My mother's final wish -- and the right to die with dignity | Elaine Fong

Transcriber:

譯者: Val Zhang 審譯者: Amanda Zhu

What do you want to create?

Where do you share this with others,

and how do you want them to feel?

你想創造什麼？

As a brand designer,

你在哪與他人分享？

I ask a lot of questions

你希望帶給他們什麼感受？

and practice empathy to understand from people

作為品牌設計師，

我提出許多問題

their personalities and motivations behind the why of what they do

並實踐同理心，

以了解人們的個性 和行為背後的動機，

to help them express themselves,

sometimes transforming ugly moments into unique ones,

協助他們表達自我，

有時化不堪為不凡，

or turning something ordinary into something memorable.

或化普通為深刻，

To help the face behind a brand

express themselves through beautiful experiences.

幫助品牌背後的主體

透過美好的體驗表達自我。

But what happens

when the experience you've been asked to design is death

但若是

and the face behind that brand is your very own mother?

請你設計的體驗是死亡，

而品牌背後的主體 是你的母親呢？

This was the design challenge I was faced with last year

when my mom was diagnosed with stage four cancer,

這是我去年面臨的設計挑戰──

and she asked us to support her end of life.

當母親被診斷為癌症第四期，

她請我們支持她渡過生命盡頭。

For 12 years, she was in remission from a previous cancer.

12 年來，她一直處於 前次癌症的緩解期。

She had a tumor behind her ear,

and this time it came back as bone cancer in one of her vertebrae.

她先前在耳後長了腫瘤，

現在轉移至脊椎的骨癌。

What we all thought was back pain from arthritis

revealed itself to be the worst.

我們以為只是關節炎引起的背痛，

It was the beginning of the end of her life.

結果卻是最壞的可能。

But first, let me tell you about my mom.

這是她生命盡頭的序曲。

She was born in China in 1948.

但首先，讓我介紹我的母親。

She and her twin brother grew up in a large family.

1948 年她出生於中國。

Her mother was the second wife to her father

她和孿生兄弟成長於大家庭。

and second wives and their children weren't viewed in the most positive light

她的母親是二房，

because it was just the cultural norm of the time.

而二房的子女並不被認可，

當時的文化就是如此。

And growing up in communist China in the 1950s as a daughter and not a son

在 1950 年代共產主義下的中國， 身為女兒而非兒子

meant that my mom was not the pride of the family.

And she knew she wanted better and needed to get out.

意味著我母親不會是家族的驕傲。

So she got tough,

她知道自己渴求的 是更好的，所以得出走。

developed thick skin and decided to fight for her life.

於是她學著堅強，

學著厚著臉皮，為自己而爭取。

She fled China to Hong Kong,

and when she was 22 she married my dad

她從中國逃到香港，

and they made their life in the United States.

22 歲時她嫁給了父親，

And she continued to fight.

然後他們在美國展開生活。

She was persistent, fearless.

她繼續挺身爭取。

She never took no for an answer.

她意志堅定、無所畏懼。

We always said that she could charm the skin off of a snake

她從不輕言放棄。

or just whip it into a straight line.

我們總說她魅力非凡，

(Laughter)

Growing up with our mom,

能夠軟硬兼施。

she fought for my sisters and I to get into the best classes in school,

（笑聲）

在母親的教育下，

even though they were full.

她為女兒們爭取進入最好的班級，

She fought for a prime real estate location for my dad

即使原已額滿。

so he could start his own business.

她為父親爭取最佳的地段

And as a teenager with me,

we fought a lot over bad boyfriends, body piercings, punk music.

以利其開業。

在我青春期時，

我們常為不理想的男友、 穿洞、龐克音樂而爭執。

It's always true when they say mom's always right.

「媽媽永遠是對的。」 這句話一點也沒錯。

The cancer she had in 2004 gave her a preview into her death.

2004 年的癌症讓她預窺死亡。

At that time,

she had endured a lot of radiation and treatments.

當時她忍受了很多放射治療。

A lot of radiation involved the side of her brain,

and she never forgot

她的側腦接受大量的放射治療，

how the mental and physical side effects made her feel.

她從未忘記

副作用對精神和身體的影響。

Overcoming that cancer was a source of pride for her,

as well as traveling the world with my dad,

戰勝癌症是她驕傲的源泉，

watching all of her daughters get married

還有和父親一同環遊世界、

and seeing her grandbabies grow up into teenagers.

看著她所有的女兒結婚

及孫子們長成青少年。

Her world was filled with beautiful experiences and a lot of color.

她的世界多采多姿。

But she never talked about the shades of gray.

She never talked about how that preview into her death

但她從未提起心中的陰影。

她從未提過──預窺死亡

gave her 12 years to silently prepare and brace herself for the end.

給了她 12 年默默準備 並接受生命盡頭。

This time, when we gathered around her in the hospital,

she had an announcement to make.

這次，當我們在醫院， 圍繞在她身邊，

She said that she did not want to do any treatments, no surgery.

她有事宣布。

她說不想接受任何治療或手術。

She was ready to go.

She looked at us point blank and said that.

她已準備迎向終點。

She did not want to live life trapped to a bed,

說這些話時她堅決地看著我們。

她不希望困在床上，

unable to feed herself,

unable to use the bathroom for herself.

She did not want to become a vegetable.

無法自己進食，

無法自行解便。

And she wanted to exit this world knowing exactly who she was.

她不想成為植物人。

她希望離世之際，仍有自我意識。

She was adamant.

她的態度堅決。

In the state of Washington where my mom lived,

Death With Dignity has been in effect since 2009.

在母親住的華盛頓州──

《尊嚴善終法》自 2009 年起生效。

And for those of you who aren't familiar,

Death With Dignity is legislation

that empowers individuals to decide for themselves to move on

有些人或許不熟悉此法案，

《尊嚴善終法》是部法案：

賦予個人積極自主的善終權，

when science has confirmed the end is near.

當科學已證實生命將盡。

It gives individuals the legal right

to decide and act for themselves to move on

它賦予個人合法權利

when faced with a terminal illness.

在面臨絕症時能自主生死。

Death With Dignity is legal in five out of 50 US states,

《尊嚴善終法》在美國 50 州中的 5 州已合法，

and is one of many end-of-life care options available.

是眾多臨終照護的選項之一。

It was this particular end-of-life care option that my mom wanted.

And she asked us to support her through this.

這便是母親想要的臨終照護選擇。

We were devastated and none of us knew what to say.

她請我們支持這個決定。

So she spoke first.

我們很震驚， 沒人知道該說些什麼。

於是她先開口了：

"I want a private ceremony at home, immediate family only.

This is the outfit that I want to wear and don't spend any money on flowers,

「我想在家裡舉行私人儀式， 只有家人參加。

but if you do, I like yellow ones."

這就是我想穿的衣服 而且不用買花，

(Laughter)

"I want my ashes scattered on Mount Rainier,

但如果你們堅持， 我喜歡黃色的花朵。」

and afterwards for you all to have a dinner party,

（笑聲）

「我希望骨灰散在雷尼爾山，

you know, nothing fancy, casual,

之後你們辦場晚宴，

maybe with some Southern-style food and some music."

不用鋪張，自在就好，

也許搭配美國南方風格 的食物和些音樂。」

She knew exactly what she wanted.

She wanted a celebration.

她很清楚自己想要什麼。

After a lot of tears and listening,

她想要一場慶祝。

hospice came in to consult with us on next steps.

在許多眼淚及聆聽之後，

安寧照護提供諮詢後續的流程。

And we learned that we needed signatures from two doctors

我們得知需要兩位醫生的簽名

in order to proceed with Death With Dignity.

以推進尊嚴善終的執行。

Her primary care physician said he would sign,

初級照護醫師願意簽署，

but only if her oncologist signed off first.

Her oncologist was shocked.

前提是腫瘤科醫師先簽了名。

He was so surprised that she was ready to make such a swift decision.

她的腫瘤科醫師很震驚。

他訝異她這麼快地決定。

He said, "You know, like, it's stage four cancer,

but you could live for another six months, maybe even longer.

他說「 這是第四期癌症，

Don't you want to have more time to live?

但妳還有六個月，甚至更久，

Don't you want to enjoy life for as long as you can?"

妳難道不想活久一點嗎？

妳不想盡可能地享受生命嗎？ 」

My mom said she wanted Death With Dignity.

"This is my time. This is what I want."

母親說她想執行尊嚴善終。

He told her no.

「我的時候到了。這是我想要的。」

他拒絕她。

We were really confused.

Her cancer was confirmed,

我們不知所措。

hospice just came in and walked us through the process.

她的癌症確診，

As a doctor and an educated man of science,

安寧照護剛引導我們了解流程。

he is trained to problem-solve diseases.

作為醫生和受科學教育的人，

他的專業訓練是治療疾病。

His expertise is to find solutions for illnesses,

not to relate to my mom's personal view on life.

他的專長是為疾病找到解方，

而非同理我母親的人生觀。

We needed to understand where he was coming from.

我們必須理解他的背景。

He was honest and said, "Look, I'm new to Washington.

I just transferred here from California where this law was recently made legal.

他老實地說「我剛來華盛頓。

我剛從加州轉過來， 該法案近期才生效，

I have never experienced this before.

I need time to think about it.

我沒有經驗。

No, I won't sign."

我需要時間思考。

He looked at my sisters and I to back him up.

不，我不會簽字。 」

他盼望我們姐妹會支持他。

And we looked at our mom

and she was overcome with disappointment and burst into tears.

我們望向母親，

她失望地淚流滿面。

This was a woman who never took no for an answer.

And after 12 years of preparing for her end,

這是位從不輕言放棄的女性。

she found herself fighting again.

在 12 年後，準備好面對臨終之際，

She was fighting for her life to end, for her right to die.

她發現仍得為自己爭取。

這次為終止生命及自主死權而爭。

In hospice and palliative care,

there are three main focus areas for support.

在安寧照護及緩和療護中，

主要著眼三個層面：

Comfort, spirituality and peace.

It's a testament to our society that this level of care is available,

舒適度、心靈、安寧。

這些照護的存在， 亦顯現文明水準，

ranging from pragmatic to natural and holistic,

if you can afford it.

從務實到自然、全人照護，

As a family, we decided to care for our mom at home.

若經濟條件許可。

我們家人共同決定 在家中照護母親。

And in order to create a comfortable space for her,

we needed to get creative.

為了創造讓她舒適的環境，

我們得發揮創意。

In the initial stages of her diagnosis,

在初期，她能藉由助行器走動，

she was mobile with the help of a walker,

even though she was frail.

In order to get blood circulation flowing through her legs,

儘管她很虛弱。

we needed to get creative with her exercises.

為促進腿部血液循環，

We decided to have fun.

我們得在她的運動上發揮巧思。

So we would see how many Beatles songs it would take for her

我們決定要玩得開心。

to walk around the kitchen island, X amount of times,

我們看放幾首披頭四的歌

all of us singing along to "Love Me Do" and "Let It Be."

能讓她繞廚房中島幾圈，

我們跟著唱《Love Me Do》 和《Let It Be》。

We watched YouTube videos to learn how to give her haircuts

and the house didn't have a shower on the main floor,

我們看 YT 影片學自助理髮。

so on the weekends,

房子一樓沒有淋浴室設備，

we would sneak our mom into my sister's office

所以在周末，

and use the handicap accessible shower.

我們將母親偷渡 進入姐妹的辦公室

This deluge of hot steaming water,

使用無障礙淋浴。

my mom's body felt so amazing to her.

豐沛的熱水澡

It was one of the last little luxuries that she wished for

讓母親的身體感覺無與倫比。

compared to the sponge baths that we gave her.

這是她最後的小奢求──

比起我們給她的海綿浴。

A lot of her time was spent resting in bed

and we would watch documentaries together

她大多臥床休息，

and classic Warren Beatty movies.

我們會一起看紀錄片

Sometimes she'd ask me for a mood board of beautiful images of Mount Rainier,

和經典的華倫·比提的電影。

有時她向我要雷尼爾山 的優美情境圖，

so she could look forward to where ashes would rest.

讓她能想見骨灰的長眠處。

Once a month she would see her oncologist for status updates,

and it was very clear from test results that her cancer was growing.

每月一次，她回診看腫瘤科，

從檢查結果中 清楚地看出腫瘤在長大。

Every time she'd plead with him

to have her Death With Dignity wish fulfilled,

and he'd say no,

每次她懇求他，

讓她實現尊嚴善終的願望，

and she'd go home disappointed.

他拒絕，

At this point,

她失望地回家。

she was in a chest brace and a wheelchair

because her bones could no longer support her.

在這個階段，

她戴著胸腔支撐器，坐著輪椅，

因為骨頭無法支撐她了。

It’s easy for us to think of design as aesthetics

我們傾向將設計

or creating visuals.

Design is also a tool for communication,

想成美學或設計視覺。

a combination of creativity and empathy.

設計也是溝通的工具，

Earlier, I referred to my mom's death as a design challenge,

結合創意和同理心。

which I know sounds strange and off-putting.

剛剛我將母親的臨終 比喻為設計挑戰，

It's a challenge because for obvious reasons,

我知道這聽來奇怪和令人反感。

but it involved design because it required us to talk about it,

這很明顯的是項挑戰，

to talk about it with her doctors and hospice and with our families

但這涉及設計因為它需要被討論，

to make decisions.

和醫生、安寧照護及家人討論，

以做出決定。

By having the conversation,

it allowed us to come together to grasp what was happening,

透過對話，

so we could have a shared language with a common goal for understanding.

讓我們一同掌握狀況，

讓我們有共通的語言 和共同的目標。

One night,

when I was sitting next to my mom,

I was caressing her arm,

有一晚，我坐在母親身邊，

and I noticed that the texture of her skin was unusually dry.

我輕撫著她的手臂，

And the color of her flesh was dull.

我注意到她的皮膚異常乾燥。

I had been so focused on executing her end-of-life wishes

而她的膚色黯沉。

我一直專注於執行她的臨終願望，

that I realized, I didn't know what the end of her life felt like.

我才意識到：我不知道 她的生命盡頭感覺如何。

I didn't know what she was going through because I just accepted it.

我不知道她經歷了什麼 因為我一昧地接受。

So I asked her, "What does it feel like?"

於是我問她：「這是什麼感覺？」

"What does what feel like?"

"Cancer.

What does your cancer feel like?"

「什麼的感覺？」

「癌症。

"Fire," she said.

癌症帶給妳什麼樣的感覺？」

"My bones are on fire and everywhere under my skin is burning.

她說：「火。」

「 我的骨頭著了火， 皮膚下的每吋都在燃燒。

And every time I move, it just makes it worse.

My whole body is on fire."

每次移動，就更不舒服。

我的整個身體都在燃燒。 」

After a moment,

she said, "Are you mad at me?"

片刻之後，

她說：「妳生我的氣嗎？」

"No. Why would I be mad at you?"

「沒有。我為什麼要生妳的氣？」

"For wanting to move on,

for wanting to go to heaven, because it's my time?"

「因為想要放下，

因為時候到了，我想去天堂？ 」

I looked her in the eye and I said,

"I'm really proud of you.

我看著她的眼睛說，

I think you're brave.

「我真的以妳為傲。

I think you're a designer like me."

我覺得妳很勇敢。

She perked up.

我覺得妳就像我，也是設計師。」

She was like, "Oh, really? You think I'm a designer?"

她精神一振。

"Yes.

她說：「 真的？ 妳認為我是設計師 ？」

You're creating the experience that you want to have.

「是的。

You're designing how you say goodbye."

妳在創造想要的體驗。

She took my hand and said,

妳在設計說再見的方式。 」

"You understand."

她拉著我的手說：

「妳懂。」

The next visit to her oncologist was her last one.

What started as a small cluster in one vertebrae

下次的腫瘤科回診便是最後一次。

expanded throughout her spine

開始只是一節脊椎的小癌細胞簇，

and pushed its way forward into her sternum and her rib cage.

擴散到整個脊椎，

All within four months.

持續擴散進她的胸骨和肋骨。

This time there was no begging.

全發生在四個月之內。

He said, "The cancer is growing really fast."

這次無須再懇求。

他說：「癌細胞增生地非常快。」

She looked at him in the eye and said, "I know."

她直視著他說：「我知道。」

Two days later,

she got her two signatures and signed legal documents

and prescription to proceed with Death With Dignity.

兩天後，

她拿到兩位醫師的簽名、 已簽核的法律文件和處方，

The fight was over and she won.

以執行尊嚴善終。

It was actually one of the happiest days of her life.

戰鬥結束了，她贏了。

那其實是她人生中 最快樂的日子之一。

I want to be clear and say

that I don't think it was wrong of the oncologist

我想清楚地表達：

to hesitate on Death With Dignity.

我不認為腫瘤科醫生

It was his responsibility to have a conversation with us,

對尊嚴善終的猶豫有誤。

to guide us in understanding

與我們對話是他的責任，

and needing us to be curious about all medical treatments

引導我們理解

that were available

並讓我們好奇：

until it was very clear her illness was terminal.

任何現行可能的醫療選項，

And I completely respect him for that.

直到病情確診是末期。

我完全尊重他的立場。

It was also our responsibility to have a conversation with him,

與他對話也是我們的責任，

to guide him in understanding our mom's wishes for her end of life.

引導他理解母親對她臨終的想望。

He needed to be curious about that alternative as well.

他也需要對替代方法有所好奇。

When it came time to fill the prescription,

we learned there were two options.

The first was a liquid form.

屆申請處方時，

我們得知有兩個選項。

It's immediate effect varied upon body type

第一種是藥水。

and could take anywhere from two hours to two days

藥效快慢因體質而異，

從兩小時到兩天不等。

to go into effect.

We were also informed that it can burn the throat going down

我們也被告知 喝下時可能灼傷喉嚨，

and patients have a hard time swallowing it

because sometimes they have gag reflexes

患者會難以嚥下，

and it's hard for family members to watch.

有時病人會有作嘔反射，

The cost of that medicine was 400 dollars.

家人看了會不忍。

這藥價是 400 美元。

The second option was a pill.

It's effect much faster,

第二種是藥丸。

much easier for patients to swallow.

藥效快多了，

The cost of this was 4,000 dollars.

讓患者更容易吞嚥。

此藥價是 4,000 美元，

Neither were covered by insurance.

兩藥皆非保險給付。

Our health care system policies and regulations

are intended to protect and support us.

我們的醫療保健系統和政策法規

What patient scenarios and experiences are yet to be designed,

旨在保護和支持我們。

哪些臨終情境和體驗待重新設計?

what systems need to be revisited?

Because at this moment,

there was a lot here that could use a redesign.

哪些系統需被重新審視？

因為此刻，

We were so close to bringing her peace.

仍有許多值得重新設計之處。

Her dying was complicated enough.

眼看我們就能讓她平靜了。

How difficult does the system need to be

她的臨終已經夠複雜了。

in order to give a patient a peaceful death?

整個作業機制需要多複雜，

才能讓病人平靜地面對臨終。

The price-tag difference was eye-popping for sure,

but it wasn't our decision to make, this was our mom's call.

無疑地這兩種藥的價差驚人，

She said,

但這得由母親作主，而非我們。

"That's crazy. Are you kidding me?

I'll take the 400-dollar one, I'm leaving anyway."

她說「這太瘋狂了。在開玩笑嗎？

(Laughter)

就用 400 元的，我都要走了。」

（笑聲）

The night before her death,

we had a dinner party at her house at her request.

在她離世的前一晚，

應她的要求，我們在家辦了晚宴。

We made a beautiful feast

of roast chicken, colorful salad,

我們張羅了盛宴：

strawberry shortcake, sparkling wine.

有烤雞、繽紛的沙拉、

We made a playlist of her favorite tunes.

草莓鮮奶油蛋糕、氣泡酒。

It was a mix of the Bee Gees, Dusty Springfield and Elvis.

我們以她的愛歌設計歌單。

包含：比吉斯、達絲提． 史普林菲爾和貓王。

We told stories, we laughed, she gave a toast.

She was so happy, she was glowing the whole night.

我們笑談往事，她舉杯祝酒。

她好開心，整晚神采奕奕。

The morning of her last day,

an end-of-life care assistant came to the house

她最後的早晨，

to help us through the process.

臨終照護助理來到家中

As preparations were underway,

I kept stealing glances at her to see how she was doing.

協助我們完成整個流程。

隨著籌備工作的進行，

我一直偷瞄她，看她狀態如何。

Every time I saw her,

her eyes were bright

and her mouth was smiling

每次我看她，

and she just kept giving me a thumbs up

她的眼神明亮，

她的嘴角微笑，

because she wanted us to feel brave.

她一直對我比「讚」

因為她希望我們勇敢。

We learned there were three medications in total.

The first was to slow down her heart rate.

我們得知：總共要服三個藥。

第一個藥，降低她的心率；

The second was for anti-nausea

and the third was her final medication.

第二個藥，減緩噁心；

The assistant,

第三個，就是臨終的藥。

before he handed her the medication, said

助理把藥遞給她之前，說道：

that by law, she had to declare out loud

that it was her intention to go to sleep and to not wake up.

依法，她必須大聲聲明：

By law, none of us could help her hold the cup or help her drink it,

就此長眠是她的意願。

she needed to do it for herself.

依法，誰都不能幫 她拿杯子或協助服藥，

And he warned her that it could burn and to take her time.

她必須自己完成。

他提醒她可能會有 灼燒感，慢慢來。

My mom took the cup with two hands

and pounded it back like a shot of whiskey.

母親用兩隻手拿著杯子，

(Laughter)

像喝小杯威士忌般 猛然一口飲下。

She looked at my dad and smiled,

（笑聲）

她看著父親並微笑，

closed her eyes.

And in 45 minutes she was gone.

閉上了眼睛。

45 分鐘後她便安息了。

I know the experience that we had is not common.

For many people,

我知道我們這樣的經歷並不常見。

they don't get the chance to say goodbye the way that we did.

有許多人，

沒能像我們這樣道別。

For some, death is full of uncertainty

and can often be a waiting game.

對有些人而言， 死亡則充滿了不確定性，

Watching our mom deteriorate wasn't easy

只能伺機而動。

and neither was caring for her.

看著母親的病況惡化並不好受，

There were many parts of the experience that were not beautiful.

照顧她亦然。

That involved the expected tubes, needles, bed pans

有許多經歷並不美好。

包含意料中的管子、針筒、便盆

and fluorescent lights.

Caring for her was possible

和刺眼的日光燈。

because my sister Nancy took on the difficulty

居家照顧她是可行的，

of moving mom into her house,

因為姐妹南希接下了重擔，

and my sister Jenny is a nurse and managed her pain until the very end.

讓母親搬進她家；

姐妹珍妮是位護士， 負責疼痛控制直到最後。

In an odd way, there was a lot of comfort

because we were figuring out this whole mess together.

出乎意料地，過程中也有許多慰藉

因為我們共同解決難題。

I can't imagine what it would have been like

if my mom lived in a state where this was not legal.

我無法想像這一切會是如何，

How long and how painful would it have been?

若母親住在此案未合法的州。

這一切會多漫長而痛苦？

This year, 30 US states are considering Death With Dignity.

今年，美國有 30 個州 正在考慮《尊嚴善終法》。

And what that means for actual legislation is unknown,

but what is clear

這離實際立法多遠仍屬未知，

is that there are a lot more people who want to have a say.

但很清楚的是：

有許多人想要發言權。

All over the world,

there are many cultures and families

世界各地，

who practice their own rituals of death.

不同的文化和家庭

These rituals are expressions

有各自奉行的臨終儀式。

這些儀式也是基於

based on their unique situations and environments.

各別情境和環境的表現。

If you could design your own death,

what would the experience be like,

若你能設計自己的臨終，

and how would you want it to feel?

那會是怎樣的體驗？

你希望是什麼樣的感覺呢？

I'm not a health care professional and I'm not an inventor of science.

我並非醫療照護專業 亦非科學創新者。

I'm a brand designer

that creates experiences by connecting with human emotion.

我是位品牌設計師，

透過連結人類情感創造體驗。

What I know from my mom's experience

is that it gave us the tools to talk about death.

我從母親的經歷學到：

By sharing her story with friends and strangers,

這給我們談論死亡的工具。

透過與朋友和陌生人 分享她的故事，

I've learned there is a lot of curiosity behind this.

我得知人們對此充滿好奇。

By having the conversation,

it helps us to perhaps reframe or even rebrand death

透過對話，

from feeling scary or desolate or bleak

協助我們重新構架甚或重塑死亡：

to re-imagining it as honest, noble and brave.

從感到害怕、荒涼或淒涼，

轉而重新想作是 誠實、崇高、勇敢的。

My mom was born a fighter

and she became a designer at the end of her life.

我母親生為一名鬥士，

死為一名設計師。

Today, she would have turned 69 years old

and it's her birthday wish that I share her story with you.

今天是她 69 歲冥誕，

我和你們分享她的故事 是她的生日願望。

Death is a universal human experience.

死亡是普世的經驗。

What I've shared with you

is more than a conversation between myself and my family.

我與大家分享的

不僅是我和家人間的談話。

It's a conversation that belongs to all of us.

這也是場屬於所有人的對話。

Patients, doctors, healthcare providers, policy makers, family members,

患者、醫生、醫療照護者、 政策制定者、家人，

together we all have a say

in creating beautiful experiences from the very beginning,

我們都有發言權，

為的是共創美好的體驗，

but more importantly, at the end.

自始，但更重要的是，至終。

Thank you.

(Applause)

謝謝。

（掌聲）