My Mission to Change the Narrative of Mental Health | Glenn Close | TED

翻译人员: Li Jiaying 校对人员: Yanyan Hong

Pat Mitchell: 11 years ago, you, your sister --

帕特·米切尔（Pat Mitchell）：11 年前， 你，你的妹妹 ——

Glenn Close: 14 years ago.

格伦·克洛斯（Glenn Close）：14 年前。

PM: 14 years ago!

帕特：14 年前！

Your sister, your nephew and yourself made this courageous decision

你的妹妹、侄子和你自己 做出了这个勇敢的决定

to step forward and say,

挺身而出说：

"Our family has suffered from mental illness,"

“我们家庭饱受精神疾病的折磨”，

at a time when very few people were talking publicly.

而当时很少有人公开说这些。

What led to this decision for the family?

是什么导致了你们家庭做了这个决定？

GC: My sister Jessie, my younger sister, always the wild one --

格伦：我的妹妹杰西，我的妹妹， 她一直是个狂野的人——

my dad, who was a doctor, actually said,

我爸爸是一名医生，他说过：

"Pull up your socks, get back to work, get an education."

“拉起你的袜子， 回去工作，去上学。”

She came up to me one summer, having put her kids in the car,

有一年夏天，她把孩子送上车后来找我，

and she said, "I need your help.

她说：“我需要你的帮助。

I can't stop thinking about killing myself."

我无法停止想要自杀。”

I was in shock.

我很震惊。

I had absolutely no clue,

我完全不知道该怎么办，

no clue of what she was dealing with.

不知道她正面对的是什么。

So my mom and I were able to get her help.

所以我妈妈和我努力给她提供帮助。

Her son Calen suffers from schizophrenia.

她的儿子卡伦正被精神分裂症折磨。

Lives with schizophrenia.

他一直患有精神分裂症。

And together they came to me and said,

他们一起来找我说：

"We have -- we're trying to learn how to manage our illnesses,"

“我们曾经 —— 我们正在努力学习 如何控制我们的疾病，”

which in long-term recovery means you have to change meds.

从长远恢复的角度来看， 这意味着你必须更换药物。

It's how many meds? It's what --

有多少药物？什么[药物] ——

It's a process and it's a long process, and you have to be very resilient.

这是一个过程，一个漫长的过程， 你必须有很强的承受能力。

But they said, "We have found

但他们说：“我们发现，

that the stigma around what we are dealing with

我们所面对疾病带来的污名

can be worse than the diseases themselves."

可能比疾病本身更严重。”

When Calen came back from two years in a psychiatric hospital,

当卡伦在精神病院待了两年后回来时，

none of his friends came back.

他的朋友当时一个都没有回来。

They still haven't come back, even though he's become this advocate.

他们现在依然没有回来， 尽管卡伦已经成为了对抗疾病的拥护者。

It's incredible to me.

这对我来说太不可思议了。

So I said, because they're my family,

所以我说，因为他们是我的家人，

I said, "Of course, I will help you,

我说：“当然，我会帮助你，

but you have to do it with me

但你必须和我一起努力，

because it's not about me, it's about you, and it's about our family."

因为这不是为了我， 而是为了你，为了我们的家族。”

But their courage still brings me to my knees.

但是他们的勇气仍然让我敬佩。

Because no one was talking about it.

因为当时没人在谈论这些。

PM: And yet this silent epidemic,

帕特：然而，这种无声的流行病

which it still is in many ways, continues.

在许多方面仍然存在，仍在继续。

So you and your family took another step.

所以，你和你的家人采取了下一步行动。

You founded an organization called Bring Change to Mind.

你成立了一个名为 “改变心灵” 的组织。

GC: I learned about mental health advocacy at Fountain House in New York,

格伦：我在纽约的“活泉之家” 了解到心理健康倡导的知识，

and when we decided that I wanted to do something,

当我们决定我想要做点什么时，

I wanted to start an organization,

我想去成立一个组织，

many generous, wonderful people who had their own organizations,

许多慷慨且出色的人 他们都有自己的组织，

the head of Fountain House included,

包括“活泉之家”的负责人，

sat in that library, and one of them went online and said,

我们坐在图书馆里， 其中一人在网上搜索然后说：

"What's available? What's available?

“还有什么？还可以用哪个名字？

Oh, Bring Change to Mind. OK, let's use that."

噢，“改变心灵”。 好的，就让我们就这个吧。”

(Laughter)

（笑声）

I mean, I didn't even know I had to have a board.

我是说，我甚至不知道 自己得有一个理事会。

(Laughter)

（笑声）

So --

所以——

(Laughter)

（笑声）

PM: I think many people recognize that moment.

帕特：我想很多人都能想象到那一刻。

GC: Yeah.

格伦：是啊。

And that was, oh my gosh, that was a huge adventure.

那是，天啊，那是一次巨大的冒险。

And I thought that my main contribution

我本来以为我的主要贡献

would be making PSAs and things like that.

是制作公益广告之类的。

We have evolved.

我们已发展得很好。

We now have established over --

我们现在已经在——

it's 540 clubhouses in 43 states.

43个州建立了超过540个俱乐部。

(Applause)

（掌声）

And the thing that I'm very proud of are the kids, because it's peer-to-peer.

我非常引以为豪的是孩子们， 因为这是个人对个人的。

It's not high schools that write to us.

写信给我们的不是高中。

It's the kids that write to us.

给我们写信的是孩子们。

The kids say, "We want, we need

孩子们说：“我们想要，我们需要

a Bring Change to Mind club in our high school."

在我们的高中设立一个 “改变心灵”俱乐部。”

And I've met a lot of them, and they are phenomenal.

我见过他们中的很多人，他们是非凡的。

(Applause)

（掌声）

PM: And that is transformative.

帕特：这是变革性的。

GC: Yeah. I think there's about 14,000 kids now

格伦：是的。我想现在 有大约 14 万的孩子们，

with, you know, a waiting list always.

你知道，一直有一份等候名单。

PM: So providing this kind of peer-to-peer experience,

帕特：因此，提供这种点对点体验，

especially among teenagers,

尤其是青少年中

where the suicide rate and other forms of mental illness

自杀率和其他形式的精神疾病

have been just escalating,

正在不断上升，

was a big first step.

是重要的第一步。

GC: Yeah.

格伦：是的。

PM: But you took it beyond that. You went to Washington.

帕特：但是你做的不止于此。 你去了华盛顿。

You talked publicly about the lack of resources

你公开谈到缺乏

to treat families suffering with mental illness.

治疗患有精神疾病的家庭的资源。

There were some accomplishments, right? There have been some successes.

你已取得了一些成就，对吧？ 已经取得了一些成功。

GC: Yeah. It's actually very, very exciting.

格伦：是的。这其实非常非常令人兴奋。

And we're at a point where our government has a bipartisan bill.

并且我们正处于政府 有一个两党法案的节点。

They have put aside 8.5 billion dollars in the next 10 years

在接下来的 10 年中， 他们已经拨出 85 亿美元

to establish what we're calling,

来建立我们所谓的，

what they are calling Certified Community Behavioral Health Clinics

他们所谓的“认证的社区行为健康中心”

in every state of the union --

在联邦各州——

(Applause)

（掌声）

And whatever town or county needs them.

以及无论哪个城镇或县需要它们。

Look into it, because we all should have it in our counties, at least,

仔细想的话，因为我们都应该 在各县，至少在各个城镇，

in our towns, in our cities,

城市里都设置这样的诊所，

because actually we're in a crisis of care.

因为实际上我们正处于医疗危机之中。

PM: And, Glenn, I know that you were the first

帕特：而且，格伦，我知道你是第一个

to always say about this subject,

经常谈论这个话题的人：

"I'm not a mental health expert. I'm not a doctor.

“我不是心理健康专家。 我也不是医生。

I came into this for very personal reasons."

我之所以这样做 是出于非常私人的原因。”

But I'm sure there are many people listening to us today

但我敢肯定，今天 有很多人在听我们说话，

who are thinking, "Are there signs? Are there symptoms,

他们在想：“这个病有征兆吗？ 有什么症状吗，

are there things I should look for?"

有什么我应该注意的吗？”

You said yourself you didn't realize how much Jessie was suffering.

你说你自己没意识到 杰西受了多大的痛苦。

GC: Oh, not at all.

格伦：哦，一点也没有。

PM: What clues, what things did you see?

帕特：有什么线索，你看到了什么？

GC: First of all, I think --

格伦：首先，我想——

My sister Jessie wrote a book called "Resilience."

我妹妹杰西写了一本名为《韧性》的书。

She's so incredibly honest.

她非常诚实。

And she talks about her own journey with bipolar disorder,

她谈到了自己患躁郁症的经历，

but also her son, when he had his psychotic break at 19,

也谈到了她的儿子， 当他19岁时产生了精神崩溃，

she didn't know what was happening.

她不知道发生了什么事。

She didn't know what was going on.

她不知道发生了什么。

You know, he was thinking the television was speaking to him.

你知道，他以为电视机在和他说话。

He was afraid that the CIA was outside.

他害怕中央情报局就在外面。

She had no clue.

她毫无头绪。

And he would, you know, he'd be like this.

而且他会，你知道，他会像这样。

And it was a friend of hers who had taken psychiatry in college,

正巧她的一个朋友 在大学里学过精神病学，

who said, "Jess, let me spend a little time with him."

她说：“杰西，让我和他待一会。”

And she said, "I think he has schizophrenia."

然后她说：“我认为他患有精神分裂。”

And --

而且 ——

It was because of that friend.

正是因为那个朋友。

I mean, Jessie would have, of course, if that friend hadn't stepped up,

我的意思是，当然， 如果那个朋友没有站出来帮忙，

I'm sure, you know, found some answers to his behavior.

杰西肯定也会为他的行为找到一些答案。

But that's actually --

但实际上 ——

I think people hopefully are learning about that kind of thing.

我想最好人们能了解到这样的事。

But I think it's the anxiety, it's the depression,

但我认为，这是焦虑，是抑郁，

it's suicidal ideation,

是自杀想法，

it's food disorders that people can so easily hide.

是人们很容易隐瞒的食物失调。

And the thing you need to be --

而你需要

vigilant about is a change in behavior

保持警惕的是行为的改变，

that lasts over --

那种会一直持续下去的改变。

Like, yes, we all can be depressed for four or five days,

比如，是的，我们所有人 都可能情绪低落四到五天，

the weather changes, you've lost a boyfriend

天气会变化，你跟男友分了手，

or, you know, God forbid someone has -- you're mourning a death.

或你知道，上帝禁止任何人 —— 你在哀悼死亡。

But this is different.

但这是不同的。

And when you observe that, you have to say, "Are you OK?"

当你观察到这些时， 你必须问一句：“你还好吗？”

And even if they say yes,

而且，即使他们说 “还好”，

and you feel differently,

而你觉得不是，

you have to say it again.

你也必须再问一遍。

"Are you OK?"

“你还好吗？”

Until you get --

直到你明白 ——

what's happening.

发生了什么。

PM: And how are they today? Jessie and --

帕特：他们现在如何？杰西和 ——

GC: Oh, Jessie.

格伦：噢，杰西。

(Sighs)

（叹气）

Jess --

杰西 ——

I almost hate to use the words, it's so overused,

我都讨厌用这些词了，它被过度使用了，

but Jessie is my true hero.

但是杰西是我真正的英雄。

Both Calen and Jessie.

卡伦和杰西都是。

I have to tell you, she weeps.

我得告诉你，她在哭泣。

The meds are hard. She has emphysema.

药物治疗很难。她患有肺气肿。

She was a wild woman and smoked a lot of cigarettes.

她是个狂野的女人，抽了很多烟。

(Laughter)

（笑声）

But she weeps and says, "I don't want to be this way.

但她哭着说：“我不想变成这样。

And the meds, they're going to shorten my life."

还有药物，它们会缩短我的寿命。”

And she has six grandchildren.

而且她有六个孙辈。

Now, that's hard.

现在，这很难。

It's hard. And --

这很难。而且 ——

Sometimes I say --

有时候我会说 ——

She said to me once, "I guess I'm the family --"

她曾经对我说： “我想我是一家人里的 ——”

What is it, black sheep? No.

什么呢，害群之马？不。

I guess I'm -- it's not the experimental lamb.

我想我是 —— 也不是实验羔羊。

I forget the word. Anyway.

我忘了这个词了。无论如何。

Why, out of all of us, was it her? Why was it Calen?

为什么在我们所有人中会是她呢？ 为什么要是卡伦？

We've learned so much.

我们学到了很多。

But so for --

但同样如此 ——

I live across the yard from my sister.

我住在我妹妹的院子对面。

When I'm home, I'm over there all the time.

当我在家时，我一直住在那边。

Pippy, my dog, kind of has a thing going on

皮皮，我的狗和她的一只小狗

with one of her little dogs.

关系不太好。

(Laughter)

（笑声）

He won't admit it, but it's obvious.

它不会承认，但很明显。

(Laughter)

（笑声）

And I try, you know,

然后我试着，你知道，

I try to get her out of the chair.

我试着让她从椅子上下来。

You know, "Let's go for a drive."

我说，“我们去开车吧。”

You know, "Do you want to go walk around the block?

问她，“你想在街区里走走吗？

Let's get our other sister

让我们去找另一个姐妹

and, you know, let's just try to get,

然后，你知道，让我们试着

you know, movement and light.

运动一下和晒晒太阳。

So it's a constant thing.

我们一直这样做。

Now, Calen is a beautiful man.

现在，卡伦是个帅气的男人。

He's married to -- He's married.

他结婚了 —— 他结婚了。

He's been married for, I think, 10, 11 years.

我记得他结婚已有10、11年了。

And he's a painter. He's a painter.

而且他是个画家。他是个画家。

And --

而且 ——

He once, early on, after he came out of the hospital

有一次，在他出院后，

and he was brave enough to go to a local art class,

他勇敢地去了当地的美术课，

he decided that he should tell the teacher that he was living with schizophrenia.

他决定他应该告诉老师 他患有精神分裂症。

So he got up his courage and he said,

于是他鼓起勇气说：

"Sir, I just want you to know that I'm living with schizophrenia."

“老师，我只是想让你知道 我患有精神分裂症。”

And the teacher said,

然后老师说：

"Don't come back."

“你别回来了。”

(Audience) Oh...

（观众）哦...

He is a fabulous painter.

他是一位了不起的画家。

(Applause)

（掌声）

PM: This -- These stories,

帕特：这个 —— 这些故事确实提醒我们 ，

they do remind us of how big that stigma is still,

这种污名仍然很严重，

as one of the biggest barriers to people getting the help.

是人们获得帮助的最大障碍之一。

And Glen, there's just such gratitude that we all feel

还有格伦，我们都非常感激

for the courage that you had, and your --

你拥有的勇气，也感激你 ——

I know, but you fought for your sister and for your nephew, and for all.

我知道，但你为你的妹妹、 侄子和所有人而战。

GC: Yeah. Now we've got to scale it out.

格伦：是的。现在我们必须扩大规模。

We have to scale out this community health care system we have.

我们必须扩大现有 社区医疗保健系统的规模。

It's a crisis of care.

这是一场护理危机。

You know, the treatments are there.

你知道，治疗方法已经有了。

And they work, and people can recover.

而且它们有用，人们可以康复。

But you can't just treat people when they have a break,

但你不能只在人们休息的时候治疗他们，

and you give them a couple of meds.

然后只给他们服用几种药物。

You've got to be in it for the long haul.

你必须长期投入其中。

And we have to have structures like that across our country.

并且我们必须在全国范围内 建立这样的机构。

PM: And because of your work, we will have more

帕特：因为你的努力我们会有更多的机构

and because of the work of Bring Change to Mind and --

也要归功于“改变心灵”……

(Applause)

（掌声）

(Audience) Aww!

（观众）啊！

GC: Pippy!

格伦：皮皮！

(Laughter)

（笑声）

Here you are! Here you are!

你在这！你在这！

PM: This is Mr. Pip, everyone.

帕特：这是皮先生，各位。

(Laughter)

（笑声）

GC: Pippy!

格伦：皮皮！

PM: I think this is your mental illness companion.

帕特：我认为这是你的精神疾病伴侣。

GC: It is.

格伦：确实如此。

Do you have anything to say? Do you want to speak?

你有什么要说的吗？你还想说什么吗？

Good job!

做得好！

PM: Thank you, everyone.

帕特：谢谢大家。

GC: Thank you.

格伦：谢谢。