My Mission to Change the Narrative of Mental Health | Glenn Close | TED

Translator: ryan aziz Reviewer: Evarini Dairi

Pat Mitchell: 11 years ago, you, your sister --

11 tahun yang lalu, kau, adikmu...

Glenn Close: 14 years ago.

14 tahun yang lalu.

PM: 14 years ago!

14 tahun yang lalu!

Your sister, your nephew and yourself made this courageous decision

Adik, keponakan, dan dirimu sendiri membuat keputusan berani ini

to step forward and say,

untuk melangkah maju dan berkata,

"Our family has suffered from mental illness,"

“Keluarga kami menderita penyakit mental,”

at a time when very few people were talking publicly.

di saat hanya sedikit orang yang berani mengatakannya secara terbuka.

What led to this decision for the family?

Apa alasan keluarga mengambil keputusan ini?

GC: My sister Jessie, my younger sister, always the wild one --

Adikku, Jessie, selalu hidup bebas...

ayah adalah seorang dokter, sebenarnya berkata,

my dad, who was a doctor, actually said,

"Pull up your socks, get back to work, get an education."

“Pakai kaus kakimu, kembalilah bekerja, dan bersekolahlah.”

She came up to me one summer, having put her kids in the car,

Jessie mendatangiku suatu musim panas, setelah memasukkan anak-anaknya ke mobil,

and she said, "I need your help.

dia berkata, “Aku butuh bantuanmu.

I can't stop thinking about killing myself."

Aku tak bisa berhenti berpikir untuk bunuh diri.”

I was in shock.

Aku kaget.

I had absolutely no clue,

Aku sama sekali tak tahu,

no clue of what she was dealing with.

apa yang sedang dihadapinya.

So my mom and I were able to get her help.

Akhirnya, ibu dan aku berhasil membantunya.

Her son Calen suffers from schizophrenia.

Putranya, Calen, menderita skizofrenia.

Lives with schizophrenia.

Mengidap skizofrenia.

And together they came to me and said,

Mereka berdua mendatangiku dan berkata,

"We have -- we're trying to learn how to manage our illnesses,"

"Kami telah... kami mencoba belajar cara menangani penyakit kami,"

which in long-term recovery means you have to change meds.

untuk pemulihan jangka panjang artinya kau harus berganti-ganti obat.

It's how many meds? It's what --

Ada berapa banyak obat?

It's a process and it's a long process, and you have to be very resilient.

Prosesnya sangat lama, dan harus benar-benar ulet.

But they said, "We have found

Namun mereka berkata, “Kami telah mengetahui

that the stigma around what we are dealing with

stigma seputar penyakit kami

can be worse than the diseases themselves."

bisa lebih buruk daripada penyakit itu sendiri.”

When Calen came back from two years in a psychiatric hospital,

Setelah Calen keluar dari rumah sakit jiwa selama dua tahun,

none of his friends came back.

tak satu pun teman yang menghubunginya.

They still haven't come back, even though he's become this advocate.

Mereka tak pernah muncul, meski dia telah menjadi penggiat ini.

It's incredible to me.

Ini sungguh tak bisa dipercaya.

So I said, because they're my family,

Aku berkata, karena mereka adalah keluargaku,

I said, "Of course, I will help you,

“Tentu, aku akan membantu,

but you have to do it with me

tapi kalian harus melakukannya bersamaku

because it's not about me, it's about you, and it's about our family."

karena ini bukan soal aku, ini soal kalian, soal keluarga kita."

But their courage still brings me to my knees.

Keberanian mereka membuatku terharu.

Because no one was talking about it.

Karena tak ada yang membicarakannya.

PM: And yet this silent epidemic,

Namun epidemi terselubung ini,

which it still is in many ways, continues.

dalam banyak hal, masih terus berlanjut.

So you and your family took another step.

Kau dan keluarga mengambil langkah lain.

You founded an organization called Bring Change to Mind.

Kau mendirikan sebuah organisasi bernama Bring Change to Mind.

GC: I learned about mental health advocacy at Fountain House in New York,

Aku belajar soal advokasi kesehatan mental

di Fountain House di New York,

and when we decided that I wanted to do something,

saat memutuskan jika aku ingin melakukan sesuatu,

I wanted to start an organization,

aku mau membuat sebuah organisasi,

many generous, wonderful people who had their own organizations,

banyak orang murah hati dan luar biasa yang punya organisasi sendiri,

termasuk kepala Fountain House,

the head of Fountain House included,

sat in that library, and one of them went online and said,

duduk di perpustakaan itu, dan salah satu dari mereka online dan berkata,

"What's available? What's available?

"Apa yang tersedia?

Oh, Bring Change to Mind. OK, let's use that."

Bring Change to Mind. Baiklah, mari kita pakai itu.”

(Laughter)

(Tertawa)

Aku bahkan tak tahu jika aku harus punya dewan organisasi.

I mean, I didn't even know I had to have a board.

(Laughter)

(Tertawa)

So --

Jadi,

(Laughter)

(Tertawa)

PM: I think many people recognize that moment.

Kurasa banyak orang yang ingat momen itu.

GC: Yeah.

Ya.

And that was, oh my gosh, that was a huge adventure.

Dan, astaga, itu adalah petualangan besar.

And I thought that my main contribution

Kupikir kontribusi utamaku

would be making PSAs and things like that.

adalah membuat PSA atau semacamnya.

We have evolved.

Kami telah berkembang.

We now have established over --

Kami kini memiliki lebih dari...

it's 540 clubhouses in 43 states.

540 clubhouse di 43 negara bagian.

(Applause)

(Tepuk tangan)

And the thing that I'm very proud of are the kids, because it's peer-to-peer.

Hal yang sangat aku banggakan adalah anak-anak,

karena sifatnya berinteraksi langsung.

It's not high schools that write to us.

Bukan pihak SMA yang menulis pada kami.

It's the kids that write to us.

Anak-anaklah yang menulis pada kami.

The kids say, "We want, we need

Anak-anak berkata, “Kami ingin,

kami perlu klub Bring Change to Mind di SMA kami.”

a Bring Change to Mind club in our high school."

And I've met a lot of them, and they are phenomenal.

Dan aku telah berjumpa dengan mereka, dan semuanya sangat fenomenal.

(Applause)

(Tepuk tangan)

PM: And that is transformative.

Dan itu transformatif.

GC: Yeah. I think there's about 14,000 kids now

Ya. Aku rasa kini ada sekitar 14.000 anak

with, you know, a waiting list always.

bahkan selalu ada yang di daftar tunggu.

PM: So providing this kind of peer-to-peer experience,

Memberikan pengalaman interaksi langsung semacam ini,

especially among teenagers,

terutama di kalangan remaja,

where the suicide rate and other forms of mental illness

di mana tingkat bunuh diri dan berbagai penyakit mental lainnya

have been just escalating,

makin meningkat,

was a big first step.

menjadikan ini langkah awal besar.

Ya.

GC: Yeah.

Namun, kau melakukan lebih dari itu. Kau ke Washington.

PM: But you took it beyond that. You went to Washington.

Kau berbicara di depan umum tentang kurangnya sumber daya

You talked publicly about the lack of resources

to treat families suffering with mental illness.

untuk mengobati keluarga yang menderita penyakit mental.

There were some accomplishments, right? There have been some successes.

Ada sejumlah pencapaian, bukan? Beberapa prestasi yang diraih.

GC: Yeah. It's actually very, very exciting.

Ya. Itu sangat menyenangkan.

And we're at a point where our government has a bipartisan bill.

Kami telah mencapai tahap di mana pemerintah mengusulkan RUU lintas partai.

They have put aside 8.5 billion dollars in the next 10 years

Mereka telah menyisihkan 8,5 miliar dolar dalam 10 tahun kedepan

to establish what we're calling,

untuk membangun apa yang kita sebut,

what they are calling Certified Community Behavioral Health Clinics

Certified Community Behavioral Health Clinics,

in every state of the union --

di setiap negara bagian di AS.

(Applause)

(Tepuk tangan)

And whatever town or county needs them.

Di kota atau daerah mana pun yang membutuhkannya.

Look into it, because we all should have it in our counties, at least,

Coba lihatlah, sebab kita perlu memilikinya di setiap daerah,

in our towns, in our cities,

setidaknya di kota-kota kita,

because actually we're in a crisis of care.

karena sebenarnya kita sedang mengalami krisis kepedulian.

PM: And, Glenn, I know that you were the first

Glenn, aku tahu kau orang pertama

to always say about this subject,

yang selalu mengatakan hal ini,

"I'm not a mental health expert. I'm not a doctor.

"Aku bukan ahli kesehatan mental. Aku bukan dokter.

I came into this for very personal reasons."

Aku melakukan ini karena alasan pribadi.

But I'm sure there are many people listening to us today

Namun, aku yakin ada banyak orang yang mendengarkan kita hari ini

who are thinking, "Are there signs? Are there symptoms,

yang berpikir, “Apa ada tanda-tanda? Atau gejala,

are there things I should look for?"

apa ada hal yang harus kucari?”

You said yourself you didn't realize how much Jessie was suffering.

Kau sendiri bilang jika kau tak menyadari betapa menderitanya Jessie.

GC: Oh, not at all.

Oh, tak sama sekali.

PM: What clues, what things did you see?

Petunjuk apa, hal apa yang kau lihat?

GC: First of all, I think --

Pertama-tama kupikir,

My sister Jessie wrote a book called "Resilience."

Adikku Jessie menulis sebuah buku berjudul “Tangguh.”

She's so incredibly honest.

Dia sangat jujur.

And she talks about her own journey with bipolar disorder,

Dia bercerita soal perjalanannya sebagai pengidap gangguan bipolar,

but also her son, when he had his psychotic break at 19,

juga putranya, saat dia mengalami gangguan psikotik di usia 19 tahun,

she didn't know what was happening.

Jessie tak tahu apa yang terjadi.

She didn't know what was going on.

Dia tak tahu apa yang sedang terjadi.

You know, he was thinking the television was speaking to him.

putranya mengira TV sedang bicara padanya.

He was afraid that the CIA was outside.

Dia takut CIA ada di luar.

She had no clue.

Jessie tak mengerti.

And he would, you know, he'd be like this.

Jika putranya seperti ini.

And it was a friend of hers who had taken psychiatry in college,

Ada seorang teman Jessie mengambil psikiatri di perguruan tinggi,

who said, "Jess, let me spend a little time with him."

dan berkata, “Jess, biarkan aku bersamanya sebentar.”

And she said, "I think he has schizophrenia."

Dia pun berkata, “Kurasa putramu menderita skizofrenia.”

And --

Dan...

It was because of that friend.

Itu berkat temannya.

I mean, Jessie would have, of course, if that friend hadn't stepped up,

Jika teman Jessie itu tak bertindak,

I'm sure, you know, found some answers to his behavior.

menemukan beberapa jawaban atas perilakunya.

But that's actually --

Namun sebenarnya,

I think people hopefully are learning about that kind of thing.

semoga orang-orang belajar tentang hal semacam itu.

But I think it's the anxiety, it's the depression,

Aku pikir kecemasan, depresi,

it's suicidal ideation,

keinginan bunuh diri,

it's food disorders that people can so easily hide.

gangguan makanan bisa dengan mudah disembunyikan orang.

And the thing you need to be --

Hal yang perlu diwaspadai

vigilant about is a change in behavior

adalah perubahan perilaku

that lasts over --

yang berlangsung lama.

Like, yes, we all can be depressed for four or five days,

Seperti, kita semua bisa depresi selama empat atau lima hari,

the weather changes, you've lost a boyfriend

cuaca berubah, putus dengan pacar,

or, you know, God forbid someone has -- you're mourning a death.

atau, Tuhan melarang seseorang berduka atas kematian.

But this is different.

Namun, ini berbeda.

And when you observe that, you have to say, "Are you OK?"

Saat kau mengamati itu,

Kau harus berkata, “Apa kau baik-baik saja?”

And even if they say yes,

Meski mereka menjawab ya,

and you feel differently,

tapi itu terasa aneh,

you have to say it again.

Kau harus bertanya kembali,

"Are you OK?"

“Apa kau baik-baik saja?”

Until you get --

Hingga kau mengetahui

what's happening.

apa yang terjadi.

PM: And how are they today? Jessie and --

Apa kabar mereka sekarang? Jessie dan...

GC: Oh, Jessie.

Oh, Jessie.

(Sighs)

(menghela napas)

Jess --

Jess...

Aku benci memakai kata-kata itu, kerena terlalu sering diucapkan,

I almost hate to use the words, it's so overused,

but Jessie is my true hero.

Jessie adalah pahlawan sejatiku.

Both Calen and Jessie.

Calen dan Jessie.

I have to tell you, she weeps.

Jujur saja, dia menangis.

The meds are hard. She has emphysema.

Obat-obatan membuatnya sulit. Dia menderita emfisema.

She was a wild woman and smoked a lot of cigarettes.

Dia adalah seorang wanita bebas dan perokok berat.

(Laughter)

(Tertawa)

But she weeps and says, "I don't want to be this way.

Namun dia menangis dan berkata, “Aku tak ingin seperti ini.

And the meds, they're going to shorten my life."

Obat-obatan ini, hanya mempersingkat hidupku.”

And she has six grandchildren.

Dia punya enam cucu.

Now, that's hard.

Sekarang, itu sulit.

It's hard. And --

Ini sulit. Dan...

Sometimes I say --

Terkadang aku berkata...

She said to me once, "I guess I'm the family --"

Suatu kali dia pernah berkata, “Aku rasa di keluarga...”

What is it, black sheep? No.

Apa itu, domba hitam? Bukan.

I guess I'm -- it's not the experimental lamb.

"Kurasa aku..." ini bukan domba percobaan.

I forget the word. Anyway.

AKu lupa kata itu. Intinya.

Why, out of all of us, was it her? Why was it Calen?

Mengapa, dari kami semua, harus dia? Mengapa harus Calen?

We've learned so much.

Kami telah belajar banyak.

But so for --

Namun begitulah...

I live across the yard from my sister.

Aku tinggal di seberang rumah adikku.

When I'm home, I'm over there all the time.

Saat pulang, aku selalu mengunjunginya.

Pippy, my dog, kind of has a thing going on

Pippy, anjingku, punya suatu hubungan

dengan salah satu anjing kecilnya.

with one of her little dogs.

(Laughter)

(Tertawa)

He won't admit it, but it's obvious.

Dia tak mau mengakuinya, tapi itu sangat jelas.

(Laughter)

(Tertawa)

And I try, you know,

Aku mencoba,

I try to get her out of the chair.

mengajaknya ke luar.

You know, "Let's go for a drive."

“Ayo, pergi jalan-jalan.”

You know, "Do you want to go walk around the block?

“Apa kau ingin berjalan-jalan di sekitar komplek?"

"Ayo, berkunjung ke rumah saudari yang lain."

Let's get our other sister

and, you know, let's just try to get,

supaya,

you know, movement and light.

bergerak dan segar.

Itu adalah hal yang konstan.

So it's a constant thing.

Now, Calen is a beautiful man.

Kini, Calen menjadi pria mengagumkan.

He's married to -- He's married.

Dia menikah dengan... Dia sudah menikah.

He's been married for, I think, 10, 11 years.

Dia sudah menikah selama 10, 11 tahun.

And he's a painter. He's a painter.

Dan dia seorang pelukis.

And --

Dan...

He once, early on, after he came out of the hospital

Dia pernah, saat awal-awal, setelah keluar dari rumah sakit

and he was brave enough to go to a local art class,

dia berani ikut kelas seni lokal,

he decided that he should tell the teacher that he was living with schizophrenia.

dan memutuskan untuk memberi tahu gurunya

jika dia pengidap skizofrenia.

So he got up his courage and he said,

Dia memberanikan diri berkata,

"Sir, I just want you to know that I'm living with schizophrenia."

“Pak, aku hanya ingin memberi tahumu jika aku mengidap skizofrenia.”

And the teacher said,

Dan gurunya berkata,

"Don't come back."

“Jangan kembali.”

(Audience) Oh...

(Penonton) Oh...

He is a fabulous painter.

Dia adalah pelukis yang luar biasa.

(Applause)

(Tepuk tangan)

PM: This -- These stories,

Cerita ini,

they do remind us of how big that stigma is still,

mengingatkan kita betapa besarnya stigma itu,

as one of the biggest barriers to people getting the help.

sebagai salah satu hambatan terbesar bagi orang untuk mendapatkan bantuan.

And Glen, there's just such gratitude that we all feel

Glenn, ada rasa syukur yang kami semua rasakan

for the courage that you had, and your --

atas keberanianmu,

I know, but you fought for your sister and for your nephew, and for all.

Kau telah berjuang untuk adik dan keponakanmu,

dan untuk semua orang.

Ya. Kini, kita harus meningkatkannya.

GC: Yeah. Now we've got to scale it out.

We have to scale out this community health care system we have.

Kita harus meningkatkan sistem layanan kesehatan masyarakat yang kita miliki.

It's a crisis of care.

Ini adalah krisis layanan.

You know, the treatments are there.

Pengobatannya ada di sana.

And they work, and people can recover.

Mereka bekerja, dan orang bisa pulih.

But you can't just treat people when they have a break,

Namun kau tak bisa hanya mengobati, saat mereka depresi,

and you give them a couple of meds.

dan memberi mereka beberapa obat.

You've got to be in it for the long haul.

Kau harus terlibat di dalamnya untuk jangka panjang.

And we have to have structures like that across our country.

Kita harus punya struktur seperti itu di seluruh negara kita.

Berkat yang kau kerjakan ini, kita akan punya lebih banyak

PM: And because of your work, we will have more

and because of the work of Bring Change to Mind and --

dan karena hasil kerja Bring Change to Mind dan...

(Applause)

(Tepuk tangan)

(Audience) Aww!

(Audiens) Aww!

GC: Pippy!

Pippy!

(Laughter)

(Tertawa)

Here you are! Here you are!

Ini dia!

PM: This is Mr. Pip, everyone.

Ini Tuan Pip, semuanya.

(Laughter)

(Tertawa)

GC: Pippy!

Pippy!

PM: I think this is your mental illness companion.

Kurasa dia adalah teman pendamping untuk penyakit mental.

GC: It is.

Benar.

Do you have anything to say? Do you want to speak?

Kau mau mengatakan sesuatu? Kau mau bicara?

Good job!

Kerja bagus!

PM: Thank you, everyone.

Terima kasih semuanya.

GC: Thank you.

Terima kasih.