark when he was just blind.
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席夢喬治:我遇見 馬克時,他剛失明。
00:17
I had returned home to live in Dublin
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我當時是要返鄉在都柏林定居,
00:19
after the odyssey that was my 20s,
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在那之前我長途飄泊, 那是我二十多歲時,
00:22
educating my interest in human rights and equality in university,
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在學校我接受的教育 是我感興趣的人權及平等,
00:27
traveling the world, like my nomad grandmother.
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我也像我的遊牧民族 祖母一樣,行遍世界。
00:30
And during a two-year stint working in Madrid,
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在馬德里工作的兩年期間,
00:34
dancing many nights till morning in salsa clubs.
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許多夜晚我都在騷沙俱樂部 跳舞跳到早上。
00:39
When I met Mark, he asked me to teach him to dance.
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當我遇到馬克時,他要我教他跳舞。
00:43
And I did.
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我教了。
00:45
They were wonderful times, long nights talking,
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那些時光很快樂,在夜晚長談,
00:48
becoming friends and eventually falling for each other.
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我們變成朋友,最終愛上彼此。
00:53
Mark had lost his sight when he was 22,
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馬克在他二十二歲時失明,
00:55
and the man that I met eight years later was rebuilding his identity,
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我在八年之後遇到他, 他那時正在重建他的身分,
01:00
the cornerstone of which was this incredible spirit
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身分的基石, 就是這了不起的精神,
01:04
that had taken him to the Gobi Desert, where he ran six marathons in seven days.
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這股精神帶他到戈壁沙漠, 在七天之內跑了六場馬拉松。
01:09
And to marathons at the North Pole, and from Everest Base Camp.
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他還跑了北極馬拉松 和從聖母峰登山基地開跑的馬拉松。
01:15
When I asked him what had led to this high-octane life,
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我問他,是什麼讓他的生活 過得這麼精力旺盛?
01:19
he quoted Nietzsche:
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他引用尼采的話:
01:21
"He, who has a Why to live, can bear with almost any How."
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「人只要參透為何而活, 即能承受幾乎任何煎熬。」
01:27
He had come across the quote in a really beautiful book
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他在一本很美好的書中 看到這句引述,
01:30
called "Man's Search for Meaning," by Viktor Frankl,
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書名叫《活出意義來》, 作者是弗蘭克,
01:33
a neurologist and psychiatrist
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他是位神經學家和精神病學家,
01:35
who survived years in a Nazi concentration camp.
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在納粹集中營中度過 很多年並存活下來。
01:39
Frankl used this Nietzsche quote to explain to us
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弗蘭克引用尼采的這句話 來跟讀者解釋
01:43
that when we can no longer change our circumstances,
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當我們無法再改變我們的處境時,
01:47
we are challenged to change ourselves.
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我們可以挑戰去改變我們自己。
01:52
Mark Pollock: Eventually, I did rebuild my identity,
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馬克帕洛克:最終, 我確實重建了我的身分,
01:55
and the Why for me was about competing again,
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對我來說,我的「為何而活」 是要能夠再次競爭,
01:58
because pursuing success and risking failure
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因為追求成功和冒著失敗的風險,
02:02
was simply how I felt normal.
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就是讓我感覺正常的方式。
02:05
And I finished the rebuild
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我完成重建的時候,
02:08
on the 10th anniversary of losing my sight.
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是我失明的十週年。
02:11
I took part in a 43-day expedition race
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我參加了一場 43 天的探險越野賽,
02:15
in the coldest, most remote, most challenging place on earth.
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地點在地球上最冷、最偏遠、 最有挑戰性的地方。
02:20
It was the first race to the South Pole
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這是一百年前謝克頓、 史考特和亞曼森
02:22
since Shackleton, Scott and Amundsen set foot in Antarctica, 100 years before.
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登上南極洲之後的 第一場南極賽事。
02:30
And putting the demons of blindness behind me
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隨著朝地極邁進的每一步,
02:32
with every step towards the pole,
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我把失明的惡魔拋在身後,
02:35
it offered me a long-lasting sense of contentment.
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這場比賽給了我很持久的滿足感。
02:41
As it turned out, I would need that in reserve,
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結果發現,我的確 需要儲備著那滿足感,
02:44
because one year after my return,
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因為在我返回一年後,
02:49
in, arguably, the safest place on earth,
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在可以說是地球上最安全的地方,
02:52
a bedroom at a friend's house,
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一個朋友家中的臥室裡,
02:55
I fell from a third-story window onto the concrete below.
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我從三樓高的窗戶 摔落到下面的水泥地上。
03:02
I don't know how it happened.
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我不知道是怎麼發生的。
03:04
I think I must have got up to go to the bathroom.
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我想我應該是起床要去上廁所。
03:07
And because I'm blind, I used to run my hand along the wall
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因為我看不見,我以前都會
用手扶著牆壁來找到路。
03:12
to find my way.
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03:14
That night, my hand found an open space where the closed window should have been.
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那晚,我摸到了一個開放空間, 那裡本來應該是關閉的窗戶。
03:21
And I cartwheeled out.
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我側翻摔出去。
03:23
My friends who found me thought I was dead.
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我朋友發現我時,以為我死了。
03:26
When I got to hospital, the doctors thought I was going to die,
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當我被送到醫院時, 醫生以為我死定了,
03:29
and when I realized what was happening to me,
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當我知道我發生了什麼事之後,
03:32
I thought that dying might have been ...
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我以為死亡可能會是…
03:37
might have been the best outcome.
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可能會是最好的結果。
03:40
And lying in intensive care,
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躺在加護病房中,
03:42
facing the prospect of being blind and paralyzed,
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面對著將來可能既失明又癱瘓,
03:47
high on morphine, I was trying to make sense of what was going on.
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加上高劑量的嗎啡,我試著 為發生的事找出合理的理由。
03:53
And one night, lying flat on my back,
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有天晚上,我平躺著。
03:55
I felt for my phone to write a blog,
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我用手摸找我的手機,
想要寫篇網誌,
04:02
trying to explain how I should respond.
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試圖解釋我應該要如何反應。
04:04
It was called "Optimist, Realist or Something Else?"
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文章名稱做「樂觀主義者、 現實主義者,或其他?」
04:08
and it drew on the experiences of Admiral Stockdale,
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文章用到了史托迪爾上將的經驗,
04:12
who was a POW in the Vietnam war.
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他是越戰時的戰俘。
04:16
He was incarcerated, tortured, for over seven years.
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他遭到監禁、刑求,長達七年。
04:21
His circumstances were bleak, but he survived.
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他的處境毫無希望,但他存活下來。
04:25
The ones who didn't survive were the optimists.
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樂觀主義者反而沒有存活下來。
04:29
They said, "We'll be out by Christmas,"
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他們說:「到聖誕節 我們就能出去了。」
04:31
and Christmas would come and Christmas would go,
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然後聖誕節來了,聖誕節過了,
04:33
and then it would be Christmas again,
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下一個聖誕節又來了,
04:36
and when they didn't get out, they became disappointed, demoralized
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當他們沒有真的出去時, 他們變得很失望、洩氣,
04:41
and many of them died in their cells.
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當中很多人都死在牢房當中。
04:46
Stockdale was a realist.
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史托迪爾是現實主義者。
04:49
He was inspired by the stoic philosophers,
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他的啟發來自堅忍的哲學家,
04:52
and he confronted the brutal facts of his circumstances
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他正視自己處境的殘酷事實,
04:59
while maintaining a faith that he would prevail in the end.
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同時保持信念,相信他最終會獲勝。
05:04
And in that blog, I was trying to apply his thinking as a realist
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在那篇網誌中,我試著 把他的現實主義者思想
05:08
to my increasingly bleak circumstances.
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應用到我越來越沒希望的處境上。
05:11
During the many months of heart infections and kidney infections
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我跌落之後,有好幾個月的時間,
我心臟感染、腎臟感染, 在生死邊緣掙扎,
05:15
after my fall, at the very edge of survival,
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05:20
Simone and I faced the fundamental question:
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我和席夢面臨了一個很重要的問題:
05:25
How do you resolve the tension between acceptance and hope?
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如何消除接受和希望間的緊繃關係?
05:30
And it's that that we want to explore with you now.
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這就是我們想要與各位 一同探究的主題。
05:35
SG: After I got the call, I caught the first flight to England
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席:我接到電話之後, 立刻搭上第一班飛機飛往英國,
05:38
and arrived into the brightly lit intensive care ward,
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抵到了燈火通明的加護病房,
05:42
where Mark was lying naked, just under a sheet,
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馬克裸身躺著,僅蓋著一張薄床單,
05:45
connected to machines that were monitoring if he would live.
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機器接在他身上, 監控他是否還活著。
05:50
I said, "I'm here, Mark."
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我說:「我來了,馬克。」
05:53
And he cried tears he seemed to have saved just for me.
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他流下眼淚,彷彿 那些眼淚是為我保留的。
05:58
I wanted to gather him in my arms, but I couldn't move him,
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我好想擁抱他,但我不能去動他,
06:03
and so I kissed him the way you kiss a newborn baby,
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所以我用親吻新生寶寶的方式吻他,
06:07
terrified of their fragility.
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怕傷了脆弱的他們。
06:10
Later that afternoon, when the bad news had been laid out for us --
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當天下午晚些時候, 我們聽到了壞消息:
06:14
fractured skull, bleeds on his brain, a possible torn aorta
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頭骨破裂、腦出血, 可能還有主動脈破裂,
06:19
and a spine broken in two places, no movement or feeling below his waist --
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脊椎也有兩處斷裂,
腰部以下沒有感覺,也無法動作。
06:25
Mark said to me, "Come here.
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馬克對我說:「過來這裡。
06:29
You need to get yourself as far away from this as possible."
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你得要讓你自己 盡可能遠離這件事。」
06:35
As I tried to process what he was saying,
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我試圖想通他在說什麼。
06:38
I was thinking, "What the hell is wrong with you?"
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我心想:「你是怎麼搞的?」
06:41
(Laughter)
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(笑聲)
06:43
"We can't do this now."
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「我們現在不能這樣。」
06:45
So I asked him, "Are you breaking up with me?"
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所以,我問他: 「你是要和我分手嗎?」
06:49
(Laughter)
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(笑聲)
06:52
And he said, "Look, you signed up for the blindness, but not this."
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他說:「聽著,你選擇接受的是 失明的我,但不是這種狀況。」
06:58
And I answered, "We don't even know what this is,
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我回答:「我們甚至 還不知道這是什麼狀況,
07:01
but what I do know is what I can't handle right now
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但我知道當我所愛的人 還在加護病房時,
07:04
is a breakup while someone I love is in intensive care."
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我無法處理分手這種事。」
07:07
(Laughter)
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(笑聲)
07:09
So I called on my negotiation skills and suggested we make a deal.
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所以,我使出談判技巧, 建議我們做個約定。
07:14
I said, "I will stay with you as long as you need me,
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我說:「只要你還需要我, 我就會陪著你,
07:17
as long as your back needs me.
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只要你背部的復原還需要我。
07:20
And when you no longer need me, then we talk about our relationship."
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當你不再需要我時, 我們再來談我們的關係。」
07:24
Like a contract with the possibility to renew in six months.
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這就像一份合約, 很可能每六個月就會更新。
07:28
(Laughter)
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(笑聲)
07:31
He agreed and I stayed.
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他同意了,而我留下了。
07:34
In fact, I refused to go home even to pack a bag, I slept by his bed,
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事實上,我甚至拒絕回家打包 一些東西過來,我就睡在他床邊,
07:38
when he could eat, I made all his food,
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在他能進食時, 他的食物都是我做的,
07:41
and we cried, one or other or both of us together, every day.
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我們每天都會哭,有時他哭, 有時我哭,有時我們一起哭。
07:47
I made all the complicated decisions with the doctors,
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我和醫生一起做所有複雜的決定,
07:50
I climbed right into that raging river over rapids that was sweeping Mark along.
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我攀進那條一路沖向馬克的 洶湧河流當中。
08:00
And at the first bend in that river, Mark's surgeon told us
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在那條河流的第一個彎處, 馬克的外科醫生告訴我們,
08:04
what movement and feeling he doesn't get back in the first 12 weeks,
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若馬克在前十二週之內 無法恢復的動作和感覺,
08:08
he's unlikely to get back at all.
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將來就可能再也無法恢復了。
08:13
So, sitting by his bed, I began to research why,
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所以,我坐在他的床邊, 開始研究為什麼
08:16
after this period they call spinal shock,
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在這個所謂的「脊髓損傷」期之後,
08:19
there's no recovery, there's no therapy, there's no cure, there's no hope.
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就沒有恢復、沒有治療、 沒有痊癒、沒有希望。
08:25
And the internet became this portal to a magical other world.
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網際網路變成了通往 另一個魔法世界的入口。
08:29
I emailed scientists,
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我寫電子郵件給科學家,
08:31
and they broke through paywalls
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他們打破了付費牆,
08:33
and sent me their medical journal and science journal articles directly.
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直接把醫學期刊 和科學期刊的文章寄給我。
08:37
I read everything that "Superman" actor Christopher Reeve had achieved,
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我讀了和《超人》演員 克里斯多夫李維
落馬之後辦到的事有關的所有資訊,
08:40
after a fall from a horse
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08:42
left him paralyzed from the neck down and ventilated.
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落馬意外讓他頸部以下癱瘓並氣切。
08:46
Christopher had broken this 12-week spell;
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克里斯多夫打破了這十二週的魔咒;
08:49
he had regained some movement and feeling years after his accident.
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在他的意外之後數年, 他恢復了一些動作和感覺。
08:54
He dreamed of a world of empty wheelchairs.
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他夢想不使用輪椅的世界。
08:59
And Christopher and the scientists he worked with fueled us with hope.
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克里斯多夫和他合作的科學家 讓我們充滿希望。
09:06
MP: You see, spinal cord injury
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馬:要知道脊髓損傷直接命中靶心,
09:08
strikes at the very heart of what it means to be human.
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攻擊人生而為人的意義。
09:12
And it had turned me from my upright, standing, running form,
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它把我從直挺挺站立、跑步的形式
09:17
into a seated compromise of myself.
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轉變成以坐姿妥協的我。
09:21
And it's not just the lack of feeling and movement.
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癱瘓不只是少了感覺和動作。
09:24
Paralysis also interferes with the body's internal systems,
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癱瘓也會影響到身體的內在系統,
09:28
which are designed to keep us alive.
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目的是要維生的系統。
09:31
Multiple infections, nerve pain, spasms, shortened life spans are common.
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多重感染、神經痛、痙攣、 生命縮短都很常見,
09:36
And these are the things that exhaust even the most determined
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這些甚至使全世界六千萬癱瘓者 當中最堅定的人精疲力盡。
09:39
of the 60 million people around the world who are paralyzed.
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09:45
Over 16 months in hospital,
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在醫院待了十六個月,
09:48
Simone and I were presented with the expert view
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我和席夢得到的專家看法是: 已有證明顯示,
09:51
that hoping for a cure had proven to be psychologically damaging.
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「希望能痊癒」會造成心理上的傷害。
09:55
It was like the formal medical system was canceling hope
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就好像正式的醫療體制
就只取消希望,讓病人認命。
09:59
in favor of acceptance alone.
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10:02
But canceling hope ran contrary to everything that we believed in.
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但取消希望完全違背了 我們所相信的一切。
10:09
Yes, up to this point in history,
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是的,在歷史上,一直到這個時點,
10:12
it had proven to be impossible to find a cure for paralysis,
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已經證明癱瘓是無解的,
10:15
but history is filled with the kinds of the impossible made possible
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但歷史上也有非常多的不可能,
透過人類的努力,變成可能。
10:20
through human endeavor.
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10:22
The kind of human endeavor that took explorers to the South Pole
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在上個世紀末,正是那種人類的努力
讓探險家到南極去的那種努力。
10:25
at the start of the last century.
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10:27
And the kind of human endeavor
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那種人類的努力,
10:29
that will take adventurers to Mars in the early part of this century.
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將能夠在這個世紀前期 把冒險家帶到火星上。
10:34
So we started asking,
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所以,我們開始問:
10:36
"Why can't that same human endeavor cure paralysis in our lifetime?"
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「為什麼同樣的人類努力無法 治癒我們人生中的癱瘓?」
10:42
SG: Well, we really believed that it can.
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席:我們真心相信是可以的。
10:45
My research taught us
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我的研究告訴我們,
10:47
that we needed to remind Mark's damaged and dormant spinal cord
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我們得要提醒馬克 那受損且休眠的脊髓
10:52
of its upright, standing, running form,
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它原本直挺挺站立、跑步的形式,
10:54
and we found San Francisco-based engineers at Ekso Bionics,
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我們找上了舊金山 Ekso Bionics 公司的工程師,
10:59
who created this robotic exoskeleton that would allow Mark to stand and walk
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在我們開始建造的都柏林實驗室中
11:03
in the lab that we started to build in Dublin.
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打造了這套機械外骨骼, 讓馬克可以站立和行走。
11:07
Mark became the first person to personally own an exo,
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馬克成了第一個擁有外骨骼的個人,
11:11
and since then, he and the robot have walked over one million steps.
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從那之後,他和機器人 已經走了超過一百萬步。
11:17
(Applause)
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(掌聲)
11:22
It was bit of an early celebration, because actually it wasn't enough,
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慶祝還太早了些,因為那樣並不夠,
11:26
the robot was doing all of the work,
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一切都是靠機器人在做,
11:29
so we needed to plug Mark in.
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我們得要把馬克接上去。
11:31
So we connected the San Francisco engineers
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所以我們連結舊金山的工程師
11:34
with a true visionary in UCLA, Dr. Reggie Edgerton,
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和真正有遠見的 加大洛杉磯分校雷吉艾傑頓博士,
11:39
the most beautiful man
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他是最美好的人,
11:41
and his team's life work had resulted in a scientific breakthrough.
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他的團隊投入一生的成果, 帶來了科學上的突破。
11:46
Using electrical stimulation of the spinal cord,
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用脊髓的電刺激,
11:49
a number of subjects have been able to stand,
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許多受測對象已經能夠站立,
11:52
and because of that, regain some movement and feeling
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也因此能恢復一些動作和感覺,
11:55
and most importantly,
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最重要的是,
11:57
to regain some of the body's internal functions
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也恢復了身體的一些內部功能,
12:00
that are designed to keep us alive and to make that life a pleasure.
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用來維生並讓人生 成為一種樂事的功能。
12:06
Electrical stimulation of the spinal cord,
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我們認為,對脊髓做電刺激
12:09
we think, is the first meaningful therapy ever for paralyzed people.
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對癱瘓者而言 是第一個有意義的治療法。
12:16
Now, of course, the San Francisco engineers
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當然,舊金山的工程師
12:18
and the scientists in UCLA
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及加州大學洛杉磯分校的科學家
12:20
knew about each other, knew about each other's work.
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知道彼此,也知道彼此在做的研究。
12:23
But as so often happens
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但常常發生的狀況是,
12:25
when we're busy creating groundbreaking scientific research,
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當我們忙著
創造突破性的科學研究時,
12:32
they hadn't quite yet got together.
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他們尚未湊在一起。
12:35
That seemed to be our job now.
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現在,這似乎就是我們的工作了。
12:38
So we created our first collaboration,
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所以我們促成了第一次的合作,
12:41
and the moment when we combined
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在我們結合了馬克的 脊髓電刺激的那一刻,
12:43
the electrical stimulation of Mark's spinal cord,
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12:46
as he walked in his robotic exoskeleton,
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當他用他的機械外骨骼來行走時,
12:48
was like that moment when Iron Man plugs the mini arc reactor into his chest
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就好像鋼鐵人裝上了 胸口的迷你反應爐的時刻,
12:53
and suddenly he and his suit become something else altogether.
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突然間他和鋼鐵裝 一起變成另一種東西。
12:59
MP: Simone, my robot and I moved into the lab at UCLA for three months.
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馬:席夢、我的機器人,和我
一起搬入加州大學 洛杉磯分校的實驗室三個月。
13:04
And every day, Reggie and his team
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每天,雷吉和他的團隊
13:07
put electrodes onto the skin on my lower back,
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會把電極連結到我下背的皮膚上,
13:10
pushed electricity into my spinal cord to excite my nervous system,
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將電送入我的脊髓中, 刺激我的神經系統,
13:15
as I walked in my exo.
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同時我則用我的外骨骼來走路。
13:18
And for the first time since I was paralyzed,
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那是我癱瘓之後第一次
13:20
I could feel my legs underneath me.
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能夠感受到我下半身的雙腳。
13:24
Not normally --
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通常是感受不到的——
13:25
(Applause)
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(掌聲)
13:27
Thank you.
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謝謝你們。
13:28
(Applause)
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(掌聲)
13:30
It wasn't a normal feeling, but with the stimulator turned on,
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那不是一般的感覺, 但當刺激器開啟,
13:33
upright in my exo, my legs felt substantial.
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我的外骨骼直立起來時, 我的雙腳感覺很實在。
13:37
I could feel the meat of my muscles on the bones of my legs,
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我能夠感覺到我的腿骨 上面有我的肌肉,
13:43
and as I walked, because of the stimulation,
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當我行走時,因為那刺激,
13:46
I was able to voluntarily move my paralyzed legs.
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我能夠自主地移動我癱瘓的雙腳。
13:49
And as I did more, the robot intelligently did less.
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當我能夠做更多時 機器人就很智慧地配合少做。
13:54
My heart rate got a normal running, training zone
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我的心跳率很正常,在每分鐘
140~160 下的訓練區間,
13:58
of 140 to 160 beats per minute,
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14:01
and my muscles, which had almost entirely disappeared,
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我本已幾乎全都消失的肌肉
14:05
started to come back.
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也漸漸長回來了。
14:07
And during some standard testing throughout the process,
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在過程中做的標準測試,
14:11
flat on my back,
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我平躺著,
14:12
twelve weeks, six months and three whole years
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我從窗戶跌落並癱瘓之後
14:16
after I fell out that window and became paralyzed,
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十二週、六個月、整整三年過了。
14:20
the scientists turned the stimulator on
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科學家啟動刺激,
14:24
and I pulled my knee to my chest.
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我把膝蓋拉向胸口。
14:28
(Video) Man: OK, start, go, go, go, go, go.
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(影片)男子:好,開始, 來,來,來,來。
14:32
Good, good, good.
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很好,很好,很好。
14:33
SG: Yeah, yeah, go on, Mark, go on, go, go, go, go, go, wow!
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席:對,對,繼續,馬克, 繼續,來,來,來,來,哇!
14:37
(Applause)
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(掌聲)
14:38
(Laughter)
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(笑聲)
14:40
SG: Well done!
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席:做得好!
14:41
(Applause)
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(掌聲)
14:45
MP: Do you know, this week, I've been saying to Simone,
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馬:你們知道嗎, 這週我一直對席夢說,
14:47
if we could forget about the paralysis,
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如果我們能夠忘了癱瘓這件事,
14:50
you know, the last few years have been incredibly exciting.
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那麼過去幾年真是非常讓人興奮。
14:53
(Laughter)
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(笑聲)
14:56
Now, the problem is, we can't quite forget about the paralysis just yet.
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問題是,我們還不太能夠 忘記癱瘓這件事。
15:01
And clearly, we're not finished,
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顯然我們還沒結束,
15:02
because when we left that pilot study and went back to Dublin,
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因為當我們離開那試驗性研究,
回都柏林,我坐著輪椅回家,
15:05
I rolled home in my wheelchair
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15:07
and I'm still paralyzed and I'm still blind
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我仍然癱瘓、失明。
15:10
and we're primarily focusing on the paralysis at the moment,
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那時我們主要把焦點放在癱瘓上,
15:13
but being at this conference,
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但在這場大會上,
15:14
we're kind of interested if anyone does have a cure for blindness,
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我們還蠻想知道有沒有人 會有辦法治癒失明,
15:17
we'll take that as well.
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那我們也想要。
15:19
(Laughter)
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(笑聲)
15:21
(Applause)
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(掌聲)
15:27
But if you remember the blog that I mentioned,
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但,如果你們還記得 我提到的那篇網誌,
15:30
it posed a question of how we should respond,
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它提出一個問題:我們該如何反應,
15:33
optimist, realist or something else?
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樂觀主義者、現實主義者,或其他?
15:36
And I think we have come to understand that the optimists rely on hope alone
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我想,我們漸漸了解到 樂觀主義者只仰賴希望,
15:40
and they risk being disappointed and demoralized.
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他們要冒的風險就是失望和洩氣。
15:44
The realists, on the other hand,
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另一方面,現實主義者
15:48
they accept the brutal facts and they keep hope alive, as well.
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接受殘酷的事實,同時仍保有希望。
15:54
The realists have managed to resolve the tension between acceptance and hope
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現實主義者有辦法消除 在接受和希望之間的緊繃關係,
15:59
by running them in parallel.
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做法就是讓兩者平行進行。
16:02
And that's what Simone and I have been trying to do
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在過去幾年間,
我和席夢也一直在試著這麼做。
16:04
over the last number of years.
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16:06
Look, I accept the wheelchair --
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我接受輪椅——
16:08
I mean, it's almost impossible not to.
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我的意思是,幾乎不可能不接受。
16:11
And we're sad, sometimes, for what we've lost.
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有時,對於我們所失去的, 我們會感到悲傷。
16:14
I accept that I, and other wheelchair users, can and do live fulfilling lives,
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我能接受我和其他輪椅使用者 能夠且確實過著滿足的生活,
16:20
despite the nerve pain and the spasms and the infections
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儘管要承受神經痛、痙攣、感染,
16:23
and the shortened life spans.
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以及縮短的壽命。
16:25
And I accept that it is way more difficult
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我也接受對於從脖子以下 癱瘓的人來說,一切都更困難。
16:28
for people who are paralyzed from the neck down.
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16:30
For those who rely on ventilators to breathe,
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還有要靠呼吸器呼吸的人、
16:33
and for those who don't have access to adequate, free health care.
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以及無法取得適當、 免費健康照護的人。
16:38
So, that is why we also hope for another life.
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那是為什麼我們也希望有另一人生,
16:44
A life where we have created a cure through collaboration.
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那個我們透過合作創造療法的人生。
16:48
A cure that we are actively working to release from university labs
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我們很主動努力想要
從全世界各大學實驗室釋出的療法,
16:53
around the world
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16:54
and share with everyone who needs it.
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並想要和任何需要的人分享。
16:59
SG: I met Mark when he was just blind.
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席:我遇見馬克時,他剛失明。
17:04
He asked me to teach him to dance, and I did.
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他要我教他跳舞,而我教了。
17:08
One night, after dance classes,
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有一天晚上,在舞蹈課後,
17:09
I turned to say goodnight to him at his front door,
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在他家門前,我轉身向他說晚安,
17:12
and to his gorgeous guide dog, Larry.
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也跟他那隻很棒的 導盲犬賴瑞說晚安。
17:15
I realized, that in switching all the lights off in the apartment
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我知道,在我離開之前 關掉公寓內的所有燈光
17:19
before I left,
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17:20
that I was leaving him in the dark.
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就是把他丟在黑暗中。
17:23
I burst into uncontrollable tears and tried to hide it, but he knew.
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我無法控制地突然哭起來,
我試著隱藏,但他知道。
17:30
And he hugged me and said,
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他擁抱了我,說: 「啊,可憐的席夢。
17:33
"Ah, poor Simone.
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17:35
You're back in 1998, when I went blind.
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你回到了 1998 年, 我失明的時候。
17:39
Don't worry, it turns out OK in the end."
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3349
別擔心,最後結果是沒事的。」
17:44
Acceptance is knowing that grief is a raging river.
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接受就是知道那哀慟是一條怒河。
17:51
And you have to get into it.
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你得要踏進河裡。
17:53
Because when you do, it carries you to the next place.
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因為當你這麼做時, 它就會帶你到下一個地方。
17:58
It eventually takes you to open land,
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它最終會帶你到一片開放的大地,
18:00
somewhere where it will turn out OK in the end.
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在那裡,最終,一切都會沒事的。
18:06
And it truly has been a love story,
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這真的是個愛情故事,
18:09
an expansive, abundant, deeply satisfying kind of love
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廣闊、豐富、深深滿足的那種愛,
18:15
for our fellow humans and everyone in this act of creation.
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給我們的人類同胞 及這創造行為中的每個人。
18:22
Science is love.
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科學是愛。
我們在這領域遇到的每個人
18:25
Everyone we've met in this field
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18:26
just wants to get their work from the bench and into people's lives.
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都只想把他們的研究從工作台上 推進到人們的生命當中。
18:31
And it's our job to help them to do that.
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而我們的工作就是協助他們做到。
18:35
Because when we do, we and everyone with us
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因為當我們這麼做時,
我們以及在這創造行為中 我們身邊的每個人
18:39
in this act of creation
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18:41
will be able to say,
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都將能夠說:
18:43
"We did it.
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「我們辦到了。接著我們跳舞。」
18:45
And then we danced."
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18:49
(Video) (Music)
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(影片)(音樂)
18:56
SG: Thank you.
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席:謝謝大家。
18:58
(Applause)
308
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4909
(掌聲)
19:03
MP: Thank you.
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馬克:謝謝大家。
19:04
(Applause)
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(掌聲)
19:13
Thank you.
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謝謝大家。
19:14
(Applause)
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6935
(掌聲)
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