My Mission to Change the Narrative of Mental Health | Glenn Close | TED

譯者: Lilian Chiu 審譯者: Shelley Tsang 曾雯海

Pat Mitchell: 11 years ago, you, your sister --

主持人：十一年前，你的妹妹——

Glenn Close: 14 years ago.

講者：十四年前。

PM: 14 years ago!

主持人：十四年前！

Your sister, your nephew and yourself made this courageous decision

你的妹妹、你的姪子，和你自己

做出了勇敢的決定，

to step forward and say,

站出來，說：

「我們的家庭為心理疾病所苦。」

"Our family has suffered from mental illness,"

at a time when very few people were talking publicly.

那時很少人會公開談這些。

What led to this decision for the family?

是什麼原因做出了 這個關於家庭的決定？

GC: My sister Jessie, my younger sister, always the wild one --

講者：我的妹妹，潔西，

她向來是孩子中狂野的那一個，

my dad, who was a doctor, actually said,

我爸爸是醫生，他說：

"Pull up your socks, get back to work, get an education."

「挽起襪子，回去工作， 去接受教育。」

She came up to me one summer, having put her kids in the car,

有年夏天她來找我，

她把孩子安置在車上， 對我說：「我需要你幫忙，

and she said, "I need your help.

I can't stop thinking about killing myself."

我無法停止想自殺的念頭。」

I was in shock.

我很震驚。

I had absolutely no clue,

我完全沒頭緒，

完全不知道她面對的是什麼狀況。

no clue of what she was dealing with.

So my mom and I were able to get her help.

所以我和我母親幫她找了協助。

Her son Calen suffers from schizophrenia.

她的兒子凱蘭，

有精神分裂症，

Lives with schizophrenia.

和精神分裂症共存。

And together they came to me and said,

他們一起來找我，說：

"We have -- we're trying to learn how to manage our illnesses,"

「我們試著去學習 如何處理我們的疾病，」

which in long-term recovery means you have to change meds.

在長期恢復上的意涵 就是你得改變你的用藥。

It's how many meds? It's what --

也就是有多少藥物？也就是——

It's a process and it's a long process, and you have to be very resilient.

這是一個過程，漫長的過程， 你得非常有韌性。

But they said, "We have found

但他們說：「我們發現

that the stigma around what we are dealing with

我們面臨的狀況被冠上的汙名

can be worse than the diseases themselves."

可能比疾病本身還要糟糕。」

When Calen came back from two years in a psychiatric hospital,

凱蘭在精神病院待了兩年，回來後，

none of his friends came back.

他的朋友都沒回到他身邊。

They still haven't come back, even though he's become this advocate.

他們仍然沒回到他身邊，

即使他都已經成了倡導者， 我覺得這是相當很不簡單的。

It's incredible to me.

So I said, because they're my family,

我說，因為他們是我的家人，

I said, "Of course, I will help you,

我說：「當然，我會幫你們，

but you have to do it with me

但你們也得和我一起努力，

because it's not about me, it's about you, and it's about our family."

因為重點不是我，

是你們，是我們的家庭。」

But their courage still brings me to my knees.

但他們的勇氣仍然讓我敬佩。

Because no one was talking about it.

因為沒有人敢談這個話題。

PM: And yet this silent epidemic,

主持人：但，這在許多層面上 都可說是種悄悄蔓延的流行病，

which it still is in many ways, continues.

它仍然持續著。

So you and your family took another step.

所以你和你的家人又跨出另一步。

You founded an organization called Bring Change to Mind.

你們成立了一個組織，

成為「將改變帶到大腦」。

GC: I learned about mental health advocacy at Fountain House in New York,

講者：我在紐約的「泉屋」 了解了心理健康倡議，

and when we decided that I wanted to do something,

當我們決定，我想做點什麼， 我想成立一個組織，

I wanted to start an organization,

many generous, wonderful people who had their own organizations,

許多慷慨又美好的組織負責人，

the head of Fountain House included,

包括泉屋的領導者，坐在圖書館裡，

sat in that library, and one of them went online and said,

其中一個人上網找： 「有什麼可以用的名字？

"What's available? What's available?

Oh, Bring Change to Mind. OK, let's use that."

喔，將改變帶到大腦， 好，就用它吧。」

(Laughter)

（笑聲）

我還不知道我得有個董事會呢。

I mean, I didn't even know I had to have a board.

(Laughter)

（笑聲）

So --

所以——

(Laughter)

（笑聲）

PM: I think many people recognize that moment.

主持人：我想很多人 對那種時刻都不陌生。

GC: Yeah.

講者：是啊。

And that was, oh my gosh, that was a huge adventure.

而那是，天，是場大冒險。

And I thought that my main contribution

我以為

我的主要貢獻會是 做公益廣告之類的。

would be making PSAs and things like that.

我們已經進化了。

We have evolved.

我們已經建立了超過——

We now have established over --

it's 540 clubhouses in 43 states.

五百四十個俱樂部會所，

遍及四十三州。

(Applause)

（掌聲）

And the thing that I'm very proud of are the kids, because it's peer-to-peer.

而讓我感到很驕傲的

是孩子們，因為這是點對點的模式，

It's not high schools that write to us.

寫信給我們的 不是高中，而是孩子們。

It's the kids that write to us.

The kids say, "We want, we need

孩子們說：「我們希望，我們需要

a Bring Change to Mind club in our high school."

在我們的高中裡設立一間 『將改變帶到大腦』。」

And I've met a lot of them, and they are phenomenal.

我和很多孩子見過面，他們很不凡。

(Applause)

（掌聲）

PM: And that is transformative.

主持人：那很具轉變性。

GC: Yeah. I think there's about 14,000 kids now

講者：是啊，我想現在有 大約一萬四千個孩子了，

with, you know, a waiting list always.

總是有等候名單。

PM: So providing this kind of peer-to-peer experience,

主持人：所以，提供 這種點對點的體驗，

especially among teenagers,

特別是在青少年族群中

where the suicide rate and other forms of mental illness

自殺率和其他形式的心理疾病一直在

have been just escalating,

不斷增加，

這是很重大的第一步。

was a big first step.

講者：是的。

GC: Yeah.

主持人：但你做的不只如此， 你去了華盛頓，

PM: But you took it beyond that. You went to Washington.

你公開談論資源的缺乏，

You talked publicly about the lack of resources

to treat families suffering with mental illness.

不夠治療為心理疾病所苦的家庭。

There were some accomplishments, right? There have been some successes.

已經有所成了對嗎？有些成果了。

GC: Yeah. It's actually very, very exciting.

講者：是的，其實很讓人興奮。

And we're at a point where our government has a bipartisan bill.

目前的進展是，我們的政府

有一個獲得兩黨支持的法案。

They have put aside 8.5 billion dollars in the next 10 years

他們已經撥出了八十五億 美金，在接下來十年

to establish what we're calling,

來建立我們所謂的，他們所謂的

what they are calling Certified Community Behavioral Health Clinics

認證社區行為健康 診所（CCBHCs），

in every state of the union --

建立在聯邦的每一個州——

(Applause)

（掌聲）

And whatever town or county needs them.

以及所有需要這類的鎮或郡。

Look into it, because we all should have it in our counties, at least,

去了解一下，

因為我們都應該要有這種診所， 至少在我們的郡內要有，

in our towns, in our cities,

在我們的鎮內、我們的城市內。

because actually we're in a crisis of care.

因為，實際上，我們 正處於照護危機中。

PM: And, Glenn, I know that you were the first

主持人：葛倫，我知道針對 這主題，你是第一這麼說的人：

to always say about this subject,

「我不是心理健康專家，

"I'm not a mental health expert. I'm not a doctor.

我不是醫生，我因為非常 私人的理由投入於此。」

I came into this for very personal reasons."

But I'm sure there are many people listening to us today

但我相信，今天很多 在聽我們談話的人心裡在想：

who are thinking, "Are there signs? Are there symptoms,

「會有徵兆嗎？會有症狀嗎？ 有什麼我該留意的嗎？」

are there things I should look for?"

You said yourself you didn't realize how much Jessie was suffering.

你自己說過，你之前 不知道潔西有多痛苦。

GC: Oh, not at all.

講者：完全不知道。

PM: What clues, what things did you see?

主持人：你有看到什麼線索？

GC: First of all, I think --

講者：首先，我想——我妹妹 潔西寫了一本書叫《韌性》。

My sister Jessie wrote a book called "Resilience."

She's so incredibly honest.

她非常誠實。

And she talks about her own journey with bipolar disorder,

她談到她自己和躁鬱症奮戰的旅程，

but also her son, when he had his psychotic break at 19,

也談到她的兒子，當他 在十九歲精神崩潰時，

she didn't know what was happening.

她不知道發生了什麼事。

She didn't know what was going on.

她不知道怎麼回事。

You know, he was thinking the television was speaking to him.

他以為電視是在跟他說話。

He was afraid that the CIA was outside.

他擔心中情局的人就在外面。

She had no clue.

她毫無頭緒。

And he would, you know, he'd be like this.

而他就會像這樣。

And it was a friend of hers who had taken psychiatry in college,

她有個朋友在大學時修過 心理學，這個朋友跟她說：

who said, "Jess, let me spend a little time with him."

「潔西，讓我跟他相處一下。」

And she said, "I think he has schizophrenia."

接著，她說：「我認為 他有精神分裂症。」

And --

而——

It was because of that friend.

是因為那個朋友，

I mean, Jessie would have, of course, if that friend hadn't stepped up,

當然如果那個朋友沒有 主動幫忙，潔西也一定會

I'm sure, you know, found some answers to his behavior.

找到一些答案來解釋他的行為。

But that's actually --

但，實際上——

I think people hopefully are learning about that kind of thing.

希望大家在學習了解這方面的事。

But I think it's the anxiety, it's the depression,

但我認為，焦慮、憂鬱、

it's suicidal ideation,

自殺意念、

it's food disorders that people can so easily hide.

飲食失調，才是大家很容易隱藏的。

And the thing you need to be --

而你需要——

vigilant about is a change in behavior

特別注意的是行為的改變，

that lasts over --

持續的——

Like, yes, we all can be depressed for four or five days,

是的，大家都有可能會 有四或五天都很憂鬱，

the weather changes, you've lost a boyfriend

也許是天氣改變、失去男友，或者，

or, you know, God forbid someone has -- you're mourning a death.

但願不會發生，為某人的死哀悼。

But this is different.

但這是不同的。

And when you observe that, you have to say, "Are you OK?"

當你觀察到那種改變，

你得說：「你還好嗎？」

And even if they say yes,

即使對方說還好，

and you feel differently,

若你感覺並非如此，

you have to say it again.

你就得再說一次。

"Are you OK?"

「你還好嗎？」

Until you get --

直到你得知——

what's happening.

發生了什麼事。

PM: And how are they today? Jessie and --

主持人：他們現在如何？潔西和——

GC: Oh, Jessie.

講者：喔，潔西。

(Sighs)

（嘆氣）

Jess --

潔西——

I almost hate to use the words, it's so overused,

我很不想用這個詞，它被濫用了，

but Jessie is my true hero.

但潔西是我心中真正的英雄， 凱蘭和潔西都是。

Both Calen and Jessie.

I have to tell you, she weeps.

我得告訴你，她會哭泣。

The meds are hard. She has emphysema.

吃藥很辛苦。

她有肺氣腫，她是 抽很多煙的狂野型女人。

She was a wild woman and smoked a lot of cigarettes.

(Laughter)

（笑聲）

But she weeps and says, "I don't want to be this way.

但她會哭著說： 「我不想要這個樣子。

And the meds, they're going to shorten my life."

而藥物，它們會縮短我的生命。」

And she has six grandchildren.

她有六個孫子孫女。

Now, that's hard.

那很不容易。

It's hard. And --

很不容易。且——

Sometimes I say --

有時，我會說——

She said to me once, "I guess I'm the family --"

她有次對我說：「我想， 我是家中的——」

What is it, black sheep? No.

是什麼詞，害群之馬？不對。

I guess I'm -- it's not the experimental lamb.

我想——也不是實驗白老鼠。

I forget the word. Anyway.

我忘了是什麼詞，總之，

Why, out of all of us, was it her? Why was it Calen?

我們這麼多人，為什麼是她？

為什麼是凱蘭？

We've learned so much.

我們學到了很多。

But so for --

但——我住在離我妹妹不遠的地方。

I live across the yard from my sister.

When I'm home, I'm over there all the time.

我在家時，我總會過去。

Pippy, my dog, kind of has a thing going on

我的狗，皮皮，有點……

和她的一隻小狗有種特殊連結。

with one of her little dogs.

(Laughter)

（笑聲）

He won't admit it, but it's obvious.

牠不會承認，但很明顯。

(Laughter)

（笑聲）

And I try, you know,

我會試著讓她離開椅子。

I try to get her out of the chair.

You know, "Let's go for a drive."

我會說：「咱們去兜風。」

You know, "Do you want to go walk around the block?

或：「你想去街上走走嗎？

Let's get our other sister

咱們去找另一個姐妹，咱們試著

and, you know, let's just try to get,

去動動，曬曬太陽。

you know, movement and light.

So it's a constant thing.

我們持續這麼做。

Now, Calen is a beautiful man.

凱蘭是個很美好的人。

He's married to -- He's married.

他娶了——他結婚了。 我想已經有十、十一年了。

He's been married for, I think, 10, 11 years.

And he's a painter. He's a painter.

他是個畫家。他是個畫家。

And --

而且——

He once, early on, after he came out of the hospital

早期，有一次，他出院之後，

and he was brave enough to go to a local art class,

他很勇敢，去參加了當地的藝術課。

he decided that he should tell the teacher that he was living with schizophrenia.

他決定他應該要告訴老師

他有精神分裂症。

So he got up his courage and he said,

於是他鼓起勇氣，說：

"Sir, I just want you to know that I'm living with schizophrenia."

「老師，我只是想讓你知道， 我患有精神分裂症。」

And the teacher said,

而老師說：

"Don't come back."

「別再回來了。」

(Audience) Oh...

（觀眾）喔……。

He is a fabulous painter.

他是很棒的畫家。

(Applause)

（掌聲）

PM: This -- These stories,

主持人：這些故事，

they do remind us of how big that stigma is still,

提醒我們那汙名仍然非常強烈，

as one of the biggest barriers to people getting the help.

是阻礙大家去求助的最大障礙之一。

And Glen, there's just such gratitude that we all feel

葛倫，我們都非常感激

for the courage that you had, and your --

你展現的勇氣，還有你的——

I know, but you fought for your sister and for your nephew, and for all.

我知道，但你為你的妹妹、 你的姪子，以及大家而戰。

GC: Yeah. Now we've got to scale it out.

講者：是。現在我們得擴大規模。

We have to scale out this community health care system we have.

我們得把現有的 社區健康照護系統擴大。

It's a crisis of care.

這是一場照護的危機。

You know, the treatments are there.

治療方式是存在的。

And they work, and people can recover.

且是有用的，能讓病人復元。

But you can't just treat people when they have a break,

但你不能只在人崩潰時去治療他們，

and you give them a couple of meds.

給他們幾顆藥就好。

You've got to be in it for the long haul.

你得長期投入。

And we have to have structures like that across our country.

而全國各地都必須要 有像那樣的結構。

PM: And because of your work, we will have more

主持人：因為你和「將改變帶到 大腦」的努力，我們會有更多。

and because of the work of Bring Change to Mind and --

（掌聲）

(Applause)

(Audience) Aww!

（觀眾）啊！

GC: Pippy!

講者：皮皮！

(Laughter)

（笑聲）

Here you are! Here you are!

你在這啊！你在這啊！

PM: This is Mr. Pip, everyone.

主持人：各位，這是皮皮先生。

(Laughter)

（笑聲）

GC: Pippy!

講者：皮皮！

PM: I think this is your mental illness companion.

主持人：我想這是 你的心理疾病伴侶。

GC: It is.

講者：是的。

Do you have anything to say? Do you want to speak?

你有什麼要說的嗎？你想發言嗎？

Good job!

幹得好！

PM: Thank you, everyone.

主持人：謝謝大家。

GC: Thank you.

講者：謝謝。