Why we need to fight misinformation about vaccines | Ethan Lindenberger

92,758 views ・ 2019-07-24

TED


请双击下面的英文字幕来播放视频。

翻译人员: Gracia Chew 校对人员: Helen Chang
首先,我想与你们分享关于我家乡
俄亥俄州诺瓦克镇的事。
就如这个视频所提到的, 我来自诺瓦克,
一个人口大约15,000的极小镇子。
00:12
To start, I want to share with you guys something about my hometown
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若你想在诺瓦克做好玩的事情,
00:16
of Norwalk, Ohio.
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你可以去沃尔玛或者开半个小时的车 去做更有趣的事。
00:17
Now, as this video stated, I am from Norwalk,
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00:19
which is an extremely small town, about 15,000 people.
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我在诺瓦克生活了一辈子,
00:22
And really, in Norwalk, if you want to do something fun,
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是当地一所公立高中的高中生,
00:25
you go to Walmart or drive half an hour to something more interesting.
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这也是我真正喜欢诺瓦克的地方。
00:28
And for Norwalk, I've lived there for my entire life,
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我只是个平凡的小孩,
00:31
I'm a senior at the local public high school,
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领导辩论社,在教堂当志愿者。
在2018年的11月,
00:34
and you know, it's something to where I really enjoy my small town.
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00:37
And I'm just a normal kid, you know,
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我在Reddit贴文,
00:39
I lead debate clubs, I volunteer at my church.
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对于我正在经历且需澄清的问题求教。
00:42
And back in November of 2018,
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这个问题有在演说介绍中被提及,
00:45
I made a small Reddit post asking for advice
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并且涉及疫苗接种
00:47
on an issue that I was encountering that I needed some clarification on.
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和我没施打对抗一些疾病的预防针,
其中包括小儿麻痹症、麻疹、 流感、人类乳突病毒和肝炎。
00:52
And this issue, as was stated in the introduction,
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00:54
was something towards vaccinations
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这些预防针是同龄人 都会接种的正规疫苗。
00:56
and how I was not immunized against various diseases,
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我问的问题既简单又蛮奇怪,
00:59
including polio and measles, as well as influenza, HPV, hepatitis --
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因为我想接种疫苗。
01:03
the standard vaccine someone my age would receive.
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这的确蛮诡异,但它真的发生了,
01:06
Now, this question I asked was simple and pretty strange,
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继而变成一个众所周知的故事,
因为我想注射疫苗。
01:10
because, you know, I wanted to get vaccinated.
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所以这有点奇怪,而这故事 随后便进一步流传开来,
01:12
That's kind of weird, but it happened,
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在那之后我不仅接受采访 还与更多人谈话。
01:14
and then this turned into a public story,
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再次声明,我只是个普通的孩子, 不是个科学家,
01:16
because I wanted to get vaccinated.
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我不是非盈利组织的领导人, 而是一个相当随意的人,
01:18
So that was kind of strange, and then it blew up more,
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01:21
and I was doing interviews and talking to more people,
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我穿着连帽卫衣。
(笑声)
01:24
and again, I'm a normal kid, I'm not a scientist,
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因为这个问题和这个故事,
01:26
I don't lead a non-profit, I am a pretty casual person,
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因为我想接种疫苗
01:29
I'm wearing a hoodie.
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并处于有趣的状况,
01:31
(Laughter)
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我发现自己很快就被卷入
01:33
Because of this question and this story,
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发生在公共场合的一个 很重要的争议和讨论。
01:36
because I wanted to get vaccinated
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如今,我发现这些故事 与新闻头条大多蛮准确,
01:38
and this interesting situation I was in,
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01:39
I saw that I quickly was in this public setting
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比如:“在违抗反疫苗母亲后,
01:42
of an extremely important controversy and discussion taking place.
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俄亥俄州少年解释自己为何接种疫苗。“
01:46
Now, I saw that the stories and headlines were pretty accurate for most part,
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蛮准确,蛮真实。
而且,就如我所述,我在 参议院委员会面前作证,
01:50
you know, "After defying anti-vax mom,
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结果,他们说,
01:52
Ohio teen expresses why he got vaccinated."
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“这个自行接种疫苗的少年
刚在国会面前将母亲 反对疫苗接种的信念给撕毁了。”
01:54
Pretty accurate, pretty true.
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好吧,其实我
01:56
And, as stated, I testified in front of a Senate committee,
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并没那么做,但没关系。
01:59
so there, they said,
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02:00
"This teen who self-vaccinated
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一些新闻媒体甚至得寸进尺:
02:02
just ripped his mom's anti-vaxer beliefs in front of Congress."
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“‘天知道我为何还活着’:
02:05
OK, I didn't really do that, but that's fine.
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18岁少年终于接种疫苗 并抨击反疫苗父母。”
02:08
And certain news outlets took it a little further.
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我并没攻击父母,这一点也不准确。
02:13
"'God knows how I'm still alive':
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02:14
Teenager, 18, finally gets vaccinated and attacks his anti-vax parents."
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而且我的故事 实际上更多是与争论有关,
它是关于我妈何以坏而我何以好,
02:20
So I did not attack my parents, that's not accurate at all.
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以及我对她的苛责。
02:23
And you know, really, my story was more about controversy.
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不正确。
这并没有发生。
我从未对母亲无礼,
02:27
It was about how my mom was bad and I was good,
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即使在公共场合里表明
02:30
and I was ripping her a new one.
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她的信念是被误导而立的,
我也依旧称她为慈母, 而这是大家须理解的。
02:32
Not true.
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02:33
Not what was happening.
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02:34
I never was rude towards my mother,
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因为我认为在科学界里,
02:36
and even in public settings where I expressed
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02:38
how her beliefs were misinformed,
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了解疫苗重要性的人大多
02:40
I said that she was a loving mother, and that's important to understand.
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无法理解别人对接种疫苗的抗拒。
其实,我们可以将其与某人 不把孩子带到急诊室求医相比。
02:44
Because a lot of people, I think, in the scientific community
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02:46
that understand why vaccines are so important,
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这是极其危险的情况,
并显示他人在某种程度上 对孩子缺乏同理心。
02:49
can really be confused by someone who would not vaccinate.
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02:51
Really, we can compare it to someone not taking their child to the ER.
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实际上,我能理解这种情况。
但是,我母亲被消息误导,
02:55
That's a very dangerous situation to be in
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02:57
and it shows some lack of empathy towards your children in some regards.
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误信如果她深爱孩子就不该接种疫苗。
03:00
And really, I can understand that, I can.
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03:02
But my mom, she was misinformed and misled by sources that convinced her
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当我遭遇这个状况并与母亲谈话时,
它起初显然不顺利,
03:07
that if she was a loving parent, she wouldn't vaccinate.
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因为她认为我想做的事
会导致我患上自闭症 或变成残疾人士度过余生,
03:10
Now, when I encountered this and I talked to my mom,
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而我说我要这么做, 可惜不怎么成功,
03:13
it didn't obviously go well at first,
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03:15
because I was wanting to do something
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不怎么顺利。
但有趣的是
03:17
that she thought would either cause autism or maim me for the rest of my life,
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当我开始陷入这场境遇,
03:21
and I said I wanted to do this -- didn't really fly,
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接收媒体访问时,
我提出了一个
03:23
didn't really go well.
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并不正面的疑问:
03:24
But the thing that I found interesting
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我到底将自己卷入了什么?
03:26
was that when I had started to get into this circumstance,
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这是我经常问自己的,
因为再次声明,我不是专家, 只是个普通小孩,
03:29
do these interviews,
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03:30
there was one question I proposed.
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而我现在正与 CNN 和 Fox News 展开科学讨论,
03:32
Wasn't a positive one:
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03:33
What in the world have I gotten myself into?
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但我真的有促进讨论和点评 该课题的资格吗?
03:35
That's what I asked constantly,
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03:37
because, again, I am not an expert, I am a normal kid,
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很多人也基于充分的理由 提出这样的质疑,
03:40
and now I'm talking to CNN and Fox News about a scientific discussion
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可我从未声称自己不理解的事情,
03:43
that really, should I be facilitating, should I be commenting on?
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我只提及自己的亲身经历。
就连在参议院的听证会中,
03:47
And a lot of people questioned that, and for good reason.
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我只谈及假信息何以危险。
我母亲被 fb 等社交平台
03:50
But I never claimed things I didn't understand,
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03:52
I talked about my personal experiences.
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和各自平台散播险恶谎言的机构
03:54
And even at the Senate hearing,
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03:56
I just talked about how misinformation is dangerous.
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所误导。
03:58
My mom got a lot of her beliefs from social media, from Facebook
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我也发现当我在接受访问,
尽可能恭敬准确地发表意见时,
04:01
and from organizations that were allowing their platforms to push lies
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我收到了很多批评也激怒了很多人。
04:05
that were very dangerous.
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04:06
Now, I also saw that as I was doing this --
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当我为了提供证词而到访华盛顿时,
04:08
and I was doing this as respectfully as I could,
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我在参观办公楼的过程中,
04:11
as accurately as I could --
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三名女士和我一起进电梯
04:12
I was getting a lot of criticism, a lot of very angry people.
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并跟我说我的言论导致 她们的孩子被残害、杀害,
04:15
When I was in DC for that testimony I gave,
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因此我基本上就是希特勒。
04:17
I was looking around the office building
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那还真有意思。
04:19
and three ladies got in an elevator with me
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(笑声)
04:21
and said I'm the reason their children are being maimed and murdered
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实际上,大多数的少年、大多数的人 处于大部分的境遇时,
04:25
and I'm basically Hitler.
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一旦被指责, 就容易产生自我怀疑。
04:26
So that was fun.
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04:27
(Laughter)
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而那种怀疑会化为疑问, 进而致使人们退出。
04:29
So really, for most circumstances, for most teenagers and most people,
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因为当你有感兴趣的话题
04:34
when they get criticized, it leads to doubt.
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或者想参与的运动,
04:36
And that doubt leads to questioning, and that questioning leads to quitting.
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而你申明自己的立场并且说实话,
好主意无法避免被别人指责。
04:40
Because, when you have a topic that you're interested in,
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勇于面对批评对年轻人来说并非易事,
04:43
or a movement that you want to be a part of,
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而他们得付出很多以参加,
04:46
and you're taking a stance and saying what's true,
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04:48
good ideas don't avoid criticism.
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这些需要他们参与的重要议论。
我不是说我很了不起, 但重点在于
04:50
And for especially young people, they have a hard time dealing with that,
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04:53
and these important discussions that need young people to take a part in,
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通过参加这场运动 和这场重要的科学讨论,
以下的事发生了。
04:57
it takes a lot of commitment.
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04:58
I'm not saying that I'm amazing, but here's what's important:
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fb 更正了平台,
他们打算改变应对反疫苗内容的方式。
05:01
through me joining this movement and this important scientific discussion,
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亚马逊甚至去除含有关于 自闭症和疫苗的假信息的书籍。
05:05
here's what happened.
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而且最近,GoFundMe 平台 撤下反疫苗运动。
05:06
Facebook changed their platform.
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05:08
They were going to change how they approach anti-vax content.
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我们谈论的正是这类运动 如何带来实际的改变,
05:11
Amazon even removed misinformed books about autism and vaccines.
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并确切地影响着整个局势,
有效遏制欺骗他人、
05:14
And recently, GoFundMe took down anti-vax campaigns.
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05:16
We're talking about how movements like this are causing actual change,
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推广危险想法的假信息的传播。
现在,在我离开之前, 因为我只有很短的时间,
05:20
actually impacting the way this game is played
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我想给你们一句忠告。
05:22
and the misinformation that's lying to people
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05:24
and convincing them of very dangerous ideas.
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这整个演讲中的重点。
05:26
Now, before I leave, because I only have a short amount of time,
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你能做的和我所做到的。
我既没做了不起的研究
05:30
I want to give you one important thing to keep in mind.
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也没拿资料呈现给大家;
05:32
One important takeaway from this all.
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我并没与他人展开深广、 高智商的科学辩论。
05:34
What you can do and what I did.
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05:36
I didn't do amazing research and studies
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我所做的只是分享我的故事。
而那对大多数人来说已足够了:
05:40
and take information and present it to people;
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了解别人的亲身经历 和数据背后的真人。
05:42
I didn't have deep, intellectual, scientific debates with people.
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05:45
All I did was share my story.
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因为数据无法与人产生共鸣。
05:47
And that's enough for most people:
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人与人才能产生共鸣。
05:49
to understand the anecdotal experiences, the real people behind the data.
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而你必须将其谨记在心,
因为当你在谈论某个话题,
分享你的故事,分享重要的事,
05:54
Because data doesn't resonate with people.
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你必须保持真实。
05:56
People resonate with people.
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对数据、信息、话题的重要性
05:57
And you have to keep that in mind,
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05:59
because when you are talking about a topic,
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保持真实。
06:01
and you're sharing your story, and sharing what is important,
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如果别人在和我谈话时
问我:“疫苗为何重要?”
06:04
you stay authentic.
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我只会回答:
06:05
Stay authentic to the data, to the information,
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06:07
to the importance of this topic.
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“因为有人丧命,而那很重要。
06:09
If I was talking to an individual
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因为有儿童失去性命,而那很重要。
06:11
and they said, "Why are vaccines important?"
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06:13
I would say nothing alongside any other answer,
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因为我们正面临不该发生的疾病爆发。“
06:15
I would not in any way fathomably give them answer outside of:
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除此之外,我不会给出其他理由。
我相信,就像约翰·博伊尔所说的,
06:19
people are dying, and that's important.
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这些疾病应该在历史书里, 而不是在社会里。
06:21
And that children are dying, and that's important.
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为此,你们需要做出 捍卫真相的个人决定。
06:24
And that we're having disease outbreaks that should not be here.
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06:27
And I believe, as John Boyle put it,
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你们需要为自己做出个人的决定,
06:29
these diseases should be in history books and not in our communities.
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告诉自己:“这是准确的,这是真实的,
06:32
So because of that, you need to make a personal decision to stand up for truth.
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而这些谎言是不对的。”
因为我也是从个人范围内做起的。
06:36
You need to make a personal decision for yourself
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我从小镇来到参议院并非一日之事。
06:38
to say, "This is accurate, this is what's real,
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我不是上床睡觉,一醒来
06:41
and these lies are not OK."
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参议员 Isakson 就在眼前 问我关于疫苗的问题。
06:43
Because it started with me doing that on a personal level.
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我是逐步取得进展, 从我说的一句话开始:
06:45
I wasn't going from small town to Senate in a day.
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“这是真的,
06:48
It wasn't like, I go to bed, I wake up
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我妈妈不相信,但没关系。“
06:50
and there's Senator Isakson, asking me questions about vaccines.
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因为那不会改变事实,
不会改变准确与重要的东西。
06:53
It was a slow progression and it started with me saying,
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06:55
"This is true,
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而说实话,最重要的事无疑是
06:57
my mom doesn't believe it, but that's OK."
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“牢不可破”的整个概念: 不被别人的批评打倒。
06:59
Because that doesn't change the truth,
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07:01
doesn't change what's accurate and what's important.
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当你为了守护真相,挺身而出,
07:03
And honestly, the biggest thing,
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试着发起一场运动, 不要被他人的指责动摇。
07:06
this whole idea of unbreakable: remain unbroken.
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谢谢。
(掌声)
07:09
When you stand up for what's true and you have that criticism,
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07:12
and you're trying to cause a movement, don't sway.
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07:15
Thank you.
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07:16
(Applause)
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